Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 THIS IS SUCH A BUSY GROUP I KINDA HATE TO ASK QUESTIONS. PLEASE FEEL FREE TO IGNORE THIS POST IF YOU DON'T HAVE THE TIME OR INCLINATION TO REPLY. WHEN YOU THINK BACK TO THE ONSET OF YOUR ILLNESS - WHAT DO YOU THINK CAUSED YOU TO BECOME SICK? FOR ME I HAD BEEN UNDER TREMENDOUS STRESS FOR A PROLONGED PERIOD - THEN ON A TRIP TO CANADA - GOT SICK FROM MOSQUITO BITES - CAME BACK - WENT TO DR. AND OUT OF 8 OF US - 3 OF US TESTED POSITIVE FOR MONO - BEEN DOWN HILL FOR ME EVER SINCE. 1 OF US HAS RECOVERED COMPLETELY. THE OTHER WAS DX'D AS FIBROMYALGA. STRANGE HUH? I HAVE THE MOST TROUBLE WITH HEADACHES, MUSCLE AND JOINT PAIN SOMETIMES JUST CAN'T WALK. HAVE THE CFIDS FOG/FLU ALMOST ALL THE TIME NOW. HOW ABOUT YOU? WHAT DO YOU DO FOR IT TO GET RELIEF IF YOU CAN GET ANY AT ALL? HAVE HAD EXTENSIVE DENTAL PROBLEMS - STARTING WITH TMJ - CLENCHED SO HARD I ACTUALLY BROKE MOLARS - HAD LOTS OF EXTRACTIONS AND AM WAITING TO HEAL UP TO GET IMPLANTS AND PARTIALS. I KNOW SOME OF YOU HAVE SHARED THE JOYS OF DENTAL WORK. DO YOU THINK THE DD CAUSED THE TROUBLE? DOES ANYONE ELSE HAVE PROBLEMS WITH ALLERGIC REACTIONS TO ANTIBIOTICS? HAVE HAD SEVERE REACTIONS SINCE DECEMBER. HAVE BEEN HAVING TROUBLE WITH A CHRONIC SINUS INFECTION SINCE NOVEMBER - CAUGHT A COLD FROM MY SON AND STARTED IT. AFTER REACTING TO EVERY ANTIBIOTIC THEY GAVE ME - I THEN GOT A CHRONIC YEAST INFECTION IN DIGESTIVE TRACT. CANDIDA ALBICONS. CAN'T GET RID OF IT EITHER AND HAVE BEEN ON 5 DIFF. ANTIFUNGALS WHICH TEAR THE SYSTEM UP EVEN MORE. I'VE AN APPT. WITH AN ENT IN JUNE AND HOPE FOR SOME RELIEF. WOULD APPRECIATE ANY EXPERIENCE OR ADVICE ANYONE ELSE HAS TO SHARE ON THIS SUBJECT. TRIAL AND ERROR, TRIAL AND ERROR SO FAR! I HAVE ALSO GOTTEN CAUGHT UP IN A STRANGE CYCLE OF SLEEP - FOR THE LIFE OF ME I CAN ONLY REST ABOUT 3 HRS. THEN WAKE UP AND CAN'T GET BACK TO SLEEP. I'VE STAYED AWAKE FOR 12 AND SOMETIMES 16 HRS. FORCING MYSELF NOT TO SLEEP - THEN TRY TO REST AND SAME THING. EVEN MEDS ARE NOT WORKING. ANY IDEAS? I KNOW FROM THE POSTS MANY OF YOU HAVE BEEN DEALING WITH SOME OF THESE THINGS LONGER THAN I HAVE - IF YOU FEEL LIKE SHARING I'D APPRECIATE IT. IF NOT PLEASE DON'T THINK A THING ELSE ABOUT IT. MOST OF YOU HAVE YOUR HANDS FULL AS IT IS. JUST THOUGHT I'D ASK! JUST LOOKING FOR ANY POSSIBILITIES THAT MY DR.S HAVE OVERLOOKED AND HOPING FOR SOME HELPFUL ADVICE. THANKS IN ADVANCE (THIS WAS PROBABLY REPETITIVE AND BORING) MARCY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 MARCY TO ANSWER SOME OF YOUR QUESTIONS. I GOTHURT AT WORK MY RIGHT SIDE WAS NUMB OR MORE LIKE ASLEEP FOR 3 MONTHS WHEN THE FEELING CAME BACK IT WAS IN THE FORM OF PAIN THAT HAS NEVER LEFT. I WAS TOLD FOR YEARS IT WAS ALL IN MY HEAD. AS FOR HEADACHES I DON'T HAVE MANY OF THEM JUST WHEN MY NECK GETS REALLY STIFF THENITS LIKE A NAGGING ACHE. I HAVE HAD A SINSUS INFECTION FOR THE LAST 5 YEARS THEY SAY IS CAUSED BY ALLERGIES. I HAVE ALLERGIES TO MEDS THAT I USED TO BE ABLE TO TAKE I HAVE ALLERGIES TO MY ALLERGIES I THINK LOL. I AM SORE FROM THE TOP OF MY HEAD TO THE TIPS OF MY TOES BUT I HAVE OSTEOPOROSIS, OSTEOARTHRITIS, DEGENERATIVE JOINT DISEASE. I LOST ALL OF MY TEETH DUE TO OSTEOPORSIS WHEN I WAS 30. SO I DON'T HAVE THE DENTAL PROBLEMS. WITH THESE DDS EVERY ONE HAS DIFFERENT SYMPTOMS. ALSO WHAT WORKS FOR ONE OF US DON'T HELP THE OTHERS.WE EACH HAVE TO LEARN WHAT WORKS FOR US ALL TRIAL AND ERROR SO IT TAKES A