Re: Fibro and pain meds

[Guest guest]

Hi all, Hope everyone is pain free today.

I've been in excrutiating pain for about 4 days now and finally broke

down and called my Rheumatologist to see if he could give me something

to relieve the pain, even for just a few hours. The Jerk told me " it's

not the " protocol " to prescribe pain meds for fibro. I told hime it's

not just the " Fibro " I also have Neuropathy, Myositis, and arthritis

in the spine. But the Almighty Jerk just told me to see another DR.

What an **A*** I've been seeing this guy for over 3 yrs! And he's the

only Rheumatologist in the Area!

Can anyone out there tell me if they are taking some kind of pain med,

who has " Fibro " and if so what do you take? I'd just like to know

for my own benefit.

Thank you for listening.

Dawn

[Guest guest]

My rheumatologist (you can send this part to him if you want) says the protocol is to treat pain in FM patients, and that most recent research says its a neurological disorder. She gave me lyrica (for nerve pain), robaxin ( a muscle relaxer), lidocaine patches (to place directly on the skin over the most painful areas), and ambien c-r (for sleep). She also said that if these didn't work we could look at other options. So there are good docs out there treating it...took me at least 12 years to get a diagnosis, and another 5 to find a doc really willing to treat. Do you know about fibrobetsy? She has an information base of docs who treat FM...thats how I found my doc. Rivernannaz2 wrote: Hi all, Hope everyone is pain free today.I've been in excrutiating pain for

about 4 days now and finally broke down and called my Rheumatologist to see if he could give me something to relieve the pain, even for just a few hours. The Jerk told me "it's not the "protocol" to prescribe pain meds for fibro. I told hime it's not just the "Fibro" I also have Neuropathy, Myositis, and arthritis in the spine. But the Almighty Jerk just told me to see another DR.What an **A*** I've been seeing this guy for over 3 yrs! And he's the only Rheumatologist in the Area!Can anyone out there tell me if they are taking some kind of pain med, who has "Fibro" and if so what do you take? I'd just like to know for my own benefit.Thank you for listening.Dawn

[Guest guest]

Dawn, I see a Rheumatologist, but she is far more considerate. She gives

me Hydrocodone. I know it is narcotic, but it is the only thing that

helps me, not to say it would help you. Guess you do need to find

another Dr. Don't know where tho. I wish you the best! It is terrible to

hurt so much with no relief.

Peggyb

>

> Hi all, Hope everyone is pain free today.

> I've been in excrutiating pain for about 4 days now and finally broke

> down and called my Rheumatologist to see if he could give me something

> to relieve the pain, even for just a few hours. The Jerk told me " it's

> not the " protocol " to prescribe pain meds for fibro. I told hime it's

> not just the " Fibro " I also have Neuropathy, Myositis, and arthritis

> in the spine. But the Almighty Jerk just told me to see another DR.

> What an **A*** I've been seeing this guy for over 3 yrs! And he's the

> only Rheumatologist in the Area!

>

> Can anyone out there tell me if they are taking some kind of pain med,

> who has " Fibro " and if so what do you take? I'd just like to know

> for my own benefit.

>

> Thank you for listening.

> Dawn

>

[Guest guest]

My doc has me on Neurotin, (400 mg 3xs/day) Naprosyn 500 mg 2xs per day, and Elavil for sleep. (25mg) 1at bed. I was in so much pain recently that I couldn't function, and just called her and she prescribed them. I also have PT 3 times a week with hot wet packs and tens units. I just started going to her last week and she was extremely good. The Rheumatologist that I went to the week before, told me basically that the disease doesn't exist, (IE it's all in my head) and then gave me a sample of 50mg of Lyrica to try. It worked for one day and I still hurt like crazy. Last night, after the PT, I started taking all this stuff and for the first time in a very long time, I actually felt Good it was amazing. Keep searching for a doc. I also have had this for years with male docs telling me that it doesn't really exist and only

