Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 Tasha Frisium is in the class of drugs known as benzoidapines (like Valium) and I imagine it is addictive. My daughter was on it at one stage and it worked brilliantly for 6 weeks, then lost effect. This is very common with that drug and can result in higher and higher doses being needed. For this reason, it is often cycled with other similar drugs to avoid dependence and loss of effectiveness. We had lots of problems after withdrawing Frisium, however, now we use it occasionally as an emergency drug to break a run of seizures. Jill At 09:36 AM 7/3/02, you wrote: >curious is anyone is on fresium-clobazam? we are getting it soon and trying >to substitue it for klonopin. we tried to take isabela off of the klonopin >already and in very small doses only one wean and she goes into status. > >our dr. says it is non-addicting and many other side effects dont occur. >just wanted any knowledged opinions. > >thanks, >tasha mom to isabela keto since 11/01, VNS 3/02, zonegran,vigabatrin, & >klonopin, 23 months and simply the light of my life > > >_________________________________________________________________ >Send and receive Hotmail on your mobile device: http://mobile.msn.com > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > List is for parent to parent support only. > It is important to get medical advice from a > professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 My daughter, Asha has been on Frisium for many years. It is addictive and is known to give good initial control that wears off and needs the dose increasing. This is what has happened to Asha over the years. She is on a high dose now.I want her off it and hope we can do so in the future now she is on the diet. It is a good drug to use to break up clusters on an occasional basis. Side effects? She has been on it with a combination of so many other drugs I don't know what she would be like without. Leita. > > curious is anyone is on fresium-clobazam? we are getting it soon and trying > to substitue it for klonopin. we tried to take isabela off of the klonopin > already and in very small doses only one wean and she goes into status. > > our dr. says it is non-addicting and many other side effects dont occur. > just wanted any knowledged opinions. > > thanks, > tasha mom to isabela keto since 11/01, VNS 3/02, zonegran,vigabatrin, & > klonopin, 23 months and simply the light of my life > > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Tasha, went straight from klonopin (clonazepam or rivotril here) to frisium/clobazam. Bit different though, because he had only been on the klonopin a short while (2 weeks from memory) before we dumped it - turned him hyper and worsened his seizures big time. The clobazam I don't think did a lot either, but we still kept him on it a long while (a year), big regrets on that one. He was on other meds as well, so don't know really what side effects it had for him. It was however not as sedating for as the other benzodiazepines (diazepam and nitrazepam), except for when we got up into the high dose range - at one stage he went as high as 35 mgs per day, at age 4. I believe the clobazam is easier to wean than the klonopin though, and we ended up taking off 5 mgs per fortnight. In hindsight, this was too quick, and we did see withdrawl seizures day 3-5 of each reduction, but he was pretty poorly controlled back then (pre diet) anyway. We had him down to 10 mgs when the first chickenpox dose hit, causing status, requiring large IV diazepam doses which replaced the clobazam, kind of like a 'forced' wean. He went home on high dose oral diazepam instead. Nearly had that weaned when the chickenpox hit again, this time nitrazepam replaced the diazepam following a midazolam infusion. We're reducing the nitrazepam at the moment, not a pleasant experience, wish we could put him to sleep for a month to wean it!!! All the benzos has been on have always been used with him in conjunction with at least 2 other AEDs, so not sure what part med toxicity has played in the side effects we have seen (drooling, ataxia, dysarthria etc). I am very surprised to hear that a Dr would say that any one of the benzodiazepines are not addictive, it can take longer for the 'addiction' to set in some compared to others, but my guess would be 2 weeks maximum before you see withdrawl problems if not weaned very very slowly. Maybe he meant not 'as addicitive' as klonopin, or else he intends to get Isabel very quickly on and off the clobazam, but I can't see that being a very safe way to do it. What about trying the wean in hospital with IV diazepam or lorazepam, sometimes a few regular quick high dose 'hits' to hopefully break the status can be more effective than transferring from one oral benzodiazepine to another. This may avoid the 'benzo merry go round' we have had on for 2 years. Is it only from med weans Isabela goes into status, what is her control like otherwise? Hill in NZ > curious is anyone is on fresium-clobazam? we are getting it soon and trying > to substitue it for klonopin. we tried to take isabela off of the klonopin > already and in very small doses only one wean and she goes into status. > > our dr. says it is non-addicting and many other side effects dont occur. > just wanted any knowledged opinions. > > thanks, > tasha mom to isabela keto since 11/01, VNS 3/02, zonegran,vigabatrin, & > klonopin, 23 months and simply the light of my life > > > _________________________________________________________________ > Send and receive Hotmail on your mobile device: http://mobile.msn.com > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.