WHILE. SAME WITH DEALING WITH AND LEARNING TO LIVE WITH THESE DDS ITS ONE DAY AT A TIME ONE STEP AT ATIME. IF YOU DON'T ASK QUESTIONS HOW ARE YOU GOING TO FIND OUT ANYTHING AND WE ARE NEVER TOO BUSY TO ANSWER QUESTIONS. THATS ALL I CAN REMEMBER RIGHT NOW IF I MISSED ANYTHING LET ME KNOW. LUV JO http://community.webtv.net/jowaca/JOSFAVORITEPICTURES THIS IS SUCH A BUSY GROUP I KINDA HATE TO ASK QUESTIONS. PLEASE FEEL FREE TO IGNORE THIS POST IF YOU DON'T HAVE THE TIME OR INCLINATION TO REPLY. WHEN YOU THINK BACK TO THE ONSET OF YOUR ILLNESS - WHAT DO YOU THINK CAUSED YOU TO BECOME SICK? FOR ME I HAD BEEN UNDER TREMENDOUS STRESS FOR A PROLONGED PERIOD - THEN ON A TRIP TO CANADA - GOT SICK FROM MOSQUITO BITES - CAME BACK - WENT TO DR. AND OUT OF 8 OF US - 3 OF US TESTED POSITIVE FOR MONO - BEEN DOWN HILL FOR ME EVER SINCE. 1 OF US HAS RECOVERED COMPLETELY. THE OTHER WAS DX'D AS FIBROMYALGA. STRANGE HUH? I HAVE THE MOST TROUBLE WITH HEADACHES, MUSCLE AND JOINT PAIN SOMETIMES JUST CAN'T WALK. HAVE THE CFIDS FOG/FLU ALMOST ALL THE TIME NOW. HOW ABOUT YOU? WHAT DO YOU DO FOR IT TO GET RELIEF IF YOU CAN GET ANY AT ALL? HAVE HAD EXTENSIVE DENTAL PROBLEMS - STARTING WITH TMJ - CLENCHED SO HARD I ACTUALLY BROKE MOLARS - HAD LOTS OF EXTRACTIONS AND AM WAITING TO HEAL UP TO GET IMPLANTS AND PARTIALS. I KNOW SOME OF YOU HAVE SHARED THE JOYS OF DENTAL WORK. DO YOU THINK THE DD CAUSED THE TROUBLE? DOES ANYONE ELSE HAVE PROBLEMS WITH ALLERGIC REACTIONS TO ANTIBIOTICS? HAVE HAD SEVERE REACTIONS SINCE DECEMBER. HAVE BEEN HAVING TROUBLE WITH A CHRONIC SINUS INFECTION SINCE NOVEMBER - CAUGHT A COLD FROM MY SON AND STARTED IT. AFTER REACTING TO EVERY ANTIBIOTIC THEY GAVE ME - I THEN GOT A CHRONIC YEAST INFECTION IN DIGESTIVE TRACT. CANDIDA ALBICONS. CAN'T GET RID OF IT EITHER AND HAVE BEEN ON 5 DIFF. ANTIFUNGALS WHICH TEAR THE SYSTEM UP EVEN MORE. I'VE AN APPT. WITH AN ENT IN JUNE AND HOPE FOR SOME RELIEF. WOULD APPRECIATE ANY EXPERIENCE OR ADVICE ANYONE ELSE HAS TO SHARE ON THIS SUBJECT. TRIAL AND ERROR, TRIAL AND ERROR SO FAR! I HAVE ALSO GOTTEN CAUGHT UP IN A STRANGE CYCLE OF SLEEP - FOR THE LIFE OF ME I CAN ONLY REST ABOUT 3 HRS. THEN WAKE UP AND CAN'T GET BACK TO SLEEP. I'VE STAYED AWAKE FOR 12 AND SOMETIMES 16 HRS. FORCING MYSELF NOT TO SLEEP - THEN TRY TO REST AND SAME THING. EVEN MEDS ARE NOT WORKING. ANY IDEAS? I KNOW FROM THE POSTS MANY OF YOU HAVE BEEN DEALING WITH SOME OF THESE THINGS LONGER THAN I HAVE - IF YOU FEEL LIKE SHARING I'D APPRECIATE IT. IF NOT PLEASE DON'T THINK A THING ELSE ABOUT IT. MOST OF YOU HAVE YOUR HANDS FULL AS IT IS. JUST THOUGHT I'D ASK! JUST LOOKING FOR ANY POSSIBILITIES THAT MY DR.S HAVE OVERLOOKED AND HOPING FOR SOME HELPFUL ADVICE. THANKS IN ADVANCE (THIS WAS PROBABLY REPETITIVE AND BORING) MARCY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 JO - BLESS YOU FOR ANSWERING AND YOU SO BUSY RIGHT NOW. SO FAR IT SEEMS TO ME MOST FOLKS CAN TRACE BACKWARDS TO SOME SORT OF TRAMA - THEN THE DOWNHILL SLIDE. IT ALSO SEEMS LIKE THE MEDICAL SYSTEM IS SO SLOW TO RESPOND. WHY WOULD ANYONE GO TO THE DR. AND SPEND TIME AND MONEY FOR SOMETHING THAT'S ALL IN THEIR HEAD? BY THE TIME WE DEVELOP MORE SYMPTOMS THAN BEING TIRED AND GENERAL FEELING OF BEING UNWELL, WE'RE IN SO MUCH PAIN THAT IT'S IMPOSSIBLE TO CONTROL. THE MEDICAL SYSTEM AND THE INSURANCE PEOPLE HAVE NO REAL IDEA OF THE HAVIC THEY WREAK IN A SICK PERSON'S LIFE. IT SEEMS TO ME IT WOULD BE CHEAPER IN THE LONG RUN TO GET US