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I have noticed a deeper sleep, and feel more rested in the morning. After first couple of days of accepting it was good for me. My energy level is alwayss good for 2-4 hours then I am NOT the Energizer Bunny. Some afternoon naps help. Joe

-- CPAP

The people that are using the CPAP - have you noticed a a better sleep,better memory, better mornings, more energy, etc.?Joy/Seattle

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I tell Joanie I feel like a jet pilot Gettingg ready to take off in a F-15. I have the full mask.

Joe

-- CPAP

The CPAP I'm using has the head gear straps like the mask, but thenostril pillow fits into the nostrils like a cannula...only there is nospace for "leakage". I also have to use a chin strap until my body istrained to keep my mouth shut!! It's a new item and easier than themask.My O2 company will supply my husband with a unit over night that willshow if he has sleep apnea too. He can be hooked up to the equipment bythe O2 company over night. Walt will have to have a doc's prescriptionfirst. I think he will go ahead and do it 'cause I keep telling him hesnores loud, and quits breathing too.Tonight will be my first night with the contraption. I am not hookedinto my O2 at this time.Joy/Seattle

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Joe, I also have the full face mask. Several years ago I had the one that only covered the nose so later when I had my pressure reduced I changed to the full face mask. It was hard to get used to. Before going to sleep, my husband pretends he a radio control operator and says "Over and Out!"

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>> I tell Joanie I feel like a jet pilot Gettingg ready to take off in a F-15.> I have the full mask. > Joe > > -- CPAP > > > The CPAP I'm using has the head gear straps like the mask, but the > nostril pillow fits into the nostrils like a cannula...only there is no > space for "leakage". I also have to use a chin strap until my body is > trained to keep my mouth shut!! It's a new item and easier than the > mask. > > My O2 company will supply my husband with a unit over night that will > show if he has sleep apnea too. He can be hooked up to the equipment by > the O2 company over night. Walt will have to have a doc's prescription > first. I think he will go ahead and do it 'cause I keep telling him he > snores loud, and quits breathing too. > > Tonight will be my first night with the contraption. I am not hooked > into my O2 at this time. > > Joy/Seattle>

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The CPAP I have will only allow me to lay on one side, not the other -

unless I go and change the tubing. I usually try to sleep on both

sides! I guess not any more!

Being fitted for my head gear Bill taped the tube to the top of my head

gear to keep it out of the way of my face.

I can't wait to go to bed tonight!!!

Irene, Joyce and others who are having such a horrible time of this

disease - I want to curl my arms around you and just sit with you...

Joy/Seattle

>

>

> The CPAP I'm using has the head gear straps like the mask, but the

> nostril pillow fits into the nostrils like a cannula...only there is

no

> space for " leakage " . I also have to use a chin strap until my body is

> trained to keep my mouth shut!! It's a new item and easier than the

> mask.

>

> My O2 company will supply my husband with a unit over night that will

> show if he has sleep apnea too. He can be hooked up to the equipment

by

> the O2 company over night. Walt will have to have a doc's prescription

> first. I think he will go ahead and do it 'cause I keep telling him he

> snores loud, and quits breathing too.

>

> Tonight will be my first night with the contraption. I am not hooked

> into my O2 at this time.

>

> Joy/Seattle

>

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Yes! For sure! Jane UIP?IPF 12/1998 Dalton, Georgia

>> > The people that are using the CPAP - have you noticed a a better sleep,> better memory, better mornings, more energy, etc.?> > Joy/Seattle>

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Joy, used to travel a lot and would fall asleep driving. He was

always tired. The c-pap is a big improvement.

Love and Prayers, Peggy

Florida, ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

Yes! For sure! Jane UIP?IPF 12/1998 Dalton, Georgia

>

>

> The people that are using the CPAP - have you noticed a a better

sleep,

> better memory, better mornings, more energy, etc.?

