Where Do I Start?! Help!

[Guest guest]

newbie here... thought i would finally post. it has been great to read all the

support you

give to each other. it really is beautiful.

i am 31 and was diagnosed with fibro in september 2005. but i'm sure i've had it

for much

longer. aren't we all?

last year i started having a lot of hip pain. enough to keep me off my usually

very active

feet. i tried to just keep pushing myself but it just came down to stubbornness

about not

wanting to be diagnosed with fibro. so i waited to see a doctor. when my GYN

asked if i

had fibro (before i was diagnosed) i knew it was time to see a rheumatologist.

but getting

a referral to one here while on medicaid takes about 6 months. anyway, the rest

is history.

i've had severe migraines since i was about 14. sometimes they are so bad i have

to go to

the emergency room and get some really strong meds. i've had to go so often over

the

past 10 years that i hardly have anymore veins to put an IV into. but it is

getting better and

i am not going to the ER on a monthly basis now. most likely because i refuse my

fiance's

pleas to go. i just can't stand waiting in a bright, loud room for 5 hours to be

seen. it is

torture. i would rather suffer at home on my couch.

today, i chased my 2 year old niece around the public market, the park and a

birthday

party. why? i cannot accept my limits and now i am in so much pain all i can do

is sit here,

type and cry. i've been in a very bad place mentally for a few months and i just

need some

support tonight.

the celebrex, norflex and lunesta aren't cutting it and those ARE the med

changes my

doctor made last week. i'm sick of bitching about being in pain and not being

given

something that works. i feel like i'm just beating my head against a wall. i

feel like i am

wasting my potential because i am in so much pain all the time.

how do i make myself heard without making it look like i'm seeking narcotics?!

why won't

someone just give me some narcotics because that is all that seems to work?!

sorry. i am

just so frustrated right now and not feeling well. any help would be much

appreciated.

[Guest guest]

Boy isn't the mind a wonderful thing?!? I just spent the day chasing

around three little ones under the age of 5 and was so exhausted

that I came home and slept for five hours! I still hurt but to me it

was worth it. I have learned over the years that although my mind

says that I can do something my body definately does not agree. Now

when I make choices on my activities I consider the days of pain and

repurcussion (sp?). If it's important I just prepare myself for days

down.

I wasn't always like this and I still grieve my former self. It is

like a death, the death of who you were but it is also the beginning

of who you are becoming. I've struggled for 20 years to come to

terms with it and it is still painful in my heart. I think grieving

is necessary though so you can move on.

Another thing I've learned is that Fibromites make the most

wonderful friends. We have a certain strength inside that other

people have not been forced to develop. Empathy is something

everyone should learn in my opinion, the Fibro method I don't

recommend though.

About your headaches...are you absolutely positive that they are

migraines and not cluster headaches? I was diagnosed for years with

migraines that took me to the ER also. At one point I was given

enough morphine that when my husband asked if there was anything

more they could do (I was hysterical in pain) the doctor actually

told him that they couldn't give me any more morphine because the

amount they'd already given me would have stopped a " normal "

person's heart.

Cluster headaches generally sit in the back of your head and several

times a day a pain will shoot through one eye or the other. The pain

can take me to my knees. I researched my headaches and discovered

that this is exactly what I was having and spoke to my doctor. I had

also researched non-narcotic methods and discovered that oxygen

therapy helps. I used that for three months and my headaches have

been gone since last August (knock on wood). I won't go into anymore

since I don't even know if that's the problem and this is about you,

not me.

Another thought is, are you eating food with MSG in it? This was

also contributing to my headaches.

Please know you are not alone in this battle.

I'll watch your thread and pray things go better for you...

[Guest guest]

Welcome to the group!!! Nice to meet you Chrsitie -- Where Do I Start?! Help! newbie here... thought i would finally post. it has been great to read all the support you give to each other. it really is beautiful. i am 31 and was diagnosed with fibro in september 2005. but i'm sure i've had it for much longer. aren't we all? last year i started having a lot of hip pain. enough to keep me off my usually very active feet. i tried to just keep pushing myself but it just came down to stubbornness about not wanting to be diagnosed with fibro. so i waited to see a doctor. when my GYN asked if i had fibro (before i was diagnosed) i knew it was time to see a rheumatologist. but getting a referral to one here while on medicaid takes about 6 months. anyway, the rest is history. i've had severe migraines since i was about 14. sometimes they are so bad i have to go to the emergency room and get some really strong meds. i've had to go so often over the past 10 years that i hardly have anymore veins to put an IV into. but it is getting better and i am not going to the ER on a monthly basis now. most likely because i refuse my fiance's pleas to go. i just can't stand waiting in a bright, loud room for 5 hours to be seen. it is torture. i would rather suffer at home on my couch. today, i chased my 2 year old niece around the public market, the park and a birthday party. why? i cannot accept my limits and now i am in so much pain all i can do is sit here, type and cry. i've been in a very bad place mentally for a few months and i just need some support tonight. the celebrex, norflex and lunesta aren't cutting it and those ARE the med changes my doctor made last week. i'm sick of bitching about being in pain and not being given something that works. i feel like i'm just beating my head against a wall. i feel like i am wasting my potential because i am in so much pain all the time. how do i make myself heard without making it look like i'm seeking narcotics?! why won't someone just give me some narcotics because that is all that seems to work?! sorry. i am just so frustrated right now and not feeling well. any help would be much appreciated. 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone.