Re: answers from yesterday

[Guest guest]

Yesterday was a very busy day. We had company almost all day. Good thing it was yesterday because today is a train wreck. A storm is rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make

this". The doc gave me some good drugs but haven't been on them long enough to make a difference yet. I'll make my way through all the messages on here. I'll answer a few of them. One question I have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the messages. K central Ill hubby pf 2006 Beth wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth

in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to

reverse a decision and shocked myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over. Well prednisone nearly killed me and Is one of the reason I opted not to try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of

You. Are you doing ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute

shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Yesterday was a very busy day. We had company almost all day. Good thing it was yesterday because today is a train wreck. A storm is rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make

this". The doc gave me some good drugs but haven't been on them long enough to make a difference yet. I'll make my way through all the messages on here. I'll answer a few of them. One question I have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the messages. K central Ill hubby pf 2006 Beth wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth

in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to

reverse a decision and shocked myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over. Well prednisone nearly killed me and Is one of the reason I opted not to try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of

You. Are you doing ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute

shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

, First here's a hug! Now take a deep breath. Next put your teachers hat on! Good. Ooops, you're not smiling. OK! These questions are so very important. My Dr gave me paper work for a living will. This is to make sure the wishes of the sick person are known to all. For me, it relieved the pressure from my children. I have told them what I want, so they only have to follow that directive and never feel guilty! You are in no shape to make these decisions and I am not sure time will change that. I don't know you yet, some people get stronger as time goes by. My kids are pretty cool. Talking about death has always been a part of life for us, so although they may miss me, they realize that those tears come from our human side. Our spiritual side rejoices in the fact that we might be having a much

better time then they are. Death is inevitable for all of us and we could very well out live our caregivers!!!!! Remember, if you want to talk, my number is posted and I don't pay extra for long distance, so if you do, I'll call you back. Love ya, Ter Kennelly wrote: Yesterday was a very busy day. We had company almost all day.

Good thing it was yesterday because today is a train wreck. A storm is rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make this". The doc gave me some good drugs but haven't been on them long enough to

make a difference yet. I'll make my way through all the messages on here. I'll answer a few of them. One question I have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the messages. K central Ill hubby pf 2006 Beth <mbmurtha> wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to reverse a decision and shocked myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their

trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over.

Well prednisone nearly killed me and Is one of the reason I opted not to try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of You. Are you doing ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I

sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Thanks! The oops, you're not smiling really did make me smile. We already have living wills but I've been told that if you call 911 they have to inti-bate. If something happens in the middle of the night - I'll be frantic and I know I'll want help. To do what? I have no idea. My eldest son just lives a mile away. Guys, I'm so sorry to bring such morbidity to the page. I just need to know what hospice suggests. On days like today I think it surely can't be far away. K Central IL. hubby pf 2006Terry Pennisi wrote: , First here's a hug! Now take a deep breath. Next put your teachers hat on! Good. Ooops, you're not smiling. OK! These questions are so very important. My Dr gave me paper work for a living will. This is to make sure the wishes of the sick person are known to all. For me, it relieved the pressure from my children. I have told them what I want, so they only have to follow that directive and never feel guilty! You are in no shape to make these decisions and I am not sure time will change that. I don't know you yet, some people get stronger as time goes by. My

kids are pretty cool. Talking about death has always been a part of life for us, so although they may miss me, they realize that those tears come from our human side. Our spiritual side rejoices in the fact that we might be having a much better time then they are. Death is inevitable for all of us and we could very well out live our caregivers!!!!! Remember, if you want to talk, my number is posted and I don't pay extra for long distance, so if you do, I'll call you back. Love ya, Ter Kennelly <l_kennelly> wrote: Yesterday was a very busy day. We had company almost all day. Good thing it was yesterday because today is a train wreck. A storm is

rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make this". The doc gave me some good drugs but haven't been on them long enough to make a difference yet. I'll make my way through all the

messages on here. I'll answer a few of them. One question I have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the messages. K central Ill hubby pf 2006 Beth <mbmurtha> wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to reverse a decision and shocked myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their

trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over.

Well prednisone nearly killed me and Is one of the reason I opted not to try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of You. Are you doing ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I

sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

K. .... I've been reading all your posts I think but can't seem to remember what the Dr. says about Don's cough. As Joyce wrote you, there are home remedies that work too.

I took NAC (N-Acetyl Cysteine)...many of us here do.

It's a supplement purchased through www.puritanspride.com Very reasonable, and many purchase from there, including me.

Read about it online, ask your Dr....although some Drs think it doesn't help some think it does. It's a personal choice. All I can say is, it helped me w/ cough and mucus...Take w/food though or it can give a bit of an upset stomach.

