New Member

[Guest guest]

Hullo ,

Welcome to the group which is absolutely wonderful and gives much support.

I too am an Australian and have a lot of information on our condition

specific to Australia. There are a few of us Aussies on this group. Please

feel free to contact me at geliott@... and I can provide you

with more information and contacts.

Regards, Gordon

[Guest guest]

Janette,

Have you tried unconventional means, like nutrition, and homeopathy, juicing,

Rife Frequencies, detox and cleanses, etc., to boost your immune system?

From what I've read in various books, cancer is systemic., and when they address

just one part, it pops back elsewhere like at the carnival - those hammers where

they just keep popping up, even when

you've hammered one down.

In reality, Cancer is a symptom of a body out of balance. If you can bring it

back into balance, cleanse and feed the immune system, the symptoms will go

away...

These are my opinions only, based on reading books written by doctors who treat

cancer, and had a incredable record of healing it, not just treating it. My

favorite place to look for answers is

http://www.minimum.com Dr. Eli , Dr. C. Burnette, Dr. e

(Cancer), and Ellis Barker are some of my favorite authors.

Hope this is helpful.

Health, Hope, Joy & Healing :

May you Prosper, even as your Soul Prospers 3 2

Ruby

Email advice is not a substitute for medical treatment.

http://www.rubysemporium.com

SymphonicHealth

______________________________________________

«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤

¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯

Janette Bensley wrote:

> A little about myself - well I was diagnosed with cervical cancer in

> September 2001 and had chemotherapy and radiation which finished at end of

> December. After the all clear I went back to work in April this year and

> rehabilitated myself working part-time increasing to full-time. After

> feeling really great that I had succeeded this far, I was starting to get

> pain again and after quite a few doctors appointments I finally got a doctor

> that sent me off for tests. I have just found out that one of my tests, a

> CT scan, shows that my cancer has come back again.

[Guest guest]

Jannete,

Speaking of trophoblasts, you might take a look at

Cathey Research http://www.navi.net/~rsc/

has a LOT of information. Especially on enzymes.

Hope this is helpful.

Health, Hope, Joy & Healing :

May you Prosper, even as your Soul Prospers 3 2

Ruby

Email advice is not a substitute for medical treatment.

http://www.rubysemporium.com

SymphonicHealth

______________________________________________

«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤

¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯

Dean wrote:

> Look into the trophoblast theory of cancer, which makes more sense to me

> than anything else I have come across. More important, treatments based on

> it (the use of pancreatic enzymes) have a better track record than anything

> else. Look up http://www.dr-gonzalez.com

[Guest guest]

Janette,

My name is Sherry Madon-Reitz. Get this book which is very high level nutrition.

The pH Miracle

Balance Your Diet, Reclaim Your Health

By: O. Young, Ph.D., and Redford Young

Warner Books Copyright 2002

Let the group know what you think.

Take Care

[ ] New member

Hi everyone

I have just joined this list and look forward to reading and hearing about

members and is very informative.

A little about myself - well I was diagnosed with cervical cancer in

September 2001 and had chemotherapy and radiation which finished at end of

December. After the all clear I went back to work in April this year and

rehabilitated myself working part-time increasing to full-time. After

feeling really great that I had succeeded this far, I was starting to get

pain again and after quite a few doctors appointments I finally got a doctor

that sent me off for tests. I have just found out that one of my tests, a

CT scan, shows that my cancer has come back again. Of course I am devastated

that this surely could not be true and so soon. I am not being treated again

at the moment but go for a further CT scan in December to see what the

progress is if any. If it is not good, then more chemotherapy. As this has

totally horrified me, I have just given my notice in at work today. I have

been at this place for 24 years but as far as my health is concerned my

health is far more important to me. I now have a goal for the next two

months to having a total positive outlook, which I had before anyway,

extreme diet of good eating (fruit and vegetables etc), free of pressures

and stress and morning walks as exercise. I want my scan in December to be a

good result so I have to achieve what I think might help me.

If anyone can help me in areas please advise. I look forward to hearing from

you.

