Re:SUSAN..A LITTLE MORE FROM ME

[Guest guest]

SUSAN... WE HAVE A MEMBER, HELEN, WHO LIVES IN N.W.OHIO, TOO, HON !!!

SHE IS GOIN THRU A LOT RIGHT NOW, AND IS ON 'NO-MAIL' BUT I'M SURE

SHE'LL CHECK IN SOONER OR LATER !!!

WHAT IS A Q-RAY BRACLET, HON ??!! AND ITS HELPED YOUR FMS THAT MUCH

????!!!!!

SORRY YOUR DH ISNT VERY SUPPORTIVE, SWEETIE !!! MINE DOESNT REALLY

UNDERSTAND BUT HE DOESNT COMPLAIN ABOUT THE MESSY HOUSE, (MOSTLY HIS &

MY SONS FAULT ANYWAY !!!) OR ABOUT MY WEIGHT GAIN... 60+ POUNDS !!! sO

THAT IS A GOOD THING !!

WHY DO YA THINK THE FMS ISNT A PROBLEM, HON ??!! IT CAUSE TERRIBLE

FATIGUE AND WEAKNESS !! DO YA NOT HAVE THE PAIN ??!! I'M BEHIND ON MY

MAIL, SO IF YA ANSWERED MOST OF THIS, DONT WORRY, I'LL GET TO IT !!!

GLAD TO HAVE YA HERE, SWEETIE !! I'M SURE WE'LL HELP KEEP YA SANE, (OR

IS THAT INSANE ??!!) LMAO !!!! 8^)

TODAY MY HANDS DON'T HURT SO MUCH, SO I'LL SEND A

BETTER INTRO FOR YOUR READING ENJOYMENT. *G* I'LL

APOLOGIZE RIGHT NOW BECAUSE I KNOW THIS WILL GET

LONG.

LIKE I SAID BEFORE, I'M SUSAN. I'M A 37 YR OLD

SAHM/WAHM TO 6 KIDS (WHICH IS ENOUGH TO FATIGUE A

PERSON INTO THE GROUND RIGHT THERE LOL), WIFE TO

DAVE (BASICALLY A GREAT GUY, BUT HE HAS HIS JERKY

MOMENTS, WHICH YOU'LL HEAR ENOUGH ABOUT LOL). WE

LIVE IN NW OHIO WITH OUR PUPPY DOG, RASCAL. WE RUN

OUR OWN BUSINESS OUT OF THE HOUSE AS WELL, WHICH I

WORK AT ALL WEEK.

I WAS VERY ENERGETIC AT ONE POINT. I WAS A FEMALE

BODYBUILDER IN MY 20'S, AND I'VE DONE THINGS LIKE

CHASE DOWN SOME HIT & RUN IDIOTS (CAUGHT THEM TOO -

THEY WERE IN CAR, I WAS ON FOOT..HEHE), ETC.

I STARTED HAVING PROBLEMS BACK IN 1996 AFTER A

MESSY DIVORCE AND SUDDEN RELOCATION FROM TEXAS

TO MARYLAND. I WENT THROUGH A YEAR OF DEPRESSION

AND LOST A LOT OF MY DRIVE AT THAT TIME. THIS IS ALSO

WHEN I MET MY HUBBY, SO HE'S NEVER SEEN ME AS AN

ENERGETIC PERSON TO BEGIN WITH, WHICH MAKES IT

HARDER FOR HIM TO SEE THIS AS A REAL PROBLEM NOW.

ANYWAY, MY DR DIAGNOSED ME WITH FMS A FEW YEARS

AGO. SINCE I GOT MY Q-RAY BRACELET, THAT DOESN'T

BOTHER ME AT ALL, SO I NEVER EVEN THINK ABOUT THAT

ANYMORE. BUT THIS CFS IS HORRID. BACK IN OCTOBER, I

HAD A REALLY SERIOUS ATTACK OF FATIGUE. I COULDN'T

EVEN LIFT A PAIR OF JEANS WITHOUT MY ARMS DROPPING

TO THEIR SIDES. AFTER A WEEK OF COMPLETE

EXHAUSTION, I WOKE UP ONE MORNING WITH A SEVERE

HEADACHE AND VOMITING (WHICH I NEVER DO). I ENDED UP

HAVING TO GO TO THE ER TO GET AN IV AND GET RE-

HYDRATED. I HAD THAT FOR ABOUT A WEEK AS WELL. THE

DAY AFTER I FINALLY STARTED TO FEEL BETTER, I BROKE

OUT WITH A FEVER, WHICH LASTED ALMOST A WEEK.

THIS WAS THE ONE TIME I DECIDED NOT TO GO TO THE DR,

SINCE I'M SO SICK OF CALLING HIM. NOW I WISH I HAD

GONE. AFTER THAT INCIDENT, I'VE ALWAYS FELT KIND OF

DOPED UP AND LIKE I HAVE LEAD WEIGHTS ATTACHED TO

MY ARMS AND LEGS. I DO ALL RIGHT DURING THE WEEK,

BUT BY THE TIME THE WEEKEND IS HERE, I'M SO

EXHAUSTED FROM WORKING ALL WEEK, THAT I SPEND MY

WEEKENDS ON THE COUCH. BECAUSE OF THIS, I'M ALSO

UNABLE TO WORK OUT, SO I'VE GAINED APPROX. 50 LBS.

DH ISN'T SO THRILLED ABOUT THAT EITHER - AND NEITHER

AM I. I'M A SMALL BONED PERSON TRAPPED IN THIS

ELEPHANT BODY.

MY DH DOESN'T UNDERSTAND IT. HE SEEMS TO THINK THAT

IF I'D JUST THINK MORE POSITIVELY, THEN I'D BE OK. HE

DOESN'T BELIEVE ME THAT I START EACH MORNING WITH " I

CAN DO THIS - I'M FEELING GREAT " THOUGHTS. IT'S VERY

FRUSTRATING SINCE I'M DEALING WITH THIS COMPLETELY

ALONE. SINCE DH DOESN'T SUPPORT ME, MY KIDS DON'T

EITHER. MY HOUSE IS TRASHED, NOBODY SEEMS TO GET

THAT I CAN'T DO IT ALL. I GUESS THAT'S ANOTHER STORY

TOO LOL

I SAW A SPECIALIST WHO THINKS THAT MY CFS HAS

STEMMED FROM MENENGITIS - WHICH SHE THINKS I HAD

DURING THAT 3 WEEKS I WAS SO SICK. SHE SAID THAT THE

CFS COULD GO ON FOR YEARS BEFORE I START TO FEEL

BETTER (THIS IS LIKE THE EPSTEIN BARR VIRUS - THAT'S

HOW SHE DESCRIBED IT). SHE HAS SINCE DISMISSED ME

FROM HER CARE AND TOLD ME TO CONTINUE SEEING MY

FAMILY DR (WHO I JUST ADORE BTW).

MY MAIN REASON FOR JOINING THIS LIST WAS TO FIND

PEOPLE THAT TRULY UNDERSTAND WHAT I'M DEALING WITH.

I FEEL LIKE I'M JUST THIS BIG WHINY BABY NOW - ALL I DO

IS COMPLAIN ABOUT HOW EXHAUSTED I AM, BUT NOBODY

HERE LISTENS.

SORRY THIS WAS SO LONG

SUSAN