About Hospice: This too is a very personal choice. And what I say is obviously only MY opinion.

All Hospice's are not the same. Go check one out in your area. Ask lots of questions.

I love Hospice! I worked for Hospice many years ago. They help family members as well and as long as you are clear about what you want / don't want I've never seen a problem. They are usually loving and caring people.

NOW. Having said that.....our L. had a horrid, unbelievable experience with Hospice in her area. I've never before heard of what happened to her and I'm sure she will respond to you personally. She truly suffered and nearly died. Can Hospice be blamed for everything? I don't know....

Start checking everything out . Research. Be Don's advocate about everything.

There are many things to prepare for; his wishes about his personal things, a Medical Directive, (I know this is hard to read) burial preferences, a Will, all final arrangements can be done by Don through you.

So many of us on the board here have already taken care of these things by ourselves and it does bring relief when it's done .

Also, you will need Don's medical wishes in writing. A Living Will or a Medical Directive is more specific. Give to each Dr. / hospital that needs one.

I don't mean to sound cold here but there is importance in meeting these necessary things together.

Maybe the caregivers board can give you help I'm not aware of.

We who have the disease and those who love us and must watch us with this disease, face it differently . I can feel your fear and sorrow and I'm so sorry you must go through this with Don.

God Bless.

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

Re: K

Hi Peggy,

Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world.

I called the Ins co and got them to reverse a decision and shocked myself. From all I had ever heard, that was tough. Took one call and got what I wanted.

Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their trade!

I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option!

Sorry for rambling. Thanks for asking.

Love ya,

Ter

Peggy <pac1773cfl (DOT) rr.com> wrote:

Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over. Well prednisone nearly killed me and Is one of the reason I opted not to try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them.

Sorry I didn't mean to get on my kick..LOL Take Care of You. Are you doing ok?

Love and Prayers, Peggy

Florida, ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

Hi ,

Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again!

You will sort out what you need from this group. I sure can't keep up like the Pro's yet!

There when you need me,

TerryTerry Pennisi 11/07 IPF Nevada

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Terry Pennisi 11/07 IPF Nevada

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

Terry Pennisi 11/07 IPF Nevada

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

My husband was on hospice for two weeks before he passed an hospice wants to be called when he goes.They will come in and check and call the necessary people. hope this helps you. nsip 2002 raynauds 2002 canton ohio Kennelly wrote: Thanks! The oops, you're not smiling really did make me smile. We already have living wills but I've been told that if you call 911 they have to inti-bate. If

something happens in the middle of the night - I'll be frantic and I know I'll want help. To do what? I have no idea. My eldest son just lives a mile away. Guys, I'm so sorry to bring such morbidity to the page. I just need to know what hospice suggests. On days like today I think it surely can't be far away. K Central IL. hubby pf 2006Terry Pennisi <terrypennisi> wrote: , First here's a hug! Now take a deep breath. Next put your teachers hat on! Good. Ooops, you're not smiling. OK! These questions are so very important. My Dr gave me paper work for a living will. This is to make sure the

wishes of the sick person are known to all. For me, it relieved the pressure from my children. I have told them what I want, so they only have to follow that directive and never feel guilty! You are in no shape to make these decisions and I am not sure time will change that. I don't know you yet, some people get stronger as time goes by. My kids are pretty cool. Talking about death has always been a part of life for us, so although they may miss me, they realize that those tears come from our human side. Our spiritual side rejoices in the fact that we might be having a much better time then they are. Death is inevitable for all of us and we could very well out live our caregivers!!!!! Remember, if you want to talk, my number is posted and I don't pay extra for long distance, so if you do, I'll call

you back. Love ya, Ter Kennelly <l_kennelly> wrote: Yesterday was a very busy day. We had company almost all day. Good thing it was yesterday because today is a train wreck. A storm is rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only

think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make this". The doc gave me some good drugs but haven't been on them long enough to make a difference yet. I'll make my way through all the messages on here. I'll answer a few of them. One question I have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the

messages. K central Ill hubby pf 2006 Beth <mbmurtha> wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to reverse a decision and shocked

myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over. Well prednisone nearly killed me and Is one of the reason I opted not to try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of You. Are you doing

ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals?

Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

My husband was on hospice for two weeks before he passed an hospice wants to be called when he goes.They will come in and check and call the necessary people. hope this helps you. nsip 2002 raynauds 2002 canton ohio Kennelly wrote: Thanks! The oops, you're not smiling really did make me smile. We already have living wills but I've been told that if you call 911 they have to inti-bate. If

something happens in the middle of the night - I'll be frantic and I know I'll want help. To do what? I have no idea. My eldest son just lives a mile away. Guys, I'm so sorry to bring such morbidity to the page. I just need to know what hospice suggests. On days like today I think it surely can't be far away. K Central IL. hubby pf 2006Terry Pennisi <terrypennisi> wrote: , First here's a hug! Now take a deep breath. Next put your teachers hat on! Good. Ooops, you're not smiling. OK! These questions are so very important. My Dr gave me paper work for a living will. This is to make sure the

wishes of the sick person are known to all. For me, it relieved the pressure from my children. I have told them what I want, so they only have to follow that directive and never feel guilty! You are in no shape to make these decisions and I am not sure time will change that. I don't know you yet, some people get stronger as time goes by. My kids are pretty cool. Talking about death has always been a part of life for us, so although they may miss me, they realize that those tears come from our human side. Our spiritual side rejoices in the fact that we might be having a much better time then they are. Death is inevitable for all of us and we could very well out live our caregivers!!!!! Remember, if you want to talk, my number is posted and I don't pay extra for long distance, so if you do, I'll call

you back. Love ya, Ter Kennelly <l_kennelly> wrote: Yesterday was a very busy day. We had company almost all day. Good thing it was yesterday because today is a train wreck. A storm is rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only

think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make this". The doc gave me some good drugs but haven't been on them long enough to make a difference yet. I'll make my way through all the messages on here. I'll answer a few of them. One question I have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the

messages. K central Ill hubby pf 2006 Beth <mbmurtha> wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to reverse a decision and shocked

myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over. Well prednisone nearly killed me and Is one of the reason I opted not to try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of You. Are you doing

ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals?

Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

, When i was a medic, we were told to honor the patients choice. You had to have it with you and it has to be notarized, for proof legally. Just in case someone wanted to get rid of a spouse! Sounds funny, but it happens. Please call you local Medics and ask about their policy. Remember I was in Jersey then. At least you will not have to guess and will be prepared. When you know what to except, it does help. Always get the really important information from the pros locally. It is different in every state. I had a rough day, sorry this is so late love ya, Terry Kennelly wrote: Thanks! The oops, you're not smiling really did make me smile. We already have living wills but I've been told that if you call 911 they have to inti-bate. If something happens in the middle of the night - I'll be frantic and I know I'll want help. To do what? I have no idea. My eldest son just lives a mile away. Guys, I'm so sorry to bring such morbidity to the page. I just need to know what hospice suggests. On days like today I think it surely can't be far away. K Central IL. hubby pf 2006Terry Pennisi <terrypennisi> wrote: , First here's a hug! Now take a deep breath. Next put your teachers hat on! Good. Ooops, you're not smiling. OK! These questions are so very important. My Dr gave me paper work for a living will. This is to make sure the wishes of the sick person are known to all. For me, it relieved the pressure from my children. I have told them what I want, so they only have to follow that directive and never feel guilty! You are in no shape to make these decisions and I am not sure time will change that. I don't know you yet, some people get stronger as time goes by. My kids are pretty cool. Talking about death has always been a part of life for us, so although they may miss me, they realize that those tears come

from our human side. Our spiritual side rejoices in the fact that we might be having a much better time then they are. Death is inevitable for all of us and we could very well out live our caregivers!!!!! Remember, if you want to talk, my number is posted and I don't pay extra for long distance, so if you do, I'll call you back. Love ya, Ter Kennelly <l_kennelly> wrote: Yesterday was a very busy day. We had company almost all day. Good thing it was yesterday because today is a train wreck. A storm is rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all

night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make this". The doc gave me some good drugs but haven't been on them long enough to make a difference yet. I'll make my way through all the messages on here. I'll answer a few of them. One question I

have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the messages. K central Ill hubby pf 2006 Beth <mbmurtha> wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside

click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to reverse a decision and shocked myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was

diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over. Well prednisone nearly killed me and Is one of the reason I opted not to

try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of You. Are you doing ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF

Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi

11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo!

