New Member

[Guest guest]

Hi :  I will be 70 in Jan.  RA reared its ugly head to me 6 1/2 years ago. 

I knew nothing about it.

    It has taken me all that time to find the right " Cocktail " of meds. for me. 

I take the max. dose of MTX, Sulfasalazine, and Placquenil.  I have been on a

daily dose of Pred. for 6  1/2 years.  I have been pain free from the RA pain

since last Nov.  I had a very minor flare of my 2 fingers while I was decreasing

my Pred.  I am back on my dose of 10mg. a day now.  I will in time try to

decrease my Pred. and try to get off it.  For me, Pred. is my wonder drug.

     I have a wonderful Rhuemy who takes great care of me.  I have my blood

tested every 2 months, and everything has been fine.  The only time my numbers

changed was  when  I was flaring.

     My feet and ankles were hit the worst, then my hands and writsts.  The RA

came on hard and fast.  In 5 days I went from  totally functioning woman, to a

helpless cripple.  I could not get out of bed by myself, could not dress myself,

could not eat or hold a glass.  I thought I had a brain tumor.  My hands swelled

so badly, and went into a bent claw like state.  It was very scarey.  I also had

outrageous pain everywhere.  It took everything in me to get to my dr.  He was

shocked to see me, and knew right away I had RA.  The blood test confirmed it. 

He got me an appt. the next day to see a Rheumy.  She confirmed what I had.  She

gave me Cort. shots in my hands, and arms.  She also started me on a mega dose

of Pred.

     I have developed Neuropathy in both feet, from the arch to the toes.  This

makes me very unsteady on my feet.  When my feet flared, I was in agony, and I

wanted to literally chop them off.  I was bedridden when they flared.

     I have also developed RA nodules on both feet, on the outside of my

arches.  They can be very, very painful.  My shoe inserts help so much with

this.

     I hope you will be feeling better soon.  It is awful to suffer this pain

day in and day out.

Wishing you pain free days ahead.  Again welcome to our group.

                                                    Hugs,

                                                    Barbara 

From: rogertyndall <rogertyndall@...>

Subject: [ ] New Member

Date: Tuesday, September 8, 2009, 7:28 PM

 

Hello

Hello Patsy

Hello Barbara,

Thank you all for your sweet letters to me. I was so surprised to get them so

fast. Ok I will try and answer some questions for you. Yes I have had an ex-ray.

It looked a little like a small piece of bone was chipped off. My Doc gave me

oral prednisone. You know 60 mgs for 3 days then you cut back, etc. Because I

also have pain in my tendon he was afraid it could cause it to break if he gave

me a shot there. It got a little better for a short while and now it is back

where it was. There is a big knot on the rear of my heal. It is very red and it

really hurts. I also got a cortisone shot in my left shoulder. I can't lift it

up very much. It was only better for a few days as well. I think it could be

something wrong with my tendons??? I have reflux sometimes even though I

take my nexium. I always take another nexium if needed. I have not told my doc.

Thanks for wishing me a pain free day. Oh that would be a treat huh. I have doc

visit scheduled for

the 22nd. Hope I can last that long. , Patsy, and Barbara, please tell me

about your RA. How long you have had it etc. Mine started in my feet. I can

remember note being able to let the bed sheets touch my toes. Oh that was

terrible. Like I said I am a new member. I really have not had time to look at

this group very much. I will put my pic on here later. I'm 49 years old now.

Sometimes I feel 90. I hate walking in public with people and you just can't

keep up with them. I guess I will close for now. I can hardly wait to hear from

you all again. God Bless!!

Morehead City NC

[Guest guest]

It did not take my daughter any time at all to get used to her Starband. The

hardest thing was the on/off time in the beginning to get used to it. I would

say after the first week, she was fine in it. We did have a period of

irritation at about week 3 (I think I was dressing her too warm) and after a

week or so out of it, we had no issues the rest of her 5 months in her Starband.

As far as reactions in public, we never got anything negative. I'm sure people

stared, but if they did, I didn't notice. The only people that talked to us

just said how cute she was or said hi using her name since it was across the

front of her helmet. Not a big deal in our area (Houston suburb) and I have yet

to see another baby out and about with a helmet on where I live.

