Guest guest Posted February 5, 1999 Report Share Posted February 5, 1999 In a message dated 2/4/99 11:47:37 AM Eastern Standard Time, springmountain@... writes: << I'm wondering if you have any suggestions as to how to stop the condition to getting worse? What you would do at my stage? >> , You are so lucky. And I'm happy for you cause there is stuff you can do to help control rosacea. Just using a sun screen, even a hat, is a big help. Being gentle with your skin - using products that make your skin say AAAHHH. Keep tracking triggers and take them seriously. The more you can avoid flushing, the milder your rosacea is. Find a derm who understands the relationship between seb/derm and rosacea and will treat both. Aspirin helps in a flare. Antihistamines are worth their weight in gold if you can take them. I take Claritin daily and it's made a big difference to me. Zrytec seems to be more effective, though. Good luck. Esther ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2000 Report Share Posted February 21, 2000 First of all, welcome . I am sorry I am late welcoming you. You have had such struggles. I hope that we can help you here. I send links and information pages so that we can all read up on the illness. I will send some tonight for you. Glad to have you here. List Moderator, karen wrote: > > > Hello everyoneI just joined your list tonight in hopes of finding some info aboutthis disease that I was recently diagnosed with. I am 40 yrs. old andsince Jan. 99 I was diagnosed with endometriosis after having apartial hyst in 1989. In May of 99 I had additional surgery ofablation of endo and a presacral neurectomy. at this point I had nouterus and no ovaries, but the gyn that removed my ovaries in Jan. 99left ovarian remenants ehind and endo continued to grow attaching mycolon and intestines to my pelvic floor. By may 99 I had stage 4 endodue to ignorance of the gyn who did my surgery in Jan. 99! Then inJuly 99 I had cystolcele and rectocele surgery because my bladderdropped and a herniated rectum. Tried going back to work in Aug. 99and struggled till Dec.99 with muscle and joint pain beyond beliefalong with sleeplessness, chronic fatigue! I was diagnosed withfibromyalgia this month and I also believe that I am hypoglocemic dueto hands trembling and shaking inside after eating > sweets or evensausage gravy > > ------------------------------------------------------------------------ > Looking for the best new sites on the Web? eTour.com is a FREE > service that brings great websites right to you - matched to your > own unique interests. It's like having a personal remote control > for the Internet! > http://click./1/1675/1/_/_/_/951035210/ > ------------------------------------------------------------------------ > > VIP > Add or view links about fibro/CFS. > http://www.onelist.com/links/ > > TO unsubscribe. > Go to: http://www.onelist.com/ Log in: > Go to this list: Click on your name: Select your choice. > > LIST OWNER:oa2@... -- :0) An argument with your spouse is a loving moment lost forever. Mom to Bear, Wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2000 Report Share Posted February 21, 2000 - Welcome. You definitely have found a great place to get information on fibro. My name is Tonya and I was diagnosed with possible fibro last month, while my husband Marty was diagnosed a couple of years ago. There is a wide variety of medications for pain. I take Darvocet and also Neurontin (for Restless Leg Syndrome). Marty takes several things including Vicodin and Celebrex. Unfortunately, there is no one thing that works for everyone. I hope that you are able to find something that works for you. Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Dee Thank you for that confirmation! I only use the darvocet when I absolutely need it and I don't take it if I don't need it. I have only been on darvocet for 3 months and out of a prescription of 90 I still have more than half left. I am sure I would have taken more if I were addicted to keep the pain down. The celebrex helps me for most of the day till about 3:00 depending on how active I was that day. At this point a little rest helps and when it doesn't and the calves of my leggs spasm I have to take the darvocet or the spasms just get worse. I then take two flexeril at bedtime and my morning stiffness is somewhat better. Then I take my Celebrex every morning and the cycle begins again. Sorry to be so long winded! I feel like you know where I'm coming from! I hope you have had a good day! The Mann's and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2000 Report Share Posted March 13, 2000 At 11:46 PM 3/10/00 -0500, you wrote: >From: kgmann@... > >Dee > >Thank you for that confirmation! I only use the darvocet when I >absolutely need it and I don't take it if I don't need it. I have only >been on darvocet for 3 months and out of a prescription of 90 I still >have more than half left. I am sure I would have taken more if I were >addicted to keep the pain down. The celebrex helps me for most of the >day till about 3:00 depending on how active I was that day. At this >point a little rest helps and when it doesn't and the calves of my leggs >spasm I have to take the darvocet or the spasms just get worse. >I then take two flexeril at bedtime and my morning stiffness is somewhat >better. Then I take my Celebrex every morning and the cycle begins >again. Sorry to be so long winded! I feel like you know where I'm coming >from! I hope you have had a good day! > > >The Mann's > and >Sure do understand.....and glad it was reassuring. I have had a lot of experience with " addictive " stuff....Valium is addictive they tell me but I go days without it until I need it and never even think about it. I have a friend on Demerol and it's the same for her....she has built up a bit of tolerance for it but when she has minimal pain she skips it and doesn't think about it....it just takes a bigger dose to cut the pain than it did four years ago....so tell the Dr to get real!!!! Dee > >------------------------------------------------------------------------ >GET A NEXTCARD VISA, in 30 seconds! Get rates >as low as 0.0% Intro APR and no hidden fees. >Apply NOW! >http://click./1/975/2/_/442796/_/952750234/ >------------------------------------------------------------------------ > > >VIP >Add or view links about fibro/CFS. >http://www.onelist.com/links/ > >TO unsubscribe. >Go to: http://www.onelist.com/ Log in: >Go to this list: Click on your name: Select your choice. > >LIST OWNER:oa2@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Cath, A little late but wanted to WELCOME you to our ever growing family. Hugs, Carla K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 Cath, A little late but wanted to WELCOME you to our ever growing family. Hugs, Carla K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2002 Report Share Posted January 20, 2002 Premindy: Not everyone wears those socks ( Teds as we call them). I did not and after one week I had no swelling nor need for them. My surgeon said that they would not be necessary. No need for you to request the discomfort of Teds if they are not necessary. Vette Oshkosh Wisconsin USA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 i wanted to introduce myself. i am foster mom to a 16yr old named hassan. he has multiple medical problems and cerebral palsy. he has been on a ketogenic diet for over 5 years. he has been fed the diet via g-tube, which was placed in order to help him tolerate the diet. hassan has had many major medical problems that started after he had been on the diet for a few years, including nephratic syndrome, aspirations, vomiting..had a fundo done a year ago, this spring he was diagnosed with stomach dysmotility and now has j-tube. He spent the last 21/2 months in the hospital on tpn feedings so was not on ketogenic diet. went into status 4 times while in hospital and multiple seizure each day. now that he is home he is having about 1 tc seizure a week mostly when in his sleep late at night. we have never been able to wean him off the med, still on depakote, tegretol and neurontin, in addition to diastat for prolonged seizures. i am interested in talking to others who have experience with children who have complex medical issues in addition to the seizure disorder. i am also interested in chatting with folks who have had or known someone on the diet for more then 3 years. thanks for letting me be a part of your group maggie Quote Link to comment Share on other sites More sharing options...
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