>

> Joy/Seattle

>

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Joy... is there a web site I can look at this nasal pillow? Something new to me. I'm trying to imagine, if it's a "pillow" how do you turn over ?

I know I know, but I can't help wondering how this works.

Many thanks.

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The CPAP I'm using has the head gear straps like the mask, but thenostril pillow fits into the nostrils like a cannula...only there is nospace for "leakage". I also have to use a chin strap until my body istrained to keep my mouth shut!! It's a new item and easier than themask.My O2 company will supply my husband with a unit over night that willshow if he has sleep apnea too. He can be hooked up to the equipment bythe O2 company over night. Walt will have to have a doc's prescriptionfirst. I think he will go ahead and do it 'cause I keep telling him hesnores loud, and quits breathing too.Tonight will be my first night with the contraption. I am not hookedinto my O2 at this time.Joy/Seattle

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Joy... what I notice most is that I sleep all night through...well, there are PBs (potty breaks) but I go right back to sleep. I already said, thank goodness I don't snore anymore! Yes, I do have better mornings.

Having said that...memory, more energy I don't feel but I'm sure that is because of other problems.

One thing I certainly noticed! When I started using the CPAp my sats improved so much that I no longer qualified for O2...I think that was close to a year ago. I'm on O2 again now however...qualified for 24-7 if I think I need it that much. Guess the choice is more or less mine.

Overall, I do sleep better and I don't travel w/o it.

I'm anxious to see a picture of your pillow online............

I just read your post that you have to sleep on one side?! Whoo. I wouldn't like that I don't think. Is there tubing with this pillow?

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The people that are using the CPAP - have you noticed a a better sleep,better memory, better mornings, more energy, etc.?Joy/Seattle

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laughing here Joe...I call mine my snorkel!

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The CPAP I'm using has the head gear straps like the mask, but thenostril pillow fits into the nostrils like a cannula...only there is nospace for "leakage". I also have to use a chin strap until my body istrained to keep my mouth shut!! It's a new item and easier than themask.My O2 company will supply my husband with a unit over night that willshow if he has sleep apnea too. He can be hooked up to the equipment bythe O2 company over night. Walt will have to have a doc's prescriptionfirst. I think he will go ahead and do it 'cause I keep telling him hesnores loud, and quits breathing too.Tonight will be my first night with the contraption. I am not hookedinto my O2 at this time.Joy/Seattle

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I have a very sore nose from the mask. Has anyone else had a problem with that? The bridge of my nose seems to be almost rubbed sore from the contact of the latex .

JOE

-- Re: CPAP

Joy... what I notice most is that I sleep all night through...well, there are PBs (potty breaks) but I go right back to sleep. I already said, thank goodness I don't snore anymore! Yes, I do have better mornings.

Having said that...memory, more energy I don't feel but I'm sure that is because of other problems.

One thing I certainly noticed! When I started using the CPAp my sats improved so much that I no longer qualified for O2...I think that was close to a year ago. I'm on O2 again now however...qualified for 24-7 if I think I need it that much. Guess the choice is more or less mine.

Overall, I do sleep better and I don't travel w/o it.

I'm anxious to see a picture of your pillow online............

I just read your post that you have to sleep on one side?! Whoo. I wouldn't like that I don't think. Is there tubing with this pillow?

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The people that are using the CPAP - have you noticed a a better sleep,better memory, better mornings, more energy, etc.?Joy/Seattle

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Maybe I can try it when we open the pool!!!!!!!!!!!!!

Joe

-- Re: CPAP

laughing here Joe...I call mine my snorkel!

