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leighs

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hi, my daughter, anna grace, was seen by dr. shoffner a few weeks

ago. they did a muscle biopsy (results will take approx. 3 months),

however, he felt certain that anna grace has leighs. talk about not

being prepared!! we know what leighs is, but what do we do and what

should we expect. i believe my husband and i have been really strong

and try to focus on how lucky we are to have anna grace in our

lives. although anna grace has global delays, she is not a sick

child. she gets normal colds (from her two brothers) but has never

been hospitalized. i just do not know what to expect.

thanks, bethany (mom to brennan 4 1/2, palmer and anna grace 2 )

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