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and Cris,

Doesn't life just plain old suck sometimes! I never used to use this

phrase, but somehow it seems to encompass lots of emotions that we just need

to vent from time to time!!

I am just so thankful that as a christian that i can give over my burdens

to the Lord and rest in that. Of course being the human flesh that i am i so

often worry anyway, but God I am sure understands all that.

love and prayers tonight for you and Hannah,

Jeanette

>

>Reply-To: ketogenic

>To: <ketogenic >

>Subject: Cris - empathy

>Date: Fri, 14 Jun 2002 13:05:28 +1000

>

>

> ----- Original Message -----

> From: for_my_kids2001

> I guess

> it's better to let loose with people who understand than to keep it

> inside and have it eat a hole in my soul.

>Absolutely Cris, and its great you did share here. Dont feel bad about

>wanting out for a while, there is only so much we can take both physically

>and mentally. I am at breaking point myself right now, with sz' changing in

>type and duration, and tonight Hannah is staying at a new respite house. I

>am grateful for that, as it is a break for us and I know many of you dont

>have such help, but I am so twisted up about how this team of carers (no

>nurses) will manage to deal with Hannah's complex med regime, preparation

>of meds, sz types, breathing problems associated with sz, and if they will

>notice her subtle and very quiet complex partials. Tears on and off all day

>with the stress of getting it all organised.

>Anyway, that's not why I was writing, but rather to share a little of your

>burden, and to say that I do really understand what you are going through.

>I've had similar issues with hospital staff and specialists, and agree that

>you sometimes just want to shake some sense and some caring into them. I

>should have no tongue left from having to bite it frequently in hospital,

>not that I always do now, but I try to keep calm and maybe even civil when

>speaking to these people who just dont listen.

>

>hugs to you

> (Hannah's mum, Australia)

>

>

>

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