Re: Re: / Barb

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Hi Barb, Mucinex and NAC are almost the same. Anytime my cough gets crazy or my nose is tooooo runny. I take NAC. The transplant Dr I saw told me to take it. Them my pulmo Dr told me to take it also.. Purtian pride has such good prices it is the place I order from. Love and Prayers, PeggyHave a God Blessed Day Just jumping in here and not really knowing of what I speak....wouldMucinex help? It's OTC (Over The Counter) and fairly reasonable inprice. And I think they make 2 different kinds. One to suppress acough or one to expectorate.....might make a decent change from thecough drops, if only for a while so he can get his taste buds back.I've been reading your posts and you are doing the right thing inasking all the questions. How else do we learn?Hugs and smiles to you and your hubby!Babs in Texas> > ,> Good morning! I'm so happy that you're finding friendship andsupport on this board. I've been here well over a year and a half andhonestly these are some of the best people I've ever known under anycircumstances. I hate this disease as much as anyone but I can'tregret the blessings it has brought me and this group is one of them.> > You asked a question about the effectiveness or lack thereof ofprednisone in treating IPF. The bad news is that prednisone has notbeen shown to be effective in slowing down the progression of IPF or Ibelieve UIP. There are some people who believe they have been helpedby it but for the most part prednisone is something that some doctorswill give to an IPF patient because there is literally nothing elsethey can do. > The good news is if he has a different form of fibrosis (there areover 200 varieties) prednisone might be an effective treatment. For HP(Hypersensitivity Pneumonitis) or NSIP (Non Specific InterstitialPneumonitis) and others prednisone is often effective in arresting theprogress and stablizing the disease. That was the case for me. I wason up to 100mg of prednisone from June 2006 through February 2007before I was weaned off. My side effects were unpleasant but my doctorwas aggressive in helping me manage them. My belief is that initiallythe prednisone helped save my life and then stablized my disease. I'vebeen off now for just over a year and I continue to be stable. God isgood! > Has your husbands type of fibrosis been identified? You mightwant to have a conversation with your doctor about the meds yourhusband is on. What do they expect the meds to do for him? And if theyfeel he has a form of fibrosis that can be helped by the pred, thenwhat kind of help can they give you in managing the side effects hemay be having. I was on Nexium and Carafate for my stomach. I wastaking insulin because in high doses the prednisone made my bloodsugars go crazy. I was on Zoloft because I was having rather wild moodswings. I had awful insomnia but there was nothing I could take for itbecause everything suppressed my respirations. I think you alsomentioned that Don has a horrible cough. About 15 months ago Dr. Simonelli at Columbia Pres in NY suggested I use Advair for the coughand it has worked well for me. I use the Advair 250/50 twice a day. It might be something to ask about.> , just ask lots of questions. There are good solid medicalreasons to use prednisone and some of the other meds for manypatients. Have you been to a university medical center? I'd have tolook at a map to see what's closest to you but you can always contactLeanne at the Foundation for more info or go to the Foundationswebsite. www.pulmonaryfibrosis.org > > No one can give you medical advice but your doctor. We share ourexperience, points of view, and opinions here. There's alot ofcombined wisdom here and I learn something every day. Everyone thoughhas to decide what's best for them. > > > Beth in NC age 48 Fibrotic NSIP 06/06> > "For as long as I shall live, I will testify to Love." > > > > > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>

[Guest guest]

Hi Barb, Mucinex and NAC are almost the same. Anytime my cough gets crazy or my nose is tooooo runny. I take NAC. The transplant Dr I saw told me to take it. Them my pulmo Dr told me to take it also.. Purtian pride has such good prices it is the place I order from. Love and Prayers, PeggyHave a God Blessed Day Just jumping in here and not really knowing of what I speak....wouldMucinex help? It's OTC (Over The Counter) and fairly reasonable inprice. And I think they make 2 different kinds. One to suppress acough or one to expectorate.....might make a decent change from thecough drops, if only for a while so he can get his taste buds back.I've been reading your posts and you are doing the right thing inasking all the questions. How else do we learn?Hugs and smiles to you and your hubby!Babs in Texas> > ,> Good morning! I'm so happy that you're finding friendship andsupport on this board. I've been here well over a year and a half andhonestly these are some of the best people I've ever known under anycircumstances. I hate this disease as much as anyone but I can'tregret the blessings it has brought me and this group is one of them.> > You asked a question about the effectiveness or lack thereof ofprednisone in treating IPF. The bad news is that prednisone has notbeen shown to be effective in slowing down the progression of IPF or Ibelieve UIP. There are some people who believe they have been helpedby it but for the most part prednisone is something that some doctorswill give to an IPF patient because there is literally nothing elsethey can do. > The good news is if he has a different form of fibrosis (there areover 200 varieties) prednisone might be an effective treatment. For HP(Hypersensitivity Pneumonitis) or NSIP (Non Specific InterstitialPneumonitis) and others prednisone is often effective in arresting theprogress and stablizing the disease. That was the case for me. I wason up to 100mg of prednisone from June 2006 through February 2007before I was weaned off. My side effects were unpleasant but my doctorwas aggressive in helping me manage them. My belief is that initiallythe prednisone helped save my life and then stablized my disease. I'vebeen off now for just over a year and I continue to be stable. God isgood! > Has your husbands type of fibrosis been identified? You mightwant to have a conversation with your doctor about the meds yourhusband is on. What do they expect the meds to do for him? And if theyfeel he has a form of fibrosis that can be helped by the pred, thenwhat kind of help can they give you in managing the side effects hemay be having. I was on Nexium and Carafate for my stomach. I wastaking insulin because in high doses the prednisone made my bloodsugars go crazy. I was on Zoloft because I was having rather wild moodswings. I had awful insomnia but there was nothing I could take for itbecause everything suppressed my respirations. I think you alsomentioned that Don has a horrible cough. About 15 months ago Dr. Simonelli at Columbia Pres in NY suggested I use Advair for the coughand it has worked well for me. I use the Advair 250/50 twice a day. It might be something to ask about.> , just ask lots of questions. There are good solid medicalreasons to use prednisone and some of the other meds for manypatients. Have you been to a university medical center? I'd have tolook at a map to see what's closest to you but you can always contactLeanne at the Foundation for more info or go to the Foundationswebsite. www.pulmonaryfibrosis.org > > No one can give you medical advice but your doctor. We share ourexperience, points of view, and opinions here. There's alot ofcombined wisdom here and I learn something every day. Everyone thoughhas to decide what's best for them. > > > Beth in NC age 48 Fibrotic NSIP 06/06> > "For as long as I shall live, I will testify to Love." > > > > > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.>

