Re: Worse after taking methotrexate? /

[Guest guest]

Hi -

 

Yeah, I too feel like crap after the MTX, but mine is usually 3-4 days worth. I

dread Thursday nights when I take it. Because I know the next few days will

suck. I am just trusting that in the long term, this will help me. I have yet to

get the referral to a Rheumy from the inept staff at my GPs office. It's been 10

days now- no call. I call them, and I get the " I'll let ya know when I know

something' yap. I will be changing GPs. I refuse to be treated this way.

 

Since I am woefully ignorant about this chemical that I am putting in my body, I

am gonna have to trust the Doc for now. The treatment plan I am on seems in line

with the Gold Standard. Including the MTX. I am on 40 mgs of Prednisone now as

well as Mobic. Hopefully, the Rheumy can explain  to me what the MTX does , and

why I need it.. Or perhaps , you have a laymans explanation for what the

drug does?

 

in SC

 

Along this same line, I am finding that the day after I take methotrexate

(20mg), I feel like total crap. My whole body hurts, my joints hurt, blah

blah blah. Does anyone else experience this? I take folic acid, and am

tapering off prednisone at 5mg right now. I felt pretty good until this

morning after taking the metho last night. I feel like this is insanity!

[Guest guest]

- what is Mobic? 40 mg of pred is a lot - I am down to 5 and hope

to get off soon, I am dropping 2.5 per week. Last time I tried this, I got

to 2.5 and the swelling came back, so back up and double the metho. I am

hoping that the metho will work on the swelling this time, but Tuesdays

suck. I guess I am lucky it is only one day per week. Unfortunately the world

doesn't stop on Tuesdays so I can be a slug!!

[Guest guest]

Mobic is the generic name for Meloxicam, which is a killer NSAID--

anti-inflammatory med. It has helped a lot- but not today. My knees are looking

suspiciously like baby pumpkins. Weird.

 

I am sorry that you have bad Tuesdays. At least you don't have multiple bad

days. I really do, but I am hoping that in the long run it will be worth it for

me. One GREAT side effect is that my degenerative disc disease doesn't plague me

as bad as it used to. I figure I am ahead of the game if I have 1 good day a

week.

 

Hang in there!  in SC

- what is Mobic? 40 mg of pred is a lot - I am down to 5 and hope

to get off soon, I am dropping 2.5 per week. Last time I tried this, I got

to 2.5 and the swelling came back, so back up and double the metho. I am

hoping that the metho will work on the swelling this time, but Tuesdays

suck. I guess I am lucky it is only one day per week. Unfortunately the world

doesn't stop on Tuesdays so I can be a slug!!

[Guest guest]

Hi, Chris. Do tell your rheumatologist that you are having a hard time

tolerating methotrexate (MTX).

In order to attempt to prevent permanent damage and to keep to immune

system from becoming even more deranged, people with RA need to be on

one or more disease-modifying antirheumatic drugs (DMARDs). MTX is a

DMARD. It is the still the gold-standard treatment for RA and has been

used for decades.

Most DMARDs work by suppressing the immune system since in RA,

theoretically, the immune system is over-active. In the case of MTX,

the exact mechanism by which it works for RA is yet unknown.

http://www.hopkins-arthritis.org/arthritis-info/rheumatoid-arthritis/rheum_treat\

..html#metho

http://www.rheumatology.org/practice/clinical/patients/medications/methotrexate.\

asp

Not an MD

On Tue, Oct 26, 2010 at 1:13 PM, phyllis crubaugh

<phylliscrubaugh@...> wrote:

> Hi -

>

> Yeah, I too feel like crap after the MTX, but mine is usually 3-4 days worth.

I dread Thursday nights when I take it. Because I know the next few days will

suck. I am just trusting that in the long term, this will help me. I have yet to

get the referral to a Rheumy from the inept staff at my GPs office. It's been 10

days now- no call. I call them, and I get the " I'll let ya know when I know

something' yap. I will be changing GPs. I refuse to be treated this way.

>

> Since I am woefully ignorant about this chemical that I am putting in my body,

I am gonna have to trust the Doc for now. The treatment plan I am on seems in

line with the Gold Standard. Including the MTX. I am on 40 mgs of Prednisone now

as well as Mobic. Hopefully, the Rheumy can explain  to me what the MTX does ,

and why I need it.. Or perhaps , you have a laymans explanation for what the

drug does?

>

> in SC

>

>

>

[Guest guest]

Thank you - but I still have yet to get a Rheumy. I finally did fire my GP

yesterday. I will find a new one on Monday and insist on a referral.

 

My feet seem to be fusing- the joints in the toes are thickening and trying to

lock up. I am so frustrated I can't see straight. I just want to get treated for

this! Everybody and everything I read says treat early/aggressively-- I am

trying! I don't want to lose my feet. Complicating it all with Diabetes and I am

getting worried.

 

Thanks for your note- I appreciate that and ALL that you do educate the masses

in here!

 

Gentle hugs--- in SC

 

Hi, Chris. Do tell your rheumatologist that you are having a hard time

tolerating methotrexate (MTX).

In order to attempt to prevent permanent damage and to keep to immune

system from becoming even more deranged, people with RA need to be on

one or more disease-modifying antirheumatic drugs (DMARDs). MTX is a

DMARD. It is the still the gold-standard treatment for RA and has been

used for decades.

Most DMARDs work by suppressing the immune system since in RA,

theoretically, the immune system is over-active. In the case of MTX,

the exact mechanism by which it works for RA is yet unknown.

http://www.hopkins-arthritis.org

[Guest guest]

You are very welcome, Chris.

I hope you find some good physicians soon.

Not an MD

On Sat, Nov 6, 2010 at 6:29 PM, phyllis crubaugh

<phylliscrubaugh@...> wrote:

> Thank you - but I still have yet to get a Rheumy. I finally did fire my GP

yesterday. I will find a new one on Monday and insist on a referral.

>

> My feet seem to be fusing- the joints in the toes are thickening and trying to

lock up. I am so frustrated I can't see straight. I just want to get treated for

this! Everybody and everything I read says treat early/aggressively-- I am

trying! I don't want to lose my feet. Complicating it all with Diabetes and I am

getting worried.

>

> Thanks for your note- I appreciate that and ALL that you do educate the masses

in here!

>

> Gentle hugs--- in SC