Guest guest Posted March 22, 2008 Report Share Posted March 22, 2008 Bruce and Zena: Kaleb is 5 and I couldn't agree with you more that it is best to be honest with him. He's been to many appts. with me and he's been with me on my trips to Pittsburgh to see the transplant team too. I answer every question he asks in an age appropriate manner and he knows exactly what is wrong with me. When people ask me, he often answers for me. He is a brave little boy and I worry about him the most, yet he is the most open person I talk to. His questions are frank and to the point. He doesn't tip toe around my feelings and sometimes that is hard for others around to understand, but he is asking all the questions others are afraid to ask. He understands death too, as a result of our faith and presence in church. So, I am glad I can be honest with him and give him the answers to his questions, even when it's hard for me to do so. God Bless, Tina IPF 04/07 PH 11/07 Ohio > > > > > > > > > > > > Tina, > > > > > > > > Thank you so much for the Hallmark card and the very sweet note. > > > Thank > > > > you so much for the kind words of encouragement. From one WV girl > > > to > > > > another....you made my day. > > > > > > > > I have been worried about you. Are you recovering from your cold > > > (or > > > > flu)? You are so brave and I am so proud of you. Those old hills > > > breed > > > > strong women, huh? > > > > > > > > Hugs, Joyce D. > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary > > > Hypertension > > > > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > > > > Rejected for Transplant 2006 > > > > .....I will not forget you. Behold, I have engraved you on the > > > palm of > > > > my hands. Isaiah 49: 15-16 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Definitely being honest with Lili from the start has made things easier, but she is more inclined to asked the 'difficult' questions that adults would baulk at asking in case it upsets me or them. She's quite sweet, she thinks I can't go camping because my hose from my concentrator isn't long enough and she was telling a friend that 'mummy wants new lungs, but she can't have mine as they are too small and I'm not dead yet! ' The look on my friends face was an absolute picture I think I worry least about her coping as it's all normal too her. Kids are so accepting at that age. She also has helped me to see things in a different light. I was having a bad day with my hose once, it kept getting tangled up and I was getting very frustrated, she came up and gave me a kiss, and then kissed my hose. I asked her why she did that and she said 'I love your hose. It's making you better' Can't say fairer than that really can you Love Ze xx> > > > >> > > > >> > > > > Tina,> > > > >> > > > > Thank you so much for the Hallmark card and the very sweet > note.> > > > Thank> > > > > you so much for the kind words of encouragement. From one WV > girl> > > > to> > > > > another....you made my day.> > > > >> > > > > I have been worried about you. Are you recovering from your > cold> > > > (or> > > > > flu)? You are so brave and I am so proud of you. Those old > hills> > > > breed> > > > > strong women, huh?> > > > >> > > > > Hugs, Joyce D.> > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary> > > > Hypertension> > > > > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, > etc)> > > > > Rejected for Transplant 2006> > > > > .....I will not forget you. Behold, I have engraved you on the> > > > palm of> > > > > my hands. Isaiah 49: 15-16> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Definitely being honest with Lili from the start has made things easier, but she is more inclined to asked the 'difficult' questions that adults would baulk at asking in case it upsets me or them. She's quite sweet, she thinks I can't go camping because my hose from my concentrator isn't long enough and she was telling a friend that 'mummy wants new lungs, but she can't have mine as they are too small and I'm not dead yet! ' The look on my friends face was an absolute picture I think I worry least about her coping as it's all normal too her. Kids are so accepting at that age. She also has helped me to see things in a different light. I was having a bad day with my hose once, it kept getting tangled up and I was getting very frustrated, she came up and gave me a kiss, and then kissed my hose. I asked her why she did that and she said 'I love your hose. It's making you better' Can't say fairer than that really can you Love Ze xx> > > > >> > > > >> > > > > Tina,> > > > >> > > > > Thank you so much for the Hallmark card and the very sweet > note.> > > > Thank> > > > > you so much for the kind words of encouragement. From one WV > girl> > > > to> > > > > another....you made my day.> > > > >> > > > > I have been worried about you. Are you recovering from your > cold> > > > (or> > > > > flu)? You are so brave and I am so proud of you. Those old > hills> > > > breed> > > > > strong women, huh?> > > > >> > > > > Hugs, Joyce D.> > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary> > > > Hypertension> > > > > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, > etc)> > > > > Rejected for Transplant 2006> > > > > .....I will not forget you. Behold, I have engraved you on the> > > > palm of> > > > > my hands. Isaiah 49: 15-16> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I love little Lili. How prescious. Out of the mouths of babes. Thanks for sharing. Enjoy your weekend alone?? You and Babs are lucky women! LeanneZena wrote: Definitely being honest with Lili from the start has made things easier, but she is more inclined to asked the 'difficult' questions that adults would baulk at asking in case it upsets me or them. She's quite sweet, she thinks I can't go camping because my hose from my concentrator isn't long enough and she was telling a friend that 'mummy wants new lungs, but she can't have mine as they are too small and I'm not dead yet! ' The look on my friends face was an absolute picture I think I worry least about her coping as it's all normal too her. Kids are so accepting at that age. She also has helped me to see things in a different light. I was having a bad day with my hose once, it kept getting tangled up and I was getting very frustrated, she came up and gave me a kiss, and then kissed my hose. I asked her why she did that and she said 'I love your hose. It's making you better' Can't say fairer than that really can you Love Ze xx> > > > >> > > > >> > > > > Tina,> > > > >> > > > > Thank you so much for the Hallmark card and the very sweet > note.> > > > Thank> > > > > you so much for the kind words of encouragement. From one WV > girl> > > > to> > > > > another....you made my day.> > > > >> > > > > I have been worried about you. Are you recovering from your > cold> > > > (or> > > > > flu)? You are so brave and I am so proud of you. Those old > hills> > > > breed> > > > > strong women, huh?> > > > >> > > > > Hugs, Joyce D.> > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary> > > > Hypertension> > > > > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, > etc)> > > > > Rejected for Transplant 2006> > > > > .....I will not forget you. Behold, I have engraved you on the> > > > palm of> > > > > my hands. Isaiah 49: 15-16> > > > >> > > >> > >> >> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I love little Lili. How prescious. Out of the mouths of babes. Thanks for sharing. Enjoy your weekend alone?? You and Babs are lucky women! LeanneZena wrote: Definitely being honest with Lili from the start has made things easier, but she is more inclined to asked the 'difficult' questions that adults would baulk at asking in case it upsets me or them. She's quite sweet, she thinks I can't go camping because my hose from my concentrator isn't long enough and she was telling a friend that 'mummy wants new lungs, but she can't have mine as they are too small and I'm not dead yet! ' The look on my friends face was an absolute picture I think I worry least about her coping as it's all normal too her. Kids are so accepting at that age. She also has helped me to see things in a different light. I was having a bad day with my hose once, it kept getting tangled up and I was getting very frustrated, she came up and gave me a kiss, and then kissed my hose. I asked her why she did that and she said 'I love your hose. It's making you better' Can't say fairer than that really can you Love Ze xx> > > > >> > > > >> > > > > Tina,> > > > >> > > > > Thank you so much for the Hallmark card and the very sweet > note.> > > > Thank> > > > > you so much for the kind words of encouragement. From one WV > girl> > > > to> > > > > another....you made my day.> > > > >> > > > > I have been worried about you. Are you recovering from your > cold> > > > (or> > > > > flu)? You are so brave and I am so proud of you. Those old > hills> > > > breed> > > > > strong women, huh?> > > > >> > > > > Hugs, Joyce D.> > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary> > > > Hypertension> > > > > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, > etc)> > > > > Rejected for Transplant 2006> > > > > .....I will not forget you. Behold, I have engraved you on the> > > > palm of> > > > > my hands. Isaiah 49: 15-16> > > > >> > > >> > >> >> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Oh Ze what a gorgeous girl you've got there! Lili is a very special kid! Tina's Kaleb is another one who pulls the heartstrings. Such wisdom from their pure young hearts. They just see it AND say it like it IS! love, > > > > > >> > > > > >> > > > > > Tina,> > > > > >> > > > > > Thank you so much for the Hallmark card and the very sweet> > note.> > > > > Thank> > > > > > you so much for the kind words of encouragement. From one WV> > girl> > > > > to> > > > > > another....you made my day.> > > > > >> > > > > > I have been worried about you. Are you recovering from your> > cold> > > > > (or> > > > > > flu)? You are so brave and I am so proud of you. Those old> > hills> > > > > breed> > > > > > strong women, huh?> > > > > >> > > > > > Hugs, Joyce D.> > > > > > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary> > > > > Hypertension> > > > > > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's,> > etc)> > > > > > Rejected for Transplant 2006> > > > > > .....I will not forget you. Behold, I have engraved you on the> > > > > palm of> > > > > > my hands. Isaiah 49: 15-16> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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