RE: Help with CCSVI questions please

[Guest guest]

Hi, the ccsvi anti-coagulation protocols are varied. Some doctors use plavix

or lovenox or similar, some low dose aspirin, for 6 months, some suggest

nothing. Of course if the doctor is using stents, anti-coagulation is required

but simple angioplasty is less traumatic.

As far as diagnosis, some doctors insist on an mri with contrast, I had one for

diagnosis but Dr Zamboni uses ultrasound. The procedure itself uses an iodine

contrast agent in order to 'see' the problems in the veins. I don't think any

of these are 'good' for us but following my procedure I was given a lot of

liquids to flush the contrast from my kidneys.

Perhaps, you ought to look into different locations and their treatment methods.

Things are not standardized. There are 2 big ccsvi conferences in Europe this

month where doctors will be comparing notes. I know Dr Haacke is working on an

mri diagnosis, I believe the Hubbard foundation also uses his method but others

use dopplar ultrasound. So do more research.

>

> Hi. Despite my ambivalence about CCSVI, I am still research and considering

it, given that I have been battling a farily moderate case of MS nonrelenting

for about 5 or more years now. I would like to ask a few questions to those who

have done it:

>

> 1) A patient at the center where I am considering having it done has informed

me that after the procedure, the patient is to take Plavix for 1 month and an

aspirin daily for the rest of their lives....Can others such as Janet and others

confirm if this was that they were advised as well and are you taking these two

meds?

>

> 2)I have been apprised that the MRV will entail the gad contrast agent. As

others have expressed, there are reports that the Gad agent is a heavy metal,

potentially toxic to the kidneys and can in rare cases cause a terrible terminal

condition. Since then I have had my MRIs without the contrast (thankfully my

neuro has agreed to that), but I am a bit hesitant about getting this gad

contrast for the MRV, especially as I was told by another patient that they put

a lot of the contrast into the body for the CRV. Can anyone comment on that?

>

> 3) What other, if any, follow up instructions are required or suggested

following CCSVI procedure.

>

> Thanks. Alan.

>

[Guest guest]

1. It depends on whether or not you have a stent, after which drugs like Plavix

and then aspirin for life might be prescribed. Each place has their own rules

it seems but this is fairly standard.

I didn't have a stent and in Poland at Ameds they give aspirin (low dosage)

which I am to be on for 6 months. During time on blood thinners there are

various alternatives you shouldn't take (I can forward you a full list if you

are interested) as you'd run the risk of further thinning the blood.

2. In Poland they asked if I was allergic to the dye and as I'd never had any,

I didn't know but I do have many allergies so they gave me a shot of steroids

which I am really against but I was in a situation of everything all ready to

go, surgeon at the ready, everything, I didn't have much choice. All was fine.

3. Follow up. In Poland they told me:

straight after the procedure lie on your back for 6 hours, no moving, then

another 6 but if you need to move a bit you can but just not the leg that has

had the catheter.

wait 2 to 3 days before flying short distance, 3 to 5 before long haul.

stand or lie rather than sit for the first 2 weeks (I kept forgetting but it

didn't seem problematical).

do not push yourself, treat it as a holiday for the first 2 weeks and don't do

any exercise then.

others have told me drink plenty of water.

I really hope you decide to go for it, Alan. It ISN'T a cure but so many things

have improved and it is encouraging thinking that in time more improvements may

happen. The first 2 weeks were amazing, as the body changed daily. For 2

months I experienced most of the changes I have had, now at 4 months it is

slower but I am still noticing little things for the better. Still no balance

or walking unaided but the rest is back.

Good luck and if you have any more questions, I'm here.

Janet

To: mscured

From: alansamston@...

Date: Fri, 4 Mar 2011 01:59:00 +0000

Subject: Help with CCSVI questions please

Hi. Despite my ambivalence about CCSVI, I am still research and

considering it, given that I have been battling a farily moderate case of MS

nonrelenting for about 5 or more years now. I would like to ask a few questions

to those who have done it:

[Guest guest]

Thanks Janet,

That is interesting, as the center where I am to have the CCSVI does not use

stents (except in very rare cases) and yet I was told that I will be prescribed

Plavix for 1 month and the baby aspirin indefinitely, even though I told them I

will only accept balloons.

I had assumed the " dye " was the gad contrast, but since you said you were asked

if you were allergic, and I assume you had had the gad contrast in past MRIs,

then I now think that this " dye " is not gad contrast but some other type of dye.