>

> Hi all. My daugher Miranda is 15 weeks old and is going to be fitted for a

star-band on the 17th of this month. I want to know what your experience with a.

you childs adjustment time to the helmet and b. reactions of taking your child

out in public. I only want whats best for my baby and hope that strangers mind

their own business about why she has it on but im a bit frightened about

ignorant people. Any advise is appreciated! Thanks!, Liz

>

[Guest guest]

Look in the files section of this group or email me for a free computer lyme

resource cd.

msadams@...

> [ ] New Member

>

> I am a new member. I was dx Fri with lyme. I do not know

> anything more than that.

>

> I have a long list of disgnosed things (water on the knee,

> achilles tendonitis and so much more...) without causes and I

> wonder if now the cause has been found.

>

> I am very overwhelmed by all the info out there but I am ok

> with that. I will become more familiar and I will figure it

> all out. First I have to find out what I exactly have or the

> blood work has showed. I am thankful for this group.

>

> Thanks,

>

> Meredith

>

>

>

> ------------------------------------

>

> For free up to date information about Lyme disease and the known

> co-infections delivered to your email address see:

> Robynns_Lyme_List/

>

[Guest guest]

Hi there Meredith. I am also new here. Did the Lyme attack only your knees?

I have had pain in the knees for a year now. They just dx'd me a couple of

months ago. I am also finding out a lot of info from here and other places

on the Internet. Good luck in your search.

n

-- [ ] New Member

I am a new member. I was dx Fri with lyme. I do not know anything more than

that.

I have a long list of disgnosed things (water on the knee, achilles

tendonitis and so much more...) without causes and I wonder if now the cause

has been found.

I am very overwhelmed by all the info out there but I am ok with that. I

will become more familiar and I will figure it all out. First I have to find

out what I exactly have or the blood work has showed. I am thankful for this

group.

Thanks,

Meredith

[Guest guest]

Yeast will always be an issue as long as there are metals in his body. You just

have to treat it the best you can while you chelate. It will get better after

you chelate for a while as the metals come out. If you wait to get rid of the

yeast you will never start.

If you don't start you will never finish. The younger the better because the

brain can heal easier when a child is younger. Please do not delay.

TJ

________________________________

From: <chriscw04@...>

autism treatment

Sent: Tuesday, October 13, 2009 2:31:28 AM

Subject: [ ] New Member

 

All

I am a new member and mother of an almost 6 yo boy dx with moderate ASD. We

have been doing biomedical approach for 9 months - GF/CF diet, supplements

including MB12 and herbal chelators - Liver Life and NDFplus (these for the

last 2 months). We have seen improvements in various areas but progress is

slow and seems to come to a level after a short period. My son is functional

but very delayed in all areas compared to peers who are 4 or 5 yo.

We feel that our next option is to chelate him and from our brief research

so far understand that Cutler protocol is the safest. I have read the FAQ

but still have one question. His latest stool test showed yeast which we are

going to treat with Nystatin. Our dr recommended we do this for 30 days. I

believe we should wait until after treating the yeast to start chelation. Is

this correct?

I would like to confirm my understanding of the protocol when we are ready

to chelate as well as get information on supplementation.

Thank you very much

Chris

[Guest guest]

Becca:

To answer your first question: Taking steroids causes your body to stop making

its own natural steroids for a period of time after you stop. that's why you

have new and worse inflammation. I know it can have some effects as far out as

a year after taking it, (because you have to inform your doctor if you took any

in the past year if going for surgery). But, it wont be this bad the whole time,

it is supposed to get increasingly better over six months to a year depending on

the dose and length of treatment.

After reading your story I think you should file an official complaint on your

first rheumatologist. Who knows what damage you could have been spared if you

started the Humira two years earlier. And to ignore pain and decreased use of

the hands is just insane coming from a RHEUMATOLOGIST! That is unbelievable.

also, think of how many other people might be going through the same thing with

that doctor but actually believe they shouldn't worry about it. I doubt you were

the first or last, and maybe by reporting them you could save someone else from

delaying treatment.

I am 28 and had a bit of trouble getting a diagnosis but I hit the jackpot with

my first rheumatologist being very thorough and listening to me. My only

complaint with her was her reluctance to treat my pain, and the suggestion to

see a pain specialist should have come up sooner. If I was 48 not 28 they would

have treated me differently. But, that is all straightened out now and I see a

great pain specialist.

shel

[Guest guest]

Wow. I am astonished by the number of replies I got in such a short order. Thank

you so much each and every one of you! I will try to reply to it all in one

post here.

