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Bill -- I am starting to believe, at least for rosacea, that if one's

condition falls outside the typical treatment regimen, doctors simply do

not know what to advise. This may account for some of the reaction we get

from dermatologists. I don't think it is that they do not care or that

they are holding information back. What this parenthetically indicates is

the relatively small number of treatments available for rosacea.

To repeat what another has already said, I too hope that new treatments for

rosacea become available. The drug companies should realize that there is

a sizable minority of patients for whom the metro twins and noritate are

not the answer. Maybe we should start a letter writing campaign?

----------

> From: BThom8254@...

> To: rosacea-supportegroups

> Subject: Re: Dr Sy

> Date: Sunday, February 21, 1999 3:05 AM

>

> Dr Sy,

> After reading your post I felt that I had to comment on a few

things

> that you wrote. I understand what you are saying about the Drs

> responsibilities, the insurance companies, high overhead, etc... But we

all

> deal with professions that have a high stress level ( at least I do,

granted

> its not in the same league as being in the medical profession, but the

burnout

> rate is quite high). We all come home exhausted and have bills to pay and

our

> minds are overloaded with details from work. I am also the workhorse in

my

> business and work long hours. I have 3 teenage daughters, one of which is

at a

> very expensive Art School in NYC.( talk about wondering where the money

is

> coming from to pay for everything!!!) When I am at work I try my damndest

to

> make sure that my clients are well taken care of and are accomodated for

while

> they are with me. I show concern for their problems and listen to them

talk

> about their lives. And believe me dealing with a chronic skin disorder

and

> living with chronic pain while doing this is sapping all of the energy

out of

> me ,yet I know that I have to do it.At least for now.

> We go to Drs to find out what is wrong with us and believe that

they

> will come up with the best possible treatments that applies to our case.

I

> really dont care what goes on behind the scenes in their practice or what

> insurance companies that they have to deal with. Their job is to be

> professionals and try to seperate the two. a Dr SHOULD be there to have

> compassion for their patients and LISTEN to them. If all of the factors

that

> you mentioned are interfering with their ability to do so then they

shouldnt

> be practicing in the capacity that they are.( I have heard of so many

horror

> stories of misdiagnosis and poor treatment that it is frightening ). I

realize

> that we are all human and it is hard to keep up a professional front on a

> daily basis, but in each different field we are trained to do so . I

would

> think that in the medical field that type of training is even more

exstensive.

> I have been to both good and bad Drs and my insurance coverage

is

> very good. So I would imagine that there isnt much fighting with the

inurance

> company or a question of what medicine can be prescribed, and yet I still

get

> the bums rush at times.(and this hasnt been for just the skin. Im also

dealing

> with some other major medical issues). I sure dont go into their office

> whinning, Im looking for an intelligent and thourough diagnosis and so

far

> havent really been satisfied because alot of Drs just dont want to take

the

> time to investigate into a condition that is slightly unusual.

> I guess what it boils down to is the personality traits of

each

> individual in whatever field that they are in. That determines the level

of

> compassion and caring that they give, regardless of the pressures and

what

> type of practice that they are in.The only difference is that Drs are

making

> decisions that are dealing withour lives!

> Bill

>

> ------------------------------------------------------------------------

>

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  • 1 year later...

Dr Sy,

After reading your post I felt that I had to comment on a few things

that you wrote. I understand what you are saying about the Drs

responsibilities, the insurance companies, high overhead, etc... But we all

deal with professions that have a high stress level ( at least I do, granted

its not in the same league as being in the medical profession, but the burnout

rate is quite high). We all come home exhausted and have bills to pay and our

minds are overloaded with details from work. I am also the workhorse in my

business and work long hours. I have 3 teenage daughters, one of which is at a

very expensive Art School in NYC.( talk about wondering where the money is

coming from to pay for everything!!!) When I am at work I try my damndest to

make sure that my clients are well taken care of and are accomodated for while

they are with me. I show concern for their problems and listen to them talk

about their lives. And believe me dealing with a chronic skin disorder and

living with chronic pain while doing this is sapping all of the energy out of

me ,yet I know that I have to do it.At least for now.

We go to Drs to find out what is wrong with us and believe that they

will come up with the best possible treatments that applies to our case. I

really dont care what goes on behind the scenes in their practice or what

insurance companies that they have to deal with. Their job is to be

professionals and try to seperate the two. a Dr SHOULD be there to have

compassion for their patients and LISTEN to them. If all of the factors that

you mentioned are interfering with their ability to do so then they shouldnt

be practicing in the capacity that they are.( I have heard of so many horror

stories of misdiagnosis and poor treatment that it is frightening ). I realize

that we are all human and it is hard to keep up a professional front on a

daily basis, but in each different field we are trained to do so . I would

think that in the medical field that type of training is even more exstensive.

I have been to both good and bad Drs and my insurance coverage is

very good. So I would imagine that there isnt much fighting with the inurance

company or a question of what medicine can be prescribed, and yet I still get

the bums rush at times.(and this hasnt been for just the skin. Im also dealing

with some other major medical issues). I sure dont go into their office

whinning, Im looking for an intelligent and thourough diagnosis and so far

havent really been satisfied because alot of Drs just dont want to take the

time to investigate into a condition that is slightly unusual.

I guess what it boils down to is the personality traits of each

individual in whatever field that they are in. That determines the level of

compassion and caring that they give, regardless of the pressures and what

type of practice that they are in.The only difference is that Drs are making

decisions that are dealing withour lives!

Bill

------------------------------------------------------------------------

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