Does anyone know what type of " dye " is being used for the MRV?

The place I am going also did not indicate any of that stuff about lying on the

back for 6 hours after the procedure and in fact I asked them if I can take the

long drive home the next day and they said " yes. " Yet they are a very reputable

place.

So I guess like you said each place may do things differently, as is the case

with medical procedures of all types, I have noticed.

Anyway, again, does anyone know what type of " dye " is used, if presumably it is

not the gad contrast?

P.S. I really do not want to take the baby aspirin for the rest of my life. I

would do 6 months like you mentioned. Yes I would really like to see the list of

things that I need to avoid in regard to thinning blood.

Thanks. Alan.

________________________________

To: MS-Cured <mscured >

Sent: Fri, March 4, 2011 8:40:07 AM

Subject: RE: Help with CCSVI questions please

 

1. It depends on whether or not you have a stent, after which drugs like Plavix

and then aspirin for life might be prescribed. Each place has their own rules it

seems but this is fairly standard.

I didn't have a stent and in Poland at Ameds they give aspirin (low dosage)

which I am to be on for 6 months. During time on blood thinners there are

various alternatives you shouldn't take (I can forward you a full list if you

are interested) as you'd run the risk of further thinning the blood.

2. In Poland they asked if I was allergic to the dye and as I'd never had any, I

didn't know but I do have many allergies so they gave me a shot of steroids

which I am really against but I was in a situation of everything all ready to

go, surgeon at the ready, everything, I didn't have much choice. All was fine.

3. Follow up. In Poland they told me:

straight after the procedure lie on your back for 6 hours, no moving, then

another 6 but if you need to move a bit you can but just not the leg that has

had the catheter.

wait 2 to 3 days before flying short distance, 3 to 5 before long haul.

stand or lie rather than sit for the first 2 weeks (I kept forgetting but it

didn't seem problematical).

do not push yourself, treat it as a holiday for the first 2 weeks and don't do

any exercise then.

others have told me drink plenty of water.

I really hope you decide to go for it, Alan. It ISN'T a cure but so many things

have improved and it is encouraging thinking that in time more improvements may

happen. The first 2 weeks were amazing, as the body changed daily. For 2 months

I experienced most of the changes I have had, now at 4 months it is slower but I

am still noticing little things for the better. Still no balance or walking

unaided but the rest is back.

Good luck and if you have any more questions, I'm here.

Janet

To: mscured

From: alansamston@...

Date: Fri, 4 Mar 2011 01:59:00 +0000

Subject: Help with CCSVI questions please

Hi. Despite my ambivalence about CCSVI, I am still research and considering it,

given that I have been battling a farily moderate case of MS nonrelenting for

about 5 or more years now. I would like to ask a few questions to those who have

done it:

[Guest guest]

This is tough to contend with, as for 5 years now since my MS onset I have

chosen only natural and alternative methods of dealing with MS. The idea of now

getting the " dye, " Plavix, and possible IV steroids and the aspirin for life is

just completely against everything I have been doing. But on the other hand I

have not had the kind of improvement that others have had with diet and detox

and my quality of life is, in my estimation, poor, to the point I am willing to

try this CCSVI, which I consider quite invasive, but argh the idea of contrast

dye, Plavix, etc is just awful. .... I suppose CCSVI truly is a conventional

medicine treatment--Hence that is why my insurance (I am in the U.S.) is going

to cover it and most of the people I talked to who have had CCSVI are actually

on or were on the interferons and not even familiar with the Best Bet Diet or

know that the dye agent is potentially harmful....Very tough decision here for

sure. .......... Of course if this treatment worked for EVERYONE, then it would

be a no brainer.

[Guest guest]

No, I had never had any contrast dye in either of my 2 MRIs.

Re the list of supplements to avoid if on blood thinners:

After extensive searching I came up with this list, in separate documents, all

of which are supposedly not good to mix with blood-thinning drugs. I have cut

down and removed some but by not all. I imagine that there wouldn't really be

much of a problem with them really with baby aspirin.

Another thought I have, is that surely in time this lot will be recognised as

being able to be used instead of aspirin as they achieve the same thing.

