Guest guest Posted July 18, 2002 Report Share Posted July 18, 2002 ((((((( Katrina ))))))))) <-- big huge hugs I personally believe that pity parties are very healthy. Get it all out of your system (until next time of course), wallow in it, roll around in it, soak it in, revel in it. You deserve it! Then dry off the pity and go kick some butt, get those doctors in gear and get what you need for Bobby. Anyways, I know I'm in a totally different situation, but I can offer supportive hugs and bring hats and horns to your " party " . <|:-) Debbie I need a hug....:-( I know this is going to sound soooo selfish but man I'm having the worst round of pity-partying over here. I keep reading posts from the lists I am on of parents getting thier children dx of Autism at age 2 and feel so far behind. My Bobby is 3 1/2 and I can't get straight answers. He is visually impaired and has had siezures most recently. He is on medication for siezures now and we've been told that he will likely be at risk for the rest of his life. I can deal with everything - but I am SOOOO desparate for answers right now and I don't feel like I am getting any. It's driving me nuts. Just about everyone I have talked with agrees he shows most of the features of Autism - but no one wants to dx him. Everyone keeps saying he is " too young " with " all of his other problems " to get a diagnosis. I don't want him diagnosed just to be diagnosed - but to me - he is " autistic " and he just seems to hit the nail on the head. I hate feeling like I am just putting this lable on him all by myself. UGHHHHHH! Sorry I just needed to vent. Thanks, KatrinaGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 I can sympathize too!! We've been fighting for FOUR YEARS to get 's DX. I have been to more psych's and specialists and clinics than I can count. It took me raising serious hell and being persistent in my insistence to get someone to listen to me. just got DX'ed yesterday!! Hang in there!! I know just what you mean by wanting to be justified!! I finally am!! " Don't judge each day by the harvest you reap but by the seeds that you plant. " - Louis son , mom to: , PDD-NOS, ADHD, 4 , NT, 2 I need a hug....:-( I know this is going to sound soooo selfish but man I'm having the worst round of pity-partying over here. I keep reading posts from the lists I am on of parents getting thier children dx of Autism at age 2 and feel so far behind. My Bobby is 3 1/2 and I can't get straight answers. He is visually impaired and has had siezures most recently. He is on medication for siezures now and we've been told that he will likely be at risk for the rest of his life. I can deal with everything - but I am SOOOO desparate for answers right now and I don't feel like I am getting any. It's driving me nuts. Just about everyone I have talked with agrees he shows most of the features of Autism - but no one wants to dx him. Everyone keeps saying he is " too young " with " all of his other problems " to get a diagnosis. I don't want him diagnosed just to be diagnosed - but to me - he is " autistic " and he just seems to hit the nail on the head. I hate feeling like I am just putting this lable on him all by myself. UGHHHHHH! Sorry I just needed to vent. Thanks, KatrinaGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Katrina, Although doesn't have any other health challenges, I can empathize completely. I didn't know was autistic when I started badgering doctors, but I badgered doctors for more than a year and a half before I got any answers at all -- and my answers came from a speech therapist I begged my way in to see. (((hugs))) Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 > I know this is going to sound soooo selfish I forgot to say -- this is one list you need NEVER feel like you sound selfish. Around here, pity-parties are completely understood, accepted, and even encouraged! That's what I hated about other lists - nobody ever seemed to feel sad, and I felt sad all the time. Nobody said they felt frustrated and alone -- and I felt frustrated and alone all the time. That's why I started THIS list, where we can say WHATEVER we feel and not have to worry about how we sound. Because we're only human, after all. (((hugs))) Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Katrina - First of all...HUGS. Second of all. YOU are the parent. YOU are the expert. If you really feel he is Autistic, then you don't need anyone else to tell you... As a matter of fact, if you want to do some of the things that YOU feel will help with the Autistic behaviors, then go ahead. You don't need a doctor or psych or anyone else to tell you. .....The label is there for services. YOU don't need to label him. There are many things you can do on your own to help him (although getting outside help would be nice). Hang in there. Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 >>>>>>>>>> Just about everyone I have talked with agrees he shows most of the features of Autism - but no one wants to dx him. Everyone keeps saying he is " too young " with " all of his other problems " to get a diagnosis. >>>>>>>>>>>>>>> That's exactly what all of the so-called experts told me, over and over again. was 2 when I first took him for testing; we finally got a diagnosis at 6 1/2. One doc even told us the he was retarded and that there was nothing to be done for him. But we finally got a dx of ASD and things started getting better. Don't give up hon. You need answers and you need a dx and you will get them. ((((((((((((Katrina))))))))))))))) Tuna ***********Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Katrina, Have you got any of the Drs. who will listen to you if you were to tell them you want the autism diagnosis so you can get the best services for him and Early On through the schools? That you don't care if he's 'awfully young' at this point and you just want some answers? As he gets older, if he no longer meets the criteria, he can have the diagnosis removed, but for now you just need the answer so that you know where to look for help for him? Hang in there hon, and keep fighting for him! Big hugs, Sue ------------------------------------------- Introducing NetZero Long Distance Unlimited Long Distance only $29.95/ month! Sign Up Today! www.netzerolongdistance.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 ((((((Katrina)))))) Hope things are looking better today ) Hang in there... (inAus) I need a hug....:-( I know this is going to sound soooo selfish but man I'm having the worst round of pity-partying over here. I keep reading posts from the lists I am on of parents getting thier children dx of Autism at age 2 and feel so far behind. My Bobby is 3 1/2 and I can't get straight answers. He is visually impaired and has had siezures most recently. He is on medication for siezures now and we've been told that he will likely be at risk for the rest of his life. I can deal with everything - but I am SOOOO desparate for answers right now and I don't feel like I am getting any. It's driving me nuts. Quote Link to comment Share on other sites More sharing options...
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