RE: steve from WA answers Joy

[Guest guest]

Hi Joy - I consider myself extremely lucky to be accepted as a patient of

Dr. Raghu. I don't think he has time to see many patients. He has always

been very cordial to me. I still see a Pulmonologist in Tacoma. He is Dr.

Ledoux and is a great Doctor. I am going to see UofW liver specialists this

Thursday to get back on Imuron. Did you get to go to the seminar 'Living

with IPF " at the UofW last fall? Dr. Raghu moderated and I learned a lot,

not all good.

Yes I also have sleep apnea, but have terrible time with my cpap so get

lectured about using it daily to keep my O2 up at night. I have trouble

enough sleeping without fighting with it all night. Are you using the cpap

yet and how do you like it? Also are you using O2 yet? I have a million

questions but fatigue and ammonia build up on my brain cause confusion and

forgetfullness. I will be talking to you more in the future.

Steve in WA IPF 2006

>

>Reply-To: Breathe-Support

>To: Breathe-Support

>Subject: steve from WA

>Date: Sat, 22 Mar 2008 00:20:02 -0000

>

>Hi Steve - just letting you know I'm also seeing RAghu - I was going to

>Harborview - now U of W.

>

>Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

>learned that I have PAH and sleep apnea also....

>

>Joy / Seattle

>

[Guest guest]

Steve from WA

It's so extremely important that you maintain your oxygen levels at

night. When I was tested I was dropping below 90% over 25% of the

time and I'm sure it would be worse now. If you can't manage a CPAP

then at least you should be on straight oxygen. However, I've found

most CPAP problems to be a matter of the wrong masks. There are so

many choices and yet our suppliers don't tell us. I've found most

people to do for the blue gell masks like Sher and others have. They

mold and don't hurt the face, fit securely, and wrap around in such a

way as to not be so subject to coming off during the night.

Sleep is important, but oxygen is critical. So, what I'm saying is a

CPAP is preferable for you, but if for some reason you can't handle

it, you need oxygen at night.

>

> Hi Joy - I consider myself extremely lucky to be accepted as a

patient of

> Dr. Raghu. I don't think he has time to see many patients. He has

always

> been very cordial to me. I still see a Pulmonologist in Tacoma. He

is Dr.

> Ledoux and is a great Doctor. I am going to see UofW liver

specialists this

> Thursday to get back on Imuron. Did you get to go to the

seminar 'Living

> with IPF " at the UofW last fall? Dr. Raghu moderated and I learned

a lot,

> not all good.

> Yes I also have sleep apnea, but have terrible time with my cpap so

get

> lectured about using it daily to keep my O2 up at night. I have

trouble

> enough sleeping without fighting with it all night. Are you using

the cpap

> yet and how do you like it? Also are you using O2 yet? I have a

million

> questions but fatigue and ammonia build up on my brain cause

confusion and

> forgetfullness. I will be talking to you more in the future.

> Steve in WA IPF 2006

>

>

> >

> >Reply-To: Breathe-Support

> >To: Breathe-Support

> >Subject: steve from WA

> >Date: Sat, 22 Mar 2008 00:20:02 -0000

> >

> >Hi Steve - just letting you know I'm also seeing RAghu - I was

going to

> >Harborview - now U of W.

> >

> >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> >learned that I have PAH and sleep apnea also....

> >

> >Joy / Seattle

> >

>

[Guest guest]

Steve...I use a CPAP every night, can I be of help with you questions?

I use O2 with mine.........

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

steve from WA>Date: Sat, 22 Mar 2008 00:20:02 -0000>>Hi Steve - just letting you know I'm also seeing RAghu - I was going to>Harborview - now U of W.>>Do you like Dr. Raghu? I've seen him twice and in those 2 visits I>learned that I have PAH and sleep apnea also....>>Joy / Seattle>

[Guest guest]

Steve...I use a CPAP every night, can I be of help with you questions?

I use O2 with mine.........

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

steve from WA>Date: Sat, 22 Mar 2008 00:20:02 -0000>>Hi Steve - just letting you know I'm also seeing RAghu - I was going to>Harborview - now U of W.>>Do you like Dr. Raghu? I've seen him twice and in those 2 visits I>learned that I have PAH and sleep apnea also....>>Joy / Seattle>

[Guest guest]

Steve and Joy,

Hi Joy, I'm back...Steve, Welcome. I live in NE Tacoma and am also a patient of

Dr. Raghu,

I've been seeing him for about 8 years, I think. I also see a Dr. that is in

the same medical

group as your pulmonologist. His name is Dr. Rai. I was dx'd with PF 12 years

ago this

April. Good luck, I'm sorry you had to find us.

Kathie WA

nsip 1996 pah 2003, bronchiectasis 2005

>

> Hi Joy - I consider myself extremely lucky to be accepted as a patient of

> Dr. Raghu. I don't think he has time to see many patients. He has always

> been very cordial to me. I still see a Pulmonologist in Tacoma. He is Dr.

> Ledoux and is a great Doctor. I am going to see UofW liver specialists this

> Thursday to get back on Imuron. Did you get to go to the seminar 'Living

> with IPF " at the UofW last fall? Dr. Raghu moderated and I learned a lot,

> not all good.

> Yes I also have sleep apnea, but have terrible time with my cpap so get

> lectured about using it daily to keep my O2 up at night. I have trouble

> enough sleeping without fighting with it all night. Are you using the cpap

> yet and how do you like it? Also are you using O2 yet? I have a million

> questions but fatigue and ammonia build up on my brain cause confusion and

> forgetfullness. I will be talking to you more in the future.

> Steve in WA IPF 2006

>

>

> >

> >Reply-To: Breathe-Support

> >To: Breathe-Support

> >Subject: steve from WA

> >Date: Sat, 22 Mar 2008 00:20:02 -0000

> >

> >Hi Steve - just letting you know I'm also seeing RAghu - I was going to

> >Harborview - now U of W.

> >

> >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> >learned that I have PAH and sleep apnea also....

> >

> >Joy / Seattle

> >

>

[Guest guest]

Steve and Joy,

Hi Joy, I'm back...Steve, Welcome. I live in NE Tacoma and am also a patient of

Dr. Raghu,

I've been seeing him for about 8 years, I think. I also see a Dr. that is in

the same medical

group as your pulmonologist. His name is Dr. Rai. I was dx'd with PF 12 years

ago this

April. Good luck, I'm sorry you had to find us.

Kathie WA

nsip 1996 pah 2003, bronchiectasis 2005

>

> Hi Joy - I consider myself extremely lucky to be accepted as a patient of

> Dr. Raghu. I don't think he has time to see many patients. He has always

> been very cordial to me. I still see a Pulmonologist in Tacoma. He is Dr.

> Ledoux and is a great Doctor. I am going to see UofW liver specialists this

> Thursday to get back on Imuron. Did you get to go to the seminar 'Living

> with IPF " at the UofW last fall? Dr. Raghu moderated and I learned a lot,

> not all good.