* Fish oil/Krill oil/Omega 3

* Grape Seed Extract (GSE)

* Horse Chestnut

* Pycnogenol

* Quercetin

* Rutin

* Serrapeptase

* Vitamin C

* Vitamin K

* Zinc

* Black cohosh

* Butcher's broom

* Co-enzyme Q10

* Ginkgo biloba

* Ginseng

* Hawthorn

* Hesperidin

* Niacin

* Green tea extract (EGCg)

Janet

To: mscured

From: alansamston@...

I had assumed the " dye " was the gad contrast, but since you said you were asked

if you were allergic, and I assume you had had the gad contrast in past MRIs,

I really do not want to take the baby aspirin for the rest of my life. I

would do 6 months like you mentioned. Yes I would really like to see the list of

things that I need to avoid in regard to thinning blood.

[Guest guest]

My husband was treated for CCSVI in August and November of 2010. Both times the

procedure worked well for 2 months and then he had narrowing reoccur. We are

considering a third treatment and he has follow up this week. Thankfully we

found someone in MN who will see him, we went to the Hubbards for the first two

treatments in San Diego. He did not need to be on any blood thinners and had no

complications.

Our thoughts are to try and stay as close to home as possible. We went to San

Diego and live in MN. I am glad we stayed within the US. At this time neither of

us are comfortable with placing stents unless the ballon can not open the vein

and it collapses during the procedure. The procedure is minimally invasive and

can be repeated with low risk. I have talked with people whose stent was plugged

after 2 months time. This is a personal decision and I just feel more

comfortable with not using stents in the neck until more is known on how they

will deal with closed stents down the road.

Take care and hope this helps

Amy

[Guest guest]

Thank you Janet for this valuable information you have provided.

So what you are saying is that the list below are products that thin the blood

further, so we don't want to thin the blood any further than what the aspirin

(or other prescribed meds following CCSVI) is already doing. To confirm, is that

what you are saying?

Did you say that the only medicine your doctor prescribed after the procedure

for your case was aspirin?

Did your facility have you lay for the 6 hours at the facility, or back at your

hotel room?

Being that I am a bit of a rebel, I could envision myself not taking the Plavix

that will be prescribed, but I am not sure yet.

Thank you. Alan.

P.S. Here in the states the gadolinium contrast for an MRI of a person with MS

is quite standard. My first few MRIs had the gad contrast, but since then I have

asked my neurologist for no-contrast only when performing a follow-up MRI. He

agreed. In fact, the reason I have stayed with him as a neuro, although I only

see him about 1 time per year, is that he is quite agreeable in that he did not

push me to have a lumbar puncture for diagnosis and he has not pushed the

Interferons on me (I think he knows they don't work well). In fact, although 5

years ago he told me diet doesn't help, when I saw him last year he actually

told me I may want to try to avoid gluten - of course I had already known that

for 5 years prior to him telling me. LOL.

________________________________

To: MS-Cured <mscured >

Sent: Sat, March 5, 2011 1:00:42 PM

Subject: RE: Help with CCSVI questions please

 

No, I had never had any contrast dye in either of my 2 MRIs.

Re the list of supplements to avoid if on blood thinners:

After extensive searching I came up with this list, in separate documents, all

of which are supposedly not good to mix with blood-thinning drugs. I have cut

down and removed some but by not all. I imagine that there wouldn't really be

much of a problem with them really with baby aspirin.

Another thought I have, is that surely in time this lot will be recognised as

being able to be used instead of aspirin as they achieve the same thing.

* Fish oil/Krill oil/Omega 3

* Grape Seed Extract (GSE)

* Horse Chestnut

* Pycnogenol

* Quercetin

* Rutin

* Serrapeptase

* Vitamin C

* Vitamin K

* Zinc

* Black cohosh

* Butcher's broom

* Co-enzyme Q10

* Ginkgo biloba

* Ginseng

* Hawthorn

* Hesperidin

* Niacin

* Green tea extract (EGCg)

Janet

To: mscured

From: alansamston@...

I had assumed the " dye " was the gad contrast, but since you said you were asked

if you were allergic, and I assume you had had the gad contrast in past MRIs,

I really do not want to take the baby aspirin for the rest of my life. I

would do 6 months like you mentioned. Yes I would really like to see the list of

things that I need to avoid in regard to thinning blood.

[Guest guest]

1. Yes, you are right, you don't want to thin the blood further.

2. I was only prescribed aspirin.

3. Ameds keep you in overnight after the procedure and a nurse comes to check

on you after 6 hours and helps you turn if needed.

