Re: Belinda

[Guest guest]

Belinda,

Welcome to the list. You will find out more information here than you could

ever dream of. And people see to have answers or suggestions for any

questions you may have.

You will learn techniques, medicines, and hear from very compasionate and

also knowledgable people.

Hang on..........your ride is about to begin.

[Guest guest]

Thanks , I see what you mean!

B

Re: Belinda

>

> Belinda,

> Welcome to the list. You will find out more information

here than you could

> ever dream of. And people see to have answers or

suggestions for any

> questions you may have.

> You will learn techniques, medicines, and hear from very

compasionate and

> also knowledgable people.

>

> Hang on..........your ride is about to begin.

>

>

>

>

[Guest guest]

Belinda,

Here are two good websites for Shy-Drager and MSA (newer name for SDS) actually

MSA-P sounds like the newer name for it.

http://freepages.health.rootsweb.com/~charmayn/links.html

http://www.wenet.net/%7Eccjm/shy-drager/

Depending on your mother's symptoms it may still be early to diagnose it

properly. This is not a specific disease, only a set of symptoms. For some

reason still unknown at this time brain cells die in different parts of the

brain and create the problems. MSA is considered a Parkinson's Plus disorder.

Not many doctors (even neurologists) know a lot about MSA. Your best bet is a

" movement disorder specialist " probably either in Trenton or New York City. The

main thing to to find a doctor who will work with her to relieve as many of the

symptoms as possible. Another place to look is at a State Medical College for

neurology.

You mentioned orthostatic hypotension this AM and it is when your BP drops on

sitting or standing, it may respond to Florinef or Midodrine. Remember too that

if her BP goes way up when reclining, you can lower the BP by raising the head

of the bed 6-8 inches. Bp in the sitting position may be normal while it may go

to 170/100 or higher laying down and may drop to 70/40 or lower when standing.

Many here use Prilosec or Prevacid for GERD it is common with MSA.

Ask questions about specific problems and we can help more.

Take care, Bill and Charlotte Werre in Herndon, VA

--------------------------------------------------------

Belinda Joyce wrote:

> I just signed up to the list last night and received so much

> information and stories already! Thank you all!

>

> I'm wondering about the blood pressure. I've read that some

> people have a lower blood pressure than normal. The doctor

> wants us to keep an eye on the pressure for the next week or

> so while trying to give my mother (in law) low doses of

> Sinemet again to help with mobility. What is a normal blood

> pressure in this disease?

>

> She is also diabetic so I'm worrying about the weight

> problem. She has GERD (gastroesphogeal reflux disease) and

> has started having stomach problems. I noticed her appetite

> was low becuase of upset stomach. She is on so many

> medications because of other medical conditions (heart as

> well), I'm hoping that all it is. But, she says she has

> felt this way for over a year! She has to eat due to the

> diabetes. She is seeing Gastro next week. Any suggestions

> on what to ask him in relation to Shy-Drager?

>

> Thanks for any help.

> Belinda