Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 Dear Sophia, I am sorry you are having toruble communicating. I am so glad there is this group for you. Do you type things out for your caregivers? I am 49 and I am a care giver, but I feel for you you are so young. When did your symptoms first start. S >Hi Diane, > >sorry you have to be here. this group is very helpful and supportive even >though it someimes feels like a full-time job. You can talk about any >thing you feel like to this group: feelings, problems, whatever. i'm >50, have same symtoms as you. I can't walk at all. I always use a >wheelchair, type with one hand. > >your way of communication sounds intriging. Wha's it called? people can >hardly understand me, even my own family. My life is becoming a constant >game of charades. i have to repeat everything. > >I'm on Sinemet, Amantadine, mirapex, florinef for OH, paxil, ambien, >benadryl. > >Hang in there. You are not alone. > >Sophia > > > > (no subject) > > >> Hi I'am Diane, I have shydrager. I know Pam that's how I know about this >> group. Shydrager ,is about can't walk very much, So there for I'am in a >wheel >> chair. I can't talk so I communicate on a board which I spell a word out. >I >> have hard time eating, I want to know if this is what I SHOULD talk about. >> would it be any help to name the drugs that I'am on 1 requip= >> 2promatine=3amantidine=4hyocsyamine=5zoloft= very body knows what that >is!!!! >> ha ha. 1= to keep you at the same level.These are the meaning to the drugs >> 2=blood pressure3=4=bladder want you to email me back if you get this. >> Maybe I can help you people with some things. Talk to u later >> >> Quote Link to comment Share on other sites More sharing options...
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