4. My (ex) neuro used to laugh at me with my diet but was always eager to

collect data on diet/supplements. They are so close-minded.

Janet

To: mscured

From: alansamston@...

so we don't want to thin the blood any further than what the aspirin

....To confirm, is that

what you are saying?

Did you say that the only medicine your doctor prescribed after the procedure

for your case was aspirin?

Did your facility have you lay for the 6 hours at the facility, or back at your

hotel room?

P.S. although 5

years ago he told me diet doesn't help, when I saw him last year he actually

told me I may want to try to avoid gluten - of course I had already known that

for 5 years prior to him telling me. LOL.

[Guest guest]

Janet, I'm on the edge of making the appt. for the CCSVI procedure and read your

post.  Living alone makes me wonder how I can get meals prepared or anything

else for that matter.  Are there any others out there that live alone or do

they

have someone with them?  It's just something I'll need to consider.

Edie

________________________________

To: MS-Cured <mscured >

Sent: Fri, March 4, 2011 7:40:07 AM

Subject: RE: Help with CCSVI questions please

 

1. It depends on whether or not you have a stent, after which drugs like Plavix

and then aspirin for life might be prescribed. Each place has their own rules it

seems but this is fairly standard.

I didn't have a stent and in Poland at Ameds they give aspirin (low dosage)

which I am to be on for 6 months. During time on blood thinners there are

various alternatives you shouldn't take (I can forward you a full list if you

are interested) as you'd run the risk of further thinning the blood.

2. In Poland they asked if I was allergic to the dye and as I'd never had any, I

didn't know but I do have many allergies so they gave me a shot of steroids

which I am really against but I was in a situation of everything all ready to

go, surgeon at the ready, everything, I didn't have much choice. All was fine.

3. Follow up. In Poland they told me:

straight after the procedure lie on your back for 6 hours, no moving, then

another 6 but if you need to move a bit you can but just not the leg that has

had the catheter.

wait 2 to 3 days before flying short distance, 3 to 5 before long haul.

stand or lie rather than sit for the first 2 weeks (I kept forgetting but it

didn't seem problematical).

do not push yourself, treat it as a holiday for the first 2 weeks and don't do

any exercise then.

others have told me drink plenty of water.

I really hope you decide to go for it, Alan. It ISN'T a cure but so many things

have improved and it is encouraging thinking that in time more improvements may

happen. The first 2 weeks were amazing, as the body changed daily. For 2 months

I experienced most of the changes I have had, now at 4 months it is slower but I

am still noticing little things for the better. Still no balance or walking

unaided but the rest is back.

Good luck and if you have any more questions, I'm here.

Janet

To: mscured

From: alansamston@...

Date: Fri, 4 Mar 2011 01:59:00 +0000

Subject: Help with CCSVI questions please

Hi. Despite my ambivalence about CCSVI, I am still research and considering it,

given that I have been battling a farily moderate case of MS nonrelenting for

about 5 or more years now. I would like to ask a few questions to those who have

done it:

[Guest guest]

Hi Edie,

Great that you are going for it.

Your worry of living alone and getting meals prepared, etc. - was that in

relation to after the treatment?

If so, I wouldn't worry. I could've done it if I could walk. As it is my

husband does all the cooking here.

You will probably feel a lot better than you have for years with less fatigue

and brain fog. It isn't like you need to be a total convalescent, just take it

easy. As you feel less exhausted it is easy to overdo it without realising. I

have none of the early warning signals of fatigue that I used to get. I just

don't get tired but then suddenly, wham, I can't do any more. Luckily my

husband recognises the signals of my tiredness as I sure don't.

So, hope it goes well and RELAX and be ready to enjoy the new you.

Janet

To: mscured

From: neil_ea@...

Date: Wed, 9 Mar 2011 21:30:03 -0800

Subject: Re: Help with CCSVI questions please

Janet, I'm on the edge of making the appt. for the CCSVI procedure and read your

post. Living alone makes me wonder how I can get meals prepared or anything

else for that matter. Are there any others out there that live alone or do they

have someone with them? It's just something I'll need to consider.

Edie

________________________________

To: MS-Cured <mscured >

Sent: Fri, March 4, 2011 7:40:07 AM

Subject: RE: Help with CCSVI questions please

1. It depends on whether or not you have a stent, after which drugs like Plavix

and then aspirin for life might be prescribed. Each place has their own rules it

seems but this is fairly standard.