I DID contemplate filing a complaint.. but for one thing, I completely lack the

time and energy to do so. Maybe when my disease gets better in control. For

another thing, he had suggested Humira to me.. but told me it may work, it may

not, and I was just reluctant to take SUCH a strong medication with sooo many

side effects without knowing exactly what was being treated and if Humira was

really indicated. I guess If I had just followed his advice without wanting

details.. I could have ended up here sooner.. but who knows.

Arthritis walk.. would LOVE To. Unfortunately, my health is in a downswing right

now (sinus infection & bronchitis AGAIN).. so I don't think it will happen for

me, but I will definitely keep it in mind! Thanks! (I'm near Winston-Salem, so

not too far away!)

Minocycline - will look into it and also ask my rheumatologist about it just to

see what he says.

I wish someone had told me about the arthritis flare up after coming off pred..

I would not have agreed to it so quickly. I was put on it for a combination of

photo sensitivity rash & bronchitis. I did a bunch of research on the internet

last night, which can be a bad thing. I learned that Humira can cause lupus

like reactions in some people. Has anyone had that here?? Apparently symptoms

are photo sensitivity rash, hair loss, fatigue, and joint pain. All of which I

have. The only symptom I don't have for it is the butterfly rash on the face. I

tried to call my rheumatologist today about it, but he is out of the office

until Wed.. so I will wait until then. I have been losing hair for about six

weeks now.. but I thought it was either the pred or from recent weight loss, and

it never occurred to me it might be related to the Humira. This is the problem

with having multiple ailments and treatments going on at the same time.. hard to

sort out which is causing the bad side effects! hopefully my rheumatologist

will have some answers for me.

Thanks again for all the replies... Becca

[Guest guest]

Hi

I had to take prednisone once for about 2 weeks I think.

Like you I had a heck of a time getting off of it.

The doctor started by dropping, for example, a pill every other day which turned

out to be far too much for me. And again like you I had a lot of pain and

discomfort.

I had to go back to full strength again for a few days and drop a pill a week

which for me worked out a lot better.

It sounds like you are trying to get off of the med. too fast, believe me slower

is better.

Good luck and take care.

SD

[Guest guest]

Sharon,

I think my problem is that the lung doctor was treating me with prednisone for

asthma, not my rheumatologist. So when I told him my arthritis was flaring up,

he dismissed it, because it wasn't lung related. I have been off of it for 3-4

weeks now, and do NOT want to go back on. I gained so much weight while on it..

12 lbs in one week which is crazy considering I had been losing 10/months thanks

to lap band surgery. The anxiety, insomnia, mood swings, hot flashes AND the

fluid retention really upset my life & my husband! I am going to call my rheumy

tomorrow, and he will have to do some serious convincing to get me back on it. I

was on 40 mg for about 6 weeks, and then tapered by 5 mg every 2 days. We'll

see what the doctor says. Thanks for all the suggestions.

As to 's question..

Prednisone side effects that I personally have experienced:

fluid retention & weight gain

increased thirst - woke up every night every hour to drink water - thus every

few hours to pee

anxiety & mood swings

Insomnia (in part to thirst, in part anxiety)

hot flashes

YES it helped my pain.. was it worth it? not sure at this point. I would

encourage you to stay in touch with your rheumatologist while tapering

off...tell him when you flare up. I have heard of some people who didn't have

the rebound pain when coming off, so I know it can happen.

I also know people who take prednisone without ANY side effects. I think some

people are just more sensitive to them than others. I hope it works well for

you without all the side effects.. sounds like your dose is a lot lower than

mine was, so maybe this will save you from all of the above! Good luck!

Becca

[Guest guest]

Hi Sharon,

I, too, have been diagnosed with either polymyalgia rheumatica (PMR) and PsA or

both.

I hoped it would be PMR, so that a remission is more likely after a few years.

It's been 1 1/2 yrs since I was first diagnosed and have been on prednisone most

of the time. Now my doctor wants me on MTX. Actually she's been trying for

months and I've been dragging my feet.

I do have a small amount of Psoriasis, in 2 places, but none of the classic

sausage fingers and toes of PsA. However, lately, since I'm down to 5 mg. of

prednisone, I'm having a lot of pain in my shoulders and hips. This is fairly

new, although all along, my symptoms change in location and severity from day to

day. I also go between both the PMR website and here. I just turned 64 and

retired about 1 yr before coming down with this. I'm sorry you had to retire

early. I, too was very active, before this disease and it is so frustrating to

accept. But I do know that if I was still working, I would have had to retire

because of it. A lot of days I couldn't get out of bed.

