Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 -----Original Message----- From: Rick Alber <rick@...> 'egroups' <egroups> Date: Monday, October 09, 2000 8:11 PM Subject: [] Using the Archives >> Hi, >> I have a 13 year old with CMT. She wears AFOs most of the time. She is >> eagerly waiting until she is old enough to learn to drive. I am >> wondering how CMT affects one's ability to drive, particularly in >> lifting the leg and toes to put on the brake. It would be very very >> difficult to tell her she can't drive. I would really appreciate >> hearing from those of you who are driving. > >> Thanks so much. > > >This is of interest to me, too, since I have a 9-year-old with CMT1A who >dreams of her first car. 's question inspired me to go to the message >archive that exists for this group over at > > messages/ > >and do a search on the word " driving " . I discovered that this group has >traded more than 7000 messages since it was started in September 1999 and >more than 130 of them contain the word " driving " Doing a search like this >one and reading the resulting messages is quite easy. I urge anyone to go >there if they're curious whether a topic has been discussed amongst this >very knowledgable and opinionated group. > >Together, we are slowly and steadily building an amazing library of >knowledge and recorded experience about CMT. Undoubtedly this the longest >and most informative " conversation " that's ever been held about CMT and to >have it all recorded, searchable and reproducible is nothing short of >miraculous. I'm convinced that important discoveries and breakthroughs about >CMT are going to come about because we have this opportunity to combine our >thoughts, experiences and theories about our shared adversity. > >Think about that lonely CMT researcher at Wayne State who gets a brainstorm >about CMT being linked to some other obscure condition, then searches our >database of messages and finds 8 people who mentioned that condition in one >of their posts. The researcher could interview each of those people via >email and, in a matter of days, gather enough anecdotal evidence to send him >or her on the path to discovering an effective treatment or cure. This was >inconceivable even three years ago but it could happen today. > >Once again we should thank Gretchen who made this possible and continues to >put in a huge effort to keep things running smoothly. >------------ Rick Alber > >>>>>>>>For each day I start my pc and read what the lists members send, I give thanks to a very wonderful caring person, Gretchen, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 In a message dated 10/9/2000 6:28:42 PM Pacific Daylight Time, rick@... writes: << Hi, > I have a 13 year old with CMT. She wears AFOs most of the time. She is > eagerly waiting until she is old enough to learn to drive. I am > wondering how CMT affects one's ability to drive, particularly in > lifting the leg and toes to put on the brake. It would be very very > difficult to tell her she can't drive. I would really appreciate > hearing from those of you who are driving. > Thanks so much. Your daughter should be able to drive without much trouble. My son rides a motorcylce and up shifts with his on. jenny >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 In a message dated 10/9/2000 6:35:25 PM Pacific Daylight Time, rmax@... writes: << For each day I start my pc and read what the lists members send, I give thanks to a very wonderful caring person, Gretchen, ~>Becky M. >> It was all her walking on water talk wasen't it... jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 In a message dated 10/9/2000 11:18:59 PM Pacific Daylight Time, rmax@... writes: << It was all her walking on water talk wasn't it... >jenny > >>> I love that sense of humor you have! LOL, ~>Becky M. >> Your nice Becky now lets hope Gretchen does , lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 In a message dated 10/9/2000 11:22:45 PM Pacific Daylight Time, rmax@... writes: << ><< For each day I start my pc and read what the lists members send, I > give thanks to a very wonderful caring person, Gretchen, ~>Becky M. > > >> >It was all her walking on water talk wasn't it... >jenny > >------ as I re-read what I wrote!!!! LOL, does sound a bit strange doesn't it! I meant it as I am thankful that Gretchen started this list for us to share and learn from. LOL,,,, ~>Becky M. >> And her I thought you worshiped Greatchen the all might list creator. LOL jenny jenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 In a message dated 10/9/2000 11:32:41 PM Pacific Daylight Time, jacee17@... writes: << -- as I re-read what I wrote!!!! LOL, does sound a bit strange doesn't it! I meant it as I am thankful that Gretchen started this list for us to share and learn from. LOL,,,, ~>Becky M. >> And here I thought you worshiped Greatchen the all mighty list creator. LOL jenny jenny >> Boy I must be tired , I can't spell and I signed my name two times. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 -----Original Message----- From: jacee17@... <jacee17@...> egroups <egroups> Date: Tuesday, October 10, 2000 12:28 AM Subject: Re: [] Using the Archives >In a message dated 10/9/2000 6:35:25 PM Pacific Daylight Time, >rmax@... writes: > ><< For each day I start my pc and read what the lists members send, I > give thanks to a very wonderful caring person, Gretchen, ~>Becky M. > > >> >It was all her walking on water talk wasen't it... >jenny > >>> I love that sense of humor you have! LOL, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 -----Original Message----- From: jacee17@... <jacee17@...> egroups <egroups> Date: Tuesday, October 10, 2000 12:28 AM Subject: Re: [] Using the Archives >In a message dated 10/9/2000 6:35:25 PM Pacific Daylight Time, >rmax@... writes: > ><< For each day I start my pc and read what the lists members send, I > give thanks to a very wonderful caring person, Gretchen, ~>Becky M. > > >> >It was all her walking on water talk wasen't it... >jenny > >------ as I re-read what I wrote!!!! LOL, does sound a bit strange doesn't it! I meant it as I am thankful that Gretchen started this list for us to share and learn from. LOL,,,, ~>Becky M. Quote Link to comment Share on other sites More sharing options...
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