> Yes I also have sleep apnea, but have terrible time with my cpap so get

> lectured about using it daily to keep my O2 up at night. I have trouble

> enough sleeping without fighting with it all night. Are you using the cpap

> yet and how do you like it? Also are you using O2 yet? I have a million

> questions but fatigue and ammonia build up on my brain cause confusion and

> forgetfullness. I will be talking to you more in the future.

> Steve in WA IPF 2006

>

>

> >

> >Reply-To: Breathe-Support

> >To: Breathe-Support

> >Subject: steve from WA

> >Date: Sat, 22 Mar 2008 00:20:02 -0000

> >

> >Hi Steve - just letting you know I'm also seeing RAghu - I was going to

> >Harborview - now U of W.

> >

> >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> >learned that I have PAH and sleep apnea also....

> >

> >Joy / Seattle

> >

>

[Guest guest]

Steve....I'm sure you have read my post about this wonderful pillow for CPAP users! Here is the site again for the one I bought and Joe posted another site for different one....

www.cpapsupplyusa.com/I-Cpap-Supply-Usa-I-Sleepap-Pillow-Ss6339.aspx

I fought my tubing and air leaks too and thought it just went w/ the territory so to speak. Bruce sent this site and now I've personally slept on it and I can't praise it highly enough!

Maybe some sort of sleep pillow will help you too. We tend not to use the CPAP if it drives us bonkers. I didn't use mine the first time around .... a few years back....for just that reason. Also didn't have the right face mask....do you?

Good luck. Use the CPAP...you will sleep better.

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

steve from WA> >Date: Sat, 22 Mar 2008 00:20:02 -0000> >> >Hi Steve - just letting you know I'm also seeing RAghu - I was going to> >Harborview - now U of W.> >> >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I> >learned that I have PAH and sleep apnea also....> >> >Joy / Seattle> >>

[Guest guest]

I got your info about the pillow and am checking with Vickie on whether we

have money for it. Looks promising. I'm not used to being on a fixed income

yet, plus we have a boat load of bills just come in from UW for my recent

surgeries. I also use a full face mask Respironics because I can't keep my

mouth closed. So far I haven't seen the gel mask in a full face. Actually I

have used my mask more after comments on this board. Also I don't really

have hobbies. I have a lawn service now and any wood working is to hard now.

My wife is promising me a large jigsaw puzzle but haven't seen it yet. I

read a lot. Daily newspaper and fiction. I do Soduko and crosswards. It'

supposed to keep the mind sharper but also reminds me how bad I've gone

downhill. I am really very positive with people I know but for some reason

feel able to be truthful on this forum. 80 plus messages daily is my new

hobby.

Steve59 from WA

IPF 2006

>

>Reply-To: Breathe-Support

>To: <Breathe-Support >

>Subject: Re: steve from WA answers Joy

>Date: Sun, 23 Mar 2008 19:04:34 -0700

>

>Steve...I use a CPAP every night, can I be of help with you questions?

>I use O2 with mine.........

> Mama-Sher, age 69. IPF 3-06, OR.

> Don't fret about tomorrow, God is already there!

>

> steve from WA

> >Date: Sat, 22 Mar 2008 00:20:02 -0000

> >

> >Hi Steve - just letting you know I'm also seeing RAghu - I was going to

> >Harborview - now U of W.

> >

> >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> >learned that I have PAH and sleep apnea also....

> >

> >Joy / Seattle

> >

>

>

>

>

[Guest guest]

I got your info about the pillow and am checking with Vickie on whether we

have money for it. Looks promising. I'm not used to being on a fixed income

yet, plus we have a boat load of bills just come in from UW for my recent

surgeries. I also use a full face mask Respironics because I can't keep my

mouth closed. So far I haven't seen the gel mask in a full face. Actually I

have used my mask more after comments on this board. Also I don't really

have hobbies. I have a lawn service now and any wood working is to hard now.

My wife is promising me a large jigsaw puzzle but haven't seen it yet. I

read a lot. Daily newspaper and fiction. I do Soduko and crosswards. It'

supposed to keep the mind sharper but also reminds me how bad I've gone

downhill. I am really very positive with people I know but for some reason

feel able to be truthful on this forum. 80 plus messages daily is my new

hobby.

Steve59 from WA

IPF 2006

>

>Reply-To: Breathe-Support

>To: <Breathe-Support >

>Subject: Re: steve from WA answers Joy

>Date: Sun, 23 Mar 2008 19:04:34 -0700

>

>Steve...I use a CPAP every night, can I be of help with you questions?

>I use O2 with mine.........

> Mama-Sher, age 69. IPF 3-06, OR.

> Don't fret about tomorrow, God is already there!

>

> steve from WA

> >Date: Sat, 22 Mar 2008 00:20:02 -0000

> >

> >Hi Steve - just letting you know I'm also seeing RAghu - I was going to

> >Harborview - now U of W.

> >

> >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> >learned that I have PAH and sleep apnea also....

> >

> >Joy / Seattle

> >

>

>

>

>

[Guest guest]

Hi Steve...

I see Dr. Raghu Apr 23. A week before that appt I have another echo on my heart to see if there is any change in my PAH.

I get all my O2 and CPAP supplies from SOS - Sound Oxygen System, they are very great to work with. I have not paid them a dime, ever. My Washington State Basic Health and Medicare seem to cover everything.

I have the snorkle type CPAP and like it so much better than the face masks. It's pretty hard to sleep with your mouth open 'cause when you open your mouth air comes rushing out, and your ears plug! I am now used to it and last night had a long sleep.

Also, between Harbor View and U of W I have not paid for anything...I was put on the "charity list". It's easy to do and perhaps you should call and request the forms to fill out. I've had thousands of dollars worth of work and hospital stays - and thankfully, these have all been covered! I'm on a fixed income as well.

Take care of yourself!!!

Joy/Seattle

>> I got your info about the pillow and am checking with Vickie on whether we > have money for it. Looks promising. I'm not used to being on a fixed income > yet, plus we have a boat load of bills just come in from UW for my recent > surgeries. I also use a full face mask Respironics because I can't keep my > mouth closed. So far I haven't seen the gel mask in a full face. Actually I > have used my mask more after comments on this board. Also I don't really > have hobbies. I have a lawn service now and any wood working is to hard now. > My wife is promising me a large jigsaw puzzle but haven't seen it yet. I > read a lot. Daily newspaper and fiction. I do Soduko and crosswards. It' > supposed to keep the mind sharper but also reminds me how bad I've gone > downhill. I am really very positive with people I know but for some reason > feel able to be truthful on this forum. 80 plus messages daily is my new > hobby.> Steve59 from WA> IPF 2006> > > > >Reply-To: Breathe-Support > >To: Breathe-Support > >Subject: Re: steve from WA answers Joy> >Date: Sun, 23 Mar 2008 19:04:34 -0700> >> >Steve...I use a CPAP every night, can I be of help with you questions?> >I use O2 with mine.........> > Mama-Sher, age 69. IPF 3-06, OR.> > Don't fret about tomorrow, God is already there!> >> > steve from WA> > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > >> > >Hi Steve - just letting you know I'm also seeing RAghu - I was going to> > >Harborview - now U of W.> > >> > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I> > >learned that I have PAH and sleep apnea also....> > >> > >Joy / Seattle> > >> >> >> >> >>

[Guest guest]

Steve,

I think that debilitating illness is so much more difficult for men. Most of your lives are spent doing physical things....like your yard work and wood work. We girls can turn to less tiring activities more easily. Your objective now is to not let this change in lifestyle change you into a morose emotional wreck. Big job...just keeping your head on straight. You have done well to turn to the things that you can do for enjoyment.