treating a part of the symptoms. My current doc told me that they're told in med school that it doesn't exist, but she doesn't believe it, she KNOWS it exists. She was very interested when I told her that during my sleep study. ( My original doc seemed to think that I just had a sleep disorder and once that was taken care of, well, that was it) the doc there at the Sleep place said that I have restless leg syndrome. She wanted to know why that had never been treated. I just shrugged and said, "Gee, I really don't know". She was shaking her head before it was over. So, look around and find a doc that you know will treat you. Mine is just a GP and she's not a rheumatologist. Find one that will get all your records so that they can review them. Have one that will put all the pieces together. I figure that it's kind of like shopping for a car. You keep going to different dealers. Hope you find some

relief soon. Ann Krichbaum. River DeHart wrote: My rheumatologist (you can send this part to him if you want) says the protocol is to treat pain in FM patients, and that most recent research says its a neurological disorder. She gave me lyrica (for nerve pain), robaxin ( a muscle relaxer), lidocaine patches (to place directly on the skin over the most painful areas), and ambien c-r (for sleep). She also said that if these didn't work we could look at other options. So there are good docs out there treating it...took me at least 12 years to get a diagnosis, and another 5 to find a doc really willing to treat. Do you know about fibrobetsy? She has an information base of docs who treat FM...thats how I found my doc. Rivernannaz2

wrote: Hi all, Hope everyone is pain free today.I've been in excrutiating pain for about 4 days now and finally broke down and called my Rheumatologist to see if he could give me something to relieve the pain, even for just a few hours. The Jerk told me "it's not the "protocol" to prescribe pain meds for fibro. I told hime it's not just the "Fibro" I also have Neuropathy, Myositis, and arthritis in the spine. But the Almighty Jerk just told me to see another DR.What an **A*** I've been seeing this guy for over 3 yrs! And he's the only Rheumatologist in the Area!Can anyone out there tell me if they are taking some kind of pain med, who has "Fibro" and if so what do you take? I'd just like to know for my own benefit.Thank you for

listening.Dawn

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[Guest guest]

I went to my rheumatologist a couple of times before he

suggested that I take pain meds. He put me on a muscle

relaxer right away, but waited on the pain meds. I have

allergies to alot of meds so he had a difficult time

prescribing me a pain med. I take tylenol#3 at least twice

a day. I can take it up to 4 times. My daughter who also

has fibro takes vicodin es. On the other hand my brother

who also has fibro chooses to use biofeed back & aqua

therapy to deal with his symptoms. If your rheumatologist

won't prescribe for you perhaps your primary care physician

will. I quit my rheumatologist because all he did was poke

at me & tell me to stay on my meds. My primary care

doctor told me she would prescribe my meds for me from now

on. Good luck!

Donna S.

[Guest guest]

>Thank you River for your input. I have never heard of Fibrobetsy,

is that a web site or what.

Dawn

> My rheumatologist (you can send this part to him if you want)

says the protocol is to treat pain in FM patients, and that most

recent research says its a neurological disorder. She gave me lyrica

(for nerve pain), robaxin ( a muscle relaxer), lidocaine patches (to

place directly on the skin over the most painful areas), and ambien

c-r (for sleep). She also said that if these didn't work we could

look at other options. So there are good docs out there treating

it...took me at least 12 years to get a diagnosis, and another 5 to

find a doc really willing to treat. Do you know about fibrobetsy?

She has an information base of docs who treat FM...thats how I found

my doc.

> River

>

>> 1. While it is wonderful to share our experiences with everyone

on the list as to what treatments do and don't work for us, pls

always check with your dr. Some treatments are dangerous when given

along with other meds as well as to certain health conditions or

just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is)

pls don't be afraid to ask for help. It is the first step to trying

to make that situation better.

>

> 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-

unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling

bad at the same time when it comes to flares and b/c of that

potentially take something another member says the wrong way. And

that includes the things that one member may find funny (even if

it's laughing at fibro itself) even though we who deal with illness

whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a

bad day pls let us know so that we can do our best to offer our

support.

>

> Have a nice day everyone.

