Re: fm ~ autoimmune??? reply to d n

[Guest guest]

I am being treated with Lyrica...a cousin of neurontin, which was developed to treat diabetic neuropathy, and is also being used with other neurological illnesses like MS. I also use a muscle relaxer three times a day. Had to get through a couple weeks of being sleepy, but sleepy didn't decrease my functioning any more than pain did, so now that I'm through the sleepy stage, I have less pain and more functional time. Nose wrote: So what do you mean that your doc is treating it as neurological, if you don't mind my asking? Do you mean with anti-seizure meds like Neurontin? HRiver DeHart wrote: my doc says its

neurological, which could affect all body systems, which explains the variety and variability of symptoms. since she's been treating it as neuroligical, I have less pain, and seem to have less immune system symptoms. river grace Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

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I take Lyrica and Cymbalta to treat the Nero pain. 150 aqt night of Lyrica, 50 in the morning, 90 of the Cymbalta at night. They help my pain better then the hard core drugs would. Christie -- Re: fm ~ autoimmune??? reply to d n I am being treated with Lyrica...a cousin of neurontin, which was developed to treat diabetic neuropathy, and is also being used with other neurological illnesses like MS. I also use a muscle relaxer three times a day. Had to get through a couple weeks of being sleepy, but sleepy didn't decrease my functioning any more than pain did, so now that I'm through the sleepy stage, I have less pain and more functional time. Nose wrote: So what do you mean that your doc is treating it as neurological, if you don't mind my asking? Do you mean with anti-seizure meds like Neurontin? HRiver DeHart wrote: my doc says its neurological, which could affect all body systems, which explains the variety and variability of symptoms. since she's been treating it as neuroligical, I have less pain, and seem to have less immune system symptoms. river grace Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

thank you, very helpful!!!

--- Christie wrote:

> Its been called a NeroImmune Disease, least the

> doctor from Pittsburgh Women

> s Hospital told me that. He comes to a city near

> mine so I don't have to

> travel up there to see him. He says when our flare

> ups come on , our immune

> system is effected.

>

>

>

> For a long time I was getting strep, mono, Otitus,

> (sp) Its bad ear

> infections, Thrush (So bad I looked like I had

> mumps) and I got pusie sores

> under my arms. I was told its the bodies way to get

> the infection out.

>

>

>

> Later I was told to be careful going near anyone

> with Scarlet fever, chicken

> poxes and flue. These I am more likely to get. I Now

> was told a just in case

> thing, watch out about the mumps going around. Like

> where am I going to go

> if my son, or father get sick?

>

>

>

> I think everyday the Doctors find out more about

> this painful disease. Some

> just don't tell the public. My Doctors try to treat

> it Nero wise. Also they

> want to try to get me to that REM sleep. I don't go

> into that even with

> sleeping pills. Also I have Hyper-somnia, which I

> never know when my body

> will get so tired I will fall out for hours, even if

> I am watching TV, or

> talking. No I am not a narc... I also go through

> times I cant sleep at all.

>

>

>

> With all our symptoms and everyday stress, no wonder

> our bodies cant fight

> flu or strep.. Our Immune systems gets over Loaded.

>

>

>

> Christie

>

>

>

> -- Re: fm ~ autoimmune??? reply to d n

>

> >

>

> >

>

> >

>

> > I am being treated with Lyrica...a cousin of

>

> > neurontin, which was developed

>

> > to treat diabetic neuropathy, and is also being

> used

>

> > with other neurological

>

> > illnesses like MS. I also use a muscle relaxer

> three

>

> > times a day. Had to get

>

> > through a couple weeks of being sleepy, but sleepy

>

> > didn't decrease my

>

> > functioning any more than pain did, so now that

> I'm

>

> > through the sleepy stage

>

> > I have less pain and more functional time.

>

> >

>

> >

>

> >

>

> > Nose wrote:

>

> >

>

> > So what do you mean that your doc is treating it

> as

>

> > neurological, if you don

>

> > t mind my asking? Do you mean with anti-seizure

> meds

>

> > like Neurontin?