, on this board, has placed stools around his house so that he can go from place to place and do things to help his wife. He can help with chores like laundry and dishes, etc....even dusting with a mask. Those things help your wife and they will help you feel productive and useful.

When I am so sick that I can not contribute anything, I get so depressed. If I can even get one chore done in a day that is usually the first thing I have to report when my husband gets home from work. He especially is happy when I can sit on my stools and make something good for him to eat. I have Windex wipes so that I do not have to spray the stuff, dusting wipes that are damp and do not put dust out into the air and have found an entire line of products at Target that are environmentally friendly....usually meaning that they do not take your breath away when you use them.

So many days now, the last thing I want to do is to clean something. But even to wipe out a sink with my Windex wipes gives me a sense of accomplishments. I try not to compare the old me with the new sick me, but there is a stark contrast.

Just some advice that was not solicited but freely given anyway. My specialty.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16>> I got your info about the pillow and am checking with Vickie on whether we > have money for it. Looks promising. I'm not used to being on a fixed income > yet, plus we have a boat load of bills just come in from UW for my recent > surgeries. I also use a full face mask Respironics because I can't keep my > mouth closed. So far I haven't seen the gel mask in a full face. Actually I > have used my mask more after comments on this board. Also I don't really > have hobbies. I have a lawn service now and any wood working is to hard now. > My wife is promising me a large jigsaw puzzle but haven't seen it yet. I > read a lot. Daily newspaper and fiction. I do Soduko and crosswards. It' > supposed to keep the mind sharper but also reminds me how bad I've gone > downhill. I am really very positive with people I know but for some reason > feel able to be truthful on this forum. 80 plus messages daily is my new > hobby.> Steve59 from WA> IPF 2006> > > > >Reply-To: Breathe-Support > >To: Breathe-Support > >Subject: Re: steve from WA answers Joy> >Date: Sun, 23 Mar 2008 19:04:34 -0700> >> >Steve...I use a CPAP every night, can I be of help with you questions?> >I use O2 with mine.........> > Mama-Sher, age 69. IPF 3-06, OR.> > Don't fret about tomorrow, God is already there!> >> > steve from WA> > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > >> > >Hi Steve - just letting you know I'm also seeing RAghu - I was going to> > >Harborview - now U of W.> > >> > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I> > >learned that I have PAH and sleep apnea also....> > >> > >Joy / Seattle> > >> >> >> >> >>

[Guest guest]

Steve,

I think that debilitating illness is so much more difficult for men. Most of your lives are spent doing physical things....like your yard work and wood work. We girls can turn to less tiring activities more easily. Your objective now is to not let this change in lifestyle change you into a morose emotional wreck. Big job...just keeping your head on straight. You have done well to turn to the things that you can do for enjoyment.

, on this board, has placed stools around his house so that he can go from place to place and do things to help his wife. He can help with chores like laundry and dishes, etc....even dusting with a mask. Those things help your wife and they will help you feel productive and useful.

When I am so sick that I can not contribute anything, I get so depressed. If I can even get one chore done in a day that is usually the first thing I have to report when my husband gets home from work. He especially is happy when I can sit on my stools and make something good for him to eat. I have Windex wipes so that I do not have to spray the stuff, dusting wipes that are damp and do not put dust out into the air and have found an entire line of products at Target that are environmentally friendly....usually meaning that they do not take your breath away when you use them.

So many days now, the last thing I want to do is to clean something. But even to wipe out a sink with my Windex wipes gives me a sense of accomplishments. I try not to compare the old me with the new sick me, but there is a stark contrast.

Just some advice that was not solicited but freely given anyway. My specialty.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16>> I got your info about the pillow and am checking with Vickie on whether we > have money for it. Looks promising. I'm not used to being on a fixed income > yet, plus we have a boat load of bills just come in from UW for my recent > surgeries. I also use a full face mask Respironics because I can't keep my > mouth closed. So far I haven't seen the gel mask in a full face. Actually I > have used my mask more after comments on this board. Also I don't really > have hobbies. I have a lawn service now and any wood working is to hard now. > My wife is promising me a large jigsaw puzzle but haven't seen it yet. I > read a lot. Daily newspaper and fiction. I do Soduko and crosswards. It' > supposed to keep the mind sharper but also reminds me how bad I've gone > downhill. I am really very positive with people I know but for some reason > feel able to be truthful on this forum. 80 plus messages daily is my new > hobby.> Steve59 from WA> IPF 2006> > > > >Reply-To: Breathe-Support > >To: Breathe-Support > >Subject: Re: steve from WA answers Joy> >Date: Sun, 23 Mar 2008 19:04:34 -0700> >> >Steve...I use a CPAP every night, can I be of help with you questions?> >I use O2 with mine.........> > Mama-Sher, age 69. IPF 3-06, OR.> > Don't fret about tomorrow, God is already there!> >> > steve from WA> > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > >> > >Hi Steve - just letting you know I'm also seeing RAghu - I was going to> > >Harborview - now U of W.> > >> > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I> > >learned that I have PAH and sleep apnea also....> > >> > >Joy / Seattle> > >> >> >> >> >>

[Guest guest]

Joyce....sexist remarks....lol

Yard work? Wood work? Me? NEVER!!!!!!!!!!!!!!!!!!!! Not this man.

The stools is an excellent idea. I thought of that one this week when

looking at lifts and powerchairs and such. Even the chairs with seats

that raise have limits. So, it crossed my mind that one thing I really

want to do is continue to cook. Even now, a nice stool in the kitchen

would be good. In the future, I know it would be the only way. So,

another thing on my list of things to look for is a very comfortable

stool for the kitchen that will get me to the right height.

> >

> > I got your info about the pillow and am checking with Vickie on

> whether we

> > have money for it. Looks promising. I'm not used to being on a fixed

> income

> > yet, plus we have a boat load of bills just come in from UW for my

> recent

> > surgeries. I also use a full face mask Respironics because I can't

> keep my

> > mouth closed. So far I haven't seen the gel mask in a full face.

> Actually I

> > have used my mask more after comments on this board. Also I don't

> really

> > have hobbies. I have a lawn service now and any wood working is to

> hard now.

> > My wife is promising me a large jigsaw puzzle but haven't seen it

yet.

> I

> > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.

> It'

> > supposed to keep the mind sharper but also reminds me how bad I've

> gone

> > downhill. I am really very positive with people I know but for some

> reason

> > feel able to be truthful on this forum. 80 plus messages daily is my

> new

> > hobby.

