Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Hi. I wrote about my baby girl awhile back. We still don't have any answers (waiting for skin biopsy results), but her doctors are fairly certain that she has some type of mito disease. I have been eating myself up lately with worry and I just can't seem to stop obsessing about this. It is hard when every time we see one of Gracie's doctors (every couple of weeks at this point) they start warning us about seizures, blue spells, the danger of a fever or respiratory infection. It gets hard to handle sometimes. Except for some obvious eye problems and frequent vomiting, she seems fine. She is such a happy baby and so sweet. I can't stop worrying though and it is really affecting my relationships with my friends and family. I don't know how to stop feeling so bad because I know my sweet baby isn't going to grow up. Is there any way to get over this feeling of despair? How do you get on with your life despite your sick baby? I just don't know if I can handle this much longer. I don't know what to do. Any suggestions? Thanks for being there. Angie (mom to Gracie 3.5 months, GERD, eye problems, heart murmur, lactic acidosis) Quote Link to comment Share on other sites More sharing options...
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