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The CPAP I'm using has the head gear straps like the mask, but thenostril pillow fits into the nostrils like a cannula...only there is nospace for "leakage". I also have to use a chin strap until my body istrained to keep my mouth shut!! It's a new item and easier than themask.My O2 company will supply my husband with a unit over night that willshow if he has sleep apnea too. He can be hooked up to the equipment bythe O2 company over night. Walt will have to have a doc's prescriptionfirst. I think he will go ahead and do it 'cause I keep telling him hesnores loud, and quits breathing too.Tonight will be my first night with the contraption. I am not hookedinto my O2 at this time.Joy/Seattle

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Oh no ya don't, it's mine. (giggle)

Isn't your mask adjustable? I can push mine up or down on my nose..........tighter or looser

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The CPAP I'm using has the head gear straps like the mask, but thenostril pillow fits into the nostrils like a cannula...only there is nospace for "leakage". I also have to use a chin strap until my body istrained to keep my mouth shut!! It's a new item and easier than themask.My O2 company will supply my husband with a unit over night that willshow if he has sleep apnea too. He can be hooked up to the equipment bythe O2 company over night. Walt will have to have a doc's prescriptionfirst. I think he will go ahead and do it 'cause I keep telling him hesnores loud, and quits breathing too.Tonight will be my first night with the contraption. I am not hookedinto my O2 at this time.Joy/Seattle

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Yea it adjusts and I even keep as loose as possible but with 16 lbs pressure it makes a noise if it is not fairly tight. I have slid up/down and wake up with It on the sore spot!

Joe

-- Re: CPAP

Oh no ya don't, it's mine. (giggle)

Isn't your mask adjustable? I can push mine up or down on my nose..........tighter or looser

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The CPAP I'm using has the head gear straps like the mask, but thenostril pillow fits into the nostrils like a cannula...only there is nospace for "leakage". I also have to use a chin strap until my body istrained to keep my mouth shut!! It's a new item and easier than themask.My O2 company will supply my husband with a unit over night that willshow if he has sleep apnea too. He can be hooked up to the equipment bythe O2 company over night. Walt will have to have a doc's prescriptionfirst. I think he will go ahead and do it 'cause I keep telling him hesnores loud, and quits breathing too.Tonight will be my first night with the contraption. I am not hookedinto my O2 at this time.Joy/Seattle

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Its sort of like oxygen, everyone I've ever known to use CPAP says " oh I

hate this thing " in the same breath they put it on because of how much

it truly helps them.

Most people I know make their first trip after getting one without

taking it too. Then they really see the difference and miss it and never

travel again without it.

>

> laughing here Joe...I call mine my snorkel!

> Mama-Sher, age 69. IPF 3-06, OR.

> Don't fret about tomorrow, God is already there!

>

> CPAP

>

>

> The CPAP I'm using has the head gear straps like the mask, but the

> nostril pillow fits into the nostrils like a cannula...only there is

no

> space for " leakage " . I also have to use a chin strap until my body is

> trained to keep my mouth shut!! It's a new item and easier than the

> mask.

>

> My O2 company will supply my husband with a unit over night that will

> show if he has sleep apnea too. He can be hooked up to the equipment

by

> the O2 company over night. Walt will have to have a doc's prescription

> first. I think he will go ahead and do it 'cause I keep telling him he

> snores loud, and quits breathing too.

>

> Tonight will be my first night with the contraption. I am not hooked

> into my O2 at this time.

>

> Joy/Seattle

>

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My pressure is only 10 so I'm sure it does make a difference. I'm sure you have contacted your provider....they are usually good to help trouble shoot.

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP

The CPAP I'm using has the head gear straps like the mask, but thenostril pillow fits into the nostrils like a cannula...only there is nospace for "leakage". I also have to use a chin strap until my body istrained to keep my mouth shut!! It's a new item and easier than themask.My O2 company will supply my husband with a unit over night that willshow if he has sleep apnea too. He can be hooked up to the equipment bythe O2 company over night. Walt will have to have a doc's prescriptionfirst. I think he will go ahead and do it 'cause I keep telling him hesnores loud, and quits breathing too.Tonight will be my first night with the contraption. I am not hookedinto my O2 at this time.Joy/Seattle

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Whoops Bruce...I made a mistake...(I thought I was wrong once but I was mistaken. hee) I have UIP not NSIP.....and I think this is her best guess due to all the years I did ceramics. Perhaps any Dx is a "best guess".

