Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 I have a vp shunt (since infancy) story very similar to yours. Diagnosed in 2005, was on Copaxone (Worked well) until allergic reation almost 1yr ago. Currently on Avonex and HATE it.There is no question about my side effects...essentially I have the flu EVERY week. It completely wipes me out. Just when I am making good progresss, I have to do it all over again. I do know of people who take it with out major side effects. I really want to stop taking it (others are not options at this time.) I continue this treatment because without it (or Copaxone when it was my option) I had a major new or reocurring symptoms each month.This forum usually sides on the alternative and natural treatments/lifestyles. Just research and experiment. Through trial and error, you will find the regieme that works BEST FOR YOU! Hang in there and BE STRONG! Subject: MS and Avonex To: mscured Date: Tuesday, February 3, 2009, 9:38 AM Hello, I was told a year ago I have RRMS but I have suffer many years. I had a VPshunt put in 20 years ago , had a revision first 1 in 2002 everything went wrong I had a stroke but I recovered even so it did cause nerve damage. I have seen 3 diff doctor and the last one told me I had 1 lesion on the left side where the stroke effected me. My question I guess i am seeking is this. They are wanting to put me on avonex , I don't feel comfortable about it but don't really no if the goods are with the effects. How many people don't take this stuff and do just fine? How doesnt it work for others ? I no what the company who want to sell it say , I want to hear real people opinions. I have always been into health foods but after my hubby died i got off track of eating right and Man am I paying the price now! Any advice would be of help. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 my mother stopped taking her avonex because her hair were thinning and she was having constipations. The hair thinning has stopped but she is having more MS attacks. She doesnt want to go back on Avonex because of the flu symptoms and she says a women with no hair is not a women. How could I convince her to go back to taking the drug? or should i even try? What are the consenquences? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi, My husband has been using Avonex for almost 8 years, along with suppliments and diet changes, and he has done very well on it. Hope this helps! Best wishes, Jim and Subject: MS and Avonex To: mscured Date: Tuesday, February 3, 2009, 9:38 AM Hello, I was told a year ago I have RRMS but I have suffer many years. I had a VPshunt put in 20 years ago , had a revision first 1 in 2002 everything went wrong I had a stroke but I recovered even so it did cause nerve damage. I have seen 3 diff doctor and the last one told me I had 1 lesion on the left side where the stroke effected me. My question I guess i am seeking is this. They are wanting to put me on avonex , I don't feel comfortable about it but don't really no if the goods are with the effects. How many people don't take this stuff and do just fine? How doesnt it work for others ? I no what the company who want to sell it say , I want to hear real people opinions. I have always been into health foods but after my hubby died i got off track of eating right and Man am I paying the price now! Any advice would be of help. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi Marium, This site has some good advice about treating your MS: http://tinyurl.com/advice-to-msers Best regards, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
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