> > Steve59 from WA

> > IPF 2006

> >

> >

> > >From: " Sher Bauman " bofus@

> > >Reply-To: Breathe-Support

> > >To: Breathe-Support

> > >Subject: Re: steve from WA answers Joy

> > >Date: Sun, 23 Mar 2008 19:04:34 -0700

> > >

> > >Steve...I use a CPAP every night, can I be of help with you

> questions?

> > >I use O2 with mine.........

> > > Mama-Sher, age 69. IPF 3-06, OR.

> > > Don't fret about tomorrow, God is already there!

> > >

> > > steve from WA

> > > >Date: Sat, 22 Mar 2008 00:20:02 -0000

> > > >

> > > >Hi Steve - just letting you know I'm also seeing RAghu - I was

> going to

> > > >Harborview - now U of W.

> > > >

> > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits

I

> > > >learned that I have PAH and sleep apnea also....

> > > >

> > > >Joy / Seattle

> > > >

> > >

> > >

> > >

> > >

> >

>

[Guest guest]

Hi Bruce I've got cheap wood stools all over the house. I am more able to get up and keep working from a stool rather than a chair. Have a stool in bathroom for shaving, one in kitchen by sink another by counter out of the wife's way, one by the washer, three in the basement shop and one in the garage for yard work P Bruce Moreland wrote: Joyce....sexist remarks....lol Yard work? Wood work? Me? NEVER!!!!!!!!!!!!!!!!!!!! Not this man. The stools is

an excellent idea. I thought of that one this week when looking at lifts and powerchairs and such. Even the chairs with seats that raise have limits. So, it crossed my mind that one thing I really want to do is continue to cook. Even now, a nice stool in the kitchen would be good. In the future, I know it would be the only way. So, another thing on my list of things to look for is a very comfortable stool for the kitchen that will get me to the right height. > > > > I got your info about the pillow and am checking with Vickie on > whether we > > have money for it. Looks promising. I'm not used to being on a fixed > income > > yet, plus we have a boat load of bills just come in from UW for my > recent > > surgeries. I also use a full face mask Respironics because I can't > keep my > > mouth closed. So far I haven't seen the gel mask in a full face. > Actually I > > have used my mask more after comments on this board. Also I don't > really > > have hobbies. I have a lawn service now and any wood working is to > hard now. > > My wife is promising me a large jigsaw puzzle but haven't seen it yet. > I > > read a

lot. Daily newspaper and fiction. I do Soduko and crosswards. > It' > > supposed to keep the mind sharper but also reminds me how bad I've > gone > > downhill. I am really very positive with people I know but for some > reason > > feel able to be truthful on this forum. 80 plus messages daily is my > new > > hobby. > > Steve59 from WA > > IPF 2006 > > > > > > >From: "Sher Bauman" bofus@ > > >Reply-To: Breathe-Support > > >To: Breathe-Support > > >Subject: Re: steve from WA answers Joy > > >Date: Sun, 23 Mar 2008 19:04:34 -0700 > > > > > >Steve...I use a CPAP every night, can I be of help with you

> questions? > > >I use O2 with mine......... > > > Mama-Sher, age 69. IPF 3-06, OR. > > > Don't fret about tomorrow, God is already there! > > > > > > steve from WA > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000 > > > > > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was > going to > > > >Harborview - now U of W. > > > > > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I > > > >learned that I have PAH and sleep apnea also.... > > > > > > > >Joy / Seattle > > > > > > > > > > > > > > > > >

> > P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 8/04, PH 3/06, ILL yo 59

Special deal for Yahoo! users friends - No Cost. Get a month of Blockbuster Total Access now

[Guest guest]

Joyce, good idea the stools. Maybe with wheels.

Bruce, Interesting vehicle.

Steve59 from WA

IPF 2006

>

>Reply-To: Breathe-Support

>To: Breathe-Support

>Subject: Re: steve from WA answers Joy

>Date: Sat, 29 Mar 2008 19:20:43 -0000

>

>

>Joyce....sexist remarks....lol

>

>Yard work? Wood work? Me? NEVER!!!!!!!!!!!!!!!!!!!! Not this man.

>

>The stools is an excellent idea. I thought of that one this week when

>looking at lifts and powerchairs and such. Even the chairs with seats

>that raise have limits. So, it crossed my mind that one thing I really

>want to do is continue to cook. Even now, a nice stool in the kitchen

>would be good. In the future, I know it would be the only way. So,

>another thing on my list of things to look for is a very comfortable

>stool for the kitchen that will get me to the right height.

>

>

>

> > >

> > > I got your info about the pillow and am checking with Vickie on

> > whether we

> > > have money for it. Looks promising. I'm not used to being on a fixed

> > income

> > > yet, plus we have a boat load of bills just come in from UW for my

> > recent

> > > surgeries. I also use a full face mask Respironics because I can't

> > keep my

> > > mouth closed. So far I haven't seen the gel mask in a full face.

> > Actually I

> > > have used my mask more after comments on this board. Also I don't

> > really

> > > have hobbies. I have a lawn service now and any wood working is to

> > hard now.

> > > My wife is promising me a large jigsaw puzzle but haven't seen it

>yet.

> > I

> > > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.

> > It'

> > > supposed to keep the mind sharper but also reminds me how bad I've

> > gone

> > > downhill. I am really very positive with people I know but for some

> > reason

> > > feel able to be truthful on this forum. 80 plus messages daily is my

> > new

> > > hobby.

> > > Steve59 from WA

> > > IPF 2006

> > >

> > >

> > > >From: " Sher Bauman " bofus@

> > > >Reply-To: Breathe-Support

> > > >To: Breathe-Support

> > > >Subject: Re: steve from WA answers Joy

> > > >Date: Sun, 23 Mar 2008 19:04:34 -0700

> > > >

> > > >Steve...I use a CPAP every night, can I be of help with you

> > questions?

> > > >I use O2 with mine.........

> > > > Mama-Sher, age 69. IPF 3-06, OR.

> > > > Don't fret about tomorrow, God is already there!

> > > >

> > > > steve from WA

> > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000

> > > > >

> > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was

> > going to

> > > > >Harborview - now U of W.

> > > > >

> > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits

>I

> > > > >learned that I have PAH and sleep apnea also....

> > > > >

> > > > >Joy / Seattle

> > > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

>

>

>

[Guest guest]

Joyce, good idea the stools. Maybe with wheels.

Bruce, Interesting vehicle.

Steve59 from WA

IPF 2006

>

>Reply-To: Breathe-Support

>To: Breathe-Support

>Subject: Re: steve from WA answers Joy

>Date: Sat, 29 Mar 2008 19:20:43 -0000

>

>

>Joyce....sexist remarks....lol

>

>Yard work? Wood work? Me? NEVER!!!!!!!!!!!!!!!!!!!! Not this man.

>

>The stools is an excellent idea. I thought of that one this week when

>looking at lifts and powerchairs and such. Even the chairs with seats

>that raise have limits. So, it crossed my mind that one thing I really

>want to do is continue to cook. Even now, a nice stool in the kitchen

>would be good. In the future, I know it would be the only way. So,

>another thing on my list of things to look for is a very comfortable

>stool for the kitchen that will get me to the right height.

