Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hi Terri, It's lovely to hear from you again. I live in London, England. It's quite nice here, although it does tend to rain alot! What's Johannesburg like? I've never been to South Africa before. I had 2 ultrasound scans, 1 MRI and quite a number of blood tests during the testing phase. I also have a colonoscopy once every 3 years, and a hospital appointment and blood test every 3 months. How did you find the ERCP? I was supposed to have it done, but the doctor wasn't happy with me having it so gave me an MRI instead, which worked almost as well. My friends are better with my PSC now than they were earlier this year. It took a long time for my classmates to realise just because I have a disease does not mean it's contagious and they have to avoid me, and even though I feel tired and dizzy at times it does not mean I'm incapable of joining in with their ball games. But my closest friends are very understanding and try not to eat in front of me during colonoscopy prep, etc. How have your friends been? I hope your liver biopsy tomorrow goes well. The only biopsy I've had is colon biopsies (they took ALOT of them during my last colonoscopy). Anyway, I had better go, I have lots of work to do. Good luck with tomorrow. Best Wishes, Alice (15) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2003 Report Share Posted November 27, 2003 Hi alice How did ya find this group and when? Well I love south africa. Yesterday the temp was 38 and today it was raining. Well my friends are very understanding.There just the occasionally few people in my year who think it is all in my head, well they use to, not any more. I had 2 mri about 6 to 7 ultrasounds,gastroscopy,colonoscopy(how yuk is the stuff they made ya drink),liver biopsy going for 2 one tomorow and bone marrow biopsy.3 ct. An ercp is okah only had one was going to have anohter one but my doctor was to scared why didnt your doc want to! Are ya doing exams now. I am missing one tomorow cause I am going in for the liver thing. And i actually missed all my exams at the end of last year cause I had a liver biopsy and a ercp. Which soccer team do you support(english soccer) and well done for the rugby. Hope all is well with you! Speak soon Terri(14) South Africa Re: alice > Hi Terri, > > It's lovely to hear from you again. I live in London, England. > It's quite nice here, although it does tend to rain alot! What's > Johannesburg like? I've never been to South Africa before. I had 2 > ultrasound scans, 1 MRI and quite a number of blood tests during the > testing phase. I also have a colonoscopy once every 3 years, and a > hospital appointment and blood test every 3 months. How did you find > the ERCP? I was supposed to have it done, but the doctor wasn't happy > with me having it so gave me an MRI instead, which worked almost as > well. > > My friends are better with my PSC now than they were earlier this > year. It took a long time for my classmates to realise just because I > have a disease does not mean it's contagious and they have to avoid > me, and even though I feel tired and dizzy at times it does not mean > I'm incapable of joining in with their ball games. But my closest > friends are very understanding and try not to eat in front of me > during colonoscopy prep, etc. How have your friends been? I hope your > liver biopsy tomorrow goes well. The only biopsy I've had is colon > biopsies (they took ALOT of them during my last colonoscopy). Anyway, > I had better go, I have lots of work to do. Good luck with tomorrow. > > Best Wishes, > Alice (15) > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Alice, I have a suggestion for you, but doing it won’t be easy. You will need a lot of courage. Here are several suggestions for you - pick one or all of them. If you are able to - print out your e-mail to the PSC group exactly like you wrote it. Then give it to your parents and ask them to read it. If nothing happens after they read it, give the e-mail to your music teacher and ask her to help you. Tell her you love your parents but they aren’t getting along right now and see if maybe she can help them. If that doesn’t work, then please call your Grandma or an Aunt on the phone and tell her how lonely you are and ask her to come and pick you up and take you home for a visit – just for the day. I promise you your family might be mad at your Mom & Dad but probably aren’t mad at you at all and would love to see you – if only they knew you missed them. If none of these things work, please let us know – we have lots of ways to help you. Barb in Texas - Son Ken (29) UC 91 PSC 99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2004 Report Share Posted January 10, 2004 Hi alice Just wanted to know if ya had a nice holiday,well I just got back from my holiday yesterday.Hope ya are feeling okah.Where did ya go for your holiday,when do ya go back to skool I go back on tuesday(boo) Hope all is well with you! Terri(14) South Africa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2004 Report Share Posted January 27, 2004 hey al how ya doing ? I have not spoken to ya for a while how is school going and how ya feeling? My internet has been a bit bust so I havent been able to chat. How is every thing there whta year you in now? anyway i beta go I have quite a bit of home work and I have to catch up cause I missed today cause I had an ataack. Hope all is well with you! Love terri Quote Link to comment Share on other sites More sharing options...
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