As I said, it's rhetorical anyway...these different strains confuse me and I'm not on any meds for lungs.

How was your gad-about today? I'll probably read about it further down the board....

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP>>> The CPAP I'm using has the head gear straps like the mask, but the> nostril pillow fits into the nostrils like a cannula...only there isno> space for "leakage". I also have to use a chin strap until my body is> trained to keep my mouth shut!! It's a new item and easier than the> mask.>> My O2 company will supply my husband with a unit over night that will> show if he has sleep apnea too. He can be hooked up to the equipmentby> the O2 company over night. Walt will have to have a doc's prescription> first. I think he will go ahead and do it 'cause I keep telling him he> snores loud, and quits breathing too.>> Tonight will be my first night with the contraption. I am not hooked> into my O2 at this time.>> Joy/Seattle>

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My gad-about was fine....long, tiring, but such a beautiful day for a

change. As to your thing about looking good and smelling good, I'd have

to argue with the looking good on me and hope I don't smell at all as I

can't and don't use any fragrances (even in shampoo) due to my

allergies.

> >

> > laughing here Joe...I call mine my snorkel!

> > Mama-Sher, age 69. IPF 3-06, OR.

> > Don't fret about tomorrow, God is already there!

> >

> > CPAP

> >

> >

> > The CPAP I'm using has the head gear straps like the mask, but the

> > nostril pillow fits into the nostrils like a cannula...only there is

> no

> > space for " leakage " . I also have to use a chin strap until my body

is

> > trained to keep my mouth shut!! It's a new item and easier than the

> > mask.

> >

> > My O2 company will supply my husband with a unit over night that

will

> > show if he has sleep apnea too. He can be hooked up to the equipment

> by

> > the O2 company over night. Walt will have to have a doc's

prescription

> > first. I think he will go ahead and do it 'cause I keep telling him

he

> > snores loud, and quits breathing too.

> >

> > Tonight will be my first night with the contraption. I am not hooked

> > into my O2 at this time.

> >

> > Joy/Seattle

> >

>

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Well! My first night with my CPAP was horrible.

> >

> > I tell Joanie I feel like a jet pilot Gettingg ready to take off in

a

> F-15.

> > I have the full mask.

> > Joe

> >

> > -- CPAP

> >

> >

> > The CPAP I'm using has the head gear straps like the mask, but the

> > nostril pillow fits into the nostrils like a cannula...only there is

> no

> > space for " leakage " . I also have to use a chin strap until my body

is

> > trained to keep my mouth shut!! It's a new item and easier than the

> > mask.

> >

> > My O2 company will supply my husband with a unit over night that

will

> > show if he has sleep apnea too. He can be hooked up to the equipment

> by

> > the O2 company over night. Walt will have to have a doc's

prescription

> > first. I think he will go ahead and do it 'cause I keep telling him

he

> > snores loud, and quits breathing too.

> >

> > Tonight will be my first night with the contraption. I am not hooked

> > into my O2 at this time.

> >

> > Joy/Seattle

> >

>

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Sleep on one side or the other. Have to move the hose to opposite side

and that requires manual labor!

>

> Joy... what I notice most is that I sleep all night through...well,

there are PBs (potty breaks) but I go right back to sleep. I already

said, thank goodness I don't snore anymore! Yes, I do have better

mornings.

> Having said that...memory, more energy I don't feel but I'm sure that

is because of other problems.

> One thing I certainly noticed! When I started using the CPAp my sats

improved so much that I no longer qualified for O2...I think that was

close to a year ago. I'm on O2 again now however...qualified for 24-7 if

I think I need it that much. Guess the choice is more or less mine.

> Overall, I do sleep better and I don't travel w/o it.

> I'm anxious to see a picture of your pillow online............

