Guest guest Posted June 2, 2002 Report Share Posted June 2, 2002 <<All I know is 6 years ago I didn't even know any of this existed and I was happy and expecting our new baby. :-( >> , Sending hugs...... I'm right there with ya. Six years ago, I was blissfully, happily six months pregnant with Katera.... a perfect little girl. (Or so the amniocentisis said.) My girl.... after three boys! Then, a perfect birth and a wonderful first seventeen days..... before her first seizure. Then two years of hell.... not knowing.... drugs, misdiagnoses, lost MRI films, mean neurologists, more therapists and specialists than I can count using all my fingers and toes... blah, blah, blah. No one could figure out why she was so delayed and why the seizures kept coming until she was TWO years old and they realized they had misread a film 21 months previously and overlooked a missing brain part. Boy, do I know what you're feeling. (Sorry..... sounds like I'm venting a little pent up emotion!! You inspired me!) We have to look for small miracles now....don't we? I keep hoping Katera will walk some day.... or say a simple sentence. I know what you mean about your mood changing, too.... you feel so wonderful on those good days and crash so low on the bad ones. I'm hoping you and Karly have much more wonderful days to come....... (((((((((((()))))))))))) Patti, mom to Katera.....who will be six years old on Sept. 1st (partial agenesis of the corpus callosum, microcephaly, global delays, tethered spinal cord- surgery coming up June 7th) in Washington state. Quote Link to comment Share on other sites More sharing options...
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