Janette

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

My mom is taking an herb called artemisinin. She went through the traditional

chemo/surgery/radiation, and

then finally was recommended to a hospice. I found information on the

artemisinin on the web at www.danieljosiah.com.

I ordered the pills for her, and two days after starting them, her cough stopped

completely. It has been about three months now, and she has reduced her pain

medication, her reliance on oxygen has decreased, and her strength has improved

dramatically. Before, she could barely get out of the without assistance, now

she can climb the stairs without

assistance. I am trusting that this herb will continue to bring her

improvement. Nothing else has.

Her oncologist wanted to see the literature on this herb as well.

It is non toxic and very inexpensive. I told my Mom she had nothing to lose by

trying it. She agreed.

Once she started to regain her strength, her oncologist suggested she try the

chemo again. She declined, and

is taking the artemisinin only. The chemo nearly killed her before.

I will be happy to relay any helpful information I can.

Dr. Singh at U of Washington told me that he has helped " so many " people with

the artemisin treatment.

Chris

" Janette Bensley "

<yamdrokhotmail (DOT)

com> cc:

Subject: [ ] New

member

10/07/2002 09:28

AM

Please respond to

Hi everyone

I have just joined this list and look forward to reading and hearing about

members and is very informative.

A little about myself - well I was diagnosed with cervical cancer in

September 2001 and had chemotherapy and radiation which finished at end of

December. After the all clear I went back to work in April this year and

rehabilitated myself working part-time increasing to full-time. After

feeling really great that I had succeeded this far, I was starting to get

pain again and after quite a few doctors appointments I finally got a doctor

that sent me off for tests. I have just found out that one of my tests, a

CT scan, shows that my cancer has come back again. Of course I am devastated

that this surely could not be true and so soon. I am not being treated again

at the moment but go for a further CT scan in December to see what the

progress is if any. If it is not good, then more chemotherapy. As this has

totally horrified me, I have just given my notice in at work today. I have

been at this place for 24 years but as far as my health is concerned my

health is far more important to me. I now have a goal for the next two

months to having a total positive outlook, which I had before anyway,

extreme diet of good eating (fruit and vegetables etc), free of pressures

and stress and morning walks as exercise. I want my scan in December to be a

good result so I have to achieve what I think might help me.

If anyone can help me in areas please advise. I look forward to hearing from

you.

Janette

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Hi Janette..

You Go Girl!!! Do what's right for you and God Bless You

Janette Bensley wrote:Hi everyone

I have just joined this list and look forward to reading and hearing about

members and is very informative.

A little about myself - well I was diagnosed with cervical cancer in

September 2001 and had chemotherapy and radiation which finished at end of

December. After the all clear I went back to work in April this year and

rehabilitated myself working part-time increasing to full-time. After

feeling really great that I had succeeded this far, I was starting to get

pain again and after quite a few doctors appointments I finally got a doctor

that sent me off for tests. I have just found out that one of my tests, a

CT scan, shows that my cancer has come back again. Of course I am devastated

that this surely could not be true and so soon. I am not being treated again

at the moment but go for a further CT scan in December to see what the

progress is if any. If it is not good, then more chemotherapy. As this has

totally horrified me, I have just given my notice in at work today. I have

been at this place for 24 years but as far as my health is concerned my

health is far more important to me. I now have a goal for the next two

months to having a total positive outlook, which I had before anyway,

extreme diet of good eating (fruit and vegetables etc), free of pressures

and stress and morning walks as exercise. I want my scan in December to be a

good result so I have to achieve what I think might help me.

If anyone can help me in areas please advise. I look forward to hearing from

you.

Janette

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Janette -

At 16:28 Uhr +0200 07.10.2002, Janette Bensley wrote:

/something snipped/

>A little about myself - well I was diagnosed with cervical cancer in

>September 2001 and had chemotherapy and radiation which finished at end of

>December.

>CT scan, shows that my cancer has come back again.

Cancer is a systemic disease, local therapies are not likely to work.

>extreme diet of good eating (fruit and vegetables etc), free of pressures

>and stress and morning walks as exercise. I want my scan in December to be a

>good result so I have to achieve what I think might help me.

