Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 asked: Has anyone tried this treatment? Did it work for you? Dear ~ unfortunately, this did not work for me. Partly because of my IBS and severe gastritis, I often have severe reactions, usually gastrointestinal, when taking some medications. So, with me, it's a guessing game. Some meds will work; some my body will not tolerate. But I was told by the doctor that diagnosed me that this treatment did work for many of her patients. It's worth giving it a try. One way to try this that was recommended quite some time ago on the digest it to buy Mucinex, an over the counter medicine, which is an expectorant. The primary ingredient is Guaifenesin, 600 mg. It's certainly worth a try. Blessings ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Ugh, I have the IBS too... and it also makes some meds hard for me. I have to take metformin, a diabetes med, for my PCOS, and it can make you very sick. So I take Zantac every day now even though I did not have heartburn issues before the metformin, but it at least allows me to take the metformin which I need. Hopefully it will get me through the guaf attempts too. I have an appt. with a holistic doc with gastro expereience and fibro experience, and he apparently will do the guaf treatments among other things. I'm excited to try because I have read some encouuraging things about it. But I'm dreading it too... yet another ride on the merry go round of doctors that so many of us are on. BTW, someone mentioned ribose. I'm not familiar with this, can someone tell me more? Cheers, > > > asked: > > Has anyone tried this treatment? Did it work for you? > > > > Dear ~ unfortunately, this did not work for me. Partly because of my > IBS and severe gastritis, I often have severe reactions, usually > gastrointestinal, when taking some medications. So, with me, it's a guessing game. Some > meds will work; some my body will not tolerate. But I was told by the doctor > that diagnosed me that this treatment did work for many of her patients. It's > worth giving it a try. One way to try this that was recommended quite some > time ago on the digest it to buy Mucinex, an over the counter medicine, which > is an expectorant. The primary ingredient is Guaifenesin, 600 mg. It's > certainly worth a try. > Blessings ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 you are in between a rock and a hard spot. Metformin can increase the pain in fibromyalgia by increasing the amount of lactic acid in the muscles. Has your doctor suggested any other medications or treatments for your polycystic ovarian disorder? Generally the only caution I have seen about D Ribose is that it shouldnt be used by diabetics. But each patient is different and I do know some diabetics have used it and their blood sugar wasnt affected. I guess its soemthing they should talk with their doctors about. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Oh geez, really? Oh my gosh, now that you mention it, my fibro started getting bad and diagnosable even when I started taking the metformin. I have to say, if I find out that is what has made me so miserable I'm going to be pissed. M endo doc said I had to stay on, even during pregnancy... that it will help prevent gestational diabetes, it does help keep my weight down, and it will help me conceive with the PCOS. Oh man, wow, that's really a disturbing idea, but I do thank you for bringing it to my attention. I wonder what would happen if I jsut stopped taking the metformin for a bit. I am supposed to be taking moe of it then I am because I have not been able to deal with the nauseau at all when I take it at night too... God I hope this new doc can fix me. > > you are in between a rock and a hard spot. Metformin can > increase the pain in fibromyalgia by increasing the amount of lactic > acid in the muscles. Has your doctor suggested any other medications > or treatments for your polycystic ovarian disorder? > > Generally the only caution I have seen about D Ribose is that it > shouldnt be used by diabetics. But each patient is different and I do > know some diabetics have used it and their blood sugar wasnt > affected. I guess its soemthing they should talk with their doctors > about. > > deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Oh geez, really? Oh my gosh, now that you mention it, my fibro started getting bad and diagnosable even when I started taking the metformin. I have to say, if I find out that is what has made me so miserable I'm going to be pissed. M endo doc said I had to stay on, even during pregnancy... that it will help prevent gestational diabetes, it does help keep my weight down, and it will help me conceive with the PCOS. Oh man, wow, that's really a disturbing idea, but I do thank you for bringing it to my attention. I wonder what would happen if I jsut stopped taking the metformin for a bit. I am supposed to be taking moe of it then I am because I have not been able to deal with the nauseau at all when I take it at night too... God I hope this new doc can fix me. > > you are in between a rock and a hard spot. Metformin can > increase the pain in fibromyalgia by increasing the amount of lactic > acid in the muscles. Has your doctor suggested any other medications > or treatments for your polycystic ovarian disorder? > > Generally the only caution I have seen about D Ribose is that it > shouldnt be used by diabetics. But each patient is different and I do > know some diabetics have used it and their blood sugar wasnt > affected. I guess its soemthing they should talk with their doctors > about. > > deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 I wouldnt stop taking it until I talked to my doctor. Your risk for diabetes is probably what he is concerned with. Diabetes kills, fibro just makes us want to kill. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 > > I wouldnt stop taking it until I talked to my doctor. Your > risk for diabetes is probably what he is concerned with. Diabetes > kills, fibro just makes us want to kill. deb Yeah, I'm trying to remember that, but if it turns out that is what's causing the pain, I think I'll take my chances. I'm high risk for diabetes because I am overweight and have PCOS. The PCOS may also make it hard to conceive. The metformin combats both of those things, and my old endo doc (I just moved half way across the country so I'm not set up with all new docs yet) felt it was really important for me to be on. But if that turns out to be what's causing the pain, I think I'll go nuts. It's not like there haven't been tons of doctors looking at me constantly, what exactly is there purpose if they don't catch things? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Its just that an endo sees his specialty as being the most important aspect, he treats his diseases. We all know fibromyalgia is not seen as a serious disorder . At worst doctors equate it to being a nuisance in our lives. I used to see a doctor who had me on metformin for my reactive hypoglycemia. He also refused to prescribe any pain meds for fibromyalgia. When I found out about the metformin raising the lactic acid , I decided to find another doctor. My new doctor says I never should have been given the metformin unless I actually had diabetes. So please ask your doctor if there is another drug that doesnt raise the lactic acid levels. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2005 Report Share Posted November 6, 2005 I certainly will and can't thank you enough for mentioning it. I know I should probably do it under a doctor's care, but my flare ups have been so bad lately... so I haven't taken it for 3 days. Who knows so far, I can't say for sue this is why, but I have noticed a significant improvement. I'm afraid I might blow up like a balloon withouut it, but anything to get rid of the pain. I'm so grateful you said something about it, and I will definitely talk to my doc about it soon. Cheers, > > Its just that an endo sees his specialty as being the most important > aspect, he treats his diseases. We all know fibromyalgia is not seen > as a serious disorder . At worst doctors equate it to being a nuisance > in our lives. > > I used to see a doctor who had me on metformin for my reactive > hypoglycemia. He also refused to prescribe any pain meds for > fibromyalgia. When I found out about the metformin raising the lactic > acid , I decided to find another doctor. My new doctor says I never > should have been given the metformin unless I actually had diabetes. > So please ask your doctor if there is another drug that doesnt raise > the lactic acid levels. deb > Quote Link to comment Share on other sites More sharing options...
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