Search. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

, When i was a medic, we were told to honor the patients choice. You had to have it with you and it has to be notarized, for proof legally. Just in case someone wanted to get rid of a spouse! Sounds funny, but it happens. Please call you local Medics and ask about their policy. Remember I was in Jersey then. At least you will not have to guess and will be prepared. When you know what to except, it does help. Always get the really important information from the pros locally. It is different in every state. I had a rough day, sorry this is so late love ya, Terry Kennelly wrote: Thanks! The oops, you're not smiling really did make me smile. We already have living wills but I've been told that if you call 911 they have to inti-bate. If something happens in the middle of the night - I'll be frantic and I know I'll want help. To do what? I have no idea. My eldest son just lives a mile away. Guys, I'm so sorry to bring such morbidity to the page. I just need to know what hospice suggests. On days like today I think it surely can't be far away. K Central IL. hubby pf 2006Terry Pennisi <terrypennisi> wrote: , First here's a hug! Now take a deep breath. Next put your teachers hat on! Good. Ooops, you're not smiling. OK! These questions are so very important. My Dr gave me paper work for a living will. This is to make sure the wishes of the sick person are known to all. For me, it relieved the pressure from my children. I have told them what I want, so they only have to follow that directive and never feel guilty! You are in no shape to make these decisions and I am not sure time will change that. I don't know you yet, some people get stronger as time goes by. My kids are pretty cool. Talking about death has always been a part of life for us, so although they may miss me, they realize that those tears come

from our human side. Our spiritual side rejoices in the fact that we might be having a much better time then they are. Death is inevitable for all of us and we could very well out live our caregivers!!!!! Remember, if you want to talk, my number is posted and I don't pay extra for long distance, so if you do, I'll call you back. Love ya, Ter Kennelly <l_kennelly> wrote: Yesterday was a very busy day. We had company almost all day. Good thing it was yesterday because today is a train wreck. A storm is rolling through and he had a terrible night. We have noticed that when the barometer drops he has a terrible time. He coughed all

night long. I'm wiped out today and was going to take a nap but I think I need support instead. Since I've gone on leave for the rest of the school year and I'm retiring in May, they want to do a retirement thingy for me. Man, I can't think about tomorrow let alone May. Last night I left him alone to go to prayer meeting. I didn't really enjoy myself because I could only think about him but I figured that the Good Lord was going to take care of him since I was in prayer (some for him). These are the days I can't hardly keep my head up. On good days like yesterday I think, "we are going to make this". The doc gave me some good drugs but haven't been on them long enough to make a difference yet. I'll make my way through all the messages on here. I'll answer a few of them. One question I

have is, is there anyone on here who has been involved in hospice? He has made me promise that I won't let them put him on life support. (broke my heart) but I have some questions. I'm not saying he is at the end yet, but God is in control and I feel like I need to be prepared for the worst. I have not a clue how to handle this (sob-sob) so I'll continue to get through some of the messages. K central Ill hubby pf 2006 Beth <mbmurtha> wrote: Terry, If you go to the groups main website, http://health.groups.yahoo.com/group/Breathe-Support/ On the left handside

click on Database and then click on Contact List. You can find contact information for anyone who's chosen to list theirs and you can add your own if you wish! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: K Hi Peggy, Got a lot going on! Just think , if we only had to worry about our health, how much easier this would be . We've got bills, family, not to mention misinformation! What a world. I called the Ins co and got them to reverse a decision and shocked myself. From all I had ever heard, that was tough. Took one call and got what I wanted. Remember, I was not only a Paramedic, I was also a car salesman! LOL And a damn good one. I used to beat the guys numbers. Yet, I was so honest, that my old customers still call me to help them get a good deal. A few months ago, I saved someone $8000.00 between the car and their trade! I hope I can find a way to help this mess. I don't fret about it, because just about everyone has something. Before this, my 34 yr old son was

diagnosed with MS and believe me, that was 10 X's worse then this. Not much they can do for him either, but like I tell him, giving up, or giving in, is not an option! Sorry for rambling. Thanks for asking. Love ya, Ter Peggy <pac1773cfl (DOT) rr.com> wrote: Terry, I think you are doing great. We do know how things go with this stupid disease. It is so hard sometimes to say what is our experience because we are all so different. But we all do know prednisone does NOTHING for IPF... Some Doctors give it in an attempt to let us think it is at lease something. I see that over and over. Well prednisone nearly killed me and Is one of the reason I opted not to

try for a transplant. I could cry at the drop of a hat to think of all I went through because of that drug.. On the other side of that is that it is a wonderful drug for infections. so each one should talk to there Dr. to see just what it is going to do for them. Sorry I didn't mean to get on my kick..LOL Take Care of You. Are you doing ok? Love and Prayers, Peggy Florida, ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Hi , Just checking to see how you're doing today! I'm sure yesterday was overwhelming with all the responses, but you will never feel alone again! You will sort out what you need from this group. I sure can't keep up like the Pro's yet! There when you need me, TerryTerry Pennisi 11/07 IPF

Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Terry Pennisi

11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Terry Pennisi 11/07 IPF Nevada Looking for last minute shopping deals? Find them fast with Yahoo!

Search. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Never miss a thing. Make Yahoo your homepage. Terry Pennisi 11/07 IPF Nevada

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.