TAKEN CARE OF UP FRONT INSTEAD OF SENDING US THROUGH SO MANY HOOPS! ANYWAY, IT HELPS ME TO TRY TO UNDERSTAND THE HOW'S AND WHY'S WHILE I'M TRYING TO ADJUST MY LIFE TO ALL THIS! THANK YOU, MARCY Re: I HAVE QUESTIONS??? MARCY TO ANSWER SOME OF YOUR QUESTIONS. I GOTHURT AT WORK MY RIGHT SIDEWAS NUMB OR MORE LIKE ASLEEP FOR 3 MONTHS WHEN THE FEELING CAME BACK ITWAS IN THE FORM OF PAIN THAT HAS NEVER LEFT. I WAS TOLD FOR YEARS IT WASALL IN MY HEAD. AS FOR HEADACHES I DON'T HAVE MANY OF THEM JUST WHEN MYNECK GETS REALLY STIFF THENITS LIKE A NAGGING ACHE. I HAVE HAD A SINSUSINFECTION FOR THE LAST 5 YEARS THEY SAY IS CAUSED BY ALLERGIES. I HAVEALLERGIES TO MEDS THAT I USED TO BE ABLE TO TAKE I HAVE ALLERGIES TO MYALLERGIES I THINK LOL. I AM SORE FROM THE TOP OF MY HEAD TO THE TIPS OFMY TOES BUT I HAVE OSTEOPOROSIS, OSTEOARTHRITIS, DEGENERATIVE JOINTDISEASE. I LOST ALL OF MY TEETH DUE TO OSTEOPORSIS WHEN I WAS 30. SO IDON'T HAVE THE DENTAL PROBLEMS. WITH THESE DDS EVERY ONE HAS DIFFERENTSYMPTOMS. ALSO WHAT WORKS FOR ONE OF US DON'T HELP THE OTHERS.WE EACHHAVE TO LEARN WHAT WORKS FOR US ALL TRIAL AND ERROR SO IT TAKES A WHILE.SAME WITH DEALING WITH AND LEARNING TO LIVE WITH THESE DDS ITS ONE DAYAT A TIME ONE STEP AT ATIME. IF YOU DON'T ASK QUESTIONS HOW ARE YOUGOING TO FIND OUT ANYTHING AND WE ARE NEVER TOO BUSY TO ANSWERQUESTIONS. THATS ALL I CAN REMEMBER RIGHT NOW IF I MISSED ANYTHING LETME KNOW. LUV JO http://community.webtv.net/jowaca/JOSFAVORITEPICTURES Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 HI MARCY-- I DONT THINK THAT MY ANWERS TO YOUR QUESTIONS WILL HELP ANY BUT I THOUGHT I'D GIVE IT A TRY. MY CFS/FM CAME AFTER A BAAAAD DEPRESSION. THE DEPRESSION WAS TRIGGERED BY BEING SURROUNDED BY A LOT OF DEATH AT ONE TIME. THEN I GOT A SINUS INFECTION, WHICH I USED TO GET REGULARLY) AND IT NEVER WENT AWAY. IT GREW INTO THIS--I REALLY DONT KNOW IF ANY OF THIS IS MEDICALLY POSSIBLE, I JUST KNOW THAT IT IS WHAT HAPPENED TO ME. I THINK THERE IS A GENETIC CONNECTION WIT HTHIS DD--MY GRANDFATHER HAD IT FOR 6 YEARS IN THE EARLY TO MID 1980S AND MY MOM HAS DEPRESSION AND A LOT OF CFS/FM SYMPTOMS. SHE JUST ISNT AS SICK AS ME. I GUESS SHE GETS SICK DIFFERENTLY--WITH SHINGLES AND THINGS LIKE THAT. SORRY--I SEEM TO HAVE GOTTEN OFF TRACK. AS YOU KNOW I HAVE BAD HEADACHES, MUSCLE PAIN, AND THE REST. THATS MY STORY--SORRY IT WAS SO UNHELPFUL! ROSE __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 MARCY, ASK AWAY ANY QUESTIONS. THE ONE THING ABOUT THIS DD IS MOST OF US HAVE FORGOTTEN IF THE QUESTION HAS ALREADY BEEN ASKED BEFORE, LOL... I THINK MINE STARTED BACK IN 1978 WHEN I HAD A ROTTEN BIRTHING EXPERIENCE WITH MY FIRST SON. IT HAS BEEN DOWNHILL FOR ME EVER SINCE. IF YOU WANT MORE DETAILS LET ME KNOW. THAT IS WEIRD ABOUT THE MOSQUITOES AND YOU ALL GETTING SICK. CINDY > THIS IS SUCH A BUSY GROUP I KINDA HATE TO ASK QUESTIONS. PLEASE FEEL FREE TO IGNORE THIS POST IF YOU DON'T HAVE THE TIME OR INCLINATION TO REPLY. > > WHEN YOU THINK BACK TO THE ONSET OF YOUR ILLNESS - WHAT DO YOU THINK CAUSED YOU TO BECOME SICK? > FOR ME I HAD BEEN UNDER TREMENDOUS STRESS FOR A PROLONGED PERIOD - THEN ON A TRIP TO CANADA - GOT SICK FROM MOSQUITO BITES - CAME BACK - WENT TO DR. AND OUT OF 8 OF US - 3 OF US TESTED POSITIVE FOR MONO - BEEN DOWN HILL FOR ME EVER SINCE. 