>

>

>

> > >

> > > I got your info about the pillow and am checking with Vickie on

> > whether we

> > > have money for it. Looks promising. I'm not used to being on a fixed

> > income

> > > yet, plus we have a boat load of bills just come in from UW for my

> > recent

> > > surgeries. I also use a full face mask Respironics because I can't

> > keep my

> > > mouth closed. So far I haven't seen the gel mask in a full face.

> > Actually I

> > > have used my mask more after comments on this board. Also I don't

> > really

> > > have hobbies. I have a lawn service now and any wood working is to

> > hard now.

> > > My wife is promising me a large jigsaw puzzle but haven't seen it

>yet.

> > I

> > > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.

> > It'

> > > supposed to keep the mind sharper but also reminds me how bad I've

> > gone

> > > downhill. I am really very positive with people I know but for some

> > reason

> > > feel able to be truthful on this forum. 80 plus messages daily is my

> > new

> > > hobby.

> > > Steve59 from WA

> > > IPF 2006

> > >

> > >

> > > >From: " Sher Bauman " bofus@

> > > >Reply-To: Breathe-Support

> > > >To: Breathe-Support

> > > >Subject: Re: steve from WA answers Joy

> > > >Date: Sun, 23 Mar 2008 19:04:34 -0700

> > > >

> > > >Steve...I use a CPAP every night, can I be of help with you

> > questions?

> > > >I use O2 with mine.........

> > > > Mama-Sher, age 69. IPF 3-06, OR.

> > > > Don't fret about tomorrow, God is already there!

> > > >

> > > > steve from WA

> > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000

> > > > >

> > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was

> > going to

> > > > >Harborview - now U of W.

> > > > >

> > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits

>I

> > > > >learned that I have PAH and sleep apnea also....

> > > > >

> > > > >Joy / Seattle

> > > > >

> > > >

> > > >

> > > >

> > > >

> > >

> >

>

>

>

[Guest guest]

We shorties need rubber caps like on a cane put on each leg so we don't go flying across the floor.  Love and Prayers, PeggyHave a God Blessed Day Joyce, good idea the stools. Maybe with wheels.Bruce, Interesting vehicle.Steve59 from WAIPF 2006>From: "Bruce Moreland" <brucemorelandgmail>>Reply-To: Breathe-Support >To: Breathe-Support >Subject: Re: steve from WA answers Joy>Date: Sat, 29 Mar 2008 19:20:43 -0000>>>Joyce....sexist remarks....lol>>Yard work? Wood work? Me? NEVER!!!!!!!!!!!!!!!!!!!! Not this man.>>The stools is an excellent idea. I thought of that one this week when>looking at lifts and powerchairs and such. Even the chairs with seats>that raise have limits. So, it crossed my mind that one thing I really>want to do is continue to cook. Even now, a nice stool in the kitchen>would be good. In the future, I know it would be the only way. So,>another thing on my list of things to look for is a very comfortable>stool for the kitchen that will get me to the right height.>>>> > >> > > I got your info about the pillow and am checking with Vickie on> > whether we> > > have money for it. Looks promising. I'm not used to being on a fixed> > income> > > yet, plus we have a boat load of bills just come in from UW for my> > recent> > > surgeries. I also use a full face mask Respironics because I can't> > keep my> > > mouth closed. So far I haven't seen the gel mask in a full face.> > Actually I> > > have used my mask more after comments on this board. Also I don't> > really> > > have hobbies. I have a lawn service now and any wood working is to> > hard now.> > > My wife is promising me a large jigsaw puzzle but haven't seen it>yet.> > I> > > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.> > It'> > > supposed to keep the mind sharper but also reminds me how bad I've> > gone> > > downhill. I am really very positive with people I know but for some> > reason> > > feel able to be truthful on this forum. 80 plus messages daily is my> > new> > > hobby.> > > Steve59 from WA> > > IPF 2006> > >> > >> > > >From: "Sher Bauman" bofus@> > > >Reply-To: Breathe-Support > > > >To: Breathe-Support > > > >Subject: Re: steve from WA answers Joy> > > >Date: Sun, 23 Mar 2008 19:04:34 -0700> > > >> > > >Steve...I use a CPAP every night, can I be of help with you> > questions?> > > >I use O2 with mine.........> > > > Mama-Sher, age 69. IPF 3-06, OR.> > > > Don't fret about tomorrow, God is already there!> > > >> > > > steve from WA> > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > > > >> > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was> > going to> > > > >Harborview - now U of W.> > > > >> > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits>I> > > > >learned that I have PAH and sleep apnea also....> > > > >> > > > >Joy / Seattle> > > > >> > > >> > > >> > > >> > > >> > >> >>>>

[Guest guest]

We shorties need rubber caps like on a cane put on each leg so we don't go flying across the floor.  Love and Prayers, PeggyHave a God Blessed Day Joyce, good idea the stools. Maybe with wheels.Bruce, Interesting vehicle.Steve59 from WAIPF 2006>From: "Bruce Moreland" <brucemorelandgmail>>Reply-To: Breathe-Support >To: Breathe-Support >Subject: Re: steve from WA answers Joy>Date: Sat, 29 Mar 2008 19:20:43 -0000>>>Joyce....sexist remarks....lol>>Yard work? Wood work? Me? NEVER!!!!!!!!!!!!!!!!!!!! Not this man.>>The stools is an excellent idea. I thought of that one this week when>looking at lifts and powerchairs and such. Even the chairs with seats>that raise have limits. So, it crossed my mind that one thing I really>want to do is continue to cook. Even now, a nice stool in the kitchen>would be good. In the future, I know it would be the only way. So,>another thing on my list of things to look for is a very comfortable>stool for the kitchen that will get me to the right height.>>>> > >> > > I got your info about the pillow and am checking with Vickie on> > whether we> > > have money for it. Looks promising. I'm not used to being on a fixed> > income> > > yet, plus we have a boat load of bills just come in from UW for my> > recent> > > surgeries. I also use a full face mask Respironics because I can't> > keep my> > > mouth closed. So far I haven't seen the gel mask in a full face.> > Actually I> > > have used my mask more after comments on this board. Also I don't> > really> > > have hobbies. I have a lawn service now and any wood working is to> > hard now.> > > My wife is promising me a large jigsaw puzzle but haven't seen it>yet.> > I> > > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.> > It'> > > supposed to keep the mind sharper but also reminds me how bad I've> > gone> > > downhill. I am really very positive with people I know but for some> > reason> > > feel able to be truthful on this forum. 80 plus messages daily is my> > new> > > hobby.> > > Steve59 from WA> > > IPF 2006> > >> > >> > > >From: "Sher Bauman" bofus@> > > >Reply-To: Breathe-Support > > > >To: Breathe-Support > > > >Subject: Re: steve from WA answers Joy> > > >Date: Sun, 23 Mar 2008 19:04:34 -0700> > > >> > > >Steve...I use a CPAP every night, can I be of help with you> > questions?> > > >I use O2 with mine.........> > > > Mama-Sher, age 69. IPF 3-06, OR.> > > > Don't fret about tomorrow, God is already there!> > > >> > > > steve from WA> > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > > > >> > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was> > going to> > > > >Harborview - now U of W.> > > > >> > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits>I> > > > >learned that I have PAH and sleep apnea also....> > > > >> > > > >Joy / Seattle> > > > >> > > >> > > >> > > >> > > >> > >> >>>>

