Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 > Hi all and welcome back to standard time. Today is my favorite day > of the year. Dark comes one hour sooner. As a golf pro who works at > the club until dark, I get home sooner. Same pay too !!!. > > Question... arch supports. Who should I see? Podiatrist, > neurologist, family doctor, ? What should I look for as far as > material etc. general or specific info would help me. > > Thanks for the support. I read " the mail " . It helps. Thanks > > Dick S Dick, In my experience the neurologist won't do very much in terms of " aids " . That's not their specialty. Your best bet is with a podiatrist or orthotist - someone whose main task is focused on evaluating feet, legs and walking gait to determine the best aid possible to enhance and correct function. Your family doctor may be able to direct you or if you are going to an MDA clinic they usually have an orthotist on staff who handles orthotic aids. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 In a message dated 10/29/00 11:16:12 PM Eastern Standard Time, swolfnc2@... writes: << Question... arch supports. Who should I see? Podiatrist, neurologist, family doctor, ? What should I look for as far as material etc. general or specific info would help me. >> I don't know where you are in your disability, but I would look to a pedorthist or orthortist? E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 In a message dated 10/30/2000 7:59:34 AM Central Standard Time, warrenre@... writes: > MDA clinic they usually > have an orthotist on staff who handles orthotic aids. > > Ruth > In Lafayette, LA all we have is a doctor and a nurse. I guess the funds don't trickle down all the way here.! My orthopedic doctor prescribes aids and AFO's. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 > In a message dated 10/30/2000 7:59:34 AM Central Standard Time, > warrenre@h... writes: > > > > MDA clinic they usually > > have an orthotist on staff who handles orthotic aids. > > > > Ruth > > > > In Lafayette, LA all we have is a doctor and a nurse. I guess the funds don't > trickle down all the way here.! My orthopedic doctor prescribes aids and > AFO's. > C You know, the term " on staff " that I used is probably misleading. What I meant is that the MDA clinic here at Duke forwards patients on to departments on site at Duke that work with the clinic and handle a lot of the MDA-related physical therapy and orthotic needs. All of the medical departments we (katey and I) have seen so far fall under the heading " Private Diagnostic Clinic " , which I think is an umbrella organization for a huge network of outpatient clinics available at Duke for a very wide spectrum of diseases. It is a HUGE system. Belive me, when a mistake gets made in paperwork here at Duke, it can take a year or more to get it corrected. I am guessing the different clinics share the services of physical therapy, orthopedics, etc... That being said, I am pretty sure that the availability of MDA money is different in different parts of the country. The money raised stays in the region it was raised in, and some areas raise much more money than others due to factors such as population, business involvement, and ongoing research (which fuels local interest and support). Ruth Warren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 > > In a message dated 10/30/2000 7:59:34 AM Central Standard Time, > > warrenre@h... writes: > > > > > > > MDA clinic they usually > > > have an orthotist on staff who handles orthotic aids. > > > > > > Ruth > > > > > > > In Lafayette, LA all we have is a doctor and a nurse. I guess the > funds don't > > trickle down all the way here.! My orthopedic doctor prescribes > aids and > > AFO's. > > C > > You know, the term " on staff " that I used is probably misleading. > What I meant is that the MDA clinic here at Duke forwards patients on > to departments on site at Duke that work with the clinic and handle a > lot of the MDA-related physical therapy and orthotic needs. > All of the medical departments we (katey and I) have seen so far fall > under the heading " Private Diagnostic Clinic " , which I think is an > umbrella organization for a huge network of outpatient clinics > available at Duke for a very wide spectrum of diseases. It is a HUGE > system. Belive me, when a mistake gets made in paperwork here at > Duke, it can take a year or more to get it corrected. I am guessing > the different clinics share the services of physical therapy, > orthopedics, etc... > > That being said, I am pretty sure that the availability of MDA money > is different in different parts of the country. The money raised > stays in the region it was raised in, and some areas raise much more > money than others due to factors such as population, business > involvement, and ongoing research (which fuels local interest and > support). > > Ruth Warren Ruth, Dick S. here I have seen Dr.Morgenlander at Duke. You say they would refer within the " organization " ? Has your experience with them been good? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 > Ruth, > Dick S. here > > I have seen Dr.Morgenlander at Duke. You say they would refer within > the " organization " ? Has your experience with them been good? Dick, My daughter and I have seen Dr. Tim (neurologist), Dr. Fitch (pediatric orthopedist), and Harvey ???? a registered orthotist. (Sorry, can't remember Harvey's last name but he is in the Prosthetics and Orthotics Department). We have also seen Case, a pediatric physical therapist. Dr. Tim has moved to private practice since our last visit to the MDA clinic in May. We have not yet seen the new MDA neurologist. I have been pleased with our MDA/Duke experience so far. It's not perfect, but it has met our needs. I finally gave in and got a pair of AFOs about 2 years ago. Harvey ??? made them for me, and he was referred to me by the MDA clinic. He is said to be the best on staff there for making AFO's - mine are extremely comfortable. Dr. Tim took a great interest in my family because we are Type 2 (subtype unknown) and Duke is doing extensive research on Type 2s trying to locate the defective genes. With Dr. Tim's help, (aiding the research of Dr. Vance) my family was linked into an existing family currently under study at Duke and also the largest documented family on record with CMT. Unfortunately, they have not yet been able to identify the gene in my family. Like I said, so far the MDA clinic at Duke has met our needs. It's a huge system and that can be frustrating at times, but I like the coordination of care we have received so far. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2001 Report Share Posted August 8, 2001 Hey a The smiley faces on the tennis shoes is such a cute idea. We would write the letter " L " and " R " on the tongue of his sneaker(inside). He would always say, " L " -LEFT and " R " - RIGHT!! We do not mark his sneakers anymore, but he does remember what shoe goes on what foot. Thanks for the idea!!!! Kathy Quote Link to comment Share on other sites More sharing options...
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