I didn't have a stent and in Poland at Ameds they give aspirin (low dosage)

which I am to be on for 6 months. During time on blood thinners there are

various alternatives you shouldn't take (I can forward you a full list if you

are interested) as you'd run the risk of further thinning the blood.

2. In Poland they asked if I was allergic to the dye and as I'd never had any, I

didn't know but I do have many allergies so they gave me a shot of steroids

which I am really against but I was in a situation of everything all ready to

go, surgeon at the ready, everything, I didn't have much choice. All was fine.

3. Follow up. In Poland they told me:

straight after the procedure lie on your back for 6 hours, no moving, then

another 6 but if you need to move a bit you can but just not the leg that has

had the catheter.

wait 2 to 3 days before flying short distance, 3 to 5 before long haul.

stand or lie rather than sit for the first 2 weeks (I kept forgetting but it

didn't seem problematical).

do not push yourself, treat it as a holiday for the first 2 weeks and don't do

any exercise then.

others have told me drink plenty of water.

I really hope you decide to go for it, Alan. It ISN'T a cure but so many things

have improved and it is encouraging thinking that in time more improvements may

happen. The first 2 weeks were amazing, as the body changed daily. For 2 months

I experienced most of the changes I have had, now at 4 months it is slower but I

am still noticing little things for the better. Still no balance or walking

unaided but the rest is back.

Good luck and if you have any more questions, I'm here.

Janet

To: mscured

From: alansamston@...

Date: Fri, 4 Mar 2011 01:59:00 +0000

Subject: Help with CCSVI questions please

Hi. Despite my ambivalence about CCSVI, I am still research and considering it,

given that I have been battling a farily moderate case of MS nonrelenting for

about 5 or more years now. I would like to ask a few questions to those who have

done it:

[Guest guest]

This is possibly a naive question, but if you were tested and found possibly

positive for CCSVI, what wisdom might there be (or not be) in taking a blood

thinner for a while to see if you were helped by this.  Wouldn't it  help the

blood flow past the blockages or narrowings and cause some of the positive

results that the " liberation " treatment does?

 

I had the ultrasound and MRI done and while he didn't see any narrowings of the

veins, he saw a lower drainage pattern (corkscrewed) that made him positive

there were some blockages he couldn't see with these two tests.  I'm still not

convinced, and yet as soon as I heard about Dr. Zamboni I felt this might be me,

so hate to give up without trying.

 

Any thoughts?

 

Sheila

 

--- Janet Orchard schrieb am Sa, 5.3.2011:

Von: Janet Orchard

Betreff: RE: Help with CCSVI questions please

An: " MS-Cured " <mscured >

Datum: Samstag, 5. März, 2011 19:00 Uhr

 

No, I had never had any contrast dye in either of my 2 MRIs.

Re the list of supplements to avoid if on blood thinners:

After extensive searching I came up with this list, in separate documents, all

of which are supposedly not good to mix with blood-thinning drugs. I have cut

down and removed some but by not all. I imagine that there wouldn't really be

much of a problem with them really with baby aspirin.

Another thought I have, is that surely in time this lot will be recognised as

being able to be used instead of aspirin as they achieve the same thing.

* Fish oil/Krill oil/Omega 3

* Grape Seed Extract (GSE)

* Horse Chestnut

* Pycnogenol

* Quercetin

* Rutin

* Serrapeptase

* Vitamin C

* Vitamin K

* Zinc

* Black cohosh

* Butcher's broom

* Co-enzyme Q10

* Ginkgo biloba

* Ginseng

* Hawthorn

* Hesperidin

* Niacin

* Green tea extract (EGCg)

Janet

To: mscured

From: alansamston@...

I had assumed the " dye " was the gad contrast, but since you said you were asked

if you were allergic, and I assume you had had the gad contrast in past MRIs,

I really do not want to take the baby aspirin for the rest of my life. I

would do 6 months like you mentioned. Yes I would really like to see the list of

things that I need to avoid in regard to thinning blood.

[Guest guest]

Hi Sheila

I think it's best to move further forward with your CCSVI investigations as when

one has stenosis/narrowing/blockages nothing will really help while those

vascular issues are still there.

I have been on drugs which open my veins for a few years now and whilst they

helped the blood get to my toes, they still didn't help like the procedure.