[Guest guest]

http://www.puritan.com/pages/file.asp?xs=F055414A528840A3AC6F3A5CC6656426 & PID=324 & CID= & CPID=39http://www.puritansale.com/pages/file.asp?xs=47BE91A0357546569D00ACC89B4B9DAE & PID=324 & CID= & CPID=39Puritansale is cheaper some times P ( From the Burg will know)Peggy wrote: Hi Barb, Mucinex and NAC are almost the same. Anytime my cough gets crazy or my nose is tooooo runny. I take NAC. The

transplant Dr I saw told me to take it. Them my pulmo Dr told me to take it also.. Purtian pride has such good prices it is the place I order from. Love and Prayers, PeggyHave a God Blessed Day Just jumping in here and not really knowing of what I speak....wouldMucinex help? It's OTC (Over The Counter) and fairly reasonable inprice. And I think they make 2 different kinds. One to suppress acough or one to expectorate.....might make a decent change from thecough drops, if only for a while so he can get his taste buds back.I've been reading your posts and you are doing the right thing inasking all the questions. How else do we learn?Hugs and smiles to you and your hubby!Babs in Texas> > ,> Good morning! I'm so happy that you're finding friendship andsupport on this board. I've been here well over a year and a half andhonestly these are some of the best people I've ever known under anycircumstances. I hate this disease as much as anyone but I can'tregret the blessings it has brought me and this group is one of them.> > You asked a question about the effectiveness or lack thereof ofprednisone in treating IPF. The bad news is that prednisone has notbeen shown to be effective in slowing down the progression of IPF or Ibelieve UIP. There are some people who believe they have been helpedby it but for the most part prednisone is something that

some doctorswill give to an IPF patient because there is literally nothing elsethey can do. > The good news is if he has a different form of fibrosis (there areover 200 varieties) prednisone might be an effective treatment. For HP(Hypersensitivity Pneumonitis) or NSIP (Non Specific InterstitialPneumonitis) and others prednisone is often effective in arresting theprogress and stablizing the disease. That was the case for me. I wason up to 100mg of prednisone from June 2006 through February 2007before I was weaned off. My side effects were unpleasant but my doctorwas aggressive in helping me manage them. My belief is that initiallythe prednisone helped save my life and then stablized my disease. I'vebeen off now for just over a year and I continue to be stable. God isgood! > Has your husbands type of fibrosis been

identified? You mightwant to have a conversation with your doctor about the meds yourhusband is on. What do they expect the meds to do for him? And if theyfeel he has a form of fibrosis that can be helped by the pred, thenwhat kind of help can they give you in managing the side effects hemay be having. I was on Nexium and Carafate for my stomach. I wastaking insulin because in high doses the prednisone made my bloodsugars go crazy. I was on Zoloft because I was having rather wild moodswings. I had awful insomnia but there was nothing I could take for itbecause everything suppressed my respirations. I think you alsomentioned that Don has a horrible cough. About 15 months ago Dr. Simonelli at Columbia Pres in NY suggested I use Advair for the coughand it has worked well for me. I use the Advair 250/50 twice a day. It might be something to ask about.> , just ask

lots of questions. There are good solid medicalreasons to use prednisone and some of the other meds for manypatients. Have you been to a university medical center? I'd have tolook at a map to see what's closest to you but you can always contactLeanne at the Foundation for more info or go to the Foundationswebsite. www.pulmonaryfibrosis.org > > No one can give you medical advice but your doctor. We share ourexperience, points of view, and opinions here. There's alot ofcombined wisdom here and I learn something every day. Everyone thoughhas to decide what's best for them. > > > Beth in NC age 48 Fibrotic NSIP

06/06> > "For as long as I shall live, I will testify to Love." > > > > > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 8/04, PH 3/06,

ILL yo 59

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.