Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Yes and no. How is that for an answer. There is no direct relationship as sleep apnea, depending on the type, is either neurological or obstructive. However, a disproportionately high percentage of PF'ers seem to have sleep apnea so it does remain one of those curiosities. Perhaps we just are examined for it more than the general population or more of us have it for an unknown reason. > > > I forgot to ask this question: Is there any relationship between sleep > apnea and PF? > > Joy/Seattle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Yes and no. How is that for an answer. There is no direct relationship as sleep apnea, depending on the type, is either neurological or obstructive. However, a disproportionately high percentage of PF'ers seem to have sleep apnea so it does remain one of those curiosities. Perhaps we just are examined for it more than the general population or more of us have it for an unknown reason. > > > I forgot to ask this question: Is there any relationship between sleep > apnea and PF? > > Joy/Seattle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 I wear a CPap and my husband has to wear a BiPap for sleep apnea. When I went for my sleep test, the tech came into the room the next morning and said, " You poor thing " . I had a sneaky feeling that I would soon be getting a CPAP.. and I did!! I remember my father napping and suddenly he would SNORT real loud. He was also a snorer. I went to the doctor because my husband said I snored and I also caught myself snorting when napping. Genetics??? Maybe. Now, (my husband) was sent for a sleep test after he had carotid artery surgery. They said he would stop breathing for long periods of time. Turns out that when asleep his tongue relaxes and falls back into his airway. We were sent to a specialist who does a painful, but successful surgery where she would remove his tonsils and also perform a procedure to keep the tongue from falling back. She said that there was about 3 weeks of painful recovery from the procedure and he still might have to wear a CPAP. His BIPAP is set at 24/18. It modulates between 24 and 18 pressure and it nearly blows his face off. To make it worse, he is also a mouth breather which requires a full face mask which is very hard to find a mask with a good fit. Getting him from a BIPAP to a CPAP would be so much easier on him. Yes, there is a fitting that also feeds his oxygen into the BIPAP mask. He hasn't had the surgery but he has finally found a mask that he can tolerate. I think the thought of 3 weeks of pain made him work harder at learning to use the BIPAP. His pulmonologist says his case is so severe that if he won't wear the mask he will have to have the surgery. The pulmo is pushing for the surgery. His problems grow worse when he has to be in the hospital. Here the hospitals have hospitalists (merely guardians of meds) and I have a fight to get him a BIPAP every time. One of his 5 hospitalizations this year, the nurses found him at 2AM unresponsive and sent him to intensive care. The hospitalist had not given orders for a BIPAP, nor would they call his pulmo for consult. I was visiting him in intensive care and happened to see his pulmo.. he said, what are you doing here. When he found out what was going on, he put himself on ' case. So be warned, those of you with Apnea, have an advocate who will make sure you get your CPAP/BiPAP. I'm lucky as I found a mask right away and love love love it. It just fits over my nose and I sleep very comfortably. I wake up feeling more rested and have even noticed that my eyes look clear and bright in the morning. This apnea business is important and it is vital to be tested when you have any pulmo disorders. I hope this is encouraging to some of you. I think it is part of the fight with the monster to keep the lungs protected. I can't read all the posts, nor can I often reply, but I seem to identify with so much that you'all (I'm a Texan) have to say. Keep up the good work, keep the faith and stay in touch. I've lost track of Jaimie.. someone please let me know if you ever hear from her. She is so much on my heart. I miss her and the Carolyn who quit posting a long time ago. They are always on my mind and in my heart as are all of you. Gale in TX IPF 10/06 > > > > > > I forgot to ask this question: Is there any relationship between sleep > > apnea and PF? > > > > Joy/Seattle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Gale, This post was so informative....and well written. I hope every member who has been diagnosed with sleep apnea (or even suspects they have it) reads it. Hospitals scare me to death. And, yes, I just survived an 11 day stay. I fear for those without advocacy. I only had one fiasco during my stay, but it was life threatening. I hear so many horror stories. I can't even watch the new "hospital" shows on t.v. Too real. Post more often, I miss you! Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 > > >> > >> > > I forgot to ask this question: Is there any relationship between > sleep> > > apnea and PF?> > >> > > Joy/Seattle> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Another thing, I learned last time was regarding getting the meds I'm suppose to have. I took them all with me, so when they didn't have something, like no nexium an try to pawn protonix on me, or none of something else, then I had it. Doctor always said ok, but I would hav anyway. So, same thing on CPAP/BIPAP. I would pack and take it so if they failed to do their job I'd have mine. > > > > > > > > > > > > I forgot to ask this question: Is there any relationship between > > sleep > > > > apnea and PF? > > > > > > > > Joy/Seattle > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Bruce... I would take my CPAP w/me too. Why pay someone else to furnish what I already have. I know my Dr. would approve.... Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there! Re: Sleep Apnea, why? Another thing, I learned last time was regarding getting the meds I'msuppose to have. I took them all with me, so when they didn't havesomething, like no nexium an try to pawn protonix on me, or none ofsomething else, then I had it. Doctor always said ok, but I would havanyway. So, same thing on CPAP/BIPAP. I would pack and take it so ifthey failed to do their job I'd have mine.> > > >> > > >> > > > I forgot to ask this question: Is there any relationship between> > sleep> > > > apnea and PF?> > > >> > > > Joy/Seattle> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Thank you for your responses. Last night I didn't get to sleep until close to 1:00...I have problems getting to sleep. This a.m. I had a bloody nose and one eye lid is swollen and hurts. So, I will continue to use the CPAP - last night I had too much moisture and I was running out the side of my nose! This a.m. I read that I should turn the moisture down to 2. Will try that tonight. I have to admit that I now dread going to bed! Joy/Seattle > > > > > > > > > > > > I forgot to ask this question: Is there any relationship between > > sleep > > > > apnea and PF? > > > > > > > > Joy/Seattle > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Oh Joy ((())) it doesn't sound like fun. I hope you get used to it soon, but these sort of things do take time. Love Ze xxx> > > > >> > > > >> > > > > I forgot to ask this question: Is there any relationship > between> > > sleep> > > > > apnea and PF?> > > > >> > > > > Joy/Seattle> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Joy...Your setting can be on 1 and still work well. I have used a 1 setting for some years. However, I should add....I'm very sensitive to "heat" and a higher setting is simply 'too warm' to breathe for me. Since you need it, keep trying. I had a hard time adjusting to mine at first too. I do still have problems with air leaks. Those waken me. I'm seriously considering buying the pillow at www.cpapsupplyusa.com that Bruce sent me. I was hoping someone on the board might have one and tell me how they like it but no one has responded. I'm sorry you are having trouble. Sleep is so important. Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there! Re: Sleep Apnea, why? Thank you for your responses. Last night I didn't get to sleep until close to 1:00...I have problems getting to sleep. This a.m. I had a bloody nose and one eye lid is swollen and hurts. So, I will continue to use the CPAP - last night I had too much moisture and I was running out the side of my nose! This a.m. I read that I should turn the moisture down to 2. Will try that tonight. I have to admit that I now dread going to bed!Joy/Seattle> > > >> > > >> > > > I forgot to ask this question: Is there any relationship between> > sleep> > > > apnea and PF?> > > >> > > > Joy/Seattle> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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