Some days are better than others now, but I never know until I wake up what kind

of day I'll have.

Well, just wanted to tell you I can relate to your situation. My rheumatologist

has said both disease are treated the same, so I guess it doesn't matter what

the diagnosis is. My CRP is triple the normal level and hasn't gone down, so

there is still inflammation and I've been told that even if I'm free of pain

from the prednisone, I could still be getting joint damage, if I don't treat it

medically. I can't take sulfa drugs because I'm allergic, so if MTX doesn't

work, then we'll try the biologics.

Take care and I hope that your new med will be of help to you.

[Guest guest]

I don't know what the docs say about psoriasis being hereditary, but I do have a

second cousin with a bad case, I have it, and my one son has it. Looks

hereditary to me...lol

" missy " <babygirl9319465@...>

[Guest guest]

Welcome, Margaret!I have a 13 yr old son with AS.

This is a great group!!

Robin

From: Argaret <argaretcote@...>Subject: ( ) New member Date: Friday, October 23, 2009, 12:13 PM

Hi everyone;My 15 year-old son has just been dx with Aspergers Syndrome. I have seen sysptoms for a while. I am just wanting to learn more about how I can help him learn how to deal with the syndrome. My name is Margaret A. Cote.Thanks in advance for all the information you will share with me about this syndrome.Margaret A. Cote

[Guest guest]

Welcome to the club!

You've already done a good thing by finding a group like this. There are

several related to AS and I recommend joining every group that

seems appropriate, and then checking out the archives to see what has already

been posted. These groups have been just wonderful for me because I know that

the people there understand what's going on - both good or bad.

What I did when we first got the diagnosis was read, read, read. It took me a

long time to really absorb the diagnosis. It took me even longer to realize how

many people in our family probably also had AS, but were undiagnosed.

There are so many different kinds of AS. Some people have Aspergers Plus

(Aspergers plus something else like Tourettes) and so you will need to figure

out where your son fits on the spectrum and what advice will work for him.

See if you can find a local group where you can meet people face to face. A

support group can help you find out what's available locally and how to get the

appropriate services in place. Once your child gets the right supports in place

- you will see a tremendous, positive change in your son.

[Guest guest]

What a dreadful story! I'm really sorry for you.

Two simple suggestions from a fellow PA sufferer (and freelance writer) in the

UK:

1. Campaign vigorously for health care reform in the US

or

2. Move to Canada or Europe (I'm serious -- I can't fault the level of care I've

received here)

Best wishes and good luck

Marcus

[Guest guest]

Hi janice,

Sorry to hear you were diagnosed. As far as insurance, isn't there some way

that you can get some type of insurance? Usually the chamber of commerce has

some plan that members can join.

Ultimately, I believe you need to get into some drug therapy, whether it is MTX,

Enbrel, Humira, whatever. But without insurance, I am sure the costs are very

high.

The steroid injections are really just a stop gap measure. They relieve the pain

temporarily, but do nothing to address your disease.

If you can't get or afford insurance, I don't know what options are available to

you. I would say you need to be contact with a doctor or some medical facility.

There probably are some grants or spaces available for those who don't have or

can't afford insurance, but you need an insider to know who to contact or where

to look. Luckily you are near Houston, I think your options in a major city are

better than those in rural areas.

Stay Well,

[Guest guest]

Hi ,

Yes, I've spent months researching all of this. I don't qualify for

the indigent programs and/or medicaid. My county has a " health clinic "

but getting an appointment is nearly impossible. I need a

rheumatologist with a heart for people like me who are stuck in the

middle. I've joined a PA group online and just got the names of two

Houston-area rheumatologists who might be willing to help. I'm having

trouble tracking them down, though.

Can I get insurance? No. Pre-existing conditions (and I have several)

have been such a huge issue that no insurance company will touch me

except the Texas High Risk Pool, which is $923/month. That's simply

out of my reach. That's over 1/3 of my total income.

So, I'm stuck. But with God, I'm NOT stuck. I know He has a plan. I

just have to figure out what it is!

