Fw: 1b. Re: A breakthrough with a doctor at UCSF!

[Guest guest]

1b. Re: A breakthrough with a doctor at UCSF!

by: " Sherri White " sherriwhitern@... sherriwhitern

Fri Sep 25, 2009 2:40 am (PDT)

I see two neurologists in San Francisco, CA. My primary neurologist, Dr. Amy

Akers, prescribed LDN for me in May of this year. I took it concurrently with

Tysabri until I got sick later that month with an upper respiratory infection.

She and I both agreed it was time to take a holiday from Tysabri. I met with her

last month and she wanted me to go back on Copaxone (with the LDN, too). My

husband and I said we would like to wait until we saw the neurologist at UCSF

before we made a decision.

My appointment with Dr. Doug Goodin at UCSF was this morning, and I have

wonderful news for the LDN community! He recommended that I stay off Tysabri (he

honestly believes it will be pulled off the market within the next three years

due to increased PML cases) and he doesn’t agree that I should start any

disease-modifying drugs. He believes I need to stay on LDN. Although he said

they don’t know right now what effect LDN has at stopping the progression of

the disease, he believes it is promising based on the small study done by his

colleague, Dr. Cree, and what other patients are telling him. He said they are

trying to get more grant money to do another study.

Dr. Goodin plans on calling Dr. Akers to discuss the plan tomorrow. This is

great news! Physicians in this area are finally starting to acknowledge LDN as a

treatment for multiple sclerosis!

Sherri

__________________________________________________