[Guest guest]

Hi back at you. I can't wait to meet you. This forum is the first contact

with people in the same boat I find myself in. I got my first SSDI payment

last Aug. I will not qualify for medicare until aug

2009. I have been on Cobra with United Health since Spring of 2007. I am

being terminated formally from Home Depot on Apr 10. My Cobra payments will

jump to $450mo. I would have qualified to the 11 month extension if I had

read the fine print that required me to notify Home Depot of my acceptance

by SSDI within 60 days. My wife makes too much for us to qualify for most

Programs. Currently my insurance has a $1000 deductible for RX already made

and $3000 medical. After meeting this the plan pays 80% and I pay 20%. My

wife totaled our share of UW surgery this morning and it comes to $6000. My

wife's insurance would cover me for $1000 Mo., so thats not an option. I

will check with UW on their program and the State of WA to see if I can

qualify for anything. Other wise back to the 401K's which are already

hurting. Also I am doing the 6 minute oximeter walk at 91 so no oxygen yet.

But will keep Sos in mind. I finally took my mask off about 4AM and fell

right to sleep. I did wear it for about an hour. Two nights ago I slept for

about 5 hours with mask so will keep trying.

Steve59 from WA

IPF 2006

>

>Reply-To: Breathe-Support

>To: Breathe-Support

>Subject: Re: steve from WA answers Joy

>Date: Sat, 29 Mar 2008 00:18:15 -0000

>

>

>Hi Steve...

>

> I see Dr. Raghu Apr 23. A week before that appt I have another

>echo on my heart to see if there is any change in my PAH.

>

> I get all my O2 and CPAP supplies from SOS - Sound Oxygen System,

>they are very great to work with. I have not paid them a dime, ever.

>My Washington State Basic Health and Medicare seem to cover everything.

>

> I have the snorkle type CPAP and like it so much better than the

>face masks. It's pretty hard to sleep with your mouth open 'cause when

>you open your mouth air comes rushing out, and your ears plug! I am now

>used to it and last night had a long sleep.

>

> Also, between Harbor View and U of W I have not paid for

>anything...I was put on the " charity list " . It's easy to do and perhaps

>you should call and request the forms to fill out. I've had thousands

>of dollars worth of work and hospital stays - and thankfully, these have

>all been covered! I'm on a fixed income as well.

>

> Take care of yourself!!!

>

>Joy/Seattle

>

>

>

>

>

>

>

>

> >

> > I got your info about the pillow and am checking with Vickie on

>whether we

> > have money for it. Looks promising. I'm not used to being on a fixed

>income

> > yet, plus we have a boat load of bills just come in from UW for my

>recent

> > surgeries. I also use a full face mask Respironics because I can't

>keep my

> > mouth closed. So far I haven't seen the gel mask in a full face.

>Actually I

> > have used my mask more after comments on this board. Also I don't

>really

> > have hobbies. I have a lawn service now and any wood working is to

>hard now.

> > My wife is promising me a large jigsaw puzzle but haven't seen it yet.

>I

> > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.

>It'

> > supposed to keep the mind sharper but also reminds me how bad I've

>gone

> > downhill. I am really very positive with people I know but for some

>reason

> > feel able to be truthful on this forum. 80 plus messages daily is my

>new

> > hobby.

> > Steve59 from WA

> > IPF 2006

> >

> >

> > >From: " Sher Bauman " bofus@...

> > >Reply-To: Breathe-Support

> > >To: Breathe-Support

> > >Subject: Re: steve from WA answers Joy

> > >Date: Sun, 23 Mar 2008 19:04:34 -0700

> > >

> > >Steve...I use a CPAP every night, can I be of help with you

>questions?

> > >I use O2 with mine.........

> > > Mama-Sher, age 69. IPF 3-06, OR.

> > > Don't fret about tomorrow, God is already there!

> > >

> > > steve from WA

> > > >Date: Sat, 22 Mar 2008 00:20:02 -0000

> > > >

> > > >Hi Steve - just letting you know I'm also seeing RAghu - I was

>going to

> > > >Harborview - now U of W.

> > > >

> > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> > > >learned that I have PAH and sleep apnea also....

> > > >

> > > >Joy / Seattle

> > > >

> > >

> > >

> > >

> > >

> >

>

>

[Guest guest]

Thank you. All good ideas. I forget I was a bachelor till age 35 and liked

to cook. I can get back to that with the stools. You can give me advice

anytime. I have noticed since dx I have slowly started experiencing my

feminine side. Cry at movies, some of the stories I see here, etc. Maybe

it's medication. Just kidding.

Steve59 from WA

Ipf 2006

>

>Reply-To: Breathe-Support

>To: Breathe-Support

>Subject: Re: steve from WA answers Joy

>Date: Sat, 29 Mar 2008 10:47:12 -0000

>

>

>Steve,

>

>I think that debilitating illness is so much more difficult for men.

>Most of your lives are spent doing physical things....like your yard

>work and wood work. We girls can turn to less tiring activities more

>easily. Your objective now is to not let this change in lifestyle

>change you into a morose emotional wreck. Big job...just keeping your

>head on straight. You have done well to turn to the things that you can

>do for enjoyment.

>

> , on this board, has placed stools around his house so that

>he can go from place to place and do things to help his wife. He can

>help with chores like laundry and dishes, etc....even dusting with a

>mask. Those things help your wife and they will help you feel

>productive and useful.

>

>When I am so sick that I can not contribute anything, I get so

>depressed. If I can even get one chore done in a day that is usually

>the first thing I have to report when my husband gets home from work.

>He especially is happy when I can sit on my stools and make something

>good for him to eat. I have Windex wipes so that I do not have to spray

>the stuff, dusting wipes that are damp and do not put dust out into the

>air and have found an entire line of products at Target that are

>environmentally friendly....usually meaning that they do not take your

>breath away when you use them.

>

>So many days now, the last thing I want to do is to clean something.

>But even to wipe out a sink with my Windex wipes gives me a sense of

>accomplishments. I try not to compare the old me with the new sick me,

>but there is a stark contrast.

>

>Just some advice that was not solicited but freely given anyway. My

>specialty.

>

>Hugs, Joyce D.

>Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension

>2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)

>Rejected for Transplant 2006

>.....I will not forget you. Behold, I have engraved you on the palm of

>my hands. Isaiah 49: 15-16

>

>

> >

> > I got your info about the pillow and am checking with Vickie on

>whether we

> > have money for it. Looks promising. I'm not used to being on a fixed

>income

> > yet, plus we have a boat load of bills just come in from UW for my

>recent

> > surgeries. I also use a full face mask Respironics because I can't

>keep my

> > mouth closed. So far I haven't seen the gel mask in a full face.

