Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Gimpi, I think I am learning why I am convinced I have MS instead of FMS! I must have the combinations mentioned in these articles! I am beginning to realize I don't just have FMS! Thanks for the links - they are very educational. Too bad the medical community doesn't think so, too! Kathyneve1776 wrote: I have been researching for someone for some months, someone recently-thoughtfully put a link to Dr Devin Starlanyl website in the links section . Some time ago I found the url and explored her site. Wow, I learned something new. Maybe it is old news to some, but you are amassing new members almost daily it seems. The tiny goes to Dr Starlanyl website specifically where she writes about fibromyalgia syndrome.And some aggravating fellow-travelers I can say many are not even aware exist : myofascial, cmp complex, and trigger points (tender points are different altogether). It is in large type and for those not wanting long reads, if I printed this out, it would stretch 4 or 5 pages Gimpi Definition : fibromyalgia , myofascial pain syndrome http://tinyurl.com/a6f3h Yahoo! DSL Something to write home about. Just $16.99/mo. or less Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 She has written books that explain it all in detail in case anyone wants to read further. Most library systems have a good selection of books on fibro in case there is anyone who cant afford to buy the books. deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 "In 1987, the American Medical Association (AMA), recognized FMS as a true illness and a major cause of disability. Now, more than ten years later, it is still ,unfortunately, too often dismissed as the "newest fad disease", and most physicians still lack the training to diagnose and treat it." neve; Well it is informative but the information is almost 10 yeas old already. We all know we have to exercise. Even when it hurts. It was in interesting read and thank you for bringing it to my attention. I had no idea FM was recognized back in 1887. God Bless you and yours God Bless America Love ya, Gail -- its news to me I have been researching for someone for some months, someone recently-thoughtfully put a link to Dr Devin Starlanyl website in the links section . Some time ago I found the url and explored her site. Wow, I learned something new. Maybe it is old news to some, but you are amassing new members almost daily it seems. The tiny goes to Dr Starlanyl website specifically where she writes about fibromyalgia syndrome.And some aggravating fellow-travelers I can say many are not even aware exist : myofascial, cmp complex, and trigger points (tender points are different altogether). It is in large type and for those not wanting long reads, if I printed this out, it would stretch 4 or 5 pages Gimpi Definition : fibromyalgia , myofascial pain syndrome http://tinyurl.com/a6f3h Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 1987 that is about the time I first heard about Chronic fituge syndrome. And I asked my aunt if maybe I had it.. And she siad no..... I was to young and there was not reason for me to think such a thing... Even though I'd been through a very bad accident that left me in a wheel chair for several months and with Hep C..I also had two children under 3 years old at the time I think I have been on a slow road to this state for a very long time... -- its news to me I have been researching for someone for some months, someone recently-thoughtfully put a link to Dr Devin Starlanyl website in the links section . Some time ago I found the url and explored her site. Wow, I learned something new. Maybe it is old news to some, but you are amassing new members almost daily it seems. The tiny goes to Dr Starlanyl website specifically where she writes about fibromyalgia syndrome.And some aggravating fellow-travelers I can say many are not even aware exist : myofascial, cmp complex, and trigger points (tender points are different altogether). It is in large type and for those not wanting long reads, if I printed this out, it would stretch 4 or 5 pages Gimpi Definition : fibromyalgia , myofascial pain syndrome http://tinyurl.com/a6f3h Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I think that they used to call it " Tired Housewife Syndrome " At least that is what they told me I had 30 years ago. > > 1987 that is about the time I first heard about Chronic fituge syndrome. And > I asked my aunt if maybe I had it.. And she siad no..... I was to young and > there was not reason for me to think such a thing... Even though I'd been > through a very bad accident that left me in a wheel chair for several months > and with Hep C..I also had two children under 3 years old at the time > I think I have been on a slow road to this state for a very long time... > > > -- its news to me > > I have been researching for someone for some months, someone > recently-thoughtfully put a link to Dr Devin Starlanyl website in the links > section . Some time ago I found the url and explored her site. Wow, I > learned something new. Maybe it is old news to some, but you are amassing > new members almost daily it seems. > The tiny goes to Dr Starlanyl website specifically where she writes about > fibromyalgia syndrome.And some aggravating fellow-travelers I can say many > are not even aware exist : myofascial, cmp complex, and trigger points > (tender points are different altogether). > It is in large type and for those not wanting long reads, if I printed this > out, it would stretch 4 or 5 pages > Gimpi > Definition : fibromyalgia , myofascial pain syndrome > http://tinyurl.com/a6f3h > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I agree if you try to exercise be