Re: Medication +pain meds seem to have stopped working.

[Guest guest]

Yes, you are tolerant to the tramadol and need another pain medication.

--

Dodge

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---- Dalanne <tombstone1968@...> wrote:

=============

Hi, all. My IV infusion this month makes 6 months that I have been on

Orencia. It seems like every month it works less and less. My Rheumy

asked me to try to stop taking my Tramadol all the time. He thought it

might be interfering somehow. Oh, how I want to smack him upside the

head! One day without the tramadol and I felt like a fully loaded

cement truck had run over me and backed up for another try! I went back

on the Tramadol, waited a week, and tried again by not taking it one

time out of the three (it was prescribed as 2 tablets 3 times per day).

That put me on the couch for the day. I continued like that for one

week and did not improve which told me that the pain med probably

wasn't interfering.

Now I have a new problem....I started back with the tramadol 3 times a

day as prescribed because my hands including wrists and my feet/toes

hurt so bad that I can't successfully do my housework. The pain med

isn't helping anymore. If Tramadol has a brain it's thought, " Hmmm, she

didn't think I was helping so now I won't help at all! " . I've had to

start taking my Aleve and Motrin again and they aren't helping much

either.

Has anyone had their medications drop out from under them like this? I

try to remind myself that I can't possibly be in as much pain as some

of you folks but I'm so exhausted and down that even that little mantra

isn't helping now. I'm just havin' me a little pity party tonight.

[Guest guest]

Not with any RA meds but I have unfortunately experienced this with other

medications.

Dalanne... I can only imagine what you are going through. I remember a few

months ago how you were able to do so much and work with heavy equipment (I am

having brain fog right now... I can't remember what) and all but pain free and

now this..... (((GENTLE HUG)))

Call your rheumy and keep us updated.

©x© Kami ©x©

[ ] Medication +pain meds seem to have stopped working.

Hi, all. My IV infusion this month makes 6 months that I have been on

Orencia. It seems like every month it works less and less. My Rheumy

asked me to try to stop taking my Tramadol all the time. He thought it

might be interfering somehow. Oh, how I want to smack him upside the

head! One day without the tramadol and I felt like a fully loaded

cement truck had run over me and backed up for another try! I went back

on the Tramadol, waited a week, and tried again by not taking it one

time out of the three (it was prescribed as 2 tablets 3 times per day).

That put me on the couch for the day. I continued like that for one

week and did not improve which told me that the pain med probably

wasn't interfering.

Now I have a new problem....I started back with the tramadol 3 times a

day as prescribed because my hands including wrists and my feet/toes

hurt so bad that I can't successfully do my housework. The pain med

isn't helping anymore. If Tramadol has a brain it's thought, " Hmmm, she

didn't think I was helping so now I won't help at all! " . I've had to

start taking my Aleve and Motrin again and they aren't helping much

either.

Has anyone had their medications drop out from under them like this? I

try to remind myself that I can't possibly be in as much pain as some

of you folks but I'm so exhausted and down that even that little mantra

isn't helping now. I'm just havin' me a little pity party tonight.

.

[Guest guest]

My meds do that it seems every six mths. That is how I ended up on Morphine and

Perocet! I have started on Remicaide. I am an Ambassador for the Arthritis

Foundation. As many of you know we are asking our Federal Lawmakers for 23

million for the CDC and 1.9% increase for the NIH. Please contact your

Congressman and ask them to support Arthritis Prevention and Control and Cure

Act. Put this into perspective we are asking .50 per person of the 46 million

people that have arthritis. 300,000 of which are our children! If you have any

questions please fell free to contact me!

Fogle PA

Sent via BlackBerry by AT & T

[Guest guest]

,

Where are you located in PA?

©x© Kami ©x©

[ ] Re: Medication +pain meds seem to have stopped working.

My meds do that it seems every six mths. That is how I ended up on Morphine

and Perocet! I have started on Remicaide. I am an Ambassador for the Arthritis

Foundation. As many of you know we are asking our Federal Lawmakers for 23

million for the CDC and 1.9% increase for the NIH. Please contact your

Congressman and ask them to support Arthritis Prevention and Control and Cure

Act. Put this into perspective we are asking .50 per person of the 46 million

people that have arthritis. 300,000 of which are our children! If you have any

questions please fell free to contact me!

Fogle PA

Sent via BlackBerry by AT & T

.

[Guest guest]

I'm going through this right now. Ever since trying to back of on the MTX in

September, I've been in one long flare. My doctor thinks that I might have

developed antibodies to the Humira. I may have to switch, which I'm really

disappointed about since I responded well to the Humira. So, I'm back on

prednisone (after having successfully weaned off of it) and instead of dropping

down to 4 MTX I'm now up to 8 MTX. I'm bummed, but trying not to focus on it.

My hands are really acting up this time around, so I can sympathize. Why don't

houses just clean themselves? LOL!

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[Guest guest]

Hi Lori:

Sorry to read you are in such an awful flare. I do hope your Rheumy can

find the right meds. and combination for you. I hate that it takes such

time to find the right ones. In the meantime, too much pain and

suffering to deal with.

Right now my RA is quiet, and I am thankful for that. I am down for the

count when I have a bad flare. My feet and ankles are the worst for me.

Sometimes the hands act up, but it is mostly my feet and ankles.

I hope you try to rest as best you can during your flare. I hate to give

into the RA, but I must. Such a beastly disease.

Wishing you pain free days ahead, and take care of yourself.

Hugs,

Barbara

--- In , " Stitching Queen " <queenstitcher@...>

wrote:

>

> I'm going through this right now. Ever since trying to back of on the

MTX in September, I've been in one long flare. My doctor thinks that I

might have developed antibodies to the Humira. I may have to switch,

which I'm really disappointed about since I responded well to the

Humira. So, I'm back on prednisone (after having successfully weaned off

of it) and instead of dropping down to 4 MTX I'm now up to 8 MTX. I'm

bummed, but trying not to focus on it.

>

> My hands are really acting up this time around, so I can sympathize.

Why don't houses just clean themselves? LOL!

> Lori

> http://home.comcast.net/~queenstitcher/

> http://stitchingqueen.multiply.com

>

>

>

>

>

[Guest guest]

Thanks so much Barbara! I don't thing the weather in NE PA is helping very much

either. Normally, my feet were my trouble spots, but now I'm getting it equally

in my hands. My jaw and chest are also affected. I don't think there's a joint

left that RA hasn't touched, LOL! The bad thing is that I'm having problems

taking the prednisone that usually helps. My hands keep shaking and my heart is

racing. I'm down to 10 now and am going to call tomorrow to find out how he

wants me to continue tapering off. I know that I'll be in more pain without the

prednisone, but that's the way the cookie crumbles. I actually thought I was

approaching remission before tying to lowering the MTX in September. Boy, was I

in for a surprise!

Lori

http://home.comcast.net/~queenstitcher/

http://stitchingqueen.multiply.com

[ ] Re: Medication +pain meds seem to have stopped working.

Hi Lori:

Sorry to read you are in such an awful flare. I do hope your Rheumy can

find the right meds. and combination for you. I hate that it takes such

time to find the right ones. In the meantime, too much pain and

suffering to deal with.

Right now my RA is quiet, and I am thankful for that. I am down for the

count when I have a bad flare. My feet and ankles are the worst for me.

Sometimes the hands act up, but it is mostly my feet and ankles.

I hope you try to rest as best you can during your flare. I hate to give

into the RA, but I must. Such a beastly disease.

Wishing you pain free days ahead, and take care of yourself.

Hugs,

Barbara

[Guest guest]

Hi Lori:

I am sure the weather you are having is doing a job on your RA. That is

why I moved from Cape Cod to S.W. Florida. It was the best thing I did,

hard as it was to leave all my family and friends.

I was almost in a whellchair before I moved here. I have a fab. Rheumy,

and she is just so terrific for me.

I have been on the Pred. for almost daily uses for about 6 years. Have

tried many time to get off it, but it doesn't work for me. I would love

to be off it, but it works so good for me. I hate the extra lbs, but

makes my days easier for me.

I sure hope your Rheumy can help you feel better soon. It is no fun

being in bad pain every day. I pray you will start to be pain free

soon.

Hugs,

Barbara

--- In , " Stitching Queen " <queenstitcher@...>

wrote:

>

> Thanks so much Barbara! I don't thing the weather in NE PA is helping

very much either. Normally, my feet were my trouble spots, but now I'm

getting it equally in my hands. My jaw and chest are also affected. I

don't think there's a joint left that RA hasn't touched, LOL! The bad

thing is that I'm having problems taking the prednisone that usually

helps. My hands keep shaking and my heart is racing. I'm down to 10 now

and am going to call tomorrow to find out how he wants me to continue

tapering off. I know that I'll be in more pain without the prednisone,

but that's the way the cookie crumbles. I actually thought I was

approaching remission before tying to lowering the MTX in September.

Boy, was I in for a surprise!

> Lori

> http://home.comcast.net/~queenstitcher/

> http://stitchingqueen.multiply.com

>

>

>

> [ ] Re: Medication +pain meds seem to have stopped

working.

>

>

>

> Hi Lori:

>

> Sorry to read you are in such an awful flare. I do hope your Rheumy

can

> find the right meds. and combination for you. I hate that it takes

such

> time to find the right ones. In the meantime, too much pain and

> suffering to deal with.

>

> Right now my RA is quiet, and I am thankful for that. I am down for

the

> count when I have a bad flare. My feet and ankles are the worst for

me.

> Sometimes the hands act up, but it is mostly my feet and ankles.

>

> I hope you try to rest as best you can during your flare. I hate to

give

> into the RA, but I must. Such a beastly disease.

>

> Wishing you pain free days ahead, and take care of yourself.

>

> Hugs,

>

> Barbara

>

>

>

[Guest guest]

I'm wondering if changing locations really does help, here in Seattle it's damp

all the time, and usally cold during the winter. I have considered Arizona

because I have lived there before and people have told me the weather is

conducive to improving an RA condition. What do you think?

Stan,

Seattle, Hazy.

[ ] Re: Medication +pain meds seem to have stopped

working.

>

>

>

> Hi Lori:

>

> Sorry to read you are in such an awful flare. I do hope your Rheumy

can

> find the right meds. and combination for you. I hate that it takes

such

> time to find the right ones. In the meantime, too much pain and

> suffering to deal with.

>

> Right now my RA is quiet, and I am thankful for that. I am down for

the

> count when I have a bad flare. My feet and ankles are the worst for

me.

> Sometimes the hands act up, but it is mostly my feet and ankles.

>

> I hope you try to rest as best you can during your flare. I hate to

give

> into the RA, but I must. Such a beastly disease.

>

> Wishing you pain free days ahead, and take care of yourself.

>

> Hugs,

>

> Barbara

>

>

>

[Guest guest]

Weather is a huge variable for me.

My pain is at its worse when cold and damp.

I live in Tampa Bay area and delight in winters....

Raniolo

From: stanpfister@... <stanpfister@...>

Subject: Re: [ ] Re: Medication +pain meds seem to have stopped

working.

Date: Friday, February 13, 2009, 12:51 PM

I'm wondering if changing locations really does help, here in Seattle it's damp

all the time, and usally cold during the winter. I have considered Arizona

because I have lived there before and people have told me the weather is

conducive to improving an RA condition. What do you think?

Stan,

Seattle, Hazy.

[ ] Re: Medication +pain meds seem to have stopped

working.

>

>

>

> Hi Lori:

>

> Sorry to read you are in such an awful flare. I do hope your Rheumy

can

> find the right meds. and combination for you. I hate that it takes

such

> time to find the right ones. In the meantime, too much pain and

> suffering to deal with.

>

> Right now my RA is quiet, and I am thankful for that. I am down for

the

> count when I have a bad flare. My feet and ankles are the worst for

me.

> Sometimes the hands act up, but it is mostly my feet and ankles.

>

> I hope you try to rest as best you can during your flare. I hate to

give

> into the RA, but I must. Such a beastly disease.

>

> Wishing you pain free days ahead, and take care of yourself.

>

> Hugs,

>

> Barbara

>

>

>

[Guest guest]

Stan - I have found that when the humidity is lower, my pain is less.

But, I can't even begin to imagine what all we'd have to do to move,

but I suppose if it meant we would be moving to an area where my pain

levels would be decreased, I would do whatever I could do. Just my two

cents worth....Doreen

I'm wondering if changing locations really does help, here in Seattle

it's damp all the time, and usally cold during the winter. I have

considered Arizona because I have lived there before and people have

told me the weather is conducive to improving an RA condition. What do

you think?

Stan,

[Guest guest]

Hi Stan:

I didn't know if it was true or not that living in different areas would

affect us one way or the other.

We did a 3 week vacation to South West Florida, and when we arrived I

could hardly walk, unbearable pain, etc. By the second day I was much

improved, and by the end of the first week I felt great. I felt really

good the entire 3 weeks here.

When I returned to Cape Cod, it was sleeting mixed with snow, very cold,

etc. Almost imediately all my pain and suffering returned. It was a

very hard New England winter that year, and boy, I could hardly walk,

and was in constant pain.

We returned in June to Florida, bought a house and moved here. I am

truly so much better living here. That big move was the best thing I

did for myself. My RA is so much better, have a great Rheumy, and my

flares are longer apart, and less time with the flare.

Maybe you could try a vacation in Arizona and see how you feel during

that time there. I have heard from so many people that the air and

climate there is so great for you. Worth a try.

I myself will try a vacation there maybe next year. I would like to see

the diff. between Florida and Arizona.

I know you are feeling crappy, and I hope you start to feel better soon.

Pain and suffering is so hard on all of us with RA, and other painful

diseases. God Bless you, and wishing you pain free days ahead.

Hugs,

Barbara

> >

> > Thanks so much Barbara! I don't thing the weather in NE PA is

helping

> very much either. Normally, my feet were my trouble spots, but now I'm

> getting it equally in my hands. My jaw and chest are also affected. I

> don't think there's a joint left that RA hasn't touched, LOL! The bad

> thing is that I'm having problems taking the prednisone that usually

> helps. My hands keep shaking and my heart is racing. I'm down to 10

now

> and am going to call tomorrow to find out how he wants me to continue

> tapering off. I know that I'll be in more pain without the prednisone,

> but that's the way the cookie crumbles. I actually thought I was

> approaching remission before tying to lowering the MTX in September.

> Boy, was I in for a surprise!

> > Lori

> > http://home.comcast.net/~queenstitcher/

> > http://stitchingqueen.multiply.com

> >

> >

> >

> > [ ] Re: Medication +pain meds seem to have stopped

> working.

> >

> >

> >

> > Hi Lori:

> >

> > Sorry to read you are in such an awful flare. I do hope your Rheumy

> can

> > find the right meds. and combination for you. I hate that it takes

> such

> > time to find the right ones. In the meantime, too much pain and

> > suffering to deal with.

> >

> > Right now my RA is quiet, and I am thankful for that. I am down for

> the

> > count when I have a bad flare. My feet and ankles are the worst for

> me.

> > Sometimes the hands act up, but it is mostly my feet and ankles.

> >

> > I hope you try to rest as best you can during your flare. I hate to

> give

> > into the RA, but I must. Such a beastly disease.

> >

> > Wishing you pain free days ahead, and take care of yourself.

> >

> > Hugs,

> >

> > Barbara

> >

> >

> >