Janice Hanna

[Guest guest]

Janice: all the major pharmaceutical companies have programs designed to help

those who do not have the financial resources to pay for their meds but you

really must have a doctor to prescribe them. I'm not sure what you mean by a

" treatment " program but I think it's a crime that your rheumatologist didn't

give you more help/advice. At the least. he/she should have told you about the

financial assistance programs. (My niece gets Humira for $10/injection and it's

one of the major drugs used to treat PsA.) With all the symptoms you have, you

will need one or face the possibility of even greater damage to your joints.

Check to see if you qualify for Medicare - if you're single and make less than

$10,000/year, there's a possibility you will. Additionally, check to see if

your state has a program that provides any kind of medical assistance to those

in need.

Joanna Hoelscher

[Guest guest]

Hi Janice:

Sorry to here of your diagnosis and subsequent loss of insurance. I would

imagine that in a large city such as Houston you would have several large

teaching Hospitals, I would think that one of them would have a way of helping

you. I would also look to see if their are any low cost health clinics in your

area for folks with no insurance. What about checking with you local Health

Dept. Also, many of the drug manufacturers have programs to help individuals who

cannot afford their medications.

I know you said you are taking supplements and while it can't hurt it will not

be enough. I would definitely be taking an NSAID such as Motrin or Aleve to at

least help with the inflammation and pain and also, Arthritis Pain formula

Tylenol is very good. At least this would help you stay somewhat more

comfortable while trying to get into see a Rheumy.

I hope you find a Doctor/Hospital willing to treat you soon. Good Luck to you.

Deanna

[Guest guest]

Hi Joanna,

Regarding the treatment my doctor referred to, it was something

experimental that she said was just being tried with PA patients,

(something that would last about six months total). When she found out

my insurance was lapsing she tore up the paperwork and gave me the

steroid injections. To be fair to her, it was my first visit with that

rheumatologist. She was making her diagnosis of PA based on several

years worth of tests, etc.

I plan to check into the medicaid option, though my income is about 2

1/2 times the amount you named. It's not that I can't pay for a

doctor. It's just that living without ANY insurance is a bummer

because I'm so limited to whatever treatment I can afford. That stinks.

I spent the morning calling the sliding-scale clinic, sending emails

to our county health services people, etc. I've got to believe there's

a long-term solution to this seemingly long-term problem!

Thanks for your advice/input.

Janice Hanna

[Guest guest]

Yes, Baylor College of medicine has clinical trials, but nothing

available at this time that's a good fit for me. I've checked with my

local health dept. It appears (at first glance, anyway) that I make

too much money to qualify for any govt. assistance (federal or

otherwise). That said, I'm going to dig deeper with the medicaid

option because of the medical necessity. I am currently on 800 mg of

ibuprofen during the day and Tramadol at night (along with the

supplements). Didn't know Tylenol made an arthritis pain formula. I'll

get it! (I've had an issue with liver counts in the past, so my doctor

is very leery about Tylenol products for me.)

Anyway, thanks for your input/advice.

Janice Hanna

[Guest guest]

Sorry, Janice: I meant to say check to see if you qualify for Medicaid. The

$10,000 for a single person is something I just read within the past few days.

Doesn't mean you'll automatically get it but that's one of the first basic

qualifiers.

Joanna Hoelscher

[Guest guest]

Your rheumatologist still should have told you about the programs available from

the pharmaceutical companies that require you to pay very little - particularly

for the biologics, which work very well for most people. Did she even ask you

to come back? Steroid injections last only just so long and - as you

undoubtedly know - can cause a whole host of other problems. Anyway, you might

want to check out the websites for Humira and Enbrel. They are available to

anyone who is not on a government assistance program and therein likes a rub,

should you go on Medicaid. I'm on Medicare and cannot get one penny of

assistance with meds because of it. The first question they ask you is, " are

you on Medicaid or Medicare. " But there are cheaper drugs (some, like MTX, are

even generic) that work for some but with any of them, you need routine tests to

ensure that the liver isn't acting up and your blood counts are OK. So, you

can't win either way; but I just

wanted you to warn you of that potential problem, should you be successful with

Medicaid. I have no idea how they handle very expensive meds like the biologics.

My Medicare Rx plan did cover Enbrel but because of the structure of the program

with that crazy " donut " hole, it still cost me about $4,000 just for that one

drug and my PsA is just not bad enough to warrant that much money.

