Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 For me climbing stairs or even walking up an incline is basically horrible. We went to a baseball game last weekend, and I had to climb a good set of stairs and then walk up a hill to the parking. I didn't know if I was going to make it. It was awful. Tosha ----- Original Message ----- From: Tami How does one with deal with climbing stairs? I am in so much pain for the past 3 days. I finally called my doctor and asked for help. My legs dont want to work and when they do they ache. I am beginning to really hate all this ~~~Tami~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 Tami, One step at a time. Debbie G. climbing stairs How does one with deal with climbing stairs? I am in so much pain for the past 3 days. I finally called my doctor and asked for help. My legs dont want to work and when they do they ache. I am beginning to really hate all this ~~~Tami~~~ ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 Dee, no moving isnt an option for me. My doctor told me that I have a hugh tolerence for pain. Geesh i would hate to think I am a wimp with this pain. I mean, this is bad enough. I have done the crawling up and downstairs. Had to this morning. I used to beat the cats upstairs, now they seem to crawl with me, so i dont feel bad. ~~~Tami~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 At 10:30 PM 6/9/00 -0400, you wrote: How does one with deal with climbing stairs? I am in so much pain for the past 3 days. I finally called my doctor and asked for help. My legs dont want to work and when they do they ache. I am beginning to really hate all this ~~~Tami~~~ Sweety, I hear you and sympathize....I swear (not literally) my steps get steeper every day!! Can't figure out how they do it....they look the same!!! I take it one step at a time and if I need to I stop, sit down and just rest....also been known to crawl up them if I'm in agony....and then there's always sleeping on the sofa!!!....I make my kids make as many of the upstairs runs as possible. I realize this isn't an option for those without kids at home, but it does help me some....pain meds do a bit, but the muscle workout going up seems to make things worse.....is moving an option for you???? I'm facing having to for my sons (to get near a school for autistic kids) and if I do it will be to a single floor something....you can bank on that....I'm so sorry you are having so much trouble.....Dee ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 Dee, i didnt used to have a problem with steps. I have lung problems too. And have a lung disease since 93, diagnosed with IPF last year, asthma, and some other problems. Never had allergies until last yr. And nothing has been real bad till this year. Seems my body is giving up. and somedays I feel the same way. My breathing is bad, ,my knees crack constantly. My cat Ebony comes up about 10 pm and tells me its time for bed. My cat chelsea comes in the morning and bites my ankle until I get moving and downstairs to feed them. Toby is the biggest baby I have ever seen. He goes in to a room and will scream and meow like he lost or stuck in there. When i go look he is just sitting there and acts like i have left him for ever. ~~~Tami~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 Tami and Dee, I love these stories of your cats, mine sleep with me and the doctor said "Is that good for you?" I said yes becuae my jusband like them and they are huggers. The only time it isn't good is when Sally wakes me up at 5;30 to play (3other cts in the house and and she needs me????!!!) but genrally, i find animals a great comfort and distraction to the FMS pain. Thanks for making me smile! AM Re: climbing stairs At 02:00 PM 6/10/00 -0400, you wrote: Dee, no moving isnt an option for me. My doctor told me that I have a hugh tolerence for pain. Geesh i would hate to think I am a wimp with this pain. I mean, this is bad enough. I have done the crawling up and downstairs. Had to this morning. I used to beat the cats upstairs, now they seem to crawl with me, so i dont feel bad. ~~~Tami~~~ Wish mine were so patient...Mackie comes down to get me for bed everynight....she sleeps on me when I can stand it and beside me when I can't....around 8:30 she comes down and if I'm not ready I get reminder meows every few minutes (what did I say about talking back??? Notice I didn't say I don't get nagged or reminded it's time to feed them....they have a cat to do each task) Mackie jumps up four steps ahead thru the railing and meows at me to hurry up from three steps ahead...sheesh...shame moving isn't an option for you....I hate the steps on the best of days.. and for some reason that the Drs can't determine, except maybe a fibro thing, my left knee has this odd habit of giving it up sometimes and I have to hold on tight all the time when I try to climb up like a real person....steps are the pits!!! Dee~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 At 02:00 PM 6/10/00 -0400, you wrote: Dee, no moving isnt an option for me. My doctor told me that I have a hugh tolerence for pain. Geesh i would hate to think I am a wimp with this pain. I mean, this is bad enough. I have done the crawling up and downstairs. Had to this morning. I used to beat the cats upstairs, now they seem to crawl with me, so i dont feel bad. ~~~Tami~~~ Wish mine were so patient...Mackie comes down to get me for bed everynight....she sleeps on me when I can stand it and beside me when I can't....around 8:30 she