Re: Catch me up in 25 words or less.....

March 29, 2008

HI YOU, we've missed you. Are you OK ? how are you feeling? Tell us where you've been. You know you are not allowed to just stop reporting in.. Good Grief what were you thinking,???Nice to see a post. Love and Prayers, PeggyHave a God Blessed Day Ok, If I've missed responding to any question to me, please repeat it. Itried to use mental telepathy to catch up on everything here in my sleepbut it didn't work.

March 29, 2008

Peggy

That was over 25 words and was questions only...lol

I've been busy trying to decide on a vehicle and make a purchase, while

researching lift combinations with vehicles and also figuring what

chairs will work with what lifts with what vehicles.

This has physically tired me, but mentally and emotionally exhausted me.

I do not deal with the stress of such decisions well. That's a residual

of my mental illness problems and day to day I'm fine, but throw major

decisions or road blocks at me and it takes everything I have. And, at

every step, things got more complicated. I wanted to avoid a van. So,

found relatively small SUV's that would " work " . Well, almost. Even found

some that the lift manufacturers had lifts for. Oh, just a couple of

problems. I knew you'd have to remove the second row of seats and that

wasn't too bad. But, where they had units that would work with only 30

inches of headroom and door clearance and the SUV's had 32 1/2 inches,

there are no chairs that are under 34 inches in height. So, what good is

the lift for which there is no chair? Then what about a short wheel base

van? Well, almost. So, finally I did it. Still not without some issues

remaining, but better now.

Now, I also did my tax return during the week. Didn't turn out quite as

bad as I expected but was complicated as got money for 2006 during 2007

from social security and gave it back to insurer so special provisions

apply both for the social security and the give back requiring

calculation of return many ways and even recalculating 2006 based on

what-if's to compare. Now, the relief was, after all was said and done,

turned out decently thanks to spending over $15,000 on medical care

during the year.

How am I feeling. Exhausted, but ok. Have counselor Monday too and

looking forward to her especially this week. Still not prepared for

Chicago trip. May have to delay. And, suppose to see UTSW transplant

people on the 15th. Lots of things on my list so going to relax over the

weekend, prioritize, and start back on Monday.

Meanwhile, glad I'm getting all these things done as physically I am

declining more rapidly than I'd like to admit. Now, its also complicated

by horrible allergens right now in this area and heavy congestion.

Actually, did some comparisons yesterday just to be sure where I stand

and what needs addressing. I'm definitely requiring more oxygen anytime

I'm moving around the apartment and more on treadmill. The other thing I

checked more scientifically on treadmill to see if what I thought was

factually supported was my breathing using the pulse portable Helios. I

am going to have to make a change there as 4 lpm on pulse isn't enough

and requires me to slow down. I found that on 4 lpm continuous liquid

versus 4 lpm pulse Helios last night at the same speed on the treadmill,

my sats were lower by 4-5% on the Helios. No one panic, I didn't let it

go below 90 before slowing down. So, going to have to get another

portable with higher continuous, higher pulse or both. I'm of the

opinion that a pulse such as Helios just won't work well for me when

highly congested as I don't exhale and inhale well enough to keep the

oxygen coming at the pace I need. So, probably heading to the

Companion1000, so 8 pounds to carry versus 3.6.

I've missed you all, but I just didn't have any energy left to even come

read, much less post. Once I'd sit down, to sleep I'd fall. Of course

then that means lousy sleep at night...lol

>

> Ok, If I've missed responding to any question to me, please repeat it.

I

> tried to use mental telepathy to catch up on everything here in my

sleep

> but it didn't work.

>

March 29, 2008

Bruce...oh I do not want to hear you are declining! A huge "DAMNIT!". You seem to be good about monitoring yourself, please keep it up.Rest and refresh yourself.

I've missed you but want more stability and if you can't post as much, then so be it. I'll call you!

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

Re: Catch me up in 25 words or less.....

