Re: spilling my problems

November 4, 2003

Hi a,

I am new here to and I know how you feel when you say your hands aren't working right. My hands and legs fail me sometime they just don't seem to want to know. My mind tells them what to do and they just fight back by doing nothing. Very frustrating.

I'm sorry to hear about your SSI keep trying as it is very hard to get. I'm from Northern Ireland and I think I know what you are talking about when you say SSI. If its the same thing we call it DLA.

Keep your chin up as a good mate of mine has reminded me this morning via text message.

Love and best wishes

Lori

November 4, 2003

Hi a,

I am new here to and I know how you feel when you say your hands aren't working right. My hands and legs fail me sometime they just don't seem to want to know. My mind tells them what to do and they just fight back by doing nothing. Very frustrating.

I'm sorry to hear about your SSI keep trying as it is very hard to get. I'm from Northern Ireland and I think I know what you are talking about when you say SSI. If its the same thing we call it DLA.

Keep your chin up as a good mate of mine has reminded me this morning via text message.

Love and best wishes

Lori

November 5, 2003

a I know how you feel but not getting your SSI. Have you thought about getting a lawyer to help you with your ssi. Don't feel bad about living with your mother. I am 37 and i am living with my mother i just can't afford to live on my own. Not from what I am making from my disability each month. I was about 27 when I stopped working and applied for disability it took almost 3 yrs before I got it. Sorry i am not much help. But you are in my prayers and thoughts.

Love Kimi

November 5, 2003

a I know how you feel but not getting your SSI. Have you thought about getting a lawyer to help you with your ssi. Don't feel bad about living with your mother. I am 37 and i am living with my mother i just can't afford to live on my own. Not from what I am making from my disability each month. I was about 27 when I stopped working and applied for disability it took almost 3 yrs before I got it. Sorry i am not much help. But you are in my prayers and thoughts.

Love Kimi

November 5, 2003

a ..

do not worry about saying sorry when you need to vent.

That is why we are here .. to listen .. because we KNOW how frustrated

you are.

Did you have a lawyer for your second application for SSI?

Did you have all the documentation of your illness?

Did you have a psychiatrist send a letter saying how your mental

status is being affected by the lupus? Clinical depression holds a lot

during these type of hearings.

Dont give up .. keep trying .. appeal immediately.

If you truly deserve SSI .. then keep trying.

November 5, 2003

Dear a,

Don't appologise for venting your anger,and frustration. Use us ........That's what we're here for. We support each other, and offer advise when we can.

I was also turned down for SSD twice , then hired a lawyer. I got my SSD for Major Depression......Before I was even diagnosed with Lupus. A n SSD attorney will take your case without any money up front. They only get paid if you win your case. Then they take a percentage. SSD always denies applications, they hope you will give up and go away. I will try to find the information about how they work that was posted a while back and forward it to you.

Good Luck and don't give up. C.

a And Carol wrote:

Hello everybody I hope you all dont mind but I'm very upset tonight sorry to spill this on you all. For one thing MY HANDS ARE NOT WORKING RIGHT ANYMORE. The second thing I WAS DENIED FROM SSI THE SECOND TIME. Sorry i'm mad tonight I know you all are going through simlar things like me but i just need it to get this out.

Here is some things about me I'm 25 yrs.old female and 75%of the time in my manual wheelchair and the rest of the time laying down or using crutches. living with my mother because i can't live alone, don't get me wrong I love my mother and I thank God for her everyday. I have a cat and a parakeet. I have Lupus and Asthma and other nevre and muscle problems. and of course learning problems. thanks for reading this sorry it is so long. And Sorry about my typing im trying to type with two fingers because my hands are in a not working mood to night. sorry again spilling this on you all. May the Angels And Saint Watch over you all and have a good night and a good rest of the week. talk to you latter a."The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies

November 5, 2003

a, Please don't apologize for "spilling", hon. That's why we are all here. We all need to spill

once in a while, and many of us have been denied SS more than once. Now it's time for you to get

a lawyer, and force the issue. Anymore, I believe that unless you are so OBVIOUSLY near death that

they cannot deny you, SS will deny you until the cows come home if you don't get adequate represen-

tation. More and more of our members are finding this to be true and getting an attorney right away.

Also, please call your rheumatologist and tell him/her what is happening with our hands, and the

disability, as well. This person should be able to help you get what you need to win your case, and

find a treatment option that will help with your hands, as well. Please keep writing, and sharing. It

really helps to let it out, and then, sometime when you are feeling a little better, you can do the same for someone else, hmmmm? Hugs, MM

November 5, 2003

Lori, Where are you in Northern Ireland? One of our old moderators lives in Belfast and worked

closely with the hospital specialists there. She was a fountain of information and support for our

members. We haven't heard from her in a long time, and are worried that she may be very ill at

this time.

My ancestors were from Cork, Tipperary to be exact. McKeogh was their name. Also, on the other

side, was the surname, and my great-great grandmother was kidnapped and sold into bondage

and brought to the U.S. by the family who purchased her bond. Very long and involved story, so I won't bore you with it. LOL

I live in Northern California, about 50 miles from San Francisco. I am the single, adoptive mother of

four special needs kids, and have, now, two grandchildren. I am 54, was dx'd with SLE, RA, Lyme

Disease, Myfibrositis, Sjogren's Syndrome, Anemia, and non-insulin dependent Diabetes as well as

Irritable Bowel Syndrome, all between the ages of 30 and 45. However, my strange health problems

began when I was only ten years old.

I still have two kids at home to raise, boys ages 15 and 11. One going through the teens with a

vengeance and the other just starting into prebuscent angst as we speak. Glad to have you aboard,

and keep writing, it helps. Hugs, MM

November 5, 2003

Hi MM,

I live in Ballyclare. My rhummy is in the City Hospital in Belfast where I attend on a regular basis.

I am 38 have been diagnosed with SLE, Raynauds, and Sjoegrens. Lovely Jubly.

The weather here is terrible as it is very cold. It is 4 degrees at the minute.

Have to go now to make dinner.

Speak to you soon

Lori

November 5, 2003