Re: Mono - MoJo

[Guest guest]

li,

I agree - I am fortunate to have my boys, especially since when I was

diagnosed almost 17 years ago the doctors didn't think my kidneys could

handle even one pregnancy. Now two were planned, the third one just

challenged all the medical knowledge and said " here I come " and we are happy

he did.

Arek was checked last Friday, and he is definitely not contagious anymore as

his throat is all clear. His spleen is ok as well and the pediatrician

thinks we caught it just at the very end. Now he just need a little more

time to get back to normal. His appetite is also better. I'll keep him home

this week and send him to school next week. The little guys seem to go

through it a lot better than older kids.

I'll end this message at that. I had the worse headache for the last three

days. I take ampitryline on a regular basis and then Imitrex when needed,

but this was really out of hand. I couldn't move, everything was swimming

and my eyes hurt real bad. I'm trying to catch up with the correspondence,

but I don't think I'll have much luck.

Thanks for your " input " .

Mojo

Mono - MoJo

> Hi Mojo,

>

> I hope this goes through - I have no idea if my letters came through -

> actually I can't even remember if they [or it] did. My brain doesn't

> seem to work anymore. I guess if no one responds again, I will see.

>

> Anyway... I have been saying for years, that a lot of people with

> Lupus, have had Mono. I believe I caught Mono from my x, and mine

> just sort of... turned into Lupus. That does *not* mean your son

> will have Lupus :-) no, no. But it is strange how many of us with

> Lupus have had Mono.... like maybe there is indeed a genetic thing

> going on where if you mix just the right thing... we end up with

> this.

>

> Please excuse my font if it is messed up. I don't know what is wrong

> with my computer; it has been doing this for months. Maybe it is the

> keyboard that is bad.

>

> Hope your son get's well - what an awful thing to have, especially

> for a kid. It takes so long to recover from it.

>

> Also - ask around; have there been a lot of kids/people in a specific

> area with it? It seems to " break out " in clusters like that. That's

> how it was when I got it. I am the only one that I know of, that

> developed Lupus though; others ended up with CFS or even FM, which

> CFS is what I thought I had for years... before I was dx'd with

> Lupus.

>

> You are so fortunate to have 3 children after being dx'd!! I lost all

> of my babies, due to the Lupus blood clotting problem mostly, or the

> Lupus itself attacking. Of course back then I wasn't even being

> treated for it yet, as no docs really believed I was even ill. That

> was... about 12 years ago.

>

> xo li

> ----- Original Message -----

>

>

>

> Hey a B:

>

> Thanks for the advice. I will know by Thursday whether it's just a

> change in his personality together with a bad time of the year, or

> really something going on. I'll make sure I rinse Arek in some bleach

> every time I wash him (hahaha). I've been pretty lucky, not to get

> too many infections being on chemo, especially since my kids have not

> spared me with different things over the year. I hope I get lucky

> this time again. How do you do it? This morning Arek was giving me a

> wet kiss on my mouth, because he wanted to show me he loved me. I

> can't turn away! No way! How would I feel if I wanted to show my

> hubby I loved him and he would turn away from me? And Arek doesn't

> understand " mommy is sick " . He just sees mommy turning away from him.

> And then, more so when they're sick, you want to cuddle them and give

> them all the TLC you can. I can't put on a mask. I'm just hoping it's

> not mono and I won't have to worry.

>

> Mojo

>

>

>

>

>

>

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