>Actually I

> > have used my mask more after comments on this board. Also I don't

>really

> > have hobbies. I have a lawn service now and any wood working is to

>hard now.

> > My wife is promising me a large jigsaw puzzle but haven't seen it yet.

>I

> > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.

>It'

> > supposed to keep the mind sharper but also reminds me how bad I've

>gone

> > downhill. I am really very positive with people I know but for some

>reason

> > feel able to be truthful on this forum. 80 plus messages daily is my

>new

> > hobby.

> > Steve59 from WA

> > IPF 2006

> >

> >

> > >From: " Sher Bauman " bofus@...

> > >Reply-To: Breathe-Support

> > >To: Breathe-Support

> > >Subject: Re: steve from WA answers Joy

> > >Date: Sun, 23 Mar 2008 19:04:34 -0700

> > >

> > >Steve...I use a CPAP every night, can I be of help with you

>questions?

> > >I use O2 with mine.........

> > > Mama-Sher, age 69. IPF 3-06, OR.

> > > Don't fret about tomorrow, God is already there!

> > >

> > > steve from WA

> > > >Date: Sat, 22 Mar 2008 00:20:02 -0000

> > > >

> > > >Hi Steve - just letting you know I'm also seeing RAghu - I was

>going to

> > > >Harborview - now U of W.

> > > >

> > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> > > >learned that I have PAH and sleep apnea also....

> > > >

> > > >Joy / Seattle

> > > >

> > >

> > >

> > >

> > >

> >

>

>

[Guest guest]

Thank you. All good ideas. I forget I was a bachelor till age 35 and liked

to cook. I can get back to that with the stools. You can give me advice

anytime. I have noticed since dx I have slowly started experiencing my

feminine side. Cry at movies, some of the stories I see here, etc. Maybe

it's medication. Just kidding.

Steve59 from WA

Ipf 2006

>

>Reply-To: Breathe-Support

>To: Breathe-Support

>Subject: Re: steve from WA answers Joy

>Date: Sat, 29 Mar 2008 10:47:12 -0000

>

>

>Steve,

>

>I think that debilitating illness is so much more difficult for men.

>Most of your lives are spent doing physical things....like your yard

>work and wood work. We girls can turn to less tiring activities more

>easily. Your objective now is to not let this change in lifestyle

>change you into a morose emotional wreck. Big job...just keeping your

>head on straight. You have done well to turn to the things that you can

>do for enjoyment.

>

> , on this board, has placed stools around his house so that

>he can go from place to place and do things to help his wife. He can

>help with chores like laundry and dishes, etc....even dusting with a

>mask. Those things help your wife and they will help you feel

>productive and useful.

>

>When I am so sick that I can not contribute anything, I get so

>depressed. If I can even get one chore done in a day that is usually

>the first thing I have to report when my husband gets home from work.

>He especially is happy when I can sit on my stools and make something

>good for him to eat. I have Windex wipes so that I do not have to spray

>the stuff, dusting wipes that are damp and do not put dust out into the

>air and have found an entire line of products at Target that are

>environmentally friendly....usually meaning that they do not take your

>breath away when you use them.

>

>So many days now, the last thing I want to do is to clean something.

>But even to wipe out a sink with my Windex wipes gives me a sense of

>accomplishments. I try not to compare the old me with the new sick me,

>but there is a stark contrast.

>

>Just some advice that was not solicited but freely given anyway. My

>specialty.

>

>Hugs, Joyce D.

>Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension

>2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)

>Rejected for Transplant 2006

>.....I will not forget you. Behold, I have engraved you on the palm of

>my hands. Isaiah 49: 15-16

>

>

> >

> > I got your info about the pillow and am checking with Vickie on

>whether we

> > have money for it. Looks promising. I'm not used to being on a fixed

>income

> > yet, plus we have a boat load of bills just come in from UW for my

>recent

> > surgeries. I also use a full face mask Respironics because I can't

>keep my

> > mouth closed. So far I haven't seen the gel mask in a full face.

>Actually I

> > have used my mask more after comments on this board. Also I don't

>really

> > have hobbies. I have a lawn service now and any wood working is to

>hard now.

> > My wife is promising me a large jigsaw puzzle but haven't seen it yet.

>I

> > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.

>It'

> > supposed to keep the mind sharper but also reminds me how bad I've

>gone

> > downhill. I am really very positive with people I know but for some

>reason

> > feel able to be truthful on this forum. 80 plus messages daily is my

>new

> > hobby.

> > Steve59 from WA

> > IPF 2006

> >

> >

> > >From: " Sher Bauman " bofus@...

> > >Reply-To: Breathe-Support

> > >To: Breathe-Support

> > >Subject: Re: steve from WA answers Joy

> > >Date: Sun, 23 Mar 2008 19:04:34 -0700

> > >

> > >Steve...I use a CPAP every night, can I be of help with you

>questions?

> > >I use O2 with mine.........

> > > Mama-Sher, age 69. IPF 3-06, OR.

> > > Don't fret about tomorrow, God is already there!

> > >

> > > steve from WA

> > > >Date: Sat, 22 Mar 2008 00:20:02 -0000

> > > >

> > > >Hi Steve - just letting you know I'm also seeing RAghu - I was

>going to

> > > >Harborview - now U of W.

> > > >

> > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I

> > > >learned that I have PAH and sleep apnea also....

> > > >

> > > >Joy / Seattle

> > > >

> > >

> > >

> > >

> > >

> >

>

>

[Guest guest]

Hello Peggy, You must have ESP. With the osteoporosis I'm down to 5'3 " . I

like the idea of flying across the kitchen. OH Oh maybe the medications

again. Seriously I don't take that many chances after falling between the

toilet and vanity and not being able to get up by myself. My wife Vickie

finally came up to check after an hour plus. Taught me a lesson.

Steve59 from WA

IPF 2006

>

>Reply-To: Breathe-Support

>To: Breathe-Support

>Subject: Re: Re: steve from WA answers Joy

>Date: Sat, 29 Mar 2008 19:30:39 -0400

>

>We shorties need rubber caps like on a cane put on each leg so we don't go

>flying across the floor.

>

>Love and Prayers, Peggy

>Have a God Blessed Day

>

>

>

>

>

>

>Joyce, good idea the stools. Maybe with wheels.

>Bruce, Interesting vehicle.

>Steve59 from WA

>IPF 2006

>

> >

> >Reply-To: Breathe-Support

> >To: Breathe-Support

> >Subject: Re: steve from WA answers Joy

> >Date: Sat, 29 Mar 2008 19:20:43 -0000

> >

> >

> >Joyce....sexist remarks....lol

> >

> >Yard work? Wood work? Me? NEVER!!!!!!!!!!!!!!!!!!!! Not this man.

> >

> >The stools is an excellent idea. I thought of that one this week when

> >looking at lifts and powerchairs and such. Even the chairs with seats

> >that raise have limits. So, it crossed my mind that one thing I really

> >want to do is continue to cook. Even now, a nice stool in the kitchen

> >would be good. In the future, I know it would be the only way. So,

> >another thing on my list of things to look for is a very comfortable

> >stool for the kitchen that will get me to the right height.

