Guest guest Posted July 31, 2000 Report Share Posted July 31, 2000 Welcome to this excusive organisation. It seem that we are priveliged/cursed/unlucky to belong.This is such a rare disease/complaint,I had certainly never heard of it,or new nothing about it. I have learnt a lot from this group,although I never post anything.I have also leart a lot about it from experiencing it,one thing seems commmon,and that is no two people seem to be the same. Although most things seem to come around. Where are you from?I'm from outside Shepparton,don't know anyone else from Vic. there may be.I feel that I know Bill & Ford,they are from over Bega way and correspond quite regularly,I am 54 will be 55 on the 26th, Aug. there seems to be a lot about this age with MSA .You will need support,I feel lucky to have my wife to support me.But it's hard on the careres,it's hard on everyone,but "thems the breaks",everyone is very supportive. Good luck & may your God be with you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Hi I am from Horsham in it really is not far from Shepparton. All I know about this disease that it is a horrible thing to have and I pray that it does not get really bad. My neurologist has said that I have it in a mild form and may stay the same or I could get worse. But want I have read of MSA it does progressively get worse. I do have my mum as support but she is getting on in years and if I did get really bad she could not look after me. My brother has his farm and my two other sisters have their lives. But at the moment they have been really supportive. I have cried alot about having this mongrel thing and I know I may be up against a lot more than I anticipate. But I am taking each day as it comes. Bye for now and thanks for your comforting words. Kind regards Kerri > Welcome to this excusive organisation. > It seem that we are priveliged/cursed/unlucky to belong.This is such a rare disease/complaint,I had certainly never heard of it,or new nothing about it. I have learnt a lot from this group,although I never post anything.I have also leart a lot about it from experiencing it,one thing seems commmon,and that is no two people seem to be the same. Although most things seem to come around. > Where are you from?I'm from outside Shepparton,don't know anyone else from Vic. there may be.I feel that I know Bill & Ford,they are from over Bega way and correspond quite regularly,I am 54 will be 55 on the 26th, Aug. there seems to be a lot about this age with MSA .You will need support,I feel lucky to have my wife to support me.But it's hard on the careres,it's hard on everyone,but " thems the breaks " ,everyone is very supportive. > > Good luck & may your God be with you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2000 Report Share Posted August 1, 2000 Kerri, With daily exercise to maintain range of motion and use of aids you can still be many years from dependance on anyone. If you later have balance problems a wheelchair can provide mobility and safety. Just remember that if you do start falling, go to the wheelchair before you break a hip or something like that. Broken bones can really set you back and take LOTS of therapy to come back. Anne, who is north of you in Queensland has had it for 20 years and still walking. Hang in there and do your exercises. Take care, Bill and Charlotte in Herndon, Virginia, USA (just west of Washington, DC) --------------------------------------------------------- ciscokid@... wrote: > Hi > I am from Horsham in it really is not far from Shepparton. > All I know about this disease that it is a horrible thing to have and > I pray that it does not get really bad. My neurologist has said that > I have it in a mild form and may stay the same or I could get worse. > But want I have read of MSA it does progressively get worse. I do > have my mum as support but she is getting on in years and if I did > get > really bad she could not look after me. My brother has his farm and > my two other sisters have their lives. But at the moment they have > been really supportive. I have cried alot about having this mongrel > thing and I know I may be up against a lot more than I anticipate. > But I am taking each day as it comes. > > Bye for now and thanks for your comforting words. > > Kind regards > > Kerri > > > > Welcome to this excusive organisation. > > It seem that we are priveliged/cursed/unlucky to belong.This is > such > a rare disease/complaint,I had certainly never heard of it,or new > nothing about it. I have learnt a lot from this group,although I > never > post anything.I have also leart a lot about it from experiencing > it,one thing seems commmon,and that is no two people seem to be the > same. Although most things seem to come around. > > Where are you from?I'm from outside Shepparton,don't know anyone > else from Vic. there may be.I feel that I know Bill & > Ford,they are from over Bega way and correspond quite regularly,I am > 54 will be 55 on the 26th, Aug. there seems to be a lot about this > age > with MSA .You will need support,I feel lucky to have my wife to > support me.But it's hard on the careres,it's hard on everyone,but > " thems the breaks " ,everyone is very supportive. > > > > Good luck & may your God be with you, Quote Link to comment Share on other sites More sharing options...
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