1 OF US HAS RECOVERED COMPLETELY. THE OTHER WAS DX'D AS FIBROMYALGA. STRANGE HUH? > > I HAVE THE MOST TROUBLE WITH HEADACHES, MUSCLE AND JOINT PAIN SOMETIMES JUST CAN'T WALK. HAVE THE CFIDS FOG/FLU ALMOST ALL THE TIME NOW. > HOW ABOUT YOU? WHAT DO YOU DO FOR IT TO GET RELIEF IF YOU CAN GET ANY AT ALL? > > HAVE HAD EXTENSIVE DENTAL PROBLEMS - STARTING WITH TMJ - CLENCHED SO HARD I ACTUALLY BROKE MOLARS - HAD LOTS OF EXTRACTIONS AND AM WAITING TO HEAL UP TO GET IMPLANTS AND PARTIALS. I KNOW SOME OF YOU HAVE SHARED THE JOYS OF DENTAL WORK. > DO YOU THINK THE DD CAUSED THE TROUBLE? > > DOES ANYONE ELSE HAVE PROBLEMS WITH ALLERGIC REACTIONS TO ANTIBIOTICS? HAVE HAD SEVERE REACTIONS SINCE DECEMBER. > > HAVE BEEN HAVING TROUBLE WITH A CHRONIC SINUS INFECTION SINCE NOVEMBER - CAUGHT A COLD FROM MY SON AND STARTED IT. AFTER REACTING TO EVERY ANTIBIOTIC THEY GAVE ME - I THEN GOT A CHRONIC YEAST INFECTION IN DIGESTIVE TRACT. CANDIDA ALBICONS. CAN'T GET RID OF IT EITHER AND HAVE BEEN ON 5 DIFF. ANTIFUNGALS WHICH TEAR THE SYSTEM UP EVEN MORE. I'VE AN APPT. WITH AN ENT IN JUNE AND HOPE FOR SOME RELIEF. WOULD APPRECIATE ANY EXPERIENCE OR ADVICE ANYONE ELSE HAS TO SHARE ON THIS SUBJECT. TRIAL AND ERROR, TRIAL AND ERROR SO FAR! > > I HAVE ALSO GOTTEN CAUGHT UP IN A STRANGE CYCLE OF SLEEP - FOR THE LIFE OF ME I CAN ONLY REST ABOUT 3 HRS. THEN WAKE UP AND CAN'T GET BACK TO SLEEP. I'VE STAYED AWAKE FOR 12 AND SOMETIMES 16 HRS. FORCING MYSELF NOT TO SLEEP - THEN TRY TO REST AND SAME THING. EVEN MEDS ARE NOT WORKING. ANY IDEAS? > > I KNOW FROM THE POSTS MANY OF YOU HAVE BEEN DEALING WITH SOME OF THESE THINGS LONGER THAN I HAVE - IF YOU FEEL LIKE SHARING I'D APPRECIATE IT. IF NOT PLEASE DON'T THINK A THING ELSE ABOUT IT. MOST OF YOU HAVE YOUR HANDS FULL AS IT IS. JUST THOUGHT I'D ASK! > > JUST LOOKING FOR ANY POSSIBILITIES THAT MY DR.S HAVE OVERLOOKED AND HOPING FOR SOME HELPFUL ADVICE. > > THANKS IN ADVANCE (THIS WAS PROBABLY REPETITIVE AND BORING) > MARCY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 CINDY - NOW THAT YOU AND ROBIN MENTION IT - BOTH MY BOYS WERE 9# PLUS AND BOTH LABORS WENT INTO ABOVE 30 HRS. NEVER THOUGHT OF THAT BEFORE. THIS IS WHAT I GET FOR ASKING QUESTIONS HUH? I'LL HAVE A LOT TO THINK ABOUT NOW - MAYBE I'LL JUST CHILL AND STOP WONDERING WHY AND WORK ON GETTING ON WITH IT. IT IS ALL INTERESTING THOUGH - THE SIMILARITIES!!! SOMEBODY COULD WRITE A BOOK HERE TOO! MARCY Re: I HAVE QUESTIONS??? MARCY, ASK AWAY ANY QUESTIONS. THE ONE THING ABOUT THIS DD IS MOST OF US HAVE FORGOTTEN IF THE QUESTION HAS ALREADY BEEN ASKED BEFORE, LOL... I THINK MINE STARTED BACK IN 1978 WHEN I HAD A ROTTEN BIRTHING EXPERIENCE WITH MY FIRST SON. IT HAS BEEN DOWNHILL FOR ME EVER SINCE. IF YOU WANT MORE DETAILS LET ME KNOW. THAT IS WEIRD ABOUT THE MOSQUITOES AND YOU ALL GETTING SICK.CINDY> THIS IS SUCH A BUSY GROUP I KINDA HATE TO ASK QUESTIONS. PLEASE FEEL FREE TO IGNORE THIS POST IF YOU DON'T HAVE THE TIME OR INCLINATION TO REPLY.> > WHEN YOU THINK BACK TO THE ONSET OF YOUR ILLNESS - WHAT DO YOU THINK CAUSED YOU TO BECOME SICK?> FOR ME I HAD BEEN UNDER TREMENDOUS STRESS FOR A PROLONGED PERIOD - THEN ON A TRIP TO CANADA - GOT SICK FROM MOSQUITO BITES - CAME BACK - WENT TO DR. AND OUT OF 8 OF US - 3 OF US TESTED POSITIVE FOR MONO - BEEN DOWN HILL FOR ME EVER SINCE. 1 OF US HAS RECOVERED COMPLETELY. THE OTHER WAS DX'D AS FIBROMYALGA. STRANGE HUH?> > I HAVE THE MOST TROUBLE WITH HEADACHES, MUSCLE AND JOINT PAIN SOMETIMES JUST CAN'T WALK. HAVE THE CFIDS FOG/FLU ALMOST ALL THE TIME NOW.> HOW ABOUT YOU? WHAT DO YOU DO FOR IT TO GET RELIEF IF YOU CAN GET ANY AT ALL?