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I live about 15 miles south of Corvallis on a little farm...

I have a diabetes " education " meeting on next friday, as well as a

follow up meeting with my dr later that day. They want to put me in

classes, but my husband is not able to take 3 days from work to go

with me. And he is going to be making the lifestyle change with me,

because he knows that it will be too hard to do on my own without

proper support.

There are classes at the hospital, I am just going to have to find

time to get them done with my husband...

Thanks =)

Angelia in OR

> Hi Angelia!

>

> What part of Oregon are you from? I only ask because I am in

Portland and was diagnosed 18 months ago. My doctor sent me to The

Diabetes Institute at Good Sam and they were so AWESOME. They do the

education classes there, as well as set you up with a nutritionist, a

diabetic practitioner nurse who reviews your test results (the doc

should send them over), helps with meds, and helps you figure out

this VERY confusing time. It can be overwhelming, I know. I never

felt like I was being hurried along at this place. They sat with me

and answered every single question I had. Of course, it took a

couple of visits to get them all answered as every few days new

questions would pop up!! :)

>

> If you need more information, feel free to ask! This a great

group... I learn SO much from reading their postings every day.

Read up, get some books, and ASK QUESTIONS! Let me know if you need

phone numbers or anything.

>

> Take care!

>

> Carolyn

>

>

>

>

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I live about 15 miles south of Corvallis on a little farm...

I have a diabetes " education " meeting on next friday, as well as a

follow up meeting with my dr later that day. They want to put me in

classes, but my husband is not able to take 3 days from work to go

with me. And he is going to be making the lifestyle change with me,

because he knows that it will be too hard to do on my own without

proper support.

There are classes at the hospital, I am just going to have to find

time to get them done with my husband...

Thanks =)

Angelia in OR

> Hi Angelia!

>

> What part of Oregon are you from? I only ask because I am in

Portland and was diagnosed 18 months ago. My doctor sent me to The

Diabetes Institute at Good Sam and they were so AWESOME. They do the

education classes there, as well as set you up with a nutritionist, a

diabetic practitioner nurse who reviews your test results (the doc

should send them over), helps with meds, and helps you figure out

this VERY confusing time. It can be overwhelming, I know. I never

felt like I was being hurried along at this place. They sat with me

and answered every single question I had. Of course, it took a

couple of visits to get them all answered as every few days new

questions would pop up!! :)

>

> If you need more information, feel free to ask! This a great

group... I learn SO much from reading their postings every day.

Read up, get some books, and ASK QUESTIONS! Let me know if you need

phone numbers or anything.

>

> Take care!

>

> Carolyn

>

>

>

>

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We have a swimming pool that we use in the summer, and it didnt feel

too good to swim... though I am going to work with my husband and

make a program that I can follow... I do know that I can do yoga...

it is just that I have to find a place with daycare... and we dont

have many places like that round here... Have to drive an hour to

eugene... It is something that is going to have to get done... as

much as I am not into it... When my muscles get stronger, it does get

easier...

Angelia in OR

> What about swimming?

>

> new member

>

>

> I have severe knee pain all of the time, and am trying to find

something

> that I can do for excersize that wont hurt.

>

>

>

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  • 5 years later...
Guest guest

hello. I'm a M/33. I was diagnosed with RRMS back in Oct '06. It was a time

that I will never forget. The past two years have been the worst I could have

ever imagined. The good news is that I was quickly approved for SSI this year

after waiting only 6 months. That's about it. I've lost so many simple things

that we all take for granted.

My MS is what I'd call aggressive. I've been in and out of several different

hospitals for multiple attacks. I've tried trditional meds (Copaxone, Beta

Seron) with no reduction in new lesions or exacerbations. I've also tried

alternative therapies to address specific symptoms with little improvement. To

name a few:

Prokarin: gave me diahrea. No help with symptoms.

Manuka Honey: to fight fatigue. No help.

Acupuncture: to regain Bowel and Bladder control. No help.

I've had all my levels checked for everything from toxic metals to an under or

over active thyroid. I've also been tested for Lymes Disease. (neg)

Presently I'm taking a daily regiment of vitamin supplements and LDN. I've also

been getting IV therapy that includes Glutothione, Vitamin C, and trace minerals

once a week. I also started Calcium EAP IV's 3x a week. That's been happening

for about 6 months.

My symptoms are as follows:

Severe: Fatigue. Weakness in upper legs. Extremely painful pins and needles at

times all over body that mostly come in waves.

Moderate: Blurred vision. Numbness in right hand. Partial loss of bowel and

bladder control as well as balance and coordination.

I'm very interested in the advances and reserch grant restictions that have been

lifted in stem cell treatment and would really like to speak with or bbe put in

touch with someone who has done it. Particularly Fetal Stem Cell Therapy. Well

thats about it in a nut shell. Please contact me with any suggestions or

comments/questions. I'm eager to help others as I am to receive it.

Sincerely,

Mike

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