My feet canged to a proper skin colour whilst on the table much to Mr. Reid's

delight (the vascular surgeon who is with the EHC). Blood thinners will thin

your blood but it won't help the flow of it - which it sounds is definitely

being impeded by stenosis/blockage or some sort of vascular malformation.

I think you should follow the advice Janet has given us regarding the

blood-thinning supplements rather than taking any drugs and then continue

forward in your CCSVI investigation. Just remember that if your doctor doesn't

have the correct equipment or the correct training, it will be tough to get an

undeniable dignosis of CCSVI.

If my reply has come through twice, my Hotmail account is playing up so I

apologise if this has happened.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: sheilat252002@...

Date: Sun, 13 Mar 2011 13:47:56 +0000

Subject: RE: Help with CCSVI questions please

This is possibly a naive question, but if you were tested and found possibly

positive for CCSVI, what wisdom might there be (or not be) in taking a blood

thinner for a while to see if you were helped by this. Wouldn't it help the

blood flow past the blockages or narrowings and cause some of the positive

results that the " liberation " treatment does?

[Guest guest]

I have the same question but how safe is taking a blood thinner indefinitely?

>

> This is possibly a naive question, but if you were tested and found possibly

positive for CCSVI, what wisdom might there be (or not be) in taking a blood

thinner for a while to see if you were helped by this.  Wouldn't it  help the

blood flow past the blockages or narrowings and cause some of the positive

results that the " liberation " treatment does?

[Guest guest]

>

> Hi Sheila

> I think it's best to move further forward with your CCSVI investigations as

when one has stenosis/narrowing/blockages nothing will really help while those

vascular issues are still there.

>

>

Response to above: Sometimes people are tested and found to have blockages but

get treated with CCSVI and have no improvement. There are people such as

Kopera, Yvette our moderator, Terry Wahls, Sue Ellen Dickinson, Grace,

Ken Presner, Dudley Delaney, Ann Boroch, Professor Jelinek, others I

know only by first name,such as (stem cells), (raw foods), and

Cara (chelation and candida cleansing), Ann Sawyer and Crystal (BBD), Kathy (cal

EAP injections 3x per week for 7 years) and others who are in remission (or very

near full remission) without having ever been tested and treated for CCSVI....

What I am saying is CCVI may help some but there are other ways that people have

recovered from MS. CCSVI is not the only way. But it is an option for those who

have tried so many things that haven't worked.

I am still very much on the fence about CCSVI. I can still walk and drive and do

all my basic daily activities of living independently, although I cannot work

due to fatigue, cog fog, vision, and pain. So I am really on the fence.

[Guest guest]

My take on this is that those who have reversed their ms with diet obviously do

not have physical deformities like webs, nonfunctioning valves or crimps due to

external pressure because no diet or blood thinning supplement can fix those

problems although they may improve flow a bit and for PWMS, even a small

improvement is a big thing. But if there is a physical problem adversely

affecting bloodflow, getting it fixed would offer far greater benefit and then

supporting it with the diet/supplements.

Also, for what it is worth, one of the most common improvements at this point in

time is cogfog and fatigue, followed by bladder, mobility is more difficult,

although it can happen.

> >

> > Hi Sheila

> > I think it's best to move further forward with your CCSVI investigations as

when one has stenosis/narrowing/blockages nothing will really help while those

vascular issues are still there.

> >

> >

>

> Response to above: Sometimes people are tested and found to have blockages but

get treated with CCSVI and have no improvement. There are people such as

Kopera, Yvette our moderator, Terry Wahls, Sue Ellen Dickinson, Grace,

Ken Presner, Dudley Delaney, Ann Boroch, Professor Jelinek, others I

know only by first name,such as (stem cells), (raw foods), and

Cara (chelation and candida cleansing), Ann Sawyer and Crystal (BBD), Kathy (cal

EAP injections 3x per week for 7 years) and others who are in remission (or very

near full remission) without having ever been tested and treated for CCSVI....

>

> What I am saying is CCVI may help some but there are other ways that people

have recovered from MS. CCSVI is not the only way. But it is an option for those

who have tried so many things that haven't worked.

>

> I am still very much on the fence about CCSVI. I can still walk and drive and

do all my basic daily activities of living independently, although I cannot work

due to fatigue, cog fog, vision, and pain. So I am really on the fence.

>