Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Rob, Is the purpose of talking to doctors in Oregon to get you listed for a transplant? There are some excellent doctors in SLC. I went to Boschert for a while. I have a friend who goes to Terry Box and really, really likes him. My friend has already had one transplant and is awaiting another. He has recurrent Hep. C. He was very happy with Transplant center in SLC. Their stats are also good. That is where I am planning on going for my transplant when the time comes. What surgery are they considering? Have you tried the Rifampin for itching yet? It has really helped some others in our group. Waht procedures do the Oregon doctors do? If your doctors are the SLC VA can't get you relief, by all means at least have them talk to the doctors in Oregon. Let us know what you decide and exactly what is going on. Take care, Cheryl Berg, Idaho 45Married 25 years, 4 children, 2 grchildrenPSC 01, UC 00, Fibromyalgia, hypothyroid,hiatal hernia, ulcer, gall baldder removed '93disability (retired English teacher) Request for guidance Hi,This is Rob. I am trying to decide whether or not my Doctors shouldcontact other doctors in Oregon. Evidently the way the VA works is theyhave different doctors that do different things. I suffer from my PSCand of course the miserable itching. The Doctors here in Salt Lake saythey would be will to talk to the doctors in Oregon. I just do not knowif I am ready for that. The itching is bad, but is the possibility ofsurgery worth it? I sure nobody know the answer. It is sure difficultfor me to decide what to do. Does anyone have any suggestions.Thanks,Rob PSC 2003 suffering since 2000.Gallbladder removed 2001, Hiatal hernia________________________________________________________________The best thing to hit the internet in years - Juno SpeedBand!Surf the web up to FIVE TIMES FASTER!Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 , As far as I understand it it would be for evaluation for some kind of surgical intervention up to and including a transplant. My problem among others is financial. It would be a real burden on my family to try to get myself to Oregon. That is also why I am unfamiliar with Salt Lake transplant options; I have to deal through the VAMC because I have no money. I wish I could afford to get another opinion and find out if there are other options right here in Salt Lake City. Rob PSC 2003,Gallbladder surgery 2001, psuedocyst on pancreas 2001, Pancreatitus, and itching ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Rob, I think I am the one who responded but that doesn't matter. I have a few suggestions. Since I have been to SLC and am planning on having my transplant done there and still have a doctor there, I am somewhat familiar with what is going on there. But I am not at all familiar with how the VA works. Do they require that you have a transplant done at a VA hospital? I agree that it would be a terrible hardship for you to have to travel to Oregon to have procedures up to and including a transplant. So what I would do is contact one of your Congressman or Senators. Right now it's very popular help veterans. There is a fine facility there in SLC for transplants as well as excellent doctors. Your representatives should be willing to help you stay in state and close to your support group and care givers. If you want the name of the doctors, let me know, they might be willing to get involved in helping you stay in state. If you have no connections, call the Tribune or Deseret Newspapers and talk to one of their reporters, they might be willing to help. I looked up the name of your congressman. Good luck, take charge, and take care. My prayers are with you. Cheryl Berg, Idaho 45Married 25 years, 4 children, 2 grchildrenPSC 01, UC 00, Fibromyalgia, hypothyroid,hiatal hernia, ulcer, gall baldder removed '93disability (retired English teacher) PS, I think that guy is a distant (very distant) relative of mine. I believe he is related to Wallace who was huge in Utah politics decades ago and he was my granmother's cousin. Utah-Congressman NAME: V. Hansen (Republican) 242 Cannon Office Building United States House of Representatives Washington,DC 20515 PHONE: 1- FAX: 1- E-MAIL: none WEB: http://www.house.gov/hansen/ NAME: Jim Matheson (Democrat) 410 Cannon Office Building United States House of Representatives Washington,DC 20515 PHONE: 1- FAX: 1- E-MAIL: http://www.house.gov/writerep/ WEB: http://mathenson.house.gov/ NAME: Cannon (Republican) 118 Cannon Office Building United States House of Representatives Washington,DC 20515 PHONE: 1- FAX: 1- E-MAIL: Cannon Office Building.ut03@... WEB: http://www.house.gov/Cannon Office Building/ Utah-Senators NAME: (Republican) 431 Dirksen Senate Office Building United States Senate Washington,DC 20510 PHONE: 1- FAX: 1- E-MAIL: senator@... WEB: http://www.senate.gov/~bennett/ NAME: Orrin G. Hatch (Republican) 131 Senate Office Building United States Senate Washington,DC 20510 PHONE: 1- FAX: 1- E-MAIL: senator_hatch@... WEB: http://www.house.gov/~hatch/ Re: Request for guidance ,As far as I understand it it would be for evaluation for some kind ofsurgical intervention up to and including a transplant. My problem amongothers is financial. It would be a real burden on my family to try toget myself to Oregon. That is also why I am unfamiliar with Salt Laketransplant options; I have to deal through the VAMC because I have nomoney. I wish I could afford to get another opinion and find out ifthere are other options right here in Salt Lake City. RobPSC 2003,Gallbladder surgery 2001, psuedocyst on pancreas 2001, Pancreatitus, and itching________________________________________________________________The best thing to hit the internet in years - Juno SpeedBand!Surf the web up to FIVE TIMES FASTER!Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 , Senator is the son of Wallace F. late senator from Utah. Wallace F. wrote " Utah we Love Thee " the Utah state song. I will take under consideration the idea of appealling to my congressmen if no else works. The VA is unique in the way the work that is for sure. My health is such that my itching is my big problem at the moment. Nothing seems to touch it at all. My liver seems to be functioning other that the fact that some of levels are not normal. I guess I am in the abyss of time. I just have to wait an see whether I want the surigical intervention or the itching. Yuk, what a wonderful choice. Thanks for the info. sincerely, Rob ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
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