Very important.

Again, cancer is a systemic disease, so you might be interested in my data:

Date PSA fPSA %fPSA

------- --- ---- -----

2002.05 8,4 0,97 11,5 Start Artemisinin+Budwig prot.

2002.07 6,9 0,84 12,2 Cont.Budwig prot.

Both treatments are referred to cancer (all kinds).

Prostate cancer is a bit slower than the others.

I can't tell which one did the job (A, B or synergy), but I don't care.

Both are not expensive, in contrary to the high-tech/chem procedures

making money for the cancer industry.

Regards

[Guest guest]

www.holleypharma.com

www.hepalin.com

Allergy Research Group 800-545-9960 (cheapest but just as good)

" judy "

<judehoff@hotmail

< >

.com> cc:

Subject: Re: [ ] New

member

10/07/2002 05:51

PM

Please respond to

Chris...thanks for your letter about your mom taking the chinese herb...I went

to the site you suggested but saw nowhere to order the herb..as a matter of fact

they make it sound like anothersituation of it's in the experimental stage and

won't be available until the future sometime..who knows when. {lease let us know

how to order it who to call,etc. Thanks ahead. Good luck to your mom Judy

Hoffman

[ ] New

member

10/07/2002 09:28

AM

Please respond to

Hi everyone

I have just joined this list and look forward to reading and hearing about

members and is very informative.

A little about myself - well I was diagnosed with cervical cancer in

September 2001 and had chemotherapy and radiation which finished at end of

December. After the all clear I went back to work in April this year and

rehabilitated myself working part-time increasing to full-time. After

feeling really great that I had succeeded this far, I was starting to get

pain again and after quite a few doctors appointments I finally got a doctor

that sent me off for tests. I have just found out that one of my tests, a

CT scan, shows that my cancer has come back again. Of course I am devastated

that this surely could not be true and so soon. I am not being treated again

at the moment but go for a further CT scan in December to see what the

progress is if any. If it is not good, then more chemotherapy. As this has

totally horrified me, I have just given my notice in at work today. I have

been at this place for 24 years but as far as my health is concerned my

health is far more important to me. I now have a goal for the next two

months to having a total positive outlook, which I had before anyway,

extreme diet of good eating (fruit and vegetables etc), free of pressures

and stress and morning walks as exercise. I want my scan in December to be a

good result so I have to achieve what I think might help me.

If anyone can help me in areas please advise. I look forward to hearing from

you.

Janette

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Thanks again with the info on the herb...what strength pills did you order

and how many a day did she take?? Did she take them with food>??? what was the

exact name on the pill as they seem to offer more than one kind and it gets a

little confusing if they are all good for cancer. Judy

[ ] New

member

10/07/2002 09:28

AM

Please respond to

Hi everyone

I have just joined this list and look forward to reading and hearing about

members and is very informative.

A little about myself - well I was diagnosed with cervical cancer in

September 2001 and had chemotherapy and radiation which finished at end of

December. After the all clear I went back to work in April this year and

rehabilitated myself working part-time increasing to full-time. After

feeling really great that I had succeeded this far, I was starting to get

pain again and after quite a few doctors appointments I finally got a doctor

that sent me off for tests. I have just found out that one of my tests, a

CT scan, shows that my cancer has come back again. Of course I am devastated

that this surely could not be true and so soon. I am not being treated again

at the moment but go for a further CT scan in December to see what the

progress is if any. If it is not good, then more chemotherapy. As this has

totally horrified me, I have just given my notice in at work today. I have

been at this place for 24 years but as far as my health is concerned my

health is far more important to me. I now have a goal for the next two

months to having a total positive outlook, which I had before anyway,

extreme diet of good eating (fruit and vegetables etc), free of pressures

and stress and morning walks as exercise. I want my scan in December to be a

good result so I have to achieve what I think might help me.

If anyone can help me in areas please advise. I look forward to hearing from

you.