>

>

>

>

>

[Guest guest]

I take Ultram for the pain, Skelexin for a muscle relaxer and Elavil

for depression and insomnia at night.

N.

> Can anyone out there tell me if they are taking some kind of pain

med,

> who has " Fibro " and if so what do you take? I'd just like to know

> for my own benefit.

>

> Thank you for listening.

> Dawn

>

[Guest guest]

Dawn, I can't imagine having Drs how care so little. I have been

blessed with caring Drs, both my GP and my Rheumotologist. No, it is

NOT Illegal to prescribe narcotics for Fibro. It is pain, and it can be

terrible pain.I have been taking it for a long time, I am not addicted,

and some days I need more than others. and it does help me. My knee

surgeon is the one who got me the handicapped placard, but I am sure my

Rheumy would have.

You definitely need to find a new Dr. I sure wish you could see mine!

She is a jewel. I wish you luck!

Re: Fibro and Pain meds

Peggyb,

Thanks for the info. My Dr. claims it's unethical and illegal to

prescribe narcotics for Fibro. and also claims he could lose his

medical license over it. Also, when I first got so bad with the

pain, I had asked him if he would fill out an application for a

handicap placard, he refused, stating I wasn't handicapped!

Fortunately my Chiroparactor disagreed and filled one out for me,

and it seems lately I'm forced into using it more and more.

Dawn

1. While it is wonderful to share our experiences with everyone on the

list as

to what treatments do and don't work for us, pls always check with

your dr.

Some treatments are dangerous when given along with other meds as well

as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls

don't be

afraid to ask for help. It is the first step to trying to make that

situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad

at the

same time when it comes to flares and b/c of that potentially take

something

another member says the wrong way. And that includes the things that

one member

may find funny (even if it's laughing at fibro itself) even though we

who deal

with illness whether one such as fibro or multiple illnesses try to

keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad

day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Oh a hot tub sounds like heaven! I have such difficulty getting in and

out of a tub, I do sit in a hot shower and it gives me relief when

nothing else will. At least I am clean! Have taken 2 or 3 during a

night at times.

Peggyb

Fibro and pain meds

I'm on Cymbalta and Tramadol for fibro. Have been since this past

summer. It helps. I also go in a hot tub everynight. (the hot tub is

inside!) I use a pain cream on my shoulder, hands, and left leg before

going to bed. My rheumatologist said there isn't anything else he can

do for me.

Peggy (Irish)

1. While it is wonderful to share our experiences with everyone on the

list as

to what treatments do and don't work for us, pls always check with your

dr.

Some treatments are dangerous when given along with other meds as well

as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls

don't be

afraid to ask for help. It is the first step to trying to make that

situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad

at the

same time when it comes to flares and b/c of that potentially take

something

another member says the wrong way. And that includes the things that

one member

may find funny (even if it's laughing at fibro itself) even though we

who deal

with illness whether one such as fibro or multiple illnesses try to

keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day

pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

My Dr. was one to try me on many different things till she found the

right thing. Vioxx didn't help me much either, I take arthrotec (as

well as hydrocodone), and I think it is an older one. I do know a lot

of people can't take hydrocodone, or other pain meds, but it is what

works for me. I can feel the relief was over me when it starts working.

I have also heard massage therapy helps, but have not had much

opportunity to try this.

Re: Fibro and Pain meds

Dawn,

I have bad reactions to many pain meds, can't take many of them

because of the reactions.

I also can't take OTC pain meds, for varying reasons, which I

needn't go into.

The important bit is my doctor has given me Feldene (piroxicam) and

I've been taking it for about 3 months now. It has worked wonderfully

for me since the first dose (supposed to take up to several weeks to

give the best pain relief). It is an NSAID, (and an " old " drug) which

is funny because none of my medical tests show any inflammation and

hardly any arthritis in the joints that are my worst pain centers.

I don't know why it helps me so much, but I haven't had this low a

pain level in years. Like all NSAIDS, it can cause stomach upset, and

I definitely have IBS and have had much stomach problems and pain over

the years from other pain relievers, but this one is not bothering me

at all. I do take it with my biggest meal of the day, but have

forgotten and had to take it with only a glass of milk and it still

hasn't hurt my stomach.