PeggyThat was over 25 words and was questions only...lolI've been busy trying to decide on a vehicle and make a purchase, whileresearching lift combinations with vehicles and also figuring whatchairs will work with what lifts with what vehicles.This has physically tired me, but mentally and emotionally exhausted me.I do not deal with the stress of such decisions well. That's a residualof my mental illness problems and day to day I'm fine, but throw majordecisions or road blocks at me and it takes everything I have. And, atevery step, things got more complicated. I wanted to avoid a van. So,found relatively small SUV's that would "work". Well, almost. Even foundsome that the lift manufacturers had lifts for. Oh, just a couple ofproblems. I knew you'd have to remove the second row of seats and thatwasn't too bad. But, where they had units that would work with only 30inches of headroom and door clearance and the SUV's had 32 1/2 inches,there are no chairs that are under 34 inches in height. So, what good isthe lift for which there is no chair? Then what about a short wheel basevan? Well, almost. So, finally I did it. Still not without some issuesremaining, but better now.Now, I also did my tax return during the week. Didn't turn out quite asbad as I expected but was complicated as got money for 2006 during 2007from social security and gave it back to insurer so special provisionsapply both for the social security and the give back requiringcalculation of return many ways and even recalculating 2006 based onwhat-if's to compare. Now, the relief was, after all was said and done,turned out decently thanks to spending over $15,000 on medical careduring the year.How am I feeling. Exhausted, but ok. Have counselor Monday too andlooking forward to her especially this week. Still not prepared forChicago trip. May have to delay. And, suppose to see UTSW transplantpeople on the 15th. Lots of things on my list so going to relax over theweekend, prioritize, and start back on Monday.Meanwhile, glad I'm getting all these things done as physically I amdeclining more rapidly than I'd like to admit. Now, its also complicatedby horrible allergens right now in this area and heavy congestion.Actually, did some comparisons yesterday just to be sure where I standand what needs addressing. I'm definitely requiring more oxygen anytimeI'm moving around the apartment and more on treadmill. The other thing Ichecked more scientifically on treadmill to see if what I thought wasfactually supported was my breathing using the pulse portable Helios. Iam going to have to make a change there as 4 lpm on pulse isn't enoughand requires me to slow down. I found that on 4 lpm continuous liquidversus 4 lpm pulse Helios last night at the same speed on the treadmill,my sats were lower by 4-5% on the Helios. No one panic, I didn't let itgo below 90 before slowing down. So, going to have to get anotherportable with higher continuous, higher pulse or both. I'm of theopinion that a pulse such as Helios just won't work well for me whenhighly congested as I don't exhale and inhale well enough to keep theoxygen coming at the pace I need. So, probably heading to theCompanion1000, so 8 pounds to carry versus 3.6.I've missed you all, but I just didn't have any energy left to even comeread, much less post. Once I'd sit down, to sleep I'd fall. Of coursethen that means lousy sleep at night...lol>> Ok, If I've missed responding to any question to me, please repeat it.I> tried to use mental telepathy to catch up on everything here in mysleep> but it didn't work.>

March 29, 2008

Sher

Well, decline is to be expected with my form of the disease, so its

something I've anticipated. I just need to adjust equipment a bit to

take care of the increased needs.

> >

> > Ok, If I've missed responding to any question to me, please repeat

it.

> I

> > tried to use mental telepathy to catch up on everything here in my

> sleep

> > but it didn't work.

> >

>

March 29, 2008

Sher

Well, decline is to be expected with my form of the disease, so its

something I've anticipated. I just need to adjust equipment a bit to

take care of the increased needs.

> >

> > Ok, If I've missed responding to any question to me, please repeat

it.

> I

> > tried to use mental telepathy to catch up on everything here in my

> sleep

> > but it didn't work.

> >

>

March 29, 2008

Hi Bruce,

I'm sure in time, you'll choose the right car for you! I Hope you'll get to go to Chicago...I know how much you were looking

forward to it! Keep saying to yourself, you'll go!

Irene

---- Original Message ----

To: Breathe-Support

Sent: Sat, 29 Mar 2008 7:02 pm

Subject: Re: Catch me up in 25 words or less.....

Sher

Well, decline is to be expected with my form of the disease, so its

something I've anticipated. I just need to adjust equipment a bit to

take care of the increased needs.

> >

> > Ok, If I've missed responding to any question to me, please repeat

it.

> I

> > tried to use mental telepathy to catch up on everything here in my

> sleep

> > but it didn't work.

> >

>

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

March 29, 2008

Hi Bruce,

I'm sure in time, you'll choose the right car for you! I Hope you'll get to go to Chicago...I know how much you were looking

forward to it! Keep saying to yourself, you'll go!

Irene

---- Original Message ----

To: Breathe-Support

Sent: Sat, 29 Mar 2008 7:02 pm

Subject: Re: Catch me up in 25 words or less.....

Sher

Well, decline is to be expected with my form of the disease, so its

something I've anticipated. I just need to adjust equipment a bit to

take care of the increased needs.

> >

> > Ok, If I've missed responding to any question to me, please repeat

it.

> I

> > tried to use mental telepathy to catch up on everything here in my

> sleep

> > but it didn't work.

> >

>

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.