careful. If it continually hurts then you need to stop, take a deep breath and reassess. God Bless you and yours God Bless America Love ya, Gail -- its news to me I have been researching for someone for some months, someone recently-thoughtfully put a link to Dr Devin Starlanyl website in the links section . Some time ago I found the url and explored her site. Wow, I learned something new. Maybe it is old news to some, but you are amassing new members almost daily it seems. The tiny goes to Dr Starlanyl website specifically where she writes about fibromyalgia syndrome.And some aggravating fellow-travelers I can say many are not even aware exist : myofascial, cmp complex, and trigger points (tender points are different altogether). It is in large type and for those not wanting long reads, if I printed this out, it would stretch 4 or 5 pages Gimpi Definition : fibromyalgia , myofascial pain syndrome http://tinyurl.com/a6f3h Yahoo! PhotosGot holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Kelli - I have the same experience with exercise. Another annoying thing. We are all different and all react differently to different treatments. I've tried exercising by starting a little, I've tried everything under the sun. I've decided that just going to the grocery store, post office and walking upstairs and doing laundry - all of which exhausts me to the bone, is probably enough for me right now. But every now and then, I try again. And end up in bed completely immobilized for days on end which doesn't accomplish anything in my life - even low-level exercise. I'm hoping this will change eventually! KathyKelli Bragg wrote: If people have an Fibro/Chronic Fatigue overlap, "exercising through the pain" may do more harm than good because of (1) the cellular level deficiencies associated with Chronic Fatigue portion of the FMS/CFS combo that exercise exacerbates, and/or if you (2) have heart problems [the recent cardiac myopathy research] that Dr. Cheney has defined. Graduated Exercise Programs in Great Britain have done irrepairable harm to some fibro/chronic fatigue patients (@ Remedyfind, one man describes how he is now bed-bound because of it; at another Fibro forum, Brits describe their poorer health due to the GEP's). If you can exercise and you feel better afterwards, then you should do it. If, however, you feel worse, listen to your body. Exercise capability might even change over time. I used to be able to exercise; now, I can't, as although my pain levels have remained roughly the same over the past 10 years, my fatigue has increased too much to do so. Sad part is, I love exercising. I miss lifiting weights; I miss using the treadmill; I miss doing my Voight videos. Some people, who see improvement through their fibro treatments, might be able to add exercise now when they weren't able to before. Just don't want people out there killing themselves exercising if it's only going to make them worse. Gail Kubik wrote: "In 1987, the American Medical Association (AMA), recognized FMS as a true illness and a major cause of disability. Now, more than ten years later, it is still ,unfortunately, too often dismissed as the "newest fad disease", and most physicians still lack the training to diagnose and treat it." neve; Well it is informative but the information is almost 10 yeas old already. We all know we have to exercise. Even when it hurts. It was in interesting read and thank you for bringing it to my attention. I had no idea FM was recognized back in 1887. God Bless you and yours God Bless America Love ya, Gail -- its news to me I have been researching for someone for some months, someone recently-thoughtfully put a link to Dr Devin Starlanyl website in the links section . Some time ago I found the url and explored her site. Wow, I learned something new. Maybe it is old news to some, but you are amassing new members almost daily it seems. The tiny goes to Dr Starlanyl website specifically where she writes about fibromyalgia syndrome.And some aggravating fellow-travelers I can say many are not even aware exist : myofascial, cmp complex, and trigger points (tender points are different altogether). It is in large type and for those not wanting long reads, if I printed this out, it would stretch 4 or 5 pages Gimpi Definition : fibromyalgia , myofascial pain syndrome http://tinyurl.com/a6f3h Yahoo! PhotosGot holiday prints? See all the ways to get quality prints in your hands ASAP. Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 I too experience severe pain that lasts for days when I "exercise". I am bedridden with pain and fatigue for about a week minimum if I really do a workout. It takes me a week to do laundry because it's located in the basement and we are 3 floors up. I can't take all the up and down the stairs at once so I change out loads as I come in and out of the house. Thank goodness our tenants are two 19 yr olds who still have their mommies do their laundry!! -Hannah On Sat, 14 Jan 2006 07:21 , ' W. Heyner' sent: Kelli - I have the same experience with exercise. Another annoying thing. We are all different and all react differently to different treatments. I've tried exercising by starting a little, I've tried everything under the sun. I've decided that just going to the grocery store, post office and walking upstairs and doing laundry - all of which exhausts me to the bone, is probably enough for me right now. But every now and then, I try again. And end up in bed completely immobilized for days on end which doesn't accomplish anything in my life - even low-level exercise. I'm hoping this will change eventually! Kathy Quote Link to comment Share on other sites More sharing options...
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