> > HAVE HAD EXTENSIVE DENTAL PROBLEMS - STARTING WITH TMJ - CLENCHED SO HARD I ACTUALLY BROKE MOLARS - HAD LOTS OF EXTRACTIONS AND AM WAITING TO HEAL UP TO GET IMPLANTS AND PARTIALS. I KNOW SOME OF YOU HAVE SHARED THE JOYS OF DENTAL WORK. > DO YOU THINK THE DD CAUSED THE TROUBLE?> > DOES ANYONE ELSE HAVE PROBLEMS WITH ALLERGIC REACTIONS TO ANTIBIOTICS? HAVE HAD SEVERE REACTIONS SINCE DECEMBER.> > HAVE BEEN HAVING TROUBLE WITH A CHRONIC SINUS INFECTION SINCE NOVEMBER - CAUGHT A COLD FROM MY SON AND STARTED IT. AFTER REACTING TO EVERY ANTIBIOTIC THEY GAVE ME - I THEN GOT A CHRONIC YEAST INFECTION IN DIGESTIVE TRACT. CANDIDA ALBICONS. CAN'T GET RID OF IT EITHER AND HAVE BEEN ON 5 DIFF. ANTIFUNGALS WHICH TEAR THE SYSTEM UP EVEN MORE. I'VE AN APPT. WITH AN ENT IN JUNE AND HOPE FOR SOME RELIEF. WOULD APPRECIATE ANY EXPERIENCE OR ADVICE ANYONE ELSE HAS TO SHARE ON THIS SUBJECT. TRIAL AND ERROR, TRIAL AND ERROR SO FAR!> > I HAVE ALSO GOTTEN CAUGHT UP IN A STRANGE CYCLE OF SLEEP - FOR THE LIFE OF ME I CAN ONLY REST ABOUT 3 HRS. THEN WAKE UP AND CAN'T GET BACK TO SLEEP. I'VE STAYED AWAKE FOR 12 AND SOMETIMES 16 HRS. FORCING MYSELF NOT TO SLEEP - THEN TRY TO REST AND SAME THING. EVEN MEDS ARE NOT WORKING. ANY IDEAS?> > I KNOW FROM THE POSTS MANY OF YOU HAVE BEEN DEALING WITH SOME OF THESE THINGS LONGER THAN I HAVE - IF YOU FEEL LIKE SHARING I'D APPRECIATE IT. IF NOT PLEASE DON'T THINK A THING ELSE ABOUT IT. MOST OF YOU HAVE YOUR HANDS FULL AS IT IS. JUST THOUGHT I'D ASK!> > JUST LOOKING FOR ANY POSSIBILITIES THAT MY DR.S HAVE OVERLOOKED AND HOPING FOR SOME HELPFUL ADVICE.> > THANKS IN ADVANCE (THIS WAS PROBABLY REPETITIVE AND BORING)> MARCY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 ROSE-MINE WAS ALSO TRIGGERED BY ALOT OF FAMILY MEMBERS DYING PLUS MOM BEING SO SICK GOT DIAGNOSED IN 80 WHICH IS 5 YRS BEFORE MY MOM DIED BUT I ALSO HAD TRAUMA AS A YOUNG CHILD FROM AGES 2 - ABOUT 11--MOLESTED SEXUALLY MY AN UNCLE-WHO I HOPE HAS LEFT THE FACE OF THIS EARTH BY NOW LOVE BETSY HI MARCY-- I DONT THINK THAT MY ANWERS TO YOUR QUESTIONS WILL HELP ANY BUT I THOUGHT I'D GIVE IT A TRY. MY CFS/FM CAME AFTER A BAAAAD DEPRESSION. THE DEPRESSION WAS TRIGGERED BY BEING SURROUNDED BY A LOT OF DEATH AT ONE TIME. THEN I GOT A SINUS INFECTION, WHICH I USED TO GET REGULARLY) AND IT NEVER WENT AWAY. IT GREW INTO THIS--I REALLY DONT KNOW IF ANY OF THIS IS MEDICALLY POSSIBLE, I JUST KNOW THAT IT IS WHAT HAPPENED TO ME. I THINK THERE IS A GENETIC CONNECTION WIT HTHIS DD--MY GRANDFATHER HAD IT FOR 6 YEARS IN THE EARLY TO MID 1980S AND MY MOM HAS DEPRESSION AND A LOT OF CFS/FM SYMPTOMS. SHE JUST ISNT AS SICK AS ME. I GUESS SHE GETS SICK DIFFERENTLY--WITH SHINGLES AND THINGS LIKE THAT. SORRY--I SEEM TO HAVE GOTTEN OFF TRACK. AS YOU KNOW I HAVE BAD HEADACHES, MUSCLE PAIN, AND THE REST. THATS MY STORY--SORRY IT WAS SO UNHELPFUL! ROSE __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 MARCY, I'LL REPLY TO THIS LATER HON GOTTA FIX FOOD FOR THE "KIDS" HUGS SHARON When your up to your butt in alligators, it's hard to remember your 1st objective was to drain the swamp.Sharon -----Original Message-----From: Marcy Bachman Sent: Wednesday, May 22, 2002 9:12 AMTo: cfidsfms-friends Subject: Re: I HAVE QUESTIONS??? THIS IS SUCH A BUSY GROUP I KINDA HATE TO ASK QUESTIONS. PLEASE FEEL FREE TO IGNORE THIS POST IF YOU DON'T HAVE THE TIME OR INCLINATION TO REPLY. WHEN YOU THINK BACK TO THE ONSET OF YOUR ILLNESS - WHAT DO YOU THINK CAUSED YOU TO BECOME SICK? FOR ME I HAD BEEN UNDER TREMENDOUS STRESS FOR A PROLONGED PERIOD - THEN ON A TRIP TO CANADA - GOT SICK FROM MOSQUITO BITES - CAME BACK - WENT TO DR. AND OUT OF 8 OF US - 3 OF US TESTED POSITIVE FOR MONO - BEEN DOWN HILL FOR ME EVER SINCE. 