Help with CCSVI questions please

March 3, 2011

Hi. Despite my ambivalence about CCSVI, I am still research and considering it,

given that I have been battling a farily moderate case of MS nonrelenting for

about 5 or more years now. I would like to ask a few questions to those who have

done it:

1) A patient at the center where I am considering having it done has informed me

that after the procedure, the patient is to take Plavix for 1 month and an

aspirin daily for the rest of their lives....Can others such as Janet and others

confirm if this was that they were advised as well and are you taking these two

meds?

2)I have been apprised that the MRV will entail the gad contrast agent. As

others have expressed, there are reports that the Gad agent is a heavy metal,

potentially toxic to the kidneys and can in rare cases cause a terrible terminal

condition. Since then I have had my MRIs without the contrast (thankfully my

neuro has agreed to that), but I am a bit hesitant about getting this gad

contrast for the MRV, especially as I was told by another patient that they put

a lot of the contrast into the body for the CRV. Can anyone comment on that?

3) What other, if any, follow up instructions are required or suggested

following CCSVI procedure.

Thanks. Alan.

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