Re: no one takes this seriously!

[Guest guest]

Deb

Have a huge nose sore in my lsft side of my nose. I've had it for about two years. It gets a little better then a little worse.

God Bless you and yours

God Bless America

Love ya,

Gail

-- Re: no one takes this seriously!

Yikes! I have what I think is a cold sore in my nose right now. I have one on my upper lip , so I assumed they are the same thing. Did you ever get cold sores in your nose? deb

[Guest guest]

Kathy;

Yes I think the same thing. My daughter says I'm miss diagnosed . I mean I get in soo much pain that I think wow this has to be ms or lupus. Also every one says they are so tired they don't want to do anything. I want to do stuff but I physically can't. The pain is horrid.

God Bless you and yours

God Bless America

Love ya,

Gail

-- Re: no one takes this seriously!

Actually that is when I came out of the closet about it. Two of my cousins who are 2 and 4 years younger than I am came down with similar symptoms and their families were going nuts so I figured I should tell them. It turns out the one has lupus though but some of the syptoms she is experiencing are very similiar to FMS.is>> Next time a relative responds like that tell them its hereditary and > they are going to get it too! Now I know it isnt proven but it would > be worth it to see the look on their faces ! lol Oh I can be as mean > as the next guy when you pull my string.( watch out relatives! )> deb>

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[Guest guest]

My fiance and I keep getting what we call pimples on the inside of our nose.

They hurt badly... but are not anything like the cold sores found on the

mouth

I am not sure what causes it

Re: no one takes this seriously!

> Yikes! I have what I think is a cold sore in my nose right now. I

> have one on my upper lip , so I assumed they are the same thing. Did

> you ever get cold sores in your nose?

>

> deb

>

>

>

>

>

> 1. While it is wonderful to share our experiences with everyone on the

list as to what treatments do and don't work for us, pls always check with

your dr. Some treatments are dangerous when given along with other meds as

well as to certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

don't be afraid to ask for help. It is the first step to trying to make

that situation better.

>

> 3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at

the same time when it comes to flares and b/c of that potentially take

something another member says the wrong way. And that includes the things

that one member may find funny (even if it's laughing at fibro itself) even

though we who deal with illness whether one such as fibro or multiple

illnesses try to keep a sense of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day

pls let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

>

[Guest guest]

me either Rewa, it sounds like abscesses

God Bless you and yours

God Bless America

Love ya,

Gail

-- Re: no one takes this seriously!

My fiance and I keep getting what we call pimples on the inside of our nose.They hurt badly... but are not anything like the cold sores found on themouthI am not sure what causes it Re: no one takes this seriously!> Yikes! I have what I think is a cold sore in my nose right now. I> have one on my upper lip , so I assumed they are the same thing. Did> you ever get cold sores in your nose?>> deb>>>>>> 1. While it is wonderful to share our experiences with everyone on thelist as to what treatments do and don't work for us, pls always check withyour dr. Some treatments are dangerous when given along with other meds aswell as to certain health conditions or just dangerous in general.>> 2. If you are in a difficult situation (doesn't matter what it is) plsdon't be afraid to ask for help. It is the first step to trying to makethat situation better.>> 3. To unsubscribe the e-mail is:Fibromyalgia_Support_Group-unsubscribe >> 4. Also, it is not uncommon for more than one member to be feeling bad atthe same time when it comes to flares and b/c of that potentially takesomething another member says the wrong way. And that includes the thingsthat one member may find funny (even if it's laughing at fibro itself) eventhough we who deal with illness whether one such as fibro or multipleillnesses try to keep a sense of humor.>> 5. Pls let's be gentle with each other, and if you are having a bad daypls let us know so that we can do our best to offer our support.>> Have a nice day everyone.>>

[Guest guest]

Gail, I get tested for Lupus every 6 months and I actually hope it comes out positive! I've considered the spinal tap, because I think the double vision and swallowing problems and a few other symptoms fit more with MS, but my doctors insist that the MRI's were clean and I "just" have FMS. Yeah, if they had it, I don't suppose it would be "just" FMS, right? I think the most difficult part for me is all of the responsibilities I have (a son still in high school, a daughter getting married, an active church which doesn't understand at all, and 8 pets that, of course, the mother ends up taking care of, not to mention the husband who tried to understand but gets tired of working and buying groceries when I'm this sick, too). I try to keep up with them, but I cry a lot, not just because of the pain, which is bad, but I have other symptoms that make me feel so sick. Plus, I never know when my knees will give out, so I have to walk with a cane - and when

you look pretty good, you get all sorts of stares, you know? Sometimes, the responsibilities are so overwhelming, I just want to run away where no one demands anything of me and I can just rest. I'm not lazy, I just don't feel good!!! Nobody "gets" that. Awww, I'm just cranky because I feel so lousy and I have a whole week of responsibilities ahead of me I'm not sure how I'm going to negotiate. And no, I've already tapped out my support resources, so there's no other help, unless I pay for it and that's kind of hard when you are living on one income! I always feel like I'm backed into a corner, you know? Probably doesn't help the flare, either,does it? God bless you, Gail. KathyGail Kubik wrote: Kathy; Yes I think the same thing. My daughter says I'm miss diagnosed . I mean I get in soo much pain that I think wow this has to be ms or lupus. Also every one says they are so tired they don't want to do anything. I want to do stuff but I physically can't. The pain is horrid. God Bless you and yours God Bless America Love ya, Gail -- Re: no one takes this seriously! Actually that is when I came out of the closet about it. Two of my cousins who are 2 and 4 years younger than I am came down with similar symptoms and their families were going nuts so I figured I should tell them. It turns out the one has lupus though but some of the syptoms she is experiencing are very similiar to FMS.is>> Next time a relative responds like that tell them its hereditary and > they are going to get it too! Now I know it isnt proven but it would > be worth it to see the look on their faces ! lol Oh I can be as mean > as the next guy when you pull my string.(

watch out relatives! )> deb> __________________________________________________

[Guest guest]

