Re: Re: interesting (response to Duane)

[Guest guest]

hi jennifer..epsteibarr is a virus very closely related to mono .it has the same

type of symtoms..like a real bad flu...too many flus going around..*L*....it

takes 4-8 weeks to recover..most people get mono and EBV when they are 12-22

years old appox.

apparantly when you get this virus it your older years 30's to 40's..hence the

*yuppie* disease. Some docs and people use this word to discribe EBV and also

cfs..both have very close type of symptoms..i never got over the

virus...apparently its much harder on your system when you get it older like

mumps or measles...after 3 years my levels are still 10 times what they should

be...they know they is some relationship between cfs and ebv..but they arent

clear what it is...but it attacks the immune systoms among other parts of the

body...it looks like my other ailments became much worse..like arthitis which is

an auto-immune disease...but if your levels stay high for 6 months..you have

chronic EBV syndrome...96%of adults show they have had it sometime in their

lives...but just like my other ailments i keep trying to find a better *fog*

trap and one month this stuff will ease up...from people i have known with EBV

anf CFS...you always are subceptable for reoccurance..they have told me to never

over stress oneself..amonst other things..the antivirals and other treantments

im trying ..are working to a degree ..but its a very slow prosess,,my friend did

overwork herself after recovering ..she had 3 part time jobs..now she is almost

house ridden...she ran out of b vitamin shots...so by surprise she recieved some

bottles and is slowly recovering..the docs would not give her the bottles..it

works very well on her...one thing i have noticed is that cfs attcks women

around 20 to 1 it seems..i knew only 1 other man that had it....i look at my

ailment this way..if the docs cant/wont try to help.. then we have to put our

heads together and try possible things to relieve the symtoms..but at least have

a doc that will work with you is the best thing...thx for the response...take

care..... duane.

wrote:

> Hi Duane,

>

> My parents don't understand and giving them written stuff to read from the

> net isn't helping. They think the fatigue and pain is all in my head. I

> had that same phrase said to me from doctors and nurses regarding my

> endometriosis. It's aggravating that people ask the question how are you?

> I tell my parents flat out that I'm not doing well and ask them how they are

> doing.

>

> That's good that you have a support system in place. Mine went in place the

> minute I found out I had stage 3 endo and later FMS. It's awful for those

> of us who don't have a good support system in place. I can't imagine where

> I would be without my husband, Jeff.

>

> What is Epstein Barr? I've heard this before but I don't know what it is.

>

> I was a nanny for 2 families working 30 hours a week plus my part time

> freelance editing job from home. Now I have the freelance editing job. I

> get to work my own hours and that's the good thing about it. Otherwise, I

> wouldn't be able to work even part time.

>

> Don't worry about rambling...I've done my fair share from time to time.

> Thanks in advance for the info on what helps you.

>

> Jen from Upstate NY

>

> Re: Re: interesting (response to Ted and Duane)

>

> hi jen..i find the hardest thing is trying to explain to others that dont

> have

> it..the worse question is how are you?...if they only knew the scope of that

> q..i just say find now and drop it....i have a friend that we went to scholl

> together since 7th grade..27 years ago..but we support each other so

> much..she

> lives in a different state and her hubbie is real cool with the cfs...but

> she

> has relapsed like me..she was working 3 part time jobs and wore herself

> out..not

> shes house ridden again6 years for her and 3 for me..i was working 10 to 24

> hours straight sometimes and driving700 plus miles..i got epsteibarr and

> never

> recovered..i lasted for 7 months at work till i had to take leave..and got

> worse

> till i had to resign after 15 years of work there....aggravating is an

> understatement..*S*...but i think of the people that had this 20-30 plus

> years

> ago...and consider myself somewhat fortunate...sorry to ramble..*L*..take

> care....and i will repost some of the things i do to help me...maybe they

> will

> be of help to you... duane..

>

>

>

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[Guest guest]

Duane.....I also had mono and a bad case of the flu 2 years ago and never

got over it. I am now 48. My Epstein Barr levels are the highest my doctor

has ever seen. I also have FMS but the worst for me is the fatigue. The only

time the pain gets to me is when I hit the bed! The worst part of having

CFS is that people just don't understand anything about it. One of my

daughters keeps telling me if I just had more exercise I would feel better.

I used to run and now I can't go around the block without paying for it for

days. I have to fight daily feeling sorry for myself and wanting to be the

way I used to be. I went through many different antidepressants and have

finally settled with Zoloft. Seems to be helping the depression and am

sleeping some nights, at least part of the night. Well. I've rambled long

enough. Great to be on this list and sorry I never sent an introduction.

Guess it slipped my mind!!!!

April & her ark full!

^..^

www.hoefee.com/ark

[Guest guest]

what is epstein barr?

~~~Tami~~~

[Guest guest]

what is epstein barr?

~~~Tami~~~

[Guest guest]

Hi, Ebstien Barr is a virus that many believe causes Chronic Fatigue

Syndrome.

[Guest guest]

thats about how mine started..3 years to the week now...i came down with the

*flu*...it turned out to be EBV...i was tested and had almost 20 times the level

of normal...doc said it would take 4-8 weeks to get over....after 6 months it

was even higher and 2 years later it hasent changed..its called chroniv EBV

syndrome..i was telling debbie h....that non-cfs and fibro people will never

understand our illness..and they think its in your head and most docs think that

way also...you might think about taking anti-viral drugs..my levels have drops

from 20 to8 times the levels...before i got ill..i was doing great at work and

moving up...i was working out 4 times a week and lost 45lbs and felt the best in

many years....but it lastest just 9 months and everything fell apart..but its

very hard to keep the head up and not be depressed..but there are a lot of ideas

going around here that may help with pain and other treatments that may help..i

will stop rambling now..*L*.......duane

Hoefer wrote:

> Duane.....I also had mono and a bad case of the flu 2 years ago and never

> got over it. I am now 48. My Epstein Barr levels are the highest my doctor

> has ever seen. I also have FMS but the worst for me is the fatigue. The only

> time the pain gets to me is when I hit the bed! The worst part of having

> CFS is that people just don't understand anything about it. One of my

> daughters keeps telling me if I just had more exercise I would feel better.

> I used to run and now I can't go around the block without paying for it for

> days. I have to fight daily feeling sorry for myself and wanting to be the

> way I used to be. I went through many different antidepressants and have

> finally settled with Zoloft. Seems to be helping the depression and am

> sleeping some nights, at least part of the night. Well. I've rambled long

> enough. Great to be on this list and sorry I never sent an introduction.

> Guess it slipped my mind!!!!

>

> April & her ark full!

> ^..^

> www.hoefee.com/ark

>

>

>

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>

> VIP

> If there is a problem on this list notify.

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[Guest guest]

i dont remembered if i replyied to this..*L*..foggy here.......tami its a

virus ..related to mono and somehow increases 2 specific type of

cancers..it causes severe flu like symtoms...and the doctors believe that it

attaks your immune systom and causes secondary prolems......duane

Tami wrote:

> what is epstein barr?

> ~~~Tami~~~

>

>

>

> ~*~CHAT TIME:~*~

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>

> TO unsubscribe.

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[Guest guest]

does that mean i cant get it because i DONT have an immune system now

~~~Tami~~~