Janette

_________________________________________________________________

MSN Photos is the easiest way to share and print your photos:

http://photos.msn.com/support/worldwide.aspx

[Guest guest]

Judy -

my artemisinin supplier is

Wellcare Pharmaceutical

WEN,INC. dba WELLCARE PHARMACEUTICAL COMPANY

P.O.BOX 2858 , PALOS VERDES, CA 90274 USA

TEL: 310-3770056 TOLL FREE 1-877-7282073

http://www.hepalin.com/

Regards

At 0:51 Uhr +0200 08.10.2002, judy wrote:

>Chris...thanks for your letter about your mom taking the chinese herb...I

>went to the site you suggested but saw nowhere to order the herb..as a

>matter of fact they make it sound like anothersituation of it's in the

>experimental stage and won't be available until the future sometime..who

>knows when. {lease let us know how to order it who to call,etc. Thanks

>ahead. Good luck to your mom Judy Hoffman

[Guest guest]

-

At 1:38 Uhr +0200 08.10.2002, Olson wrote:

>www.holleypharma.com

don't know them

>www.hepalin.com

my supplier

>Allergy Research Group 800-545-9960

(cheapest but just as good)

as I understand Dr Narendra Singh, who is researching artemisinin,

the last statement is not correct.

Regards

[Guest guest]

,

What has your experience been with the artemisinin??

I have not found any testimonies ANYWHERE of someone other than my mom taking

it.

Thanks

Chris

Fackelmann

<pfackelmanngmx (DOT)

net> cc:

Subject: Re: [ ] New

member

10/08/2002 05:40

AM

Please respond to

Judy -

my artemisinin supplier is

Wellcare Pharmaceutical

WEN,INC. dba WELLCARE PHARMACEUTICAL COMPANY

P.O.BOX 2858 , PALOS VERDES, CA 90274 USA

TEL: 310-3770056 TOLL FREE 1-877-7282073

http://www.hepalin.com/

Regards

At 0:51 Uhr +0200 08.10.2002, judy wrote:

>Chris...thanks for your letter about your mom taking the chinese herb...I

>went to the site you suggested but saw nowhere to order the herb..as a

>matter of fact they make it sound like anothersituation of it's in the

>experimental stage and won't be available until the future sometime..who

>knows when. {lease let us know how to order it who to call,etc. Thanks

>ahead. Good luck to your mom Judy Hoffman

[Guest guest]

-

didn't you read my other mail?

>>>>>>>

Date PSA fPSA %fPSA

------- --- ---- -----

2002.05 8,4 0,97 11,5 Start Artemisinin+Budwig prot.

2002.07 6,9 0,84 12,2 Cont.Budwig prot.

Both treatments are referred to cancer (all kinds).

Prostate cancer is a bit slower than the others.

I can't tell which one did the job (A, B or synergy), but I don't care.

Both are not expensive, in contrary to the high-tech/chem procedures

making money for the cancer industry.

<<<<<<<

Regards

At 15:14 Uhr +0200 08.10.2002, Olson wrote:

> What has your experience been with the artemisinin??

>I have not found any testimonies ANYWHERE of someone other than my mom

>takin it.

[Guest guest]

Hello glad you found the group. I did very well at first on the

combo I also took my first shot in the Dr. Office. I only suffered a

slight temp but as time went on the sides got worse and worse until I

have to stop treatment. I hope you won't end up like I did. From the

posts I have read on various lists I am on I got really bad side effects

plus I now realize had I tried to drink more water mabe I would not have

been so misserable. I wish you good luck with your treatment. I go to a

new doctor in Feb but have not decided if I would try the treatment

again unless they can offer me meds to combat the side effects I just

don't know if I could put myself through that again. I have

osteoarthritis and rheumatoid arthritis and fibromyaliga so my pain

while on the combo was unberable and non of the doctors would give me

anything for pain each Dr said it was the other doctors responsibility

so I finally just stopped going to that clinic. I also realize now that

I should have been more aggressive in the way I went about trying to get

help for the side effects. Guess sometimes we have to learn by trial and

error.

I just wish that they could find a therapy that was not so harsh on the

body.

Good luck on your treatment I will be keeping you in my prayers that you

do good on it and don't get sick.

