Re: OT - depressed, /Katrina

[Guest guest]

> I have recurring PID's (possibly endo) and some days it causes a

lot of pain

> for me

Katrina~ I have endometriosis... I have tried a lot of different

therapies for it. Lupron injection... It shuts down your reproductive

system for 6 months to " jump start " it.( that gave me about 9 months

pain free) I have had laser surgery to remove scar tissue( that gave

me about 13 months pain free), and most recently I opted to have a

partial hysterectomy. All the therapies worked for a short time. The

partial hysterectomy was last November and I have been pain free

since. The doctor suggested a full hysterectomy, but I will only be

26 y/o in December, I wanted to wait a while longer keep my hormones

intact for sanitys sake. If you need any info on endo, or support let

me know. :)

Amy mom to

Noah 6 Lucas 8 ASD's

[Guest guest]

Amy -

Thanks for letting me know. At this point we are assuming it's Endo because of

the symptoms but I've never had a Lap to see for sure. The pain hasn't been

unbearable for a long time so I'm lucky. While I am uncomfortable a lot - I can

live with that. I am on birth control pills which did seem to help for a long

time --- but recently I've noticed the pain hanging around a little more often

-- again not unbearable...just uncomfortable.

I've been hospitalized on IV Antibiotics twice because of PID's and after that

is when they started thinking I might have Endo.

I'm sure you remember some of the " side effects " including pain during, well,

intimate moments. And sometimes the pain does hit me hard and I have to lay

down or sit down for a while.

It sucks when your body doesn't want to work with you.

Katrina

Re: OT - depressed, /Katrina

> I have recurring PID's (possibly endo) and some days it causes a

lot of pain

> for me

Katrina~ I have endometriosis... I have tried a lot of different

therapies for it. Lupron injection... It shuts down your reproductive

system for 6 months to " jump start " it.( that gave me about 9 months

pain free) I have had laser surgery to remove scar tissue( that gave

me about 13 months pain free), and most recently I opted to have a

partial hysterectomy. All the therapies worked for a short time. The

partial hysterectomy was last November and I have been pain free

since. The doctor suggested a full hysterectomy, but I will only be

26 y/o in December, I wanted to wait a while longer keep my hormones

intact for sanitys sake. If you need any info on endo, or support let

me know. :)

Amy mom to

Noah 6 Lucas 8 ASD's

[Guest guest]

> Amy -

> Thanks for letting me know. At this point we are assuming it's Endo

because of the symptoms but I've never had a Lap to see for sure. The

pain hasn't been unbearable for a long time so I'm lucky. While I am

uncomfortable a lot - I can live with that. I am on birth control

pills which did seem to help for a long time --- but recently I've

noticed the pain hanging around a little more often -- again not

unbearable...just uncomfortable.

> I've been hospitalized on IV Antibiotics twice because of PID's and

after that is when they started thinking I might have Endo.

> I'm sure you remember some of the " side effects " including pain

during, well, intimate moments. And sometimes the pain does hit me

hard and I have to lay down or sit down for a while.

> It sucks when your body doesn't want to work with you.

> Katrina

Katrina~ In May of '99 my pain was so bad I had to pull over my car

because I couldn't drive. I hope your pain stays managable.

Amy mom to

Noah 6 Lucas 8 ASD's

[Guest guest]

I've had endo all my adult life too. NO fun... but natural

childbirth didn't seem all that bad to me after Endo! Anyway, I've had

a laporoscopy for it which is what ended up paving the way for me to get

pregnant with my one and only.... Otherwise I've been successful having

it treated with homeopathy. (pain wise anyway)

Just thought I'd share that FWIW.