>

> >

>

> > H

>

> >

>

> >

>

> >

>

> > River DeHart wrote:

>

> >

>

> > my doc says its neurological, which could affect

> all

>

> > body systems, which

>

> > explains the variety and variability of symptoms.

>

> > since she's been treating

>

=== message truncated ===

__________________________________________________

[Guest guest]

HI Everyone,

I was only diagnosed last summer and did not know what to expect this flare up is getting progressivley worse. Do you all have bouts with extreme nausa and feeling hot but not having a fever and no its not hot flashes I am all done with that and have been for a couple of yrs (post menapausal at 40) oh funny one with regards to that my gyn tried to tell me that I went thru the change early cuz I smoke cigs lol what a dork everything that would be wrong was casued by cigs ... the muscle spazs and the joint deteration what a jerk.

Also loss of apitite?? maybe its all the darn pills I am on I just feel like trash and am not sure if I found a new bug or ifts a symptom of the FM... I know its not from the osetoarthrits or one of the list of other things I have wrong with me... I am glad to know that most everyone seems to have more than just the FM not that I want anyone to suffer its just a relief to see others are in a similar postion.

Have a good night Jackie

Reply-To: Fibromyalgia_Support_Group To: Fibromyalgia_Support_Group Subject: Re: fm ~ autoimmune??? reply to d nDate: Sat, 15 Apr 2006 21:32:07 -0700 (PDT)thank you, very helpful!!!--- Christie wrote:> Its been called a NeroImmune Disease, least the> doctor from Pittsburgh Women> s Hospital told me that. He comes to a city near> mine so I don't have to> travel up there to see him. He says when our flare> ups come on , our immune> system is effected.> > > > For a long time I was getting strep, mono, Otitus,> (sp) Its bad ear> infections, Thrush (So bad I looked like I had> mumps) and I got pusie sores> under my arms. I was told its the bodies way to get> the infection out.> > > > Later I was told to be careful going near anyone> with Scarlet fever, chicken> poxes and flue. These I am more likely to get. I Now> was told a just in case> thing, watch out about the mumps going around. Like> where am I going to go> if my son, or father get sick? > > > > I think everyday the Doctors find out more about> this painful disease. Some> just don't tell the public. My Doctors try to treat> it Nero wise. Also they> want to try to get me to that REM sleep. I don't go> into that even with> sleeping pills. Also I have Hyper-somnia, which I> never know when my body> will get so tired I will fall out for hours, even if> I am watching TV, or> talking. No I am not a narc... I also go through> times I cant sleep at all. > > > > With all our symptoms and everyday stress, no wonder> our bodies cant fight> flu or strep.. Our Immune systems gets over Loaded. > > > > Christie> > > > -- Re: fm ~ autoimmune??? reply to d n> > >> > >> > >> > > I am being treated with Lyrica...a cousin of> > > neurontin, which was developed> > > to treat diabetic neuropathy, and is also being> used> > > with other neurological> > > illnesses like MS. I also use a muscle relaxer> three> > > times a day. Had to get> > > through a couple weeks of being sleepy, but sleepy> > > didn't decrease my> > > functioning any more than pain did, so now that> I'm> > > through the sleepy stage> > > I have less pain and more functional time.> > >> > >> > >> > > Nose wrote:> > >> > > So what do you mean that your doc is treating it> as> > > neurological, if you don> > > t mind my asking? Do you mean with anti-seizure> meds> > > like Neurontin?> > >> > > H> > >> > >> > >> > > River DeHart wrote:> > >> > > my doc says its neurological, which could affect> all> > > body systems, which> > > explains the variety and variability of symptoms.> > > since she's been treating> === message truncated ===__________________________________________________

[Guest guest]

Hi Jackie,

I think that we can blame Fibromyalgia for many things. I too get those horrid times when I am feeling really hot at completely inappropriate times,

Yes most of us seem to have a couple of other things wrong. I believe they interact. My Fibromyalgia got very much worse after I had a really bad bout of Cellulitis which finished with me being in hospital for two weeks.