> >

> >

> >

> > > >

> > > > I got your info about the pillow and am checking with Vickie on

> > > whether we

> > > > have money for it. Looks promising. I'm not used to being on a

>fixed

> > > income

> > > > yet, plus we have a boat load of bills just come in from UW for my

> > > recent

> > > > surgeries. I also use a full face mask Respironics because I can't

> > > keep my

> > > > mouth closed. So far I haven't seen the gel mask in a full face.

> > > Actually I

> > > > have used my mask more after comments on this board. Also I don't

> > > really

> > > > have hobbies. I have a lawn service now and any wood working is to

> > > hard now.

> > > > My wife is promising me a large jigsaw puzzle but haven't seen it

> >yet.

> > > I

> > > > read a lot. Daily newspaper and fiction. I do Soduko and

>crosswards.

> > > It'

> > > > supposed to keep the mind sharper but also reminds me how bad I've

> > > gone

> > > > downhill. I am really very positive with people I know but for some

> > > reason

> > > > feel able to be truthful on this forum. 80 plus messages daily is

>my

> > > new

> > > > hobby.

> > > > Steve59 from WA

> > > > IPF 2006

> > > >

> > > >

> > > > >From: " Sher Bauman " bofus@

> > > > >Reply-To: Breathe-Support

> > > > >To: Breathe-Support

> > > > >Subject: Re: steve from WA answers Joy

> > > > >Date: Sun, 23 Mar 2008 19:04:34 -0700

> > > > >

> > > > >Steve...I use a CPAP every night, can I be of help with you

> > > questions?

> > > > >I use O2 with mine.........

> > > > > Mama-Sher, age 69. IPF 3-06, OR.

> > > > > Don't fret about tomorrow, God is already there!

> > > > >

> > > > > steve from WA

> > > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000

> > > > > >

> > > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was

> > > going to

> > > > > >Harborview - now U of W.

> > > > > >

> > > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits

> >I

> > > > > >learned that I have PAH and sleep apnea also....

> > > > > >

> > > > > >Joy / Seattle

> > > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

>

>

>

[Guest guest]

Steve,

Prednisone makes me a cry baby! The higher the dose, the more tears come!

Besides, Real Men do cry!

Hugs, Joyce D.> > >> > > I got your info about the pillow and am checking with Vickie on> >whether we> > > have money for it. Looks promising. I'm not used to being on a fixed> >income> > > yet, plus we have a boat load of bills just come in from UW for my> >recent> > > surgeries. I also use a full face mask Respironics because I can't> >keep my> > > mouth closed. So far I haven't seen the gel mask in a full face.> >Actually I> > > have used my mask more after comments on this board. Also I don't> >really> > > have hobbies. I have a lawn service now and any wood working is to> >hard now.> > > My wife is promising me a large jigsaw puzzle but haven't seen it yet.> >I> > > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.> >It'> > > supposed to keep the mind sharper but also reminds me how bad I've> >gone> > > downhill. I am really very positive with people I know but for some> >reason> > > feel able to be truthful on this forum. 80 plus messages daily is my> >new> > > hobby.> > > Steve59 from WA> > > IPF 2006> > >> > >> > > >From: "Sher Bauman" bofus@> > > >Reply-To: Breathe-Support > > > >To: Breathe-Support > > > >Subject: Re: steve from WA answers Joy> > > >Date: Sun, 23 Mar 2008 19:04:34 -0700> > > >> > > >Steve...I use a CPAP every night, can I be of help with you> >questions?> > > >I use O2 with mine.........> > > > Mama-Sher, age 69. IPF 3-06, OR.> > > > Don't fret about tomorrow, God is already there!> > > >> > > > steve from WA> > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > > > >> > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was> >going to> > > > >Harborview - now U of W.> > > > >> > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I> > > > >learned that I have PAH and sleep apnea also....> > > > >> > > > >Joy / Seattle> > > > >> > > >> > > >> > > >> > > >> > >> >> >>

[Guest guest]

Steve,

Prednisone makes me a cry baby! The higher the dose, the more tears come!

Besides, Real Men do cry!

Hugs, Joyce D.> > >> > > I got your info about the pillow and am checking with Vickie on> >whether we> > > have money for it. Looks promising. I'm not used to being on a fixed> >income> > > yet, plus we have a boat load of bills just come in from UW for my> >recent> > > surgeries. I also use a full face mask Respironics because I can't> >keep my> > > mouth closed. So far I haven't seen the gel mask in a full face.> >Actually I> > > have used my mask more after comments on this board. Also I don't> >really> > > have hobbies. I have a lawn service now and any wood working is to> >hard now.> > > My wife is promising me a large jigsaw puzzle but haven't seen it yet.> >I> > > read a lot. Daily newspaper and fiction. I do Soduko and crosswards.> >It'> > > supposed to keep the mind sharper but also reminds me how bad I've> >gone> > > downhill. I am really very positive with people I know but for some> >reason> > > feel able to be truthful on this forum. 80 plus messages daily is my> >new> > > hobby.> > > Steve59 from WA> > > IPF 2006> > >> > >> > > >From: "Sher Bauman" bofus@> > > >Reply-To: Breathe-Support > > > >To: Breathe-Support > > > >Subject: Re: steve from WA answers Joy> > > >Date: Sun, 23 Mar 2008 19:04:34 -0700> > > >> > > >Steve...I use a CPAP every night, can I be of help with you> >questions?> > > >I use O2 with mine.........> > > > Mama-Sher, age 69. IPF 3-06, OR.> > > > Don't fret about tomorrow, God is already there!> > > >> > > > steve from WA> > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > > > >> > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was> >going to> > > > >Harborview - now U of W.> > > > >> > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I> > > > >learned that I have PAH and sleep apnea also....> > > > >> > > > >Joy / Seattle> > > > >> > > >> > > >> > > >> > > >> > >> >> >>

[Guest guest]

Joyce,

I have cried, super angry, want to kill someone, want to fight, want to run away, and so many other emotions that I feel are due to PREDNISONE and it is hard to explain how it affects me. O feel in even makes me feel suicidal at time and say why prolong the inevitable and Go through the pain, suffering and agony you put others through not to mention the cost in dollars.

Joe

-- Re: steve from WA answers Joy> > > >Date: Sun, 23 Mar 2008 19:04:34 -0700> > > >> > > >Steve...I use a CPAP every night, can I be of help with you> >questions?> > > >I use O2 with mine.........> > > > Mama-Sher, age 69. IPF 3-06, OR.> > > > Don't fret about tomorrow, God is already there!> > > >> > > > steve from WA> > > > >Date: Sat, 22 Mar 2008 00:20:02 -0000> > > > >> > > > >Hi Steve - just letting you know I'm also seeing RAghu - I was> >going to> > > > >Harborview - now U of W.> > > > >> > > > >Do you like Dr. Raghu? I've seen him twice and in those 2 visits I> > > > >learned that I have PAH and sleep apnea also....> > > > >> > > > >Joy / Seattle> > > > >> > > >> > > >> > > >> > > >> > >> >> >>