Re: painful white patch

October 11, 2001

Hi Jillian

I have a daughter age 14, Cassie, with suspected mito. The closest we've

come to something like this was back when Cassie was about 9-10 yrs old.

Cassie was having trouble with slight swelling, slight fever in the area of

swelling which was in her left elbow. Don't recall any color changes. She

complained of pain in that area. Took her to the doctor, but couldn't make

much of it at the time. The doctor thought we may have bumped it some how.

It wasn't until she started to develop mottling in both arms and some lose

of function in the left hand, that the doctor then had her under go a venous

doppler study which checked for blood clots. Since that checked out fine,

he then referred us to a pediatric neurologist. The neurologist also

questioned about the possibility of bumping the arm. I told her on occasion

we would accidentally bump it on a door frame when carrying her, but nothing

major. She then thought that maybe it was a possible variant of Reflex

Sympathetic Dystrophy. This is a condition that may come on if the limb had

encountered a serious blow such as a fall. The blow from the fall can bring

on painful episodes or a condition. No one really was of much help. All I

know is that Cassie's weakness/loss of function started this way and then

just slowly progessed, but the pain involved seemed to subside. I HOPE this

is not what you are facing. I'll pray that it isn't. Take Care

painful white patch

> hi all , i wonder if anyone has ever heard of this, today daniel had a

very

> painful event with his r. arm, it wasnt triggered by anything, ( activity

> etc.) the upper outside of his arm suddenly started hurting, he was unable

> to raise it and had problems holding a pen and writing, this whole event

> lasted in the acute phase approx. 2hrs. and what was interesting was that

> the whole area was blanched white ( didnt changed colour when he pressed

the

> area with his finger) of course he didnt call me so i didnt hear about it

> until after school ( 5hrs. later !!!) when it was much improved but still

> hurt to touch.?? He has had a similar " blanching " with pain on his

chest

> last year, and because of the location (as he does have a cardiac issue )i

> took him to childrens hosp. they thought at that time ? blood clot

?????????

> but said they had never seen anything like it before as there was no

> swelling,( just pain and a large patch of white , about the size of 2

adult

> hands) so we do not have a dx. on this one, any ideas would be great, and

> yes i should give the kid heck for not telling me, his excuse was , " i was

a

> bit worried mommy, so i thought youd notice that and take me to the

drs.and

> i knew it wasnt my heart , because it was my right arm , not my left "

> !!!!!!!!!!! hes probably right ! thank you , take care all, jillian,

> daniels mom.

>

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October 11, 2001

Hi again Jillian,

It hit me that on ocassion that Cassie will also have moments where she will

have white blotchy spots on her shins from time to time. She doesn't

complain about it. Its just weird. Can be there one day, gone the next.

Go figure. They are usually the size of a thumbprint. She has lost a great

deal of function within her body, especially the left side. Sorry, not

very promising again.