> I just read your post that you have to sleep on one side?! Whoo. I

wouldn't like that I don't think. Is there tubing with this pillow?

> Mama-Sher, age 69. IPF 3-06, OR.

> Don't fret about tomorrow, God is already there!

>

> CPAP

>

>

>

> The people that are using the CPAP - have you noticed a a better

sleep,

> better memory, better mornings, more energy, etc.?

>

> Joy/Seattle

>

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When I get home tonight I'll look for the web site - or probably just

scan the picture and email it. Joy

>

> Joy... is there a web site I can look at this nasal pillow? Something

new to me. I'm trying to imagine, if it's a " pillow " how do you turn

over ?

> I know I know, but I can't help wondering how this works.

> Many thanks.

> Mama-Sher, age 69. IPF 3-06, OR.

> Don't fret about tomorrow, God is already there!

>

> CPAP

>

>

>

> The CPAP I'm using has the head gear straps like the mask, but the

> nostril pillow fits into the nostrils like a cannula...only there is

no

> space for " leakage " . I also have to use a chin strap until my body is

> trained to keep my mouth shut!! It's a new item and easier than the

> mask.

>

> My O2 company will supply my husband with a unit over night that will

> show if he has sleep apnea too. He can be hooked up to the equipment

by

> the O2 company over night. Walt will have to have a doc's prescription

> first. I think he will go ahead and do it 'cause I keep telling him he

> snores loud, and quits breathing too.

>

> Tonight will be my first night with the contraption. I am not hooked

> into my O2 at this time.

>

> Joy/Seattle

>

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I don't know which one she uses but here are some examples:

http://www.directhomemedical.com/masks-cpap-bipap/index-nasal-pillow-cpap-masks.html?gclid=CLXixvPxjZICFQFylgod7SMqAg

http://shop.talkaboutsleep.com/?action=section.display & category=nasal-pillows-masks

> >> > Joy... is there a web site I can look at this nasal pillow? Something> new to me. I'm trying to imagine, if it's a "pillow" how do you turn> over ?> > I know I know, but I can't help wondering how this works.> > Many thanks.> > Mama-Sher, age 69. IPF 3-06, OR.> > Don't fret about tomorrow, God is already there!> >> > CPAP> >> >> >> > The CPAP I'm using has the head gear straps like the mask, but the> > nostril pillow fits into the nostrils like a cannula...only there is> no> > space for "leakage". I also have to use a chin strap until my body is> > trained to keep my mouth shut!! It's a new item and easier than the> > mask.> >> > My O2 company will supply my husband with a unit over night that will> > show if he has sleep apnea too. He can be hooked up to the equipment> by> > the O2 company over night. Walt will have to have a doc's prescription> > first. I think he will go ahead and do it 'cause I keep telling him he> > snores loud, and quits breathing too.> >> > Tonight will be my first night with the contraption. I am not hooked> > into my O2 at this time.> >> > Joy/Seattle> >>

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Joy,

I am so sorry that you are having to deal with sleep apnea and the misery of the CPAP. Some people love it and some hate it. I think I would hate it. But, I hope you will try again. Is there a respiratory therapist that would be available to help you?

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 > > >> > > I tell Joanie I feel like a jet pilot Gettingg ready to take off in> a> > F-15.> > > I have the full mask.> > > Joe> > >> > > -- CPAP> > >> > >> > > The CPAP I'm using has the head gear straps like the mask, but the> > > nostril pillow fits into the nostrils like a cannula...only there is> > no> > > space for "leakage". I also have to use a chin strap until my body> is> > > trained to keep my mouth shut!! It's a new item and easier than the> > > mask.> > >> > > My O2 company will supply my husband with a unit over night that> will> > > show if he has sleep apnea too. He can be hooked up to the equipment> > by> > > the O2 company over night. Walt will have to have a doc's> prescription> > > first. I think he will go ahead and do it 'cause I keep telling him> he> > > snores loud, and quits breathing too.> > >> > > Tonight will be my first night with the contraption. I am not hooked> > > into my O2 at this time.> > >> > > Joy/Seattle> > >> >>