comes down and if I'm not ready I get reminder meows every few minutes (what did I say about talking back??? Notice I didn't say I don't get nagged or reminded it's time to feed them....they have a cat to do each task) Mackie jumps up four steps ahead thru the railing and meows at me to hurry up from three steps ahead...sheesh...shame moving isn't an option for you....I hate the steps on the best of days.. and for some reason that the Drs can't determine, except maybe a fibro thing, my left knee has this odd habit of giving it up sometimes and I have to hold on tight all the time when I try to climb up like a real person....steps are the pits!!! Dee ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 From: Tami No i dont have a disabled tag on my car. The social security office told me to get one and my doctor wouldnt sign the paper for one. He says I dont need it. ~~~Tami~~~ ********************************************* I hear you on this one - my doctor said that since I have good days, I just need to plan to go to the store and stuff on my good days so I don't need a tag either! Gee, I wonder if I could use that excuse for getting out of going to class? Do you think my teachers would buy it? LOL Pam DuBois Soft Hugs to You Today & Remember, Educated People Heal Themselves! Visit me at: www.my.treeway.com/Singingbird 272-244-130 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 At 11:03 PM 6/10/00 -0400, you wrote: Tami and Dee, I love these stories of your cats, mine sleep with me and the doctor said " Is that good for you? " I said yes becuae my jusband like them and they are huggers. The only time it isn't good is when Sally wakes me up at 5;30 to play (3other cts in the house and and she needs me????!!!) but genrally, i find animals a great comfort and distraction to the FMS pain. Thanks for making me smile! I love hearing that....I was afraid maybe most of the list would be getting annoyed by now....I love things that take my mind off of the fibro....I have loads of time to think about it when I'm arranging my body around whoever is sleeping with ME, cat wise...as I'm a single parent I have lots of room in my king sized bed for the cats...and often have four up there with me, Mackie, Gypsy, Flake and Blaize comes in to play on the tower and then crashes....I have one of the floor to ceiling carpet covered play centers.....they have a blast.....even at 2am....Blaize is a black calico....Dee AM Re: climbing stairs At 02:00 PM 6/10/00 -0400, you wrote: Dee, no moving isnt an option for me. My doctor told me that I have a hugh tolerence for pain. Geesh i would hate to think I am a wimp with this pain. I mean, this is bad enough. I have done the crawling up and downstairs. Had to this morning. I used to beat the cats upstairs, now they seem to crawl with me, so i dont feel bad. ~~~Tami~~~ Wish mine were so patient...Mackie comes down to get me for bed everynight....she sleeps on me when I can stand it and beside me when I can't....around 8:30 she comes down and if I'm not ready I get reminder meows every few minutes (what did I say about talking back??? Notice I didn't say I don't get nagged or reminded it's time to feed them....they have a cat to do each task) Mackie jumps up four steps ahead thru the railing and meows at me to hurry up from three steps ahead...sheesh...shame moving isn't an option for you....I hate the steps on the best of days.. and for some reason that the Drs can't determine, except maybe a fibro thing, my left knee has this odd habit of giving it up sometimes and I have to hold on tight all the time when I try to climb up like a real person....steps are the pits!!! Dee ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 Hi Tami ~ This probably won't be of much help, but here it goes. I have similar difficulties; although pain is not as much a factor as diminishing strength. I just tell myself that I can do it and will do it even if it's just one step at a time. As a matter of fact, the walking issue has been my most valuable lesson through all of this. I can no longer go " **lls " to the wall ~ I have to take each day one at a time, which only allows me more opportunity to take in the world around me and see what it is I've been missing all these years while running 24/7. Hope your doing better! From my heart to yours, Tammy http://pages.ivillage.com/misc/messeoils/index.html > >Reply-To: egroups >To: < egroups> >Subject: climbing stairs >Date: Fri, 9 Jun 2000 22:30:35 -0400 > >How does one with deal with climbing stairs? I am in so much pain for the >past 3 days. I finally called my doctor and asked for help. My legs dont >want to work and when they do they ache. I am beginning to really hate all >this >~~~Tami~~~ ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 At 09:54 PM 6/11/00 -0400, you wrote: No i dont have a disabled tag on my car. The social security office told me to get one and my doctor wouldnt sign the paper for one. He says I dont need it. ~~~Tami~~~ Lung problems with fibro and you DON'T need one....you need a Dr. who wasn't at the vending machine to get his license!! Dee ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 I hate to b so critical but could it be that were all dealing with a bunch of quacks? Hope Re: climbing stairs No i dont have a disabled tag on my car. The social security office told me to get one and my doctor wouldnt sign the paper for one. He says I dont need it. ~~~Tami~~~ ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 I hate to b so critical but could it be that were all dealing with a bunch of quacks? Hope Re: climbing stairs No i dont have a disabled tag on my car. The social security office told me to get one and my doctor wouldnt sign the paper for one. He says I dont need it. ~~~Tami~~~ ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Dee, I have gained alot of weight since I was diagnosed with the lung disease. I think he feels that I will misuse it. I didnt want one. They told me to get one. I just dont leave my house when i feel bad. Sometimes I have even cancelled my appts because i feel too icky to move. I told him i wouldnt misuse it. If i have to go to the doctors or something and I am sick, I would use it. Yeah sometimes i think i need a new doctor. But he was the one that told me what it was that was making me so sick. Others wanted to just cut me open and explore. ~~~Tami~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 At 12:50 PM 6/12/00 -0700, you wrote: I hate to b so critical but could it be that were all dealing with a bunch of quacks? Hope I think I'll start checking for feathers from now on!!! Dee Re: climbing stairs No i dont have a disabled tag on my car. The social security office told me to get one and my doctor wouldnt sign the paper for one. He says I dont need it. ~~~Tami~~~ ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Dee the doctor that diagnosed me with the lung disease is a pulmonologist. the guy that is trying to figure if its fibro is a rheumotologist. I called the rheumo's office on Friday and they prescribed something else for the pain. The Vioxx didnt seem to work anymore. I was given daypro. Anyone taking this? He (pulmo) may think that i am too young for a d tag. who knows. ~~~Tami~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 At 10:26 PM 6/12/00 -0400, you wrote: Dee, I have gained alot of weight since I was diagnosed with the lung disease. I think he feels that I will misuse it. I didnt want one. They told me to get one. I just dont leave my house when i feel bad. Sometimes I have even cancelled my appts because i feel too icky to move. I told him i wouldnt misuse it. If i have to go to the doctors or something and I am sick, I would use it. Yeah sometimes i think i need a new doctor. But he was the one that told me what it was that was making me so sick. Others wanted to just cut me open and explore. ~~~Tami~~~ I'm glad you got answers rather than get cut open for the sole purpose of a " look around " ....with fibro I don't think they'd see much! It would just have caused you a lot of suffering for nothing....as for misusing the handicap tag....that is so stupid it astonishes me at a point in time when we've been discussing outrageous stupidity in the medical profession....I still think you need a good rheumotologist to help you with this....however, I don't have one....but in my own defense, say that word around where I live in rural Va and first they get glazed over eyes and a blank expression, then if you say it's a type of Dr. they suggest " try U Va " ....1 1/2 hrs away....but if you have access it might be a good move as they are trained in fibro...and I hope you don't post me that this IS a rheumotologist or my faith (what little is left) in the medical profession may go Flooey!!!! (my grandfather taught me all kinds of interesting substitutes for nasty words, what do you think of that one??)....Dee ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2000 Report Share Posted June 13, 2000 Feathers it is Debbie G. Re: climbing stairsNo i dont have a disabled tag on my car. The social security office told me to get one and my doctor wouldnt sign the paper for one. He says I dont need it.~~~Tami~~~ ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. ~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 At 10:20 AM 6/13/00 -0400, you wrote: Dee the doctor that diagnosed me with the lung disease is a pulmonologist. the guy that is trying to figure if its fibro is a rheumotologist. I called the rheumo's office on Friday and they prescribed something else for the pain. The Vioxx didnt seem to work anymore. I was given daypro. Anyone taking this? He (pulmo) may think that i am too young for a d tag. who knows. ~~~Tami A girl I know got Guilliame Barre Syndrome (sp) at age 17....she had a tag...so it isn't the age...keep after one or the other Dr. I think it would make your life a lot easier..Dee ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 Have you tried going down the stairs on your butt? I do this on the days that my hips feel like they are going to split. Remeber what fun it was when you were little? Could be a great excuse to have fun again. Teddy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2000 Report Share Posted June 15, 2000 Hope, Lol quacks is a nice way of putting it. I think they are all retarded and should go back to college and get some updates. I have better luck here in the ER then I do with my regular doc it's just plain insane. Mine gave me pain pills and sent me on my way. Only dealt with that part of it. Brags that he has other patients with Fibro and they only complain of pain. Well I don't think they really have Fibro then there is so much more to it. I hope someday to stop hating the world but I'm nowhere near that yet. Threw the remotes across the room today cause the stupid golf game was on instead of my soap. Teddy Quote Link to comment Share on other sites More sharing options...
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