Guest guest Posted June 19, 2002 Report Share Posted June 19, 2002 Hey guys, I have been pretty busy and stressed so I haven't been online and when I did finally get near the computer I ended up erasing all my saved messages.....you know it is going to be a bad night when....! Yes I did it I am on Zoloft, I have to wait for it to kick in but I am on it. 5 days. I weaned my little sweetie....she was 23mths old. It was a sweet ending, she went on and off for a few days so I called it quits.....we had a weening send off/party....I put some music on and talked to her and cried...it was sad. I didn't want to but it was time. But I have lost the one thing Autism couldn't take away.(sniff) Lately she has really got the short end of the stick but that is a whole different story. Feeling lots of guilt cause she can't have or do so many things because of my limitations with Ben. <big sigh> Well Bens IEP went as expected....nothing ugly happened just they didn't give me what I wanted so I called in the state mediator. Want to know a secret...I found out when you call the state for a mediator the take your info IE: School, district and so on right....and the assign you one. Well what I also found out is that in the whole state of CA our school district is the only one with a " permante " mediator...in the whole state....how many school districts are there???? This is what they were offering us for Ben..... Full Inclusion with a " classroom aide " ...yes I know not 1 to 1 aide.....can we say " MEDIATION " ? Speech didn't change 2x a week for 20 mins. OT 1 our a week. Oh ya ESY with a " classroom aide " . Needless to say not happy about it. We pushed for full in clusion but after touring the class and finding out at the high point of the day there would 30-36 students in there with the " classroom aide " That was a laugh. No way no how, Ben is not going there. I will keep him home first. One of our stipulations(we go in with our own list of demands and suggestions) was the aide would be trained/have work experience with autistic children.....they won't guarnantee it there we are signing. Two really funny things were said to me... 1st....IEP meeting.... " Oh the aide will learn from the teacher " this is the same teacher who teaches kindergarten and who isn't trained in " Autism " ...so the aide will learn what???? 2nd...Met one of the teachers....she may or may not be Ben's teacher in the fall ....it is all decide in Aug...she says to me... " Oh I had a child once with a disablity and I had handle bars put in the bathroom " ....ok and this woman was told I was coming by to see the class room...I just stared at her and thought.... " Hmmm handle bars huh? Ya he could use them to climb to the top shelf and get down the soap " ..... It freaked me out and made me realize these people have no clue what Autism is. Good news is that Ben is on the intake progress for Stars school ....you know ABILLS and Mark Sundberg(SP)...I toured the school and liked it alot. So I am crossing my fingers that he gets in for SEPT if not the boy is staying home with me. ESY doesn't look any better ....2 hrs a day with a trained assistant and the ratio is 20:1...glorified day care I think is the term here. I am going to check it out but again if they are not trained with Autism they aren't getting my child. So there is what is new....kind of down cause me and hubby have been fighting about this and nothing at all cause we are so stressed with having to read up on laws ~ treatment ~ mediation ~ touring schools..... man this can be hard on a marriage. But we love each other and things are better. Tether .....ok you wise ladies.....my good friend lent me her Tether and I love it......I need one but the store she bought it from is closed so I am hoping you can help.....it looks like this.....there is a strap around my waist and a seperate strap around his waist. We are connected by a strap that has a circle metal piece on his end and one my end so he can run around me with out tripping any one.. Make sense??? So here is my sorrid tale. I sure hope this zoloft kicks in soon. Thanks for letting me ramble. Thats it! ===== TTFN Wife to Mom to Ben (aka Gozilla) 5yrs HFA/AS On call milk machine to Abby(aka ....stinkerbell) 21MTHS NT __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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