Oh Kristy ! Thats awful. I also got mine starting as a child. One

worked its way all the way around my mouth. I was miserable. They dont

just make the skin at the site hurt, they make you feel sick like a

mini flu. Once you have them it lives on forver in the nerve ganglion.

deb

[Guest guest]

Kathy;

I hear every word. I have been my grand daughters care taker since she was born. My Daughter works. Now this past March my daughter and grand daughter moved in with me. My daughter is under terrible stress but having read those symptoms Again Thank you (but I had to copy and paste

Definition : fibromyalgia , myofascial pain syndrome because the link wouldn't work for me) I am thinking my daughter has FM as well. I'm a sort of Lemon aid person. When life gives you lemons make lemon aid .

My daughter isn't. So I am pinch hitting 24/7 with my grand daughter. I love my children to death so that is not a problem. The problem is I can't physically do what I want. It sucks big time. But I never cry. I just do what I have to and that makes my family think its not serious. My mom will give me the well if your busy or I don't want to bother you guilt trip, hahahaha.

We have to ask God to let enough Doctors get FM that they push for better testing and treatments. (Mean aren't I?)

Every one!!! Feel better

God Bless you and yours

God Bless America

Love ya,

Gail

-- Re: no one takes this seriously!

Actually that is when I came out of the closet about it. Two of my cousins who are 2 and 4 years younger than I am came down with similar symptoms and their families were going nuts so I figured I should tell them. It turns out the one has lupus though but some of the syptoms she is experiencing are very similiar to FMS.is>> Next time a relative responds like that tell them its hereditary and > they are going to get it too! Now I know it isnt proven but it would > be worth it to see the look on their faces ! lol Oh I can be as mean > as the next guy when you pull my string.( watch out relatives! )> deb>

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[Guest guest]

Not mean at all, Gail. I doubt there is an FMS sufferer (especially me - read my doctor story I sent to Vicki :), who wishes this malady on their doctor. I, too, am a Christian and feel God has given me this thorn for a reason. I pray for healing, but it just seems to get worse. As for you doing what you have to, I just had a session about this with my therapist yesterday because my daughter (who also has symptoms of FMS but flashes at me if I mention them to her - having seen my life, she absolutely hates me for possibly giving it to her - but she's only 19, so I can still forgive her is getting married and I am again, in meltdown. He asked me a question. He asked me who I think believes I have this disease. I told him I knew he believed I had it, my husband and my best friend also. Period. And they are always telling me to back down so I won't suffer so much. Then he asked me if I believe I have the disease. Well, I have to tell you, Gail, it really set me back on my

haunches. I had to admit to him that I'm not sure whether or not I've bought into all the hype and that there are times I actually think I am imagining my own pain and perhaps I am doing something to bring on the symptoms!!! That's about as far as we got, but he really got me thinking. Do we, as FMS sufferers, accept the limitations of our disease, because the world at large and the medical community have no idea and, I think, subliminally put it in our heads, that this is some fantasy disease? Some of us (me included) act like martyrs and try to continue to live like the normals as much as we can. In my case, it does me great harm, I'm sure, because I think I'm exacerbating the symptoms with the stress I put myself under. Being a Type A personality with a very wonderful, stressful career behind me doesn't help! Anyway, I hope you give yourself a break and let your daughter know that you suffer, too. Pot calling the kettle black, my dear. My worst

trait - acknowledging that I need help, too . Gentle hugs, KathyGail Kubik wrote: Kathy; I hear every word. I have been my grand daughters care taker since she was born. My Daughter works. Now this past March my daughter and grand daughter moved in with me. My daughter is under terrible stress but having read those symptoms Again Thank you (but I had to copy and paste Definition : fibromyalgia , myofascial pain syndrome because the link wouldn't work for me) I am

thinking my daughter has FM as well. I'm a sort of Lemon aid person. When life gives you lemons make lemon aid . My daughter isn't. So I am pinch hitting 24/7 with my grand daughter. I love my children to death so that is not a problem. The problem is I can't physically do what I want. It sucks big time. But I never cry. I just do what I have to and that makes my family think its not serious. My mom will give me the well if your busy or I don't want to bother you guilt trip, hahahaha. We have to ask God to let enough Doctors get FM that they push for better testing and treatments. (Mean aren't I?) Every one!!! Feel better God Bless you and yours God Bless America Love ya, Gail -- Re: no one takes this seriously! Actually that is when I came out of the closet about it. Two of my cousins who are 2 and 4 years younger than I am came down with similar symptoms and their families were going nuts so I figured I should tell them. It turns out the one has lupus though but some of the syptoms she is experiencing are very similiar to

FMS.is>> Next time a relative responds like that tell them its hereditary and > they are going to get it too! Now I know it isnt proven but it would > be worth it to see the look on their faces ! lol Oh I can be as mean > as the next guy when you pull my string.( watch out relatives! )> deb> __________________________________________________