March 30, 2008

-Hi,

glad you are back , missed you alot

-- In Breathe-Support , Peggy

wrote:

>

> HI YOU, we've missed you. Are you OK ? how are you feeling? Tell

us

> where you've been. You know you are not allowed to just stop

> reporting in.. Good Grief what were you thinking,???

> Nice to see a post.

>

> Love and Prayers, Peggy

> Have a God Blessed Day

>

> Ok, If I've missed responding to any question to me, please repeat

it. I

> tried to use mental telepathy to catch up on everything here in my

sleep

> but it didn't work.

>

March 30, 2008

-Bruce

your comment on pulse POC is timely, we are finally going in for

the POC and i was still convincing my husband that only pulse would

do fine instead of pulse and cotinuous , beause of cost

considerations but my husband is going for the continuos, what do

you say?you have keep in mind my flight requirements too

Geeta

-- In Breathe-Support , " Bruce Moreland "

wrote:

>

> Peggy

>

> That was over 25 words and was questions only...lol

>

> I've been busy trying to decide on a vehicle and make a purchase,

while

> researching lift combinations with vehicles and also figuring what

> chairs will work with what lifts with what vehicles.

>

> This has physically tired me, but mentally and emotionally

exhausted me.

> I do not deal with the stress of such decisions well. That's a

residual

> of my mental illness problems and day to day I'm fine, but throw

major

> decisions or road blocks at me and it takes everything I have.

And, at

> every step, things got more complicated. I wanted to avoid a van.

So,

> found relatively small SUV's that would " work " . Well, almost. Even

found

> some that the lift manufacturers had lifts for. Oh, just a couple

of

> problems. I knew you'd have to remove the second row of seats and

that

> wasn't too bad. But, where they had units that would work with

only 30

> inches of headroom and door clearance and the SUV's had 32 1/2

inches,

> there are no chairs that are under 34 inches in height. So, what

good is

> the lift for which there is no chair? Then what about a short

wheel base

> van? Well, almost. So, finally I did it. Still not without some

issues

> remaining, but better now.

>

> Now, I also did my tax return during the week. Didn't turn out

quite as

> bad as I expected but was complicated as got money for 2006 during

2007

> from social security and gave it back to insurer so special

provisions

> apply both for the social security and the give back requiring

> calculation of return many ways and even recalculating 2006 based

on

> what-if's to compare. Now, the relief was, after all was said and

done,

> turned out decently thanks to spending over $15,000 on medical care

> during the year.

>

> How am I feeling. Exhausted, but ok. Have counselor Monday too and

> looking forward to her especially this week. Still not prepared for

> Chicago trip. May have to delay. And, suppose to see UTSW

transplant

> people on the 15th. Lots of things on my list so going to relax

over the

> weekend, prioritize, and start back on Monday.

>

> Meanwhile, glad I'm getting all these things done as physically I

am

> declining more rapidly than I'd like to admit. Now, its also

complicated

> by horrible allergens right now in this area and heavy congestion.

> Actually, did some comparisons yesterday just to be sure where I

stand

> and what needs addressing. I'm definitely requiring more oxygen

anytime

> I'm moving around the apartment and more on treadmill. The other

thing I

> checked more scientifically on treadmill to see if what I thought

was

> factually supported was my breathing using the pulse portable

Helios. I

> am going to have to make a change there as 4 lpm on pulse isn't

enough

> and requires me to slow down. I found that on 4 lpm continuous

liquid

> versus 4 lpm pulse Helios last night at the same speed on the

treadmill,

> my sats were lower by 4-5% on the Helios. No one panic, I didn't

let it

> go below 90 before slowing down. So, going to have to get another

> portable with higher continuous, higher pulse or both. I'm of the

> opinion that a pulse such as Helios just won't work well for me

when

> highly congested as I don't exhale and inhale well enough to keep

the

> oxygen coming at the pace I need. So, probably heading to the

> Companion1000, so 8 pounds to carry versus 3.6.

>

> I've missed you all, but I just didn't have any energy left to

even come

> read, much less post. Once I'd sit down, to sleep I'd fall. Of

course

> then that means lousy sleep at night...lol

>

> >

> > Ok, If I've missed responding to any question to me, please

repeat it.

> I

> > tried to use mental telepathy to catch up on everything here in

my

> sleep

> > but it didn't work.

