Re: Strong smelling urine?

[Guest guest]

Dena,

My has had strong smelling urine that has gotten more so the past two or so years since her helth has taken a rapid decline. I to do not know what causes it, but she cant stand the smell and often makes her vomit.

Sorry I cant be of more help, maybe someone else on the list can inform us both.

Happy Holidays!

Horsley

Mom to 11

leehorsley@...

[Guest guest]

In a message dated 12/26/01 5:24:38 PM Pacific Standard Time,

sassynlexnzac@... writes:

<< I was just wondering if its

common for kids w/ metabolic conditions. Its not all the time, but

mainly if they wake up from a long sleep or what not.....

>>

's urine is sickingly sweet smelling, but he has also been recently

diagnosed with ketone utilization disorder (a metabolic condition). I notice

it moreso when the urine is concentrated, like in the mornings or when he

infrequently wets the bed (when he is not feeling well).

Dena

[Guest guest]

In a message dated 12/26/01 10:20:24 PM Pacific Standard Time,

mkeogh@... writes:

<< Are there any specific symptoms beyond urine concerns that may indicate a

ketone utilization disorder? Wondering if this may fit us. >>

Ketosis (per urine testing) with exercise and illness, fasting. If it goes

untreated, then a huge anion gap, with low bicarb will also show up on blood

testing. Organic acid testing on the urine during time of illness provides

the definitive answer. also has hypoglycemia with the more severe

episodes.

Hope this helps,

Dena

[Guest guest]

I am just wondering because i notice it in my 3 year old too who has

not been dx'd or tested as of yet

> In a message dated 12/26/01 5:24:38 PM Pacific Standard Time,

> sassynlexnzac@y... writes:

>

> << I was just wondering if its

> common for kids w/ metabolic conditions. Its not all the time, but

> mainly if they wake up from a long sleep or what not.....

> >>

>

> 's urine is sickingly sweet smelling, but he has also been

recently

> diagnosed with ketone utilization disorder (a metabolic

condition). I notice

> it moreso when the urine is concentrated, like in the mornings or

when he

> infrequently wets the bed (when he is not feeling well).

>

> Dena

[Guest guest]

If any of your kids are on Carnitor it can cause a very strong fishy odor

in the urine and even from the pores. My daughter became very smelly

this past fall (like a combination of old, bad fish and an outhouse in

the hot sun). We decreased her Carnitor and the smell cleared right

up. Unfortunately she became very grumpy and her tolerance for life

was reduced. We upped her dose again and she does seem a bit happier,

but she is starting to smell...oh well. There was a post on this

list just a bit ago about a supplement that helps with the odor.

I'm going to try that as soon as the New Year begins and life calms down

a bit! The other thing that can cause the smell is a urinary tract

infection...if your child is not on Carnitor it is probably worth mentioning

to your doc.

Take care,

sassynlexnzac wrote:

I am overly sensative to my kids symptoms,

but since one has a

metabolic condition i was wondering if its common for a stank urine

smell. I know urine does not smell pretty on a good day but my

kids

can really be strong. It smells like amonia cleaner is all i can

describe it as or a fishy smell to it. I was just wondering if

its

common for kids w/ metabolic conditions. Its not all the time,

but

mainly if they wake up from a long sleep or what not.....

mom to zach, 17 months, glutaric aciduria type 2 alexis 3 fine

Please contact mito-owner with any problems or

questions.

[Guest guest]

Hi, here

I too had posted a concern with Cassie having moments off and on of urine

smelling real strong by morning, even during the day-- her's would have the

strong amonia cleaner smell as well. I don't recall anyone responding to my

post. I hope we will get some responses--because I too am concerned about

it. Does this mean a high acid level in the urine??(question to all on the

mito site.) Also, I've noticed the urine to be very cloudy off and on. I

believe when the urine is strong in odor.

Strong smelling urine?

> I am overly sensative to my kids symptoms, but since one has a

> metabolic condition i was wondering if its common for a stank urine

> smell. I know urine does not smell pretty on a good day but my kids

> can really be strong. It smells like amonia cleaner is all i can

> describe it as or a fishy smell to it. I was just wondering if its

> common for kids w/ metabolic conditions. Its not all the time, but

> mainly if they wake up from a long sleep or what not.....

>

>

> mom to zach, 17 months, glutaric aciduria type 2 alexis 3 fine

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

>

[Guest guest]

Dena

Are there any specific symptoms beyond urine concerns that may indicate a

ketone utilization disorder? Wondering if this may fit us.

Re: Strong smelling urine?