1 OF US HAS RECOVERED COMPLETELY. THE OTHER WAS DX'D AS FIBROMYALGA. STRANGE HUH? I HAVE THE MOST TROUBLE WITH HEADACHES, MUSCLE AND JOINT PAIN SOMETIMES JUST CAN'T WALK. HAVE THE CFIDS FOG/FLU ALMOST ALL THE TIME NOW. HOW ABOUT YOU? WHAT DO YOU DO FOR IT TO GET RELIEF IF YOU CAN GET ANY AT ALL? HAVE HAD EXTENSIVE DENTAL PROBLEMS - STARTING WITH TMJ - CLENCHED SO HARD I ACTUALLY BROKE MOLARS - HAD LOTS OF EXTRACTIONS AND AM WAITING TO HEAL UP TO GET IMPLANTS AND PARTIALS. I KNOW SOME OF YOU HAVE SHARED THE JOYS OF DENTAL WORK. DO YOU THINK THE DD CAUSED THE TROUBLE? DOES ANYONE ELSE HAVE PROBLEMS WITH ALLERGIC REACTIONS TO ANTIBIOTICS? HAVE HAD SEVERE REACTIONS SINCE DECEMBER. HAVE BEEN HAVING TROUBLE WITH A CHRONIC SINUS INFECTION SINCE NOVEMBER - CAUGHT A COLD FROM MY SON AND STARTED IT. AFTER REACTING TO EVERY ANTIBIOTIC THEY GAVE ME - I THEN GOT A CHRONIC YEAST INFECTION IN DIGESTIVE TRACT. CANDIDA ALBICONS. CAN'T GET RID OF IT EITHER AND HAVE BEEN ON 5 DIFF. ANTIFUNGALS WHICH TEAR THE SYSTEM UP EVEN MORE. I'VE AN APPT. WITH AN ENT IN JUNE AND HOPE FOR SOME RELIEF. WOULD APPRECIATE ANY EXPERIENCE OR ADVICE ANYONE ELSE HAS TO SHARE ON THIS SUBJECT. TRIAL AND ERROR, TRIAL AND ERROR SO FAR! I HAVE ALSO GOTTEN CAUGHT UP IN A STRANGE CYCLE OF SLEEP - FOR THE LIFE OF ME I CAN ONLY REST ABOUT 3 HRS. THEN WAKE UP AND CAN'T GET BACK TO SLEEP. I'VE STAYED AWAKE FOR 12 AND SOMETIMES 16 HRS. FORCING MYSELF NOT TO SLEEP - THEN TRY TO REST AND SAME THING. EVEN MEDS ARE NOT WORKING. ANY IDEAS? I KNOW FROM THE POSTS MANY OF YOU HAVE BEEN DEALING WITH SOME OF THESE THINGS LONGER THAN I HAVE - IF YOU FEEL LIKE SHARING I'D APPRECIATE IT. IF NOT PLEASE DON'T THINK A THING ELSE ABOUT IT. MOST OF YOU HAVE YOUR HANDS FULL AS IT IS. JUST THOUGHT I'D ASK! JUST LOOKING FOR ANY POSSIBILITIES THAT MY DR.S HAVE OVERLOOKED AND HOPING FOR SOME HELPFUL ADVICE. THANKS IN ADVANCE (THIS WAS PROBABLY REPETITIVE AND BORING) MARCY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 OK MARCY HERE GOES..............I GOT SICK WHEN I WAS PREGNANT FOR SARAH. 16 YO. MY WHITE COUNT WAS 22,000 AND WENT UP TO 28,000. HAD BONE MARROW BIOPSY AND ALL THAT BUSINESS. NO WASN'T LEUKEMIA, GOT SCIATICA SO BAD I WAS WORKING AS A NURSE HAD TO GO TO PHYSICAL THERAPY TO GET OUT TO MY CAR IN THE GARAGE. HAD SARAH. WHITE COULD WENT BACK TO NORMAL. HAD A YEAR ALMOST AND HAD MY TUBES TIED. GOT FEELING VERY AWFUL AFTER THAT AND NEVER RECOVERED. HAD CHRONIC BRONCHITIS SO BAD COULDN'T GET OFF THE COUCH VERY DIZZY. HAD TWO SMALL KIDS. HAD VERY BAD ACHES AND PAINS WHILE GROWING UP TOLD ME IT WAS GROWING PAINS. I WOULDN'T HAVE GROWN IF I KNEW THAT!! STARTED TO GET STRANGE SYMPTOMS WAS RUSHED TO UP STATE MED FOR A COUPLE DAYS THOUGHT I WAS DYING. DIDN'T WANT TO PUT A LABEL ON IT. DIDN'T KNOW WHAT THE PROBLEM WAS. THAT WAS IN 88. COULDN'T WORK ANYMORE. GOT DIAGNOSED IN 93. GOT SSD IN 90. WHEN SARAH WAS ABOUT 10 MONTHS YOUNG MY NIECE HAD GEORGE ARRESTED AND HAD A COMPLAINT AGAINST HIM.