> >

>

March 30, 2008

-Bruce

your comment on pulse POC is timely, we are finally going in for

the POC and i was still convincing my husband that only pulse would

do fine instead of pulse and cotinuous , beause of cost

considerations but my husband is going for the continuos, what do

you say?you have keep in mind my flight requirements too

Geeta

-- In Breathe-Support , " Bruce Moreland "

wrote:

>

> Peggy

>

> That was over 25 words and was questions only...lol

>

> I've been busy trying to decide on a vehicle and make a purchase,

while

> researching lift combinations with vehicles and also figuring what

> chairs will work with what lifts with what vehicles.

>

> This has physically tired me, but mentally and emotionally

exhausted me.

> I do not deal with the stress of such decisions well. That's a

residual

> of my mental illness problems and day to day I'm fine, but throw

major

> decisions or road blocks at me and it takes everything I have.

And, at

> every step, things got more complicated. I wanted to avoid a van.

So,

> found relatively small SUV's that would " work " . Well, almost. Even

found

> some that the lift manufacturers had lifts for. Oh, just a couple

of

> problems. I knew you'd have to remove the second row of seats and

that

> wasn't too bad. But, where they had units that would work with

only 30

> inches of headroom and door clearance and the SUV's had 32 1/2

inches,

> there are no chairs that are under 34 inches in height. So, what

good is

> the lift for which there is no chair? Then what about a short

wheel base

> van? Well, almost. So, finally I did it. Still not without some

issues

> remaining, but better now.

>

> Now, I also did my tax return during the week. Didn't turn out

quite as

> bad as I expected but was complicated as got money for 2006 during

2007

> from social security and gave it back to insurer so special

provisions

> apply both for the social security and the give back requiring

> calculation of return many ways and even recalculating 2006 based

on

> what-if's to compare. Now, the relief was, after all was said and

done,

> turned out decently thanks to spending over $15,000 on medical care

> during the year.

>

> How am I feeling. Exhausted, but ok. Have counselor Monday too and

> looking forward to her especially this week. Still not prepared for

> Chicago trip. May have to delay. And, suppose to see UTSW

transplant

> people on the 15th. Lots of things on my list so going to relax

over the

> weekend, prioritize, and start back on Monday.

>

> Meanwhile, glad I'm getting all these things done as physically I

am

> declining more rapidly than I'd like to admit. Now, its also

complicated

> by horrible allergens right now in this area and heavy congestion.

> Actually, did some comparisons yesterday just to be sure where I

stand

> and what needs addressing. I'm definitely requiring more oxygen

anytime

> I'm moving around the apartment and more on treadmill. The other

thing I

> checked more scientifically on treadmill to see if what I thought

was

> factually supported was my breathing using the pulse portable

Helios. I

> am going to have to make a change there as 4 lpm on pulse isn't

enough

> and requires me to slow down. I found that on 4 lpm continuous

liquid

> versus 4 lpm pulse Helios last night at the same speed on the

treadmill,

> my sats were lower by 4-5% on the Helios. No one panic, I didn't

let it

> go below 90 before slowing down. So, going to have to get another

> portable with higher continuous, higher pulse or both. I'm of the

> opinion that a pulse such as Helios just won't work well for me

when

> highly congested as I don't exhale and inhale well enough to keep

the

> oxygen coming at the pace I need. So, probably heading to the

> Companion1000, so 8 pounds to carry versus 3.6.

>

> I've missed you all, but I just didn't have any energy left to

even come

> read, much less post. Once I'd sit down, to sleep I'd fall. Of

course

> then that means lousy sleep at night...lol

>

> >

> > Ok, If I've missed responding to any question to me, please

repeat it.

> I

> > tried to use mental telepathy to catch up on everything here in

my

> sleep

> > but it didn't work.

> >

>

March 30, 2008

If pulse works effectively for you, it has significant advantages. It

does work effectively for most people who are at relatively low liter

flows and some with higher flows. Also, each pulse machine and method is

a little different. So, don't take my experience to be yours. Just take

it as advice that if you're normally on continuous do not assume the

same liter flow of pulse will give the same saturation. It may or may

not. I think my problems center around both my congestion and the number

of breaths per minute I take (not enough sometimes). Also, because of

the suggestion I often breath through my mouth which, of course, does

nothing to initiate a pulse flow on a Helios tank. Do keep one thing in

mind too and that is you will need more liter flow on a plane than

sitting at home because of the altitude.

With the length of your flights, I don't see how you're going to have a

choice but to use the airlines oxygen on the plane and your portable

concentrator on the ground during layovers.

> > >

> > > Ok, If I've missed responding to any question to me, please

> repeat it.

> > I

> > > tried to use mental telepathy to catch up on everything here in

> my

> > sleep

> > > but it didn't work.

> > >

> >

>

March 30, 2008