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Joyce

You'd hate it just the same way I bet you did oxygen. My ex-wife use to

say " I hate this thing " every night as she put it on, but she had 86

interruptions per hour without it and slept so well with it. Amazingly,

she is claustrophobic but was not bothered by that aspect. Isn't it a

lot like every aspect of this disease. We hate it, all it does to us,

and all we have to do, but somehow we handle it beyond strength we

imagined we had.

> > > >

> > > > I tell Joanie I feel like a jet pilot Gettingg ready to take off

> in

> > a

> > > F-15.

> > > > I have the full mask.

> > > > Joe

> > > >

> > > > -- CPAP

> > > >

> > > >

> > > > The CPAP I'm using has the head gear straps like the mask, but

the

> > > > nostril pillow fits into the nostrils like a cannula...only

there

> is

> > > no

> > > > space for " leakage " . I also have to use a chin strap until my

body

> > is

> > > > trained to keep my mouth shut!! It's a new item and easier than

> the

> > > > mask.

> > > >

> > > > My O2 company will supply my husband with a unit over night that

> > will

> > > > show if he has sleep apnea too. He can be hooked up to the

> equipment

> > > by

> > > > the O2 company over night. Walt will have to have a doc's

> > prescription

> > > > first. I think he will go ahead and do it 'cause I keep telling

> him

> > he

> > > > snores loud, and quits breathing too.

> > > >

> > > > Tonight will be my first night with the contraption. I am not

> hooked

> > > > into my O2 at this time.

> > > >

> > > > Joy/Seattle

> > > >

> > >

> >

>

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Joy...I'm so sorry to read your first night was horrible.

May I ask why you opted for a full mask from the smaller one? Do you think that is what is bothering you...your face being covered?

I have the petite blue-gel mask that just covers the nose. It's hard enough to adjust to but I couldn't tolerate having my face covered so I replaced the full face mask.

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP> >> >> > The CPAP I'm using has the head gear straps like the mask, but the> > nostril pillow fits into the nostrils like a cannula...only there is> no> > space for "leakage". I also have to use a chin strap until my bodyis> > trained to keep my mouth shut!! It's a new item and easier than the> > mask.> >> > My O2 company will supply my husband with a unit over night thatwill> > show if he has sleep apnea too. He can be hooked up to the equipment> by> > the O2 company over night. Walt will have to have a doc'sprescription> > first. I think he will go ahead and do it 'cause I keep telling himhe> > snores loud, and quits breathing too.> >> > Tonight will be my first night with the contraption. I am not hooked> > into my O2 at this time.> >> > Joy/Seattle> >>

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Bruce...thanks for the site. Ooohee, not for meeee! Silly me, when "pillow" was mentioned I thought it was literally a pillow...one you sleep on. lllloll.

Joy...I don't know how you stand this. But thank the heavens, there is something for us all and we don't all have to make one choice. I do hope you sleep better tonight.

LRB (Lone Ranger Bruce) rides again. Thanks.

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

CPAP> >> >> >> > The CPAP I'm using has the head gear straps like the mask, but the> > nostril pillow fits into the nostrils like a cannula...only there is> no> > space for "leakage". I also have to use a chin strap until my body is> > trained to keep my mouth shut!! It's a new item and easier than the> > mask.> >> > My O2 company will supply my husband with a unit over night that will> > show if he has sleep apnea too. He can be hooked up to the equipment> by> > the O2 company over night. Walt will have to have a doc's prescription> > first. I think he will go ahead and do it 'cause I keep telling him he> > snores loud, and quits breathing too.> >> > Tonight will be my first night with the contraption. I am not hooked> > into my O2 at this time.> >> > Joy/Seattle> >>

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