> In a message dated 12/26/01 5:24:38 PM Pacific Standard Time,

> sassynlexnzac@... writes:

>

> << I was just wondering if its

> common for kids w/ metabolic conditions. Its not all the time, but

> mainly if they wake up from a long sleep or what not.....

> >>

>

> 's urine is sickingly sweet smelling, but he has also been recently

> diagnosed with ketone utilization disorder (a metabolic condition). I

notice

> it moreso when the urine is concentrated, like in the mornings or when he

> infrequently wets the bed (when he is not feeling well).

>

> Dena

>

>

> Please contact mito-owner with any problems or questions.

>

>

[Guest guest]

Hi Dena

Thanks for your response. If and when Cassie starts to show these symptoms

again with the urine, I'm going to have her tested for a bladder

infection---in the past we have tested and most of the time come up

negative. If the test should come up negative again, I was wondering if I

could print out your post and show it to the doctor to get his feel and to

educate him (if needed) on this situation-- not saying he's not on top of

things but no one knows everything.

Re: Strong smelling urine?

> In a message dated 12/26/01 10:20:24 PM Pacific Standard Time,

> mkeogh@... writes:

>

> << Are there any specific symptoms beyond urine concerns that may indicate

a

> ketone utilization disorder? Wondering if this may fit us. >>

>

> Ketosis (per urine testing) with exercise and illness, fasting. If it

goes

> untreated, then a huge anion gap, with low bicarb will also show up on

blood

> testing. Organic acid testing on the urine during time of illness

provides

> the definitive answer. also has hypoglycemia with the more severe

> episodes.

>

> Hope this helps,

> Dena

>

>

> Please contact mito-owner with any problems or questions.

>

>

[Guest guest]

our daughter and son have always had strong smelling urine but its

random and mostly strong in the am or after a nap i guess when

they're not eating and drinking as much. my daughter has been

complaining her stomach hurts but shes 3 she always complains her

stomach hurts when she eats. She just hates to eat and i have always

just said its a phase but now i am starting to wonder. She doesnt

have the attention span to sit and eat and half the time she doesnt

want to.i havent been able to tell if its just a phase or related to

this. We havent had any real episodes to tell when hes sick how his

condition will affect him tg but its still hard not knowing. i have

mentioned his urine smell tot he therapists a few times and he is not

on carnitor and she said that it is common w/ kids w/ metabolic

conditions. As for sickly sweet smelling i only read that for maple

syrup disease is that related to that ketone thing that was mentioned

here in these posts? our ped metabolic specialist has not seen us yet

to tell us if my daughter needs to be tested. i am sure she will.

They can prolly just by urine but how do you on a 3 year old that

will be the trick. my daughter does not show any symptoms except some

of the more advanced motor skills she is delayed in like running and

throwing a ball and catching jumping and skipping but its coming.

Zachs delays are more prominant.....

> Hi Dena

> Thanks for your response. If and when Cassie starts to show these

symptoms

> again with the urine, I'm going to have her tested for a bladder

> infection---in the past we have tested and most of the time come up

> negative. If the test should come up negative again, I was

wondering if I

> could print out your post and show it to the doctor to get his feel

and to

> educate him (if needed) on this situation-- not saying he's not on

top of

> things but no one knows everything.

> Re: Strong smelling urine?

>

>

> > In a message dated 12/26/01 10:20:24 PM Pacific Standard Time,

> > mkeogh@w... writes:

> >

> > << Are there any specific symptoms beyond urine concerns that may

indicate

> a

> > ketone utilization disorder? Wondering if this may fit us. >>

> >

> > Ketosis (per urine testing) with exercise and illness, fasting.

If it

> goes

> > untreated, then a huge anion gap, with low bicarb will also show

up on

> blood

> > testing. Organic acid testing on the urine during time of illness

> provides

> > the definitive answer. also has hypoglycemia with the

more severe

> > episodes.

> >

> > Hope this helps,

> > Dena

> >

> >

> > Please contact mito-owner@y... with any problems or questions.

> >

> >

[Guest guest]

Yes, definately urine smells weird with mito. Fishy smell could be from the carnitine. We always know Lexi is in acidosis when her urine or breath smells like nail polish remover.

ruth for the hilandgang

[Guest guest]

I agree here...I remember smelling like a little fish...(smile) when he was on carnitine...and strong odours from his urine was due to...also acidosis, and when he was on a keto diet, his urine changed as well as his breath...ketones...no doubt

Elaine

hilandgang@... wrote: Yes, definately urine smells weird with mito. Fishy smell could be from the carnitine. We always know Lexi is in acidosis when her urine or breath smells like nail polish remover. ruth for the hilandgang Please contact mito-owner with any problems or questions.