Penny

On 16/04/2006 05:54:10, JACKIE Pinkerton (jackiecompton@...) wrote:> HI Everyone,> I was only diagnosed last summer and did not know what to expect this> flare up is getting progressivley worse. Do you all have bouts with extreme> nausa and feeling hot but not having a fever and no its not hot flashes I> am all done with that and have been for a couple of yrs (post menapausal> at 40) oh funny one with regards to that my gyn tried to tell me that I> went thru the change early cuz I smoke cigs lol what a dork everything that> would be wrong was casued by cigs ... the muscle spazs and the joint> deteration what a jerk.> Also loss of apitite?? maybe its all the darn pills I am on I just feel> like trash and am not sure if I found a new bug or ifts a symptom of the> FM... I know its not from the osetoarthrits or one of the list of other things> I have wrong with me... I am glad to know that most everyone seems to have> more than just the FM not that I want anyone to suffer its just a relief> to see others are in a similar postion.> Have a good night Jackie> > > -------------------------------------------------------------------------> > Reply-To: Fibromyalgia_Support_Group >

[Guest guest]

yes, i have the same symptoms... I am having a bad flare now.

Hot and cold flashes.. i feel so nauseated and have a weird gnawing pain all over my stomach. My legs hurt so bad and my calf muscles feel stiff... so it is hard to work... since I work on my feet. I feel achy and flu like. Depression is a given. Also, my interstitial cystitis is acting up.

I just popped some of my pain pills... hopefully it will take the edge off. It is hurting my arms to type. I think I am getting a cold too. Fun Fun!

Happy Easter all!!

Rewa

Re: fm ~ autoimmune??? reply to d n> > >> > >> > >> > > I am being treated with Lyrica...a cousin of> > > neurontin, which was developed> > > to treat diabetic neuropathy, and is also being> used> > > with other neurological> > > illnesses like MS. I also use a muscle relaxer> three> > > times a day. Had to get> > > through a couple weeks of being sleepy, but sleepy> > > didn't decrease my> > > functioning any more than pain did, so now that> I'm> > > through the sleepy stage> > > I have less pain and more functional time.> > >> > >> > >> > > Nose wrote:> > >> > > So what do you mean that your doc is treating it> as> > > neurological, if you don> > > t mind my asking? Do you mean with anti-seizure> meds> > > like Neurontin?> > >> > > H> > >> > >> > >> > > River DeHart wrote:> > >> > > my doc says its neurological, which could affect> all> > > body systems, which> > > explains the variety and variability of symptoms.> > > since she's been treating> === message truncated ===__________________________________________________

[Guest guest]

-- Re: fm ~ autoimmune??? reply to d n > > > > > > > > > > > > I am being treated with Lyrica...a cousin of > > > neurontin, which was developed > > > to treat diabetic neuropathy, and is also being > used > > > with other neurological > > > illnesses like MS. I also use a muscle relaxer > three > > > times a day. Had to get > > > through a couple weeks of being sleepy, but sleepy > > > didn't decrease my > > > functioning any more than pain did, so now that > I'm > > > through the sleepy stage > > > I have less pain and more functional time. > > > > > > > > > > > > Nose wrote: > > > > > > So what do you mean that your doc is treating it > as > > > neurological, if you don > > > t mind my asking? Do you mean with anti-seizure > meds > > > like Neurontin? > > > > > > H > > > > > > > > > > > > River DeHart wrote: > > > > > > my doc says its neurological, which could affect > all > > > body systems, which > > > explains the variety and variability of symptoms. > > > since she's been treating > === message truncated === __________________________________________________

[Guest guest]