Pamm

[Guest guest]

Hi (CB):

Welcome to the group... My name is Diane and I am from N.J. I didn't

get sick the first time I did my shot either..... I did down the line

but not for the 1st week.... Everyone respond differently. You may or

may not get sick...... Think positive and drink plenty of water!!!! Good

Luck CB.. We are all here for you if you need us at any time.

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity

[Guest guest]

I would suggest trying the Methotrexate (MTX). Your

Rheumy will do blood work every 6 weeks. If it is

going to mess with your liver, it will do it within

the first few weeks. When I first started using MTX it

was great " PAIN FREE " ! Then my Rheumy calls and says

" stop the MTX, your liver enzymes are elevated " . I

stopped went in 2 weeks later for more blood work, and

my liver enzymes had dropped back to normal. I got

back on it, and everything is fine. That was back in

January of this year. The doses we take for PA are

nowhere near what a cancer patient would take. Maybe

like a drop of water in a gallon. PLEASE don't fret

about it. Just give it a try. It may be your miracle

drug.

Thanks,

in Atlanta, GA

--- bragg156 <djmoore@...> wrote:

> I was diagnosed with PA about 5 yrs ago, although

> symptoms existed

> long before. P is very mild so far. PA affects

> fingers, wrists,

> elbows, hips, knees, neck- mainly pain, no

> deformities. I also have l

> lot of pain, involvement of whole R arm due to bony

> spur in neck.

> This is by far the most bothersome. Currently taking

> Celebrex with

> some success. Doesn't help the neck/right arm

> problem which is

> threatening my employment. My doctor has mentioned

> MXT as the next

> level I should go to, but I am resisting. I am

> afraid of the side

> affects. I realize I soon may have no choice. I am

> hoping if I can

> reduce stress, perhaps try acupuncture, yoga, etc.,

> I may get by with

> the celebrex. Any thoughts from anyone out there?

> Janet

[Guest guest]

Hi Laurie,

Oh my! Your Mic sounds just like my son JJ. He has

speech of about eight words prior to his first

birthday and after that he quit talking except for

Dada. He also quit eating anything (especially table

food) for at least 3 months. His ped. told me not to

worry about, however, his dad and I put him on

Pediasure ourselves. He started eating some baby food

again, but he only has a diet now of cereal, bananas,

and chicken nuggets. Sometimes a cracker or two, or

maybe a piece of toast. But he puts everything in his

mouth whole and then moves it back and forth.

Sometimes he might swallow, others he just spits it

out. Most recently we had an EEG and and MRI and

found out that he has other issues besides his

apraxia. By the way, he has serious sensory

dysfunction problems also. Anyhow, to make a long

story short, he has a Chiari 1 brain malformation.

We're dealing with that.

On to your question about some oral motor activities.

Are you letting Mic use a toothbrush? JJ loves to

brush his teeth (he probably does it about 20 times a

day ;-)). We have been using ice to get him used to

us being in his mouth and suckers. This has helped

him some, because prior to his speech therapy he

couldn't tolerate anything cold.

He doesn't like people to touch his mouth too often or

his face for that matter, but we let him do most of

the work.

If you have any more questions please feel free to

contact me.

Kim,

Mom to Carissa age 9, normal as can be, and JJ 23

months, apraxic, sensory integration dysfunction and

most recently ACM1

--- mick8_7 <mick8_7@...> wrote:

