Re: New here: an Introduction

June 29, 2006

Hi and welcome. I to am new to the group. Joined a week ago when I was

going through a very bad week in my life and no where else to turn. Every one

here has been so supportive more so that I can say about my dr. and the wealth

of information you get here really helps. I was diagnoised with fibro about 5 or

6 yrs. ago and have been on different kinds of medicines. I know with me and my

family it is hard for them to think anything is wrong with me as long as I am

able to climb out of bed in the morning. They can't relate to my pain or if I am

having a bad day or not. I have learned that complaining doesn't do any good so

most of the time I say nothing and go through it alone and hope for a better day

tomorrow. Are you taking any meds. now? My family must think I am lazy

especially on my bad days when I find it difficult to move around let alone get

anything done. Luckily my kids are all grown and the only ones I have dependent

on me right now are my animals.If it weren't for them some days I don't think I

would botter too much for getting out of bed in the morning.

Sheila

June 29, 2006

,

Welcome and AMEN! to the hour by hour. Everyone here

is really great, you will find them all suportive and

uplifting.....glad you are here,

Deb

--- wrote:

> Hi, I'm new here, and fairly new to dealing with the

> daily ups &

> downs of fibro. I was diagnosed in February, but

> have been dealing

> with symptoms for many years - they just finally

> have a name. I'm

> sure everyone here knows how that is.

>

> I've got a very supportive and understanding

> husband. Although

> sometimes he really doesn't quite " get it " (why I

> can't always just

> make myself push through and keep going), we're able

> to talk about

> how I feel and how it makes him feel, and that

> ability is really

> helping us. I try hard to let him know what's going

> on with me rather

> than keeping it to myself (not wanting to sound like

> a complainer),

> and he tries hard to be patient and understanding on

> those days when

> I " just can't " .

>

> It's a long road, and one we all must walk hour by

> hour. Some hours

> are easier than others, but there's always the

> specter of the bad

> hours to remind me to fully enjoy the hours when I

> feel good and have

> energy to do things.

>

> Thanks for listening.

>

__________________________________________________

June 30, 2006

Thanks for the welcome. I'm not on prescription meds now, but with my

doctor's knowledge and 'blessing' am taking Aleve. It doesn't help

much, so I'm facing having to go see the doctor and talk it over with

her. I hate having to take anything, but equally as much, I hate

being in pain all the time. Admittedly, sometimes it's worse than

others, and sometimes it's barely there, but it seems like lately,

there's always this dark cloud hanging over me.

Today's a tough day. It started out bad, but I'm working on making it

better. I'm having a low-energy day because of lack of sleep / poor

sleep and then made it worse with my husband being upset with me

early this a.m. for not sticking to my diet & losing the 30 lbs. I

need to lose and for not increasing my running time like he thinks I

should. Like I said, it's being a tough day.

Hope yours is good.

>

> Hi and welcome. I to am new to the group. Joined a week ago

when I was going through a very bad week in my life and no where else

to turn. Every one here has been so supportive more so that I can say

about my dr. and the wealth of information you get here really helps.

I was diagnoised with fibro about 5 or 6 yrs. ago and have been on

different kinds of medicines. I know with me and my family it is hard

for them to think anything is wrong with me as long as I am able to

climb out of bed in the morning. They can't relate to my pain or if I

am having a bad day or not. I have learned that complaining doesn't

do any good so most of the time I say nothing and go through it alone

and hope for a better day tomorrow. Are you taking any meds. now? My

family must think I am lazy especially on my bad days when I find it

difficult to move around let alone get anything done. Luckily my kids

are all grown and the only ones I have dependent on me right now are

my animals.If it weren't for them some days I don't think I would

botter too much for getting out of bed in the morning.

>

> Sheila

>

June 30, 2006

Thank you for your support. Like I said, I started out having a bad day.

As the day wore on, and I received a lot of welcomed support from this

group, I started feeling better about things. My workload is still crazy -

I'm a certified paralegal in a small law office and do primarily probate

and estate planning work with an attorney that does mainly real estate,

and I've got four probates closing *right now!!*, all at the same time.

Feeling a little stressed.