(NOT TRUE) MONTHS BEFORE THAT THE SAME NIECES HUSBAND HAD BEEN ARRESTED FOR ARMED ROBBERY WE WOULDN'T PUT UP BAIL. WHEN I BROUGHT SARAH HOME FOR THE HOSP AFTER C- SECTION. EVERY FEDERAL AGENCY KNOW TO MAN WAS IN MY KITCHEN AND ALL OVER THE PROPERTY LOOKING FOR EVIDENCE. GEE WAS THAT STRESS? THOUGHT I'D LET YOU KNOW HOW STRESS DOES PLAY A MAJOR PART IN THIS DD ALSO EXPOSED TO MANY DISEASES WORKING IN A LOCAL HOSPITAL, WHILE I WAS PREGNANT. AT THAT TIME AIDS PATIENTS WERE ADMITTED BUT IN ORDER TO KNOW ABOUT THAT DIAGNOSES YOU HAD TO READ HISTORY'S AND PHYSICALS OR IT WAS MAYBE MENTIONED IN PASSING..I WORKED IN A MED SURG FLOOR WHERE THEY SENT ALL THE BAD CASES TO. WELL DIRTY ONES. LONG STORY. WE WORKED OUR BUTTS OFF. ANYWAY PROBABLY DIDN'T ANSWER ANY OF YOUR QUESTIONS DID I? NOW AREN'T YOU GLAD YOU ASKED. HUGS SHARON When your up to your butt in alligators, it's hard to remember your 1st objective was to drain the swamp.Sharon -----Original Message-----From: Marcy Bachman Sent: Wednesday, May 22, 2002 9:12 AMTo: cfidsfms-friends Subject: Re: I HAVE QUESTIONS??? THIS IS SUCH A BUSY GROUP I KINDA HATE TO ASK QUESTIONS. PLEASE FEEL FREE TO IGNORE THIS POST IF YOU DON'T HAVE THE TIME OR INCLINATION TO REPLY. WHEN YOU THINK BACK TO THE ONSET OF YOUR ILLNESS - WHAT DO YOU THINK CAUSED YOU TO BECOME SICK? FOR ME I HAD BEEN UNDER TREMENDOUS STRESS FOR A PROLONGED PERIOD - THEN ON A TRIP TO CANADA - GOT SICK FROM MOSQUITO BITES - CAME BACK - WENT TO DR. AND OUT OF 8 OF US - 3 OF US TESTED POSITIVE FOR MONO - BEEN DOWN HILL FOR ME EVER SINCE. 1 OF US HAS RECOVERED COMPLETELY. THE OTHER WAS DX'D AS FIBROMYALGA. STRANGE HUH? I HAVE THE MOST TROUBLE WITH HEADACHES, MUSCLE AND JOINT PAIN SOMETIMES JUST CAN'T WALK. HAVE THE CFIDS FOG/FLU ALMOST ALL THE TIME NOW. HOW ABOUT YOU? WHAT DO YOU DO FOR IT TO GET RELIEF IF YOU CAN GET ANY AT ALL? HAVE HAD EXTENSIVE DENTAL PROBLEMS - STARTING WITH TMJ - CLENCHED SO HARD I ACTUALLY BROKE MOLARS - HAD LOTS OF EXTRACTIONS AND AM WAITING TO HEAL UP TO GET IMPLANTS AND PARTIALS. I KNOW SOME OF YOU HAVE SHARED THE JOYS OF DENTAL WORK. DO YOU THINK THE DD CAUSED THE TROUBLE? DOES ANYONE ELSE HAVE PROBLEMS WITH ALLERGIC REACTIONS TO ANTIBIOTICS? HAVE HAD SEVERE REACTIONS SINCE DECEMBER. HAVE BEEN HAVING TROUBLE WITH A CHRONIC SINUS INFECTION SINCE NOVEMBER - CAUGHT A COLD FROM MY SON AND STARTED IT. AFTER REACTING TO EVERY ANTIBIOTIC THEY GAVE ME - I THEN GOT A CHRONIC YEAST INFECTION IN DIGESTIVE TRACT. CANDIDA ALBICONS. CAN'T GET RID OF IT EITHER AND HAVE BEEN ON 5 DIFF. ANTIFUNGALS WHICH TEAR THE SYSTEM UP EVEN MORE. I'VE AN APPT. WITH AN ENT IN JUNE AND HOPE FOR SOME RELIEF. WOULD APPRECIATE ANY EXPERIENCE OR ADVICE ANYONE ELSE HAS TO SHARE ON THIS SUBJECT. TRIAL AND ERROR, TRIAL AND ERROR SO FAR! I HAVE ALSO GOTTEN CAUGHT UP IN A STRANGE CYCLE OF SLEEP - FOR THE LIFE OF ME I CAN ONLY REST ABOUT 3 HRS. THEN WAKE UP AND CAN'T GET BACK TO SLEEP. I'VE STAYED AWAKE FOR 12 AND SOMETIMES 16 HRS. FORCING MYSELF NOT TO SLEEP - THEN TRY TO REST AND SAME THING. EVEN MEDS ARE NOT WORKING. ANY IDEAS? I KNOW FROM THE POSTS MANY OF YOU HAVE BEEN DEALING WITH SOME OF THESE THINGS LONGER THAN I HAVE - IF YOU FEEL LIKE SHARING I'D APPRECIATE IT. IF NOT PLEASE DON'T THINK A THING ELSE ABOUT IT. MOST OF YOU HAVE YOUR HANDS FULL AS IT IS. JUST THOUGHT I'D ASK! JUST LOOKING FOR ANY POSSIBILITIES THAT MY DR.S HAVE OVERLOOKED AND HOPING FOR SOME HELPFUL ADVICE. THANKS IN ADVANCE (THIS WAS PROBABLY REPETITIVE AND BORING) MARCY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 MARCY, ANYTIME YOU WANT TO ASK, ASK. NO PROBLEM. IF THERE'S THINGS I FORGOT, PLEASE TELL ME. I