Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 Hi, would you all please tell me if you have had pancreas surgery? I am supposed to have it in the next few months. I would really like to know if anyone has had pancreas surgery, what type, and if there is an improvement in their health. Any information you can give me will be greatly appreciated. I am so scared because my health is bad from other diseases as well as pancreatitis. I also hear so many people tell me not to let the doctor's cut on me. Please help!!! Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 In a message dated 7/26/00 7:29:25 PM Eastern Daylight Time, shirlf3542@... writes: << I also hear so many people tell me not to let the doctor's cut on me. Please help!!! Thank you >> Shirley, I has my Pancreas cut in half in 1986, 14 years ago, I was 44 at the time, once recovered from surgery I had no problems until last year, I don't think the surgery was part of the current problem as it was so long an interval between the surgery and the chronic Panc. So it can be done successfully, best of luck with whatever your path might be Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 In a message dated 7/26/00 9:36:37 PM Eastern Daylight Time, poncho9191@... writes: << Shirley, I has my Pancreas cut in half in 1986, 14 years ago, I was 44 at the time, once recovered from surgery I had no problems until last year, I don't think the surgery was part of the current problem as it was so long an interval between the surgery and the chronic Panc. So it can be done successfully, best of luck with whatever your path might be >> Poncho we are the same age! You said that you had your pancreas cut in half is that a Whipple? Does it have a name? Was recuperation horrific? Do you have divisim? Please let me know and I appreciate what you have already told me. I am so nervous about having surgery. I have had four major surgeries but this one really scares me. Thanks, Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 In a message dated 7/26/00 11:36:35 PM Eastern Daylight Time, VLGreenhill@... writes: << Before the surgery, I only had an attack of pancreatitis every couple of years, but now I have pain and at least one symptom of pancreatitis every day. Of course, the pain may be less one day and more the next. >> Oh Vickie, I am so sorry that happened to you. I know that can easily happen to me also. Vickie what was the name of your surgery. Part of it sounds like the one they plan for me. The part where they slit the pancreas and the bowel and wrap the bowel around the pancreas. The doctors said nothing about removing the tail although other doctor's have said that is what I need done. I have had so many different opinions from different doctors I now don't trust any of them. I have also had many surgeries that they said would help other problems with my body but they just made my condition worse. Please Vickie give me anymore information about your surgery that you can. Like name of surgery, do you have divisim? Recuperation, how was that? Anything. Thank you so much for answering my post. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 > Hi, would you all please tell me if you have had pancreas surgery? I am supposed to have it in the next few months. I would really like to know if anyone has had pancreas surgery, what type, and if there is an improvement in their health. Any information you can give me will be greatly appreciated. Hi Shirley, In 1984, I allowed a surgeon to operate on my pancreas twice. He removed my spleen and a portion of the tail of my pancreas. He filleted my pancreas open and linked the duct with a small piece of small intestine. Before the surgery, I only had an attack of pancreatitis every couple of years, but now I have pain and at least one symptom of pancreatitis every day. Of course, the pain may be less one day and more the next. With what I have gone through after the surgeries, I will never have surgery on my pancreas again. The only way would be, if it was a life and death situation. All I can tell you is my experience, but surgery may be the best thing for you. In the end, you have to make that decision along with the Lord, your family, and your doctor. I know that you will make the right decision for you. I will have you in my prayers and thoughts. I hope you have a peaceful night. Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 In a message dated 7/26/00 11:49:46 PM Eastern Daylight Time, shirlf3542@... writes: << Poncho we are the same age! You said that you had your pancreas cut in half is that a Whipple? Does it have a name? Was recuperation horrific? Do you have divisim? >> Hi Shirley, As you asked for more details, here is a brief history. My surgery in 1986 was a " modified " Whipple. The reason for surgery was an identified cancerous tumor in my small intestine, since the tumor was bleeding and my hemo count was half normal, immediate surgery was chosen. It really began as explority as the Drs. didn't know exactly what they would find. Once viewed this modified Whipple was decided to be the best course of action. This procedure removed a foot of small intestine containing the tumor, shortened the main bile duct from the liver, removed the head of the pancreas it's duct and the main blood supply, part of the stomach and it's main blood supply. The pancreas was connected to the small intestine by a couple of small openings to a handy spot of the bowel. Of course the main objective was to remove the tumor and thus stop the blood loss. Recovery from surgery was about five months before returning to work and really took about a year. Full surgical recovery was totally effective after about 18 months when I had a incisional hernia repaired. The Whipple incision became infected and while it was " cured " it weakened the muscle structure to cause the hernia. I didn't have divisim. The name of my pancreas in but now I call him Chuck for short. Surgery and recovery is never easy, but it's sometimes to effect a " cure " and/or improve one's quality of life. With whatever decision you make, I wish you well, full recovery, and lots of luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2000 Report Share Posted July 27, 2000 Hi Shirl I had the Whipple Procedure done August of 99. I would say overall the surgery has helped me. I still have problems, don't get me wrong. I think a lot of people have problems once they've had surgery. What type of surgery do they plan on doing? There are a lot of different surgeries they can do on the pancreas depending on what is wrong. I actually had a tumor on the head of my pancreas. I don't think I had a lot of options at the time. Just get as much information as you can and ask a LOT of questions. I pray your surgery will improve your health. If I can be of any help please feel free to email anytime. A lot of people in this group have a lot of experience in the medical field and can probably answer a lot of your questions or lead you in the right direction to find them. Best of luck to you. I'll be keeping you in my prayers. Terri L. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 In a message dated 7/28/00 4:19:34 AM Eastern Daylight Time, Tll619@... writes: << What type of surgery do they plan on doing? There are a lot of different surgeries they can do on the >> Hi Terri, Thanks for answering my e-mail. I have divisim and I am supposed to have a puestow surgery. It is different from a regular puestow because I only have the small duct in use in my pancreas. The doctor has a theory that if the duct is stretched larger by using stints then maybe the duct won't close again. I have an appointment with the doctor in Indiana Aug. 4th for a consultation. He might decide to cancel the surgery because he told me that if I could not eat with the stints in the duct then the surgery would not help me. I had to go to the doctor today to get hooked up to tpn because I cannot eat. I have lost eight pounds since the stint process was started. So as you can see I don't know what is going to happen. The whole stint, surgery, and the unknown is making me very depressed and scared. Do pray for me Terri. I am so scared. My family is worried and frightened for me. We are so upset. Thanks again. Shirley Quote Link to comment Share on other sites More sharing options...
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