Just as an aside, the infamous VIOXX didn't give me any pain relief

at all.

Everyone is so different. It can be really difficult to persist in

trying things until we find something that truly helps. And doctors

always seem to want to Rx the new whoopdeedoo drug of the moment

rather thay trying the older ones. But it was this older one that has

meant I haven't had to use my cane(s) since I started taking it.

laz

>

> Can anyone out there tell me if they are taking some kind of pain

med,

> who has " Fibro " and if so what do you take? I'd just like to know

> for my own benefit.

>

> Thank you for listening.

> Dawn

>

1. While it is wonderful to share our experiences with everyone on the

list as

to what treatments do and don't work for us, pls always check with your

dr.

Some treatments are dangerous when given along with other meds as well

as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls

don't be

afraid to ask for help. It is the first step to trying to make that

situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad

at the

same time when it comes to flares and b/c of that potentially take

something

another member says the wrong way. And that includes the things that

one member

may find funny (even if it's laughing at fibro itself) even though we

who deal

with illness whether one such as fibro or multiple illnesses try to

keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day

pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.

[Guest guest]

Kelli,

I'm not even going to bother confronting the DR. Obviously he's an

arrogant s*b, any Dr. that you've been going to tells you to go see

someone else because there's nothing more they can do for you, and

they absolutely refuse to acknowledge your pain isn't worth the

effort of confrontation. I did find another Rheumatologist to go to

Tues, he was reccommended by my new primary care and he's supposed

to be very compassionate and very well informed on different

treatments for fibro. I'll let you know what I think of him later

this week.

Dawn

>

> Dawn

> I would suggest finding a new doctor right away - one who

doesn't lie. I was seeing a D.O. General Practitioner and a D.O.

Pain Management Specialist AFTER diagnosed as having fibro. For the

Rx: one gave me vicodin, the other gave me compounded hydrocodone:

narcotics.

>

> It's not true that it's illegal to prescribe narcotics for

fibro. I have heard people claim, however, that it is illegal to

undertreat pain. I don't know how you confront your lying doctor.

>

> Kelli

>

> >

> 1. While it is wonderful to share our experiences with everyone on

the list as to what treatments do and don't work for us, pls always

check with your dr. Some treatments are dangerous when given along

with other meds as well as to certain health conditions or just

dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is)

pls don't be afraid to ask for help. It is the first step to trying

to make that situation better.

>

> 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-

unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling

bad at the same time when it comes to flares and b/c of that

potentially take something another member says the wrong way. And

that includes the things that one member may find funny (even if

it's laughing at fibro itself) even though we who deal with illness

whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a

bad day pls let us know so that we can do our best to offer our

support.

>

> Have a nice day everyone.

>

>

>

>

>

[Guest guest]

I use the same treatments.... Cymbalta which has helped me quite a bit with the CFS as well as Ultram/Tramadol for the pain. I also use Trazadone at bedtime for sleep. Worst side affect that I have had with Cymbalta is that I have lost about 10lbs in the first 3 weeks that I have been on it. Hope this helps! peggyb1943@... wrote: Oh a hot tub sounds like heaven! I have such difficulty getting in and out of a tub, I do sit in a hot shower and it gives me relief when nothing else will. At least I am clean! Have taken 2 or 3 during a night at times. :)Peggyb Fibro and pain meds I'm on

Cymbalta and Tramadol for fibro. Have been since this pastsummer. It helps. I also go in a hot tub everynight. (the hot tub isinside!) I use a pain cream on my shoulder, hands, and left leg beforegoing to bed. My rheumatologist said there isn't anything else he cando for me. :(Peggy (Irish)1. While it is wonderful to share our experiences with everyone on the list asto what treatments do and don't work for us, pls always check with your dr.Some treatments are dangerous when given along with other meds as well as tocertain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't beafraid to ask for help. It is the first step to trying to make that situationbetter.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than

one member to be feeling bad at thesame time when it comes to flares and b/c of that potentially take somethinganother member says the wrong way. And that includes the things that one membermay find funny (even if it's laughing at fibro itself) even though we who dealwith illness whether one such as fibro or multiple illnesses try to keep a senseof humor.5. Pls let's be gentle with each other, and if you are having a bad day pls letus know so that we can do our best to offer our support.Have a nice day everyone.