COULDN'T GO BACK TO WORK BECAUSE MOSTLY THE BRAIN FOG AND THE FATIGUE. I ALSO HAVE TROUBLE WALKING..IT COMES AND GOES JUST LIKE YOU SNAP YOUR FINGERS. MANY OF US HAVE A LOT OF FAMILY HISTORIES. I HAVE MANY GENERATIONS OF ALS IN MY FAMILY. TO MANY TO WANT TO REMEMBER. NO ONES MADE IT OUT ALIVE. DIDN'T KNOW IT UNTIL MY MOM WAS DIAGNOSED BY IT IN 90. SINCE THEN HER BROTHER AND DAUGHTER, MY SISTER MERRY THIS LAST SEPT. When your up to your butt in alligators, it's hard to remember your 1st objective was to drain the swamp. Sharon Re: I HAVE QUESTIONS??? MARCY, ASK AWAY ANY QUESTIONS. THE ONE THING ABOUT THIS DD IS MOST OF US HAVE FORGOTTEN IF THE QUESTION HAS ALREADY BEEN ASKED BEFORE, LOL... I THINK MINE STARTED BACK IN 1978 WHEN I HAD A ROTTEN BIRTHING EXPERIENCE WITH MY FIRST SON. IT HAS BEEN DOWNHILL FOR ME EVER SINCE. IF YOU WANT MORE DETAILS LET ME KNOW. THAT IS WEIRD ABOUT THE MOSQUITOES AND YOU ALL GETTING SICK. CINDY > THIS IS SUCH A BUSY GROUP I KINDA HATE TO ASK QUESTIONS. PLEASE FEEL FREE TO IGNORE THIS POST IF YOU DON'T HAVE THE TIME OR INCLINATION TO REPLY. > > WHEN YOU THINK BACK TO THE ONSET OF YOUR ILLNESS - WHAT DO YOU THINK CAUSED YOU TO BECOME SICK? > FOR ME I HAD BEEN UNDER TREMENDOUS STRESS FOR A PROLONGED PERIOD - THEN ON A TRIP TO CANADA - GOT SICK FROM MOSQUITO BITES - CAME BACK - WENT TO DR. AND OUT OF 8 OF US - 3 OF US TESTED POSITIVE FOR MONO - BEEN DOWN HILL FOR ME EVER SINCE. 1 OF US HAS RECOVERED COMPLETELY. THE OTHER WAS DX'D AS FIBROMYALGA. STRANGE HUH? > > I HAVE THE MOST TROUBLE WITH HEADACHES, MUSCLE AND JOINT PAIN SOMETIMES JUST CAN'T WALK. HAVE THE CFIDS FOG/FLU ALMOST ALL THE TIME NOW. > HOW ABOUT YOU? WHAT DO YOU DO FOR IT TO GET RELIEF IF YOU CAN GET ANY AT ALL? > > HAVE HAD EXTENSIVE DENTAL PROBLEMS - STARTING WITH TMJ - CLENCHED SO HARD I ACTUALLY BROKE MOLARS - HAD LOTS OF EXTRACTIONS AND AM WAITING TO HEAL UP TO GET IMPLANTS AND PARTIALS. I KNOW SOME OF YOU HAVE SHARED THE JOYS OF DENTAL WORK. > DO YOU THINK THE DD CAUSED THE TROUBLE? > > DOES ANYONE ELSE HAVE PROBLEMS WITH ALLERGIC REACTIONS TO ANTIBIOTICS? HAVE HAD SEVERE REACTIONS SINCE DECEMBER. > > HAVE BEEN HAVING TROUBLE WITH A CHRONIC SINUS INFECTION SINCE NOVEMBER - CAUGHT A COLD FROM MY SON AND STARTED IT. AFTER REACTING TO EVERY ANTIBIOTIC THEY GAVE ME - I THEN GOT A CHRONIC YEAST INFECTION IN DIGESTIVE TRACT. CANDIDA ALBICONS. CAN'T GET RID OF IT EITHER AND HAVE BEEN ON 5 DIFF. ANTIFUNGALS WHICH TEAR THE SYSTEM UP EVEN MORE. I'VE AN APPT. WITH AN ENT IN JUNE AND HOPE FOR SOME RELIEF. WOULD APPRECIATE ANY EXPERIENCE OR ADVICE ANYONE ELSE HAS TO SHARE ON THIS SUBJECT. TRIAL AND ERROR, TRIAL AND ERROR SO FAR! > > I HAVE ALSO GOTTEN CAUGHT UP IN A STRANGE CYCLE OF SLEEP - FOR THE LIFE OF ME I CAN ONLY REST ABOUT 3 HRS. THEN WAKE UP AND CAN'T GET BACK TO SLEEP. I'VE STAYED AWAKE FOR 12 AND SOMETIMES 16 HRS. FORCING MYSELF NOT TO SLEEP - THEN TRY TO REST AND SAME THING. EVEN MEDS ARE NOT WORKING. ANY IDEAS? > > I KNOW FROM THE POSTS MANY OF YOU HAVE BEEN DEALING WITH SOME OF THESE THINGS LONGER THAN I HAVE - IF YOU FEEL LIKE SHARING I'D APPRECIATE IT. IF NOT PLEASE DON'T THINK A THING ELSE ABOUT IT. MOST OF YOU HAVE YOUR HANDS FULL AS IT IS. JUST THOUGHT I'D ASK! > > JUST LOOKING FOR ANY POSSIBILITIES THAT MY DR.S HAVE OVERLOOKED AND HOPING FOR SOME HELPFUL ADVICE. > > THANKS IN ADVANCE (THIS WAS PROBABLY REPETITIVE AND BORING) > MARCY Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.