I blame it for all ::Smirks:: Today its a pain day so I am not doing much for this Easter day. I hope you all are having a better day. Christie -- Re: fm ~ autoimmune??? reply to d n Hi Jackie, I think that we can blame Fibromyalgia for many things. I too get those horrid times when I am feeling really hot at completely inappropriate times, Yes most of us seem to have a couple of other things wrong. I believe they interact. My Fibromyalgia got very much worse after I had a really bad bout of Cellulitis which finished with me being in hospital for two weeks. Penny On 16/04/2006 05:54:10, JACKIE Pinkerton (jackiecompton@...) wrote:> HI Everyone,> I was only diagnosed last summer and did not know what to expect this> flare up is getting progressivley worse. Do you all have bouts with extreme> nausa and feeling hot but not having a fever and no its not hot flashes I> am all done with that and have been for a couple of yrs (post menapausal> at 40) oh funny one with regards to that my gyn tried to tell me that I> went thru the change early cuz I smoke cigs lol what a dork everything that> would be wrong was casued by cigs ... the muscle spazs and the joint> deteration what a jerk.> Also loss of apitite?? maybe its all the darn pills I am on I just feel> like trash and am not sure if I found a new bug or ifts a symptom of the> FM... I know its not from the osetoarthrits or one of the list of other things> I have wrong with me... I am glad to know that most everyone seems to have> more than just the FM not that I want anyone to suffer its just a relief> to see others are in a similar postion.> Have a good night Jackie> > > -------------------------------------------------------------------------> > Reply-To: Fibromyalgia_Support_Group >

[Guest guest]

I have found out that there are certain things that come with fibromyalgia It's called the fibro 5 Fibromyalgia,(FMS) Chronic fatigue syndrome,(CFS) Irritable bowel syndrome (IBS)Multiple Chemical Sensitivity (MCS) & restless leg syndrome (RLS) Add in no immune system .\,Chronic pain, Chronic Sinusitis,Chronic Bronchitis, Muscle spasms, Chronic flu-like symptoms, Insomnia, weight gain Chronic yeast infections that are under folds of skin like breasts,tummy,arm pits. & /or inner thighs (raw spots) high blood pressure, (due to pain & restless sleep ) no appetite due to pain & pills and a few more There is a list of symptoms over 64 different things that are a part of fibromyalgia. I had such extream pain in my hips & lower back that I wound up in a wheelchair for over 9 months in 2000 taking all kinds of pills. In order to continue to walk I still take them. According to the Social Security federal judge I am the worst case of fibromyalgia in this area he has ever seen. I have all 18 tender points & all 24 trigger points.I am very sure I don't want to be the worst case. I did all of the tests & so called cures. I use herbal teas to help the pills & to keep my meals down. Fibromites are very low potassium,magnesium,and all the B-vitamins( due to the loss of protiens) If you are taking any pills stay away from grapefruit & St. swort. They do not mix well with any type of

pill

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[Guest guest]

Hospitals and doctors are certainly my entire "real" social life lol. Thankfully I have hundreds of online friends. Actually online friends are really nice because when we don't feel up to it we don't have to interact, but we know everyone is there for us when we and they both feel up to it:)

Penny

> I see a Fibromyalgia - Rheumtologist Dr, then a Nero Dr. A gastric Dr and> my family Doctor. Then my Therapist and Phsycritrist. Sometimes I joke> this> is my whole social life. Well between my sons Doctors and mine it> feels that> way.> > > > I even had a gastric by pass to loose weight to slow down my degenative> back> disease but so far its not helped. LOL> > > > When some folks say Fibro is not progressive, I laugh cause it brings on> other things swiftly. Copd, Raynauds, IBS< Gerd, Migraines, eye problems,> bladder troubles and more> > > > Ironic is it not?> > > > I had Rheumatic fever as a teen, wonder if anyone else has.. Also had Mona,> > strep a lot as a teen also.> > > > Christie> > From: Deborah Currie> > Date: 04/21/06 19:21:15> > To: Fibromyalgia_Support_Group > > Subject: Re: fm ~ autoimmune??? reply to d n> > > > Hi Christie,> > I too have immune problems and when I get sick with a cold or flu> it's like> 10 times worse than someone who doesn't have fibro. I noticed