> Hi Everyone,My name is Laurie Drago, we live in

> upstate NY. Iam a 42

> yr old mom to Mic a 2yrold ds/possible Pdd, Sensory

> Integration

> dysfunction/apraxia/severe feeding disorder.Mic is

> on a extensive

> ssensory diet for all areas including oral motor.6

> months ago Mic was

> saying dada and mama and baba and a few other

> meaningful words he

> called me mama and the bottle bottle baba and daddy

> dada.He has lost

> all meaningful speech.He was eating off the table,

> spegitti,

> applesause, mashed potatoes,etc.about 6 mos ago he

> stopped eating and

> we went back on formula, moved up to pediasure and

> now is back to

> eating yogurt ice cream and some baby ceral mixed

> with ice cream.He

> does eat gerbers toddler animal cookies,he puts the

> whole cookie in

> his mouth in order to eat it.He has serious sensory

> issues in his

> mouth.He doesnt seem to be able to chew properly.His

> sp said by the

> end of the year she suspects he will be dx apraxic

> or dyspraxic.I do

> not know alot about it and could use any pointers on

> tips to help

> him. Some of you probably know me from other

> groups.I keep hoping to

> hear mama again I long to hear it.His mimicing is

> very garbled now

> and before it was clear.He tries very hard to mimic

> our sounds and

> simple words just cant, I always praise him by

> clapping and smiling

> when a sound comes even if its not close to what Im

> trying to get him

> to mimic.We do alot of singing to him and are using

> signing for the

> most important simple words.He not cognitively ready

> to sign but will

> sign the more sign with cues.It is very difficult to

> get near Mics

> mouth for oral motor exercising.Any pointers would

> be great or

> suggestions for.He has been using a chewey tube for

> a year and a

> nuk.I dont have any other kids so its hard for me to

> think up oral

> motor games I can use to help him.Mic is also quite

> hypotonic over

> his entire body.Thank you,Laurie mom to Mic

[Guest guest]

Hi, there. I have a son, now 3, who also had severe feeding problems and

has verbal dyspraxia. I want to direct you to Suzanne Evan ' website

- just type her name into google and it'll come up. I believe it is called

New Visions. There is a wealth of information on her site re: feeding

issues and speech problems related to feeding issues. Wiley's feeding

issues were underlined by gastroesophageal reflux, so pain played a big part

in his resistance to food. However, he had a fair amount of difficulty with

food from a sensory standpoint as well, and this continues to hamper his

willingness to explore new foods and textures -- and the dyspraxia has

lessened his ability to control the food in his mouth, which creates

feelings of unsafety around new foods as well. I would make absolutely sure

that your child is not currently in the throws of reflux or aspiration or

other problems that often coincide with feeding disorders. I would then

secure a speech therapist or occupational therapist who is specialized in

feeding disorders to work on helping him up the food ladder. As for mouth

toys, I have a few (like a whole bag!!!) -- my son loved the rubber tubing

oral motor therapists use and I would dip it in different flavors - lemon

juice, pickle juice, etc. -- I had mouth massagers that I taped lollipops to

to get him to use the things and then of course crazy straws and horns and

all that. The biggest thing I did was INSIST he let me brush his teeth and

it took a week or so of fighting, but eventually he lay back and let me

brush and as I brushed, I would brush the insides of his cheeks, his tongue,

the roof of his mouth, etc. I'll tell you though, the main thing was

patience, eating, and persistence. We went from a diet of yogurt and cereal

to a diet that includes grilled cheeses, pizza, cheese, all manner of snack

foods, soups, breads, milk, juices, pasta, mac and cheese, etc. and it took

a full year and a half to do it. At 2, Wiley was doing some diced peaches

and toast. That was the BEGINNING of changing. So it takes time. Wiley is

finally fed totally by mouth - no g-tube feeds for a month, knock on wood -

and is beginning to drink enough on his own too without aspiration. So it

really is just hanging in there, making mealtimes fun, being very very very

patient - even if you've got one bowl for taking food and one bowl for

spitting it out in, you're going somewhere -- try those safety feeder bags

too - Toys R Us has them - to introduce flavors, like granny smith apples,

grapes, oranges, fruit juice popsicles. Also, try some playgroups where

snack time is structured and let him witness eating among children - with no

expectation that he eat. Keep offering. And know too that a diet sometimes

precedes a " good " diet - cheeto puffs were a staple for a period of time

before Kix took their place. Pooh fruit snacks took the place of grapes and

pears and so on for a good year. Just get those muscles moving any way you

can and try not to despair - feel free to email me privately at

bhollywood333@.... Good luck!