Good luck with whatever you do. It's really awful feeling so terrible and to

have so little control, despite what are obviously your very best efforts. . . .

.. ..

Joanna Hoelscher

\

[Guest guest]

HI Joanna,

It's totally fine! I didn't think you were being nosy or anything. I'm

an open book, actually. I figure if I put myself out there and let

people know what I'm up against, it will help them help me make the

right decisions. I'm grateful to all of you for the input I've

received over the past couple days.

Janice Hanna

[Guest guest]

At school, my doctor simply wrote an order and my kids go to the office after

lunch and get their enzymes. They both swallow capsules.

Do you have a yeast protocol in place? Another thing to try would be a virus

protocol.

Doing enzymes on top of diet along with probiotics will help to heal over time.

In time he may be able to tolerate all foods with enzymes with luck in time.

Tammy

New member

Hi,

I am my son is 6 with autism. I recently attended an Autism

Grassroots tour with my husband and he won a basket of Enzymedica enzymes(Digest

Gold, GlutenEase, Gastro, CarbGest, EFA Optimize, Candidese and Virastop), two

books on enzymes and one book on the Son-rise program. My son was diagnosed at 3

years with autism and also has epilepsy. Our seizures came first at 4 1/2 months

of age. I am currently reading the Enzymes for Autism and other Neurological

Conditions as that was one of the books we won. We are GFCF and mostly SF but am

wondering if we should do enzymes instead. I know I shouldn't do everything at

once and am trying to figure out what is going to produce the best results. I

emailed his neurologist who is up on dietary and DAN information to get his

opinion. I am members of several other as well, GFCFkids, GFCF

recipes.

How do you all get the enzymes in them at school?

My son is in a reg. ed. class kindergarten class and I send his breakfast and

lunch everyday. I would love for him to be able to eat real food again. His

eating has expanded so much in the last year since going GFCF. I think we have

other issues going on as I had hoped his stimming would get better after we went

GFCF and I guess it did for a while but it is really bad right now and has been

since July. I know that when he stims so much he can't concentrate on what is

going on in the classroom. If we can get that better controlled I know he could

do so much better.

He has verbal, visual and a stim dance that he does. Since July is the first

time we really noticed verbal stims.

Thank you,

[Guest guest]

Hi ,

I'm so glad you were able to win that gift basket! It has great products and 3

amazing books! You picked a perfect book to start with. Many on this group have

and live by that book! It's very helpful. I think DeFelice (the author of

that book) has set up a great guideline in her book. She also has a great

website enzymestuff.com. It can be really helpful to just go to the website and

search for a specific word in the search bar. I typed in school and came up with

this link http://www.enzymestuff.com/discussionschool.htm

I think the topic " Enzymes at School " will be very helpful to you. I work for

Enzymedica, so please feel free to ask me any question in regards to enzymes or

the specific products you received in that gift basket. I'm very glad you won

that! There are some truly amazing products in it!

Alessandra

Enzymedica's Education Department

Enzymedica.com

>

> Hi,

>

> I am my son is 6 with autism. I recently attended an Autism

Grassroots tour with my husband and he won a basket of Enzymedica enzymes(Digest

Gold, GlutenEase, Gastro, CarbGest, EFA Optimize, Candidese and Virastop), two

books on enzymes and one book on the Son-rise program. My son was diagnosed at

3 years with autism and also has epilepsy. Our seizures came first at 4 1/2

months of age. I am currently reading the Enzymes for Autism and other

Neurological Conditions as that was one of the books we won. We are GFCF and

mostly SF but am wondering if we should do enzymes instead. I know I shouldn't

do everything at once and am trying to figure out what is going to produce the

best results. I emailed his neurologist who is up on dietary and DAN

information to get his opinion. I am members of several other as

well, GFCFkids, GFCF recipes.

>

> How do you all get the enzymes in them at school?

>

> My son is in a reg. ed. class kindergarten class and I send his breakfast and

lunch everyday. I would love for him to be able to eat real food again. His

eating has expanded so much in the last year since going GFCF. I think we have

other issues going on as I had hoped his stimming would get better after we went

GFCF and I guess it did for a while but it is really bad right now and has been

since July. I know that when he stims so much he can't concentrate on what is

going on in the classroom. If we can get that better controlled I know he could

do so much better.

>

> He has verbal, visual and a stim dance that he does. Since July is the first

time we really noticed verbal stims.

>

> Thank you,

>

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>