[Guest guest]

Hello is there any pain meds that are all natural ?

[Guest guest]

I haven't heard of any. I am on Immunoflavinoids which are seeming to help a bit with joint pain, but it has taken a month to see any improvement whatsoever. Anyone else wish Vicodin grew in a bush somewhere? BeccaLiketolaugh31@... wrote: Hello is there any pain meds that are all natural ?

Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail.

[Guest guest]

Would love to have massages, and there is a woman here who says she is

very familiar with fibro, and has several fibro clients. The only

rouble is I can't really afford it. A few years ago, for a few months,

I had a massage treatment almost weekly for my plantar fasciitis, it

really was wonderful, and helped a lot, but the effects were extremely

short lived. I can't see spending money now needed for other things

(food, meds, LOL) for something that didn't give more than brief pain

relief.

laz

>

> My Dr. was one to try me on many different things till she found the

> right thing. Vioxx didn't help me much either, I take arthrotec (as

> well as hydrocodone), and I think it is an older one. I do know a lot

> of people can't take hydrocodone, or other pain meds, but it is what

> works for me. I can feel the relief was over me when it starts working.

> I have also heard massage therapy helps, but have not had much

> opportunity to try this.

>

[Guest guest]

Massage effects can be cumulative over time, then when you stop getting them the benefits are gradually lost. When I went to massage school (sick but not yet diagnosed) I had 2 headaches during the whole 6 months...and had strep throat with one of them. I wasn't pain free but could move more easily in my body. If there is a massage school near you, they probably have a student clinic that gives massage for 1/2 price, and sometimes you can hook up with a student who wants to practice more, and will do it free. The caveat is that its "potluck" as to the quality of the work, and you will have to train a student as to what works and doesn't work for you. You will have to have a clear, possibly firm discussion about deep massage being bad for you before you get on the table. Another possibility for low cost massage is barter...if you grow nice vegetables and have extra, you may find someone willing to trade, or if you do

some sort of art. I know this part can be limited during fm...I am a massage tx with fm, but I bartered for most of my holiday gifts this year. Some massage tx will offer a sliding fee scale for people with chronic pain/illness. Just don't write it off as a possibility. In some states insurance will cover it with a doctor's prescription. Best to you, Riverlazulilago wrote: Would love to have massages, itreally was wonderful, and helped a lot, but the effects were extremelyshort lived. I can't see spending money now needed for other things(food, meds, LOL) for something that didn't give more than brief painrelief. laz>> I have also heard massage therapy helps, but have not

had much > opportunity to try this.>

Relax. Yahoo! Mail virus scanning helps detect nasty viruses!

[Guest guest]

My insurance doesn't cover Chiropractic either, but my Chiropractor, is

super, he discounts me anyway.

Re: Fibro and Pain meds

Same here for me.

laz

>

>

> No schools near me that I know of, and my insurance won't cover it, I

> asked, and they' not so politely' told me it wasn't coverd even with a

> script. I just wish.

> Peggyb

>

>

1. While it is wonderful to share our experiences with everyone on the

list as

to what treatments do and don't work for us, pls always check with your

dr.

Some treatments are dangerous when given along with other meds as well

as to

certain health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls

don't be

afraid to ask for help. It is the first step to trying to make that

situation

better.

3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

4. Also, it is not uncommon for more than one member to be feeling bad

at the

same time when it comes to flares and b/c of that potentially take

something

another member says the wrong way. And that includes the things that

one member

may find funny (even if it's laughing at fibro itself) even though we

who deal

with illness whether one such as fibro or multiple illnesses try to

keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day

pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.