Betsy

>From: " mick8_7 " <mick8_7@...>

>Reply-

>

>Subject: [ ] New member

>Date: Fri, 06 Dec 2002 05:51:23 -0000

>

>Hi Everyone,My name is Laurie Drago, we live in upstate NY. Iam a 42

>yr old mom to Mic a 2yrold ds/possible Pdd, Sensory Integration

>dysfunction/apraxia/severe feeding disorder.Mic is on a extensive

>ssensory diet for all areas including oral motor.6 months ago Mic was

>saying dada and mama and baba and a few other meaningful words he

>called me mama and the bottle bottle baba and daddy dada.He has lost

>all meaningful speech.He was eating off the table, spegitti,

>applesause, mashed potatoes,etc.about 6 mos ago he stopped eating and

>we went back on formula, moved up to pediasure and now is back to

>eating yogurt ice cream and some baby ceral mixed with ice cream.He

>does eat gerbers toddler animal cookies,he puts the whole cookie in

>his mouth in order to eat it.He has serious sensory issues in his

>mouth.He doesnt seem to be able to chew properly.His sp said by the

>end of the year she suspects he will be dx apraxic or dyspraxic.I do

>not know alot about it and could use any pointers on tips to help

>him. Some of you probably know me from other groups.I keep hoping to

>hear mama again I long to hear it.His mimicing is very garbled now

>and before it was clear.He tries very hard to mimic our sounds and

>simple words just cant, I always praise him by clapping and smiling

>when a sound comes even if its not close to what Im trying to get him

>to mimic.We do alot of singing to him and are using signing for the

>most important simple words.He not cognitively ready to sign but will

>sign the more sign with cues.It is very difficult to get near Mics

>mouth for oral motor exercising.Any pointers would be great or

>suggestions for.He has been using a chewey tube for a year and a

>nuk.I dont have any other kids so its hard for me to think up oral

>motor games I can use to help him.Mic is also quite hypotonic over

>his entire body.Thank you,Laurie mom to Mic

>

>

_________________________________________________________________

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[Guest guest]

Here is a message I forwarded to the group but did not see it in my group emails

so I assume it fell into a black hole.

Just back from hospital and radio frequency neurotomy, more on that later when I

have a chance to assess it when the soreness of the procedure and last whisps of

heavy sedation wear off.

Regards, Gordon

new member

Hullo Charn,

I am a fellow Australian member of the PA Support Group. I do volunteer

advocacy work for the Arthritis Foundation of Australia. I have much local

Australia-related information I could provide you with. So as to not tie up the

group, feel free to contact me personally at geliott@...

Regards, Gordon

[Moderator's note: Hi Gordon. strips off all HTML formatting from messages

sent to this group (that's why you often see the message " Non-text portions of

this message have been removed " ), and I have seen more than one empty message

with no content whatever having been sent to the group, so I can only assume

that sometimes gets carried away with stripping out HTML formatting and

deletes the entire message. My guess is that this happens whenever the message

is heavily customized with odd sized fonts, colors, etc. Your messages have

always gotten though Ok in the past to the best of my knowledge, so I don't know

if this could be the problem or not, but I would like to recommend that everyone

please send plain unadorned text messages if possible. Stripping of the HTML

encoding is a side effect of disallowing attachments. Disallowing attachments is

what makes this forum 100% computer virus free, and it is unfortunately not

possible to shut off attachments only, without having the HTML character

encoding also stripped out. Regards, Ron]

[Guest guest]

In a message dated 12/30/2002 8:28:59 PM Eastern Standard Time,

angicakez@... writes:

> I am a college student in new orleans so of course drinking is a big

> part of my life, so I was reluctant to try metho

- The enbrel worked about as well for me as the metho - which isn't to

say it was a miracle for me, but it let's me go on with my life - and I feel

better on the enbrel vs. the metho. I had elevated liver enzymes with metho.

so it wasn't really an option to stay on it. That being said, you do know

that you will have to be on some serious meds. for life. The NSAIDS, Metho.,

enbrel, etc. all have some potential side effects. To me, drinking sure

isn't more important than my life and you may be endangering yours if you are

taking alcohol with those meds. Of course, not drinking is my personal

choice and your choice is up to you - please don't take that as judgmental -

it is certainly YOUR choice. Please just make sure you have all the

information on how alcohol mixed with your meds can effect you.