~ Karin

Amy wrote:

>

> > I have recurring PID's (possibly endo) and some days it causes a

> lot of pain

> > for me

>

> Katrina~ I have endometriosis... I have tried a lot of different

> therapies for it. Lupron injection... It shuts down your reproductive

> system for 6 months to " jump start " it.( that gave me about 9 months

> pain free) I have had laser surgery to remove scar tissue( that gave

> me about 13 months pain free), and most recently I opted to have a

> partial hysterectomy. All the therapies worked for a short time. The

> partial hysterectomy was last November and I have been pain free

> since. The doctor suggested a full hysterectomy, but I will only be

> 26 y/o in December, I wanted to wait a while longer keep my hormones

> intact for sanitys sake. If you need any info on endo, or support let

> me know. :)

>

>

>

> Amy mom to

> Noah 6 Lucas 8 ASD's

>

>

>

>

>

>

>

>

[Guest guest]

That was something I could have added --- my endo pain at it's worse doesn't

compare to childbirth - it far surpasses it! UGH! Thank God I haven't had it as

badly in a while.

Katrina

Re: Re: OT - depressed, /Katrina

I've had endo all my adult life too. NO fun... but natural

childbirth didn't seem all that bad to me after Endo! Anyway, I've had

a laporoscopy for it which is what ended up paving the way for me to get

pregnant with my one and only.... Otherwise I've been successful having

it treated with homeopathy. (pain wise anyway)

Just thought I'd share that FWIW.

~ Karin

Amy wrote:

>

> > I have recurring PID's (possibly endo) and some days it causes a

> lot of pain

> > for me

>

> Katrina~ I have endometriosis... I have tried a lot of different

> therapies for it. Lupron injection... It shuts down your reproductive

> system for 6 months to " jump start " it.( that gave me about 9 months

> pain free) I have had laser surgery to remove scar tissue( that gave

> me about 13 months pain free), and most recently I opted to have a

> partial hysterectomy. All the therapies worked for a short time. The

> partial hysterectomy was last November and I have been pain free

> since. The doctor suggested a full hysterectomy, but I will only be

> 26 y/o in December, I wanted to wait a while longer keep my hormones

> intact for sanitys sake. If you need any info on endo, or support let

> me know. :)

>

>

>

> Amy mom to

> Noah 6 Lucas 8 ASD's

>

>

>

>

>

>

>

>

[Guest guest]

> I've had endo all my adult life too. NO fun... but natural

> childbirth didn't seem all that bad to me after Endo!

I suffered with endo from 16 - 26. I'd read in books that sometimes it

spontaneously 'cleared up' during and after a pregnancy, like pregnancy was

a cure. I thought that was bullshit. But in my case, pregnancy DID cure

it. And thank god for that. I really empathize with you gals; the kind of

pain involved in that is excrutiating. Sorry the pregnancy 'cure' didn't

work for you. :-(

Jacquie

-who lives in fear of the night that pain comes back again.

[Guest guest]

> What is the pain like in endometriosis?

>

> I'm wondering if what I'm experiencing is this instead of fibroids?

>

> Penny

Penny~

My pain came in waves and felt like early labor pains. It would get

progressivly worse during my cycle. I have a very severe case of

Endo. When I had my partial hysterectomy, the doctor also found

fibroids. The hysterectomy was the best decision I have ever made.

Amy mom to

Noah 6 Lucas 8 Asd;s

[Guest guest]

For me it was really bad cramps that sometimes would just be one long

continuous cramp. (Imagine a really strong labor contraction that just

never goes away) I usually feel it on day 2-4 of my period. I also feel

it in my lower back because I have a slightly retroverted uterus.

One of my ovaries gives me more trouble than the other and when I

ovulate out of that side, the pain gets really bad in that ovary for

about 14 hours.

Pregnancy didn't cure me, but it's not as bad as when I was younger.

Now I'm able to use heating pads, Tylenol P.M. or I just drink enough

wine until I don't care anymore. LOL...

~ Karin

Penny wrote:

> What is the pain like in endometriosis?

>

> I'm wondering if what I'm experiencing is this instead of fibroids?

>

> Penny

[Guest guest]

----- Original Message -----

>

> My pain usually started in the early evening like a small cramp, and built

> and built throughout the evening and into the night until I couldn't do

> anything but kneel on the bed, put a hot bean bag on my pelvis, and then

> lean down til my head touched the mattress and then cry.

>

> Nothing ever helped, although heat did ease it a little tiny bit.

>

> Jacquie

You just described the first day of my cycle every month from the age of 16

until 32. I used to take Davocet and prox together just so I could

stand up and function on just that one day. Thank goodness it didn't come

back after having !

Sue