I managed to burn off a little stress with a 2-mile run during lunch,

which helped my attitude some. DH is peeved because I'm up ten pounds from

a year ago (putting me at about 165 on a 5'3 " frame - too darn high), and

my endurance is less than half of what it was. We moved out to the

rainforest in the Pacific NW mainly to be able to hike the mountains right

from our backdoor, and we're now up to our jawlines in building a house.

I guess I'm pretty lucky - my FM is pretty mild, and I rarely am sidelined

for more than a day at a time. Now if I could just manage the brain fog &

carb cravings!

Thanks again.

mary

On Fri, 30 Jun 2006 17:13:12 -0700, River DeHart

wrote:

> You sound remarkably positive...

> I have a comment for your husband. When he can climb inside your skin,

> and feel what you feel, then he has the right to an opinion about you

> increasing your running time. My ex thought I should lose weight, and

> insisted that I run four miles a day, every day, and eight miles a day

> on weekends. He insisted that I wear the Chuck s he bought me

> 'cause he thought they were sexy. I now have plantar fascitis so bad

> that I can't run at all, and haven't been hiking in three years.

> Sometimes walking through the grocery store is too much, and just

> walking to the door to let my cat out can be excruciating. Maybe your

> husband should consider this, before he rags you any more about running.

> Does he want a mildly plump wife who can take a stroll with him, or a

> skinny wife who can't get herself to the bathroom?

> OK, that was my rant for the day. I'm off my soapbox for now. My

> apologies if I offended anyone with FM with that. Those of you who

> " know " me know I get snarly when I have a paper due, and I have two due

> Wednesday, plus four more short ones by the following Wednesday. What

> was I thinking when I went back to school....?

> River Grace

July 1, 2006

,

I hope you are feeling better today. I can't take aleve for my

fibro, I've tried it and even taken naproxen in prescription form

does no more for me than if I were to just drink a glass of water.

Two things that DO work for me though are taking prescription

strength ibuprophen (sometimes) and celebrex (nearly 100% of the

time). I am the type of person that absolutely HATES to take

anything for my fibro but just had to break down & do it because

without it I can't function so I do understand what you are going

through.

Also, my husband used to put a lot of pressure on me about losing

weight thinking he was " encouraging " me by saying things like 'honey

you'd feel better if you lost 30 lbs' or " honey, I know it's hard for

you so I'm going to 'help' you lose the weight " and I finally just

had to tell him that it hurt my feelings when he mentions it & it

makes it harder to me to do it. Also I'm really not that much

overweight & I have lost a bit (not as much as I need to though) and

I DO feel a bit better as a result but it's really something that I

have to conquer myself...

Anyway, I hope you are feeling better & wanted you to know I'm

thinking of you & welcome you to the list.

Amy

>

> Thanks for the welcome. I'm not on prescription meds now, but with

my

> doctor's knowledge and 'blessing' am taking Aleve. It doesn't help

> much, so I'm facing having to go see the doctor and talk it over

with

> her. I hate having to take anything, but equally as much, I hate

> being in pain all the time. Admittedly, sometimes it's worse than

> others, and sometimes it's barely there, but it seems like lately,

> there's always this dark cloud hanging over me.

>

> Today's a tough day. It started out bad, but I'm working on making

it

> better. I'm having a low-energy day because of lack of sleep / poor

> sleep and then made it worse with my husband being upset with me

> early this a.m. for not sticking to my diet & losing the 30 lbs. I

> need to lose and for not increasing my running time like he thinks

I

> should. Like I said, it's being a tough day.

>

> Hope yours is good.

July 2, 2006

Thanks, Amy, for your kind welcome. My husband takes the same tactic as

yours did - " Help, the sunny side of control. " It can be very frustrating,

and he often doesn't realize that his 'help' is not 'helping', but in fact

is causing me distress. It's often as frustrating for him as it is for me,

as he sees me being resistant to 'doing what he says' when he's just trying

to help - often because what I want is not 'help' but just acceptance that

I'm aware of the problem and am struggling with it. I don't need him to

'fix' me: that's *my* job.

I *am* feeling better, thanks. Thanks again for your response and caring.

D.