[Guest guest]

hi angie, i am o my 3rd shot of enbrel. i feel

better in my hips but that is all, but they said it could take 4-6

weeks for the enbrel to really work. so i am in a tough transition

right now. today i feel real bad. the metho worked well for me also

but my body stopped responding to it. i am also i drinker, i used to

drink alot..not everyday..but when together with my girls we would

sure put it away..i have really cut back on my drinking, i am now

nicknamed... " grandpaw " ...HOWEVER...i am having a bloody mary as i

type....YUM.....has been a while. i went to a christmas party about

a week ago. i knew there would be live entertainment and dancing and

all my longtime friends so i took a couple pain pills walk in 40

pounds lighter, looked like a million bucks(was told so)...lol..and

hit that floor alll nite.from 15 year olds to 80 years olds i loved

every bit of it and PAID for it the next 3 days. angela i do fell

better since i do not drink as often or tie one on like i used too. i

hopw you have a happy new year and try to stay strong...kyle

[Guest guest]

hello and welcome! I'm new here, too, and am just learning so there's a

bunch of us new people all asking basic questions together.

marti

[Guest guest]

<PRE>Hi Dennis, You will undoubtably get lots of good advice from this group. I

am

just learning about it myself so I'll leave the advice to the more

knowledgeable but would just like to tell you that you are not alone in your

hesitancy about treatment. My daughter is 25 and just found out she has Hep

C. (In her younger days, experimenting with drugs, YOU ARE NOT ALONE IN THIS)

she contacted this disease. When her doctor told her she would live till

about 50 without treatment, and she realized she would not be able to have

children if she was going to have to die on them at the age of 50, she

decided to go with the treatment, side affects and all. From what I have

learned so far from this support group is that side effects are different for

everyone. I say, Go with the thought that you will have no side effects!! ,

And if per chance you do, they will be tolerable. You can do it. Mind over

matter. Balance your options. Do what you know to be right in your heart. You

are the only one who can make this important decision. Be sure and knowing

that you will choose the right path!!! Please don't ever be shy with this

wonderful group. They will always be here for you as they are for me. Peace,

Love, and Light,

[Guest guest]

welcome dennis, start treatment if you can. with the pegasys/ribavirin combo therapy side effects aren't as severe and you still have a 21-40% chance of clearing even with cirrhosis. the treatment itself may help improve your cirrhosis a bit. in any case, without clearing the virus the cirrhosis will only get worse and could lead to other more devastating problems such as decompensation (liver quits working) of the liver or hepatocellular carcinoma, liver cancer. the best you can do is keep a positive attitutude, no matter what you decide it's a fairly slow moving/progressing disease we are dealing with.

bc

[ ] New Member

Hi everyone, My name is Dennis and I live in Ohio. I found out last Janurary that I have Hep C and a Biopsy also revealed that I have early Cihrossis. I am also a Veteran.I haven't started any treatment yet. The only thing I'm doing is taking Milk Thistle three times a day.I am contemplating treatment but am worried about the side affects. I probably contracted it around 1975 when in my young and dumber days I was experimenting with drugs while in the service.I see the VA has a program with the new pegelated interferon but it's still only 51% effective. My doctor thinks that I'm waiting too long to do somenthing but it's taken me awhile to adjust to the diagnosis. I was a little shy about joining a group but here I am. Any advice and experience would be appreciated. Thanx Dennis

[Guest guest]

Hi Dennis,

Welcome to the group..... I think each and every one of us put the

treatment off because it is so scarey..... Everyone has different

effects from the treatment. Some get real sick and yet others manage to

work thru it.... When I did treatment it was only a 20% response rate..

due to a rare blood condition I can no longer try any type of Interferon

or have a transplant...... Take the shot at 50%...... Don't just give in

to it. I also take milk thistle but my situation is a bit different.....

Go for it Dennis.... Don't be shy in this group..... We are all in the

same boat..... We will not sink... ;o.

Angel Hugs,

Diane

May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity