Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 That class action law suit will only do one thing. It will line the lawyers pockets with money. Sorry but this one was thought up by lawyers looking for a nice fat retirement fund. Hardly any money ever reaches the people who were actually harmed through class action suits. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 i had to fight my insurance company to get my lrycia and we switch so now i have to go threw all the bullcrap agian. its always non stop... i am just so sleepy- why can they just help us instead of hide us away? wen -- Re: Neurontin Problems and Class Action Lawsuit I am just worried that since I went back on Lyrica it will either be taken away or I will develope problems. Why the F hasn't something been done for Fibro patients?! I think that people develope fibro for a variety of reasons (mine was undiagnosed Chiari) but it is real and it's just plain stupid that no medical research and help is avalible!!!!!-HannahOn Mon, 23 Jan 2006 19:19 , 'deb' sent: Thats rediculous if a medication helps another condition it should be used as needed. There is nothing that has been approved for treatment for fibromyalgia so if we waited for approval we would be in a really bad place. Neurotin is also used for diabetic neuropathy. Doctors do prescribe it for neuropathy type symptoms in fibromyalgia. By the way Lyrica is just a second generation Neurotin. So please dont let hysteria impact the decisions you make about medications.deb "The Mystic" Artist: Unknown Click here to receive my stats & tags! or Click here to receive what I use to make my stats & tags! Font: Lucida Handwriting For Personal Non-Profit Use Only! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Very interesting. Did you know that druggies snort Lyrica and it gives them a GHB like high? The chemical structure of Lyrica and GHB are similar. The first few days I was on it I definitely felt high. My husband found all this out when I was hospitalized for the Lyrica/valerian problem. Is it just mental issues or other health concerns? I am concerned about what might develop over the long term. BTW what dose are you on? I take 200mg 3x a day. It is the highest allowed dose. But I always need a very high dose of any medicine for it to work. Have been that way since a kid... *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver I just wanted to let you all know that i am not saying anything either way about neurontin but i wanted to pass this information along. There is issues with people attempting suicide while on this med and various other medical conditions. I was only passign along information that may help someone. I didnt mean to cause an uproar with either support or nonsupport of htis med. I do know that for a fact and there are several people that can verify that after my husband and I both started the med we had several mental issues that was never there before. My family has contacted our dr and he told us to stop the med, my husbands rhuemetologist has been tryign to figure out why some of his problems have gotten worsse instead of better and now we know why. Like i said I am not sayign anything either way but wanted to pass this information alogn to you all. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Well I have Chiari and memory problems are a huge issue. I haven’t noticed my memory getting any worse.. but then again it would be hard for me to remember if I was getting worse or not ;-) My husband took it for a few days and he was out of his mind high --- he didn’t sleep for 48 hours the first time he took it. Is there a link where we can see the problems people are complaining about? *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver Subject: Re: Neurontin Problems and Class Action Lawsuit many people have become sucidal and very violent and it has caused other medial problems such has high blood preasure and arthritis and muscle problems... and that is just what i can remember off the top of my head.oh and it causes memory problems too i think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 It is just so weird that it makes you sleepy! I have to make sure to not take any in the late afternoon or I know I won't be sleeping! Messed up yesterday and took one at 3pm. I was up until 4am last night!! *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver Subject: Re: Neurontin Problems and Class Action Lawsuit i had to fight my insurance company to get my lrycia and we switch so now i have to go threw all the bullcrap agian. its always non stop... i am just so sleepy- why can they just help us instead of hide us away? wen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 There is one that seems to have the most info that i have found it is through a lawyer site but i have been able to cross reference the info and have confirmed it through other reliable sources such as dr and pharmacist. The web site ishttp://www.usjuris.com/proofOfLoss/personalInformation.aspx?lngCaseID=2457... Like i said i have cross referenced all this info to make sure it was accurate as I was torn as to even post the original e mail but felt that I may help benefit someone else. Kristy Hannah Pasisz wrote: Well I have Chiari and memory problems are a huge issue. I haven’t noticed my memory getting any worse.. but then again it would be hard for me to remember if I was getting worse or not ;-) My husband took it for a few days and he was out of his mind high --- he didn’t sleep for 48 hours the first time he took it. Is there a link where we can see the problems people are complaining about? *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver Subject: Re: Neurontin Problems and Class Action Lawsuit many people have become sucidal and very violent and it has caused other medial problems such has high blood preasure and arthritis and muscle problems... and that is just what i can remember off the top of my head.oh and it causes memory problems too i think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 My dosage is 600mg 1 time a day and my husbands dose is 600mg 2 times a day which was ok'd by the drug maker as I have seen the paperwork myself because i asked the dr about the dosing strength when they 1st started him on it. I am also concerned about long term issues with this med, while on this med my husband had severe memory issues and anger issues we thought it may have been another med but after discontinuing it he was still on the nuerontin he still had issues, well after stoppign the neurontin he is sooo much better.I also have memory issues that are related to the fibro but have gotten worse with the meds I am the type that if it says "may cause drowsiness" it knocks me on my butt. my hubby is the opposite it takes a high dose to work for him. I was on Lyrica 75 mg and never had a "high" feeling but was not on it for more than about 3 weeks due to it causign some of my other meds not to work properly,( such as my bp meds) so anyway hope this can be of some help and liek i have said repeatedly I am not stamding up for this med or putting it down I just wanted to share the info I have and also I am not in on the lawsuit. KristyHannah Pasisz wrote: Very interesting. Did you know that druggies snort Lyrica and it gives them a GHB like high? The chemical structure of Lyrica and GHB are similar. The first few days I was on it I definitely felt high. My husband found all this out when I was hospitalized for the Lyrica/valerian problem. Is it just mental issues or other health concerns? I am concerned about what might develop over the long term. BTW what dose are you on? I take 200mg 3x a day. It is the highest allowed dose. But I always need a very high dose of any medicine for it to work. Have been that way since a kid... *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver I just wanted to let you all know that i am not saying anything either way about neurontin but i wanted to pass this information along. There is issues with people attempting suicide while on this med and various other medical conditions. I was only passign along information that may help someone. I didnt mean to cause an uproar with either support or nonsupport of htis med. I do know that for a fact and there are several people that can verify that after my husband and I both started the med we had several mental issues that was never there before. My family has contacted our dr and he told us to stop the med, my husbands rhuemetologist has been tryign to figure out why some of his problems have gotten worsse instead of better and now we know why. Like i said I am not sayign anything either way but wanted to pass this information alogn to you all. Kristy 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 It makes me very sleepy that is why i take it at bedtime and the dr has by hubby taking it in the morning and at bedtime to help him sleep, his med sheet that the dr gave us says on both under purpose states nerve pain and sleep aid. I guess it all depends on how it effect your individual body as each person is different. KristyHannah Pasisz wrote: It is just so weird that it makes you sleepy! I have to make sure to nottake any in the late afternoon or I know I won't be sleeping! Messed upyesterday and took one at 3pm. I was up until 4am last night!!*Hannah*www.starbrightdesigns.netJewelry & PhotosSemi-Precious stones, Crystal & Sterling SilverSubject: Re: Neurontin Problems and Class Action Lawsuiti had to fight my insurance company to get my lrycia and we switch so now ihave to go threw all the bullcrap agian. its always non stop... i am just sosleepy- why can they just help us instead of hide us away?wen1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 So weird how drugs can work. All my pain is muscles... no nerve pain. But my husbands is nerve pain. But it worked basically the same on him. No sleep... I was so proud of getting my drug numbers down to 2 from 6... (Lyrica and Armour Thyroid is all I take now). I am considering asking my doc for Ambien at my next appt. *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver It makes me very sleepy that is why i take it at bedtime and the dr has by hubby taking it in the morning and at bedtime to help him sleep, his med sheet that the dr gave us says on both under purpose states nerve pain and sleep aid. I guess it all depends on how it effect your individual body as each person is different. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 didnt know that it would with valerian and i looked it up. i had to go off it anyway b/c i now am on a beat blocker.. never got i high.. there was times i wish i did.. wen -- RE: Neurontin Problems and Class Action Lawsuit Very interesting. Did you know that druggies snort Lyrica and it gives them a GHB like high? The chemical structure of Lyrica and GHB are similar. The first few days I was on it I definitely felt high. My husband found all this out when I was hospitalized for the Lyrica/valerian problem. Is it just mental issues or other health concerns? I am concerned about what might develop over the long term. BTW what dose are you on? I take 200mg 3x a day. It is the highest allowed dose. But I always need a very high dose of any medicine for it to work. Have been that way since a kid... *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver I just wanted to let you all know that i am not saying anything either way about neurontin but i wanted to pass this information along. There is issues with people attempting suicide while on this med and various other medical conditions. I was only passign along information that may help someone. I didnt mean to cause an uproar with either support or nonsupport of htis med. I do know that for a fact and there are several people that can verify that after my husband and I both started the med we had several mental issues that was never there before. My family has contacted our dr and he told us to stop the med, my husbands rhuemetologist has been tryign to figure out why some of his problems have gotten worsse instead of better and now we know why. Like i said I am not sayign anything either way but wanted to pass this information alogn to you all. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 What don’t you understand? I nearly died from a Lyrica/Valerian interaction. Lyrica is VERY new... they find stuff about drugs and the way they interact even years after they hit the market. Vioxx freakin’ killed people for cripes sakes!!! Can’t imagine there would be research and data to back up every single problem each drug has. ESP. brand new drugs. Not saying everyone would have a problem with the combination, I however did and other people may be at risk for the same thing I went through. *Hannah* www.starbrightdesigns.net Jewelry & Photos didnt know that it would with valerian and i looked it up. i had to go off it anyway b/c i now am on a beat blocker.. never got i high.. there was times i wish i did.. wen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I agree with you. I do kow that Lyrica caused my blood pressure meds to stop working more or less I didnt suffer a stroke or anythign but it was high enough to be borderline stroke level adn I am only 25 scary. You are right about the statement in re to drugs interacting years later. I wish i had known about Lyrica and b/p meds I was so sick with the severe headaches from my high blood pressure hopefully this will not happen to someone else. I wonder how much of soem of this has to do with dr's not getting all the info befoe prescribing or should i say not looking good enough at meds we are or maybey on.Hannah Pasisz wrote: What don’t you understand? I nearly died from a Lyrica/Valerian interaction. Lyrica is VERY new... they find stuff about drugs and the way they interact even years after they hit the market. Vioxx freakin’ killed people for cripes sakes!!! Can’t imagine there would be research and data to back up every single problem each drug has. ESP. brand new drugs. Not saying everyone would have a problem with the combination, I however did and other people may be at risk for the same thing I went through. *Hannah* www.starbrightdesigns.net Jewelry & Photos didnt know that it would with valerian and i looked it up. i had to go off it anyway b/c i now am on a beat blocker.. never got i high.. there was times i wish i did.. wen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Thank you for the info. I wonder if the dosing is that different between Neurontin and Lyrica or if your doc started you on a base dose of Lyrica. From what I am getting from other people on the web is that the people who get energy on Lyrica experienced the high feeling when first taking it, not the people who get tired. And if your going to get the high feeling it is when you first start taking it – it wares off after a few days. It’s very hard to track down what drug gives you what side effects. That’s why I’m so happy I’m only on two right now and my thyroid med has a very low occurrence of side effects. Usually on Armour if you’re getting side effects it means your taking too much! It’s weird, for being so overweight I have very few health issues. Well now that I had my brain surgery that is... I was a walking drug store before surgery!! And I know – your sharing info, it is much appreciated too. Keep in mind thought that when sharing info it helps to either provide details or if you prefer to keep them to yourself, a link where we can get details from another source! *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver My dosage is 600mg 1 time a day and my husbands dose is 600mg 2 times a day which was ok'd by the drug maker as I have seen the paperwork myself because i asked the dr about the dosing strength when they 1st started him on it. I am also concerned about long term issues with this med, while on this med my husband had severe memory issues and anger issues we thought it may have been another med but after discontinuing it he was still on the nuerontin he still had issues, well after stoppign the neurontin he is sooo much better.I also have memory issues that are related to the fibro but have gotten worse with the meds I am the type that if it says " may cause drowsiness " it knocks me on my butt. my hubby is the opposite it takes a high dose to work for him. I was on Lyrica 75 mg and never had a " high " feeling but was not on it for more than about 3 weeks due to it causign some of my other meds not to work properly,( such as my bp meds) so anyway hope this can be of some help and liek i have said repeatedly I am not stamding up for this med or putting it down I just wanted to share the info I have and also I am not in on the lawsuit. Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I think a major problem in the whole process is that drug testing is done on nearly healthy people for the most part. When I did drug testing I had to make it look like I only had the health issue they wanted and nothing else or I was disqualified from the trial. I did drug testing almost solid for about 5 years after high school. I know at more base level testing (I only did phase 3 or 4 which is either one step from being on the market or when they test a drug that's already out to help with a new problem) they do admit people with other problems but I don't know to what extent. It is clearly not enough though. *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver I agree with you. I do kow that Lyrica caused my blood pressure meds to stop working more or less I didnt suffer a stroke or anythign but it was high enough to be borderline stroke level adn I am only 25 scary. You are right about the statement in re to drugs interacting years later. I wish i had known about Lyrica and b/p meds I was so sick with the severe headaches from my high blood pressure hopefully this will not happen to someone else. I wonder how much of soem of this has to do with dr's not getting all the info befoe prescribing or should i say not looking good enough at meds we are or maybey on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I agree. what also gets me is that they will use animals well ya know i have never met a dog, cat or rat with fibro, (while in school I ran a humane society, so i met alot of animals) I personally have never been through drug testing/clinical trials because i have had health issues since i was about a year old (juvinal RA, asthma, ect ect) but i know several people who would have been perfect but they were not healthy enough. Which in my opionin is bull.Hannah Pasisz wrote: I think a major problem in the whole process is that drug testing is done onnearly healthy people for the most part. When I did drug testing I had tomake it look like I only had the health issue they wanted and nothing elseor I was disqualified from the trial. I did drug testing almost solid forabout 5 years after high school. I know at more base level testing (I onlydid phase 3 or 4 which is either one step from being on the market or whenthey test a drug that's already out to help with a new problem) they doadmit people with other problems but I don't know to what extent. It isclearly not enough though.*Hannah*www.starbrightdesigns.netJewelry & PhotosSemi-Precious stones, Crystal & Sterling SilverI agree with you. I do kow that Lyrica caused my blood pressure meds to stopworking more or less I didnt suffer a stroke or anythign but it was highenough to be borderline stroke level adn I am only 25 scary. You are rightabout the statement in re to drugs interacting years later. I wish i hadknown about Lyrica and b/p meds I was so sick with the severe headaches frommy high blood pressure hopefully this will not happen to someone else. Iwonder how much of soem of this has to do with dr's not getting all the infobefoe prescribing or should i say not looking good enough at meds we are ormaybey on.1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 I was on the basic low dose of Lyrica (75mg?) then i was on 150mg for a week? if i remember correctly to start with until we could get it approved with my insurance company then the neurontin i was started out at 300 mg same as my hubby. I wish i was only on 2 i take 9 counting my neurontin adn my hubyy takes 11 counting his neurontin. I hate taking so many but it seems like there is no end. I am not really over wiegh taccordign to my dr i am in a good range for my height but i have so many health issues that i dont even know where to start. Hannah Pasisz wrote: Thank you for the info. I wonder if the dosing is that different between Neurontin and Lyrica or if your doc started you on a base dose of Lyrica. From what I am getting from other people on the web is that the people who get energy on Lyrica experienced the high feeling when first taking it, not the people who get tired. And if your going to get the high feeling it is when you first start taking it – it wares off after a few days. It’s very hard to track down what drug gives you what side effects. That’s why I’m so happy I’m only on two right now and my thyroid med has a very low occurrence of side effects. Usually on Armour if you’re getting side effects it means your taking too much! It’s weird, for being so overweight I have very few health issues. Well now that I had my brain surgery that is... I was a walking drug store before surgery!! And I know – your sharing info, it is much appreciated too. Keep in mind thought that when sharing info it helps to either provide details or if you prefer to keep them to yourself, a link where we can get details from another source! *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver My dosage is 600mg 1 time a day and my husbands dose is 600mg 2 times a day which was ok'd by the drug maker as I have seen the paperwork myself because i asked the dr about the dosing strength when they 1st started him on it. I am also concerned about long term issues with this med, while on this med my husband had severe memory issues and anger issues we thought it may have been another med but after discontinuing it he was still on the nuerontin he still had issues, well after stoppign the neurontin he is sooo much better.I also have memory issues that are related to the fibro but have gotten worse with the meds I am the type that if it says "may cause drowsiness" it knocks me on my butt. my hubby is the opposite it takes a high dose to work for him. I was on Lyrica 75 mg and never had a "high" feeling but was not on it for more than about 3 weeks due to it causign some of my other meds not to work properly,( such as my bp meds) so anyway hope this can be of some help and liek i have said repeatedly I am not stamding up for this med or putting it down I just wanted to share the info I have and also I am not in on the lawsuit. Kristy 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2006 Report Share Posted January 23, 2006 Wow, very low dose then. But if you're a normal weight that may work. Even when I was a skinny poverty kid I needed high doses of stuff so being overweight doesn't help this issue. It is very hard to find the root cause of your health issues. I worked my butt off for about 10 solid years to figure my health issues out and it took some major doctor hopping and faith that the cure was out there. And for all the research I did I never even came across the word Chiari till my doc diagnosed me. Thank goodness they find Chiari faster in kids now so there will be less adults who have to grow up sick. If mine had been found as a kid I would not have fibro or the memory problems that still plague me. *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver I was on the basic low dose of Lyrica (75mg?) then i was on 150mg for a week? if i remember correctly to start with until we could get it approved with my insurance company then the neurontin i was started out at 300 mg same as my hubby. I wish i was only on 2 i take 9 counting my neurontin adn my hubyy takes 11 counting his neurontin. I hate taking so many but it seems like there is no end. I am not really over wiegh taccordign to my dr i am in a good range for my height but i have so many health issues that i dont even know where to start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 no sorry i mean fighting with the company is making my sleep lol -- Re: Neurontin Problems and Class Action Lawsuit i had to fight my insurance company to get my lrycia and we switch so now i have to go threw all the bullcrap agian. its always non stop... i am just so sleepy- why can they just help us instead of hide us away? wen 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 How did you find out you had Chiari , what kind of test do they do to diagnose it? deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 How did you find out you had Chiari , what kind of test do they do to diagnose it? deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Let us know how Ambien works for you. I tried it but had adverse reactions so stopped it before it caused major brain chemistry problems. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Let us know how Ambien works for you. I tried it but had adverse reactions so stopped it before it caused major brain chemistry problems. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Ambien worked wonders for me when I took it years ago. Problem was back then insurance would only pay for 10 days at a time and then you had to petition them for more. Now it’s approved for long term use. *Hannah* www.starbrightdesigns.net Jewelry & Photos Semi-Precious stones, Crystal & Sterling Silver Let us know how Ambien works for you. I tried it but had adverse reactions so stopped it before it caused major brain chemistry problems. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 > > Thats rediculous if a medication helps another condition it should be > used as needed. There is nothing that has been approved for treatment > for fibromyalgia so if we waited for approval we would be in a really > bad place. I so agree with you, deb. Pharmacueticals are often approved for their " off label " uses when it is shown that it works for other conditions as well. For instance, Viagra was originally being researched as a blood pressure med. But it had a side effect that made it more useful for another problem. I hate all these class action lawsuits against drug manufactors. These " problems " and this lawsuit about Neurontin has been around for at least two yrs that I know of. I miss Vioxx. Vioxx *clearly* and repeatedly warned of potential cardiac problems on the brief insert given out by pharmacies, it was even mentioned in the magazine ads. Yes, I am sorry that people died on it. But in no way do I feel it was the company's fault. Suing the pharma company follows a long standing rule of civil practice - go for the defendant w/ the deepest pockets. People need to research the meds they are on, the pharmacy inserts cannot possibly cover every thing. Use the net, go to the library and look it up in the PDR - Physcian's Desk Reference. Or ask your doctor to let you use their copy in the office. My main dx is for CFIDS, fibro was the fourth listed reason from my disability approval. I am also bipolar. All of this messed up chemicals within my body make medicines work very differently in my body. If it wasn't for the " off label " uses, I probably would have taken my own life years ago. Knowledge is power, make yourself powerful, not fearful, where your medication is concerned. Mira Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 One good thing is the internet. There are many many sites where you can get very good drug information, including interactions. Some of the newest meds of course aren't there yet. But I now check everything myself the best I can. Sometimes this has resulted in me calling a pharmacy to say " don't bother filling that Rx that was just called in for me, I can't take it " . Many sites also have good drug/herb interaction info. laz > > I agree with you. I do kow that Lyrica caused my blood pressure meds to stop working more or less I didnt suffer a stroke or anythign but it was high enough to be borderline stroke level adn I am only 25 scary. You are right about the statement in re to drugs interacting years later. I wish i had known about Lyrica and b/p meds I was so sick with the severe headaches from my high blood pressure hopefully this will not happen to someone else. I wonder how much of soem of this has to do with dr's not getting all the info befoe prescribing or should i say not looking